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CLASSIC From Double Vision To Advocacy: Living With Ataxia
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A rare diagnosis can upend everything—work, family rhythms, even the way you walk to the bathroom at 3 a.m. We open our second year by mapping the real, unpolished path from double vision and clumsy stumbles to a confirmed movement disorder and a life rebuilt through adaptation and advocacy. Kevin shares the winding road from misdiagnosis to clarity, the limits of genetic testing when answers don’t change care, and how symptom-by-symptom treatment through the VA helps even when a cure doesn’t exist.
We talk openly about stigma and the pressure to “sound fine” at work, the…
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