A Rare Collection - Beep, Beep, Beep
ONCE UPON A GENE - EPISODE 161
A Rare Collection - Beep Beep Beep
There's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme.
EPISODE HIGHLIGHTS
Brittany Stineman
Emergency vehicles headed towards us and the sound of the vehicles coming to save my child's life played on repeat. The tears were different this time. They were tears of joy, gratitude and hope. Nash was born with an ultra-rare genetic condition called SMARD1. He was 11 months old when he was…
The skinny
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