Latest / Speak Up For Your Health
Mystery Diagnosis: 20 Years of Not Being Believed
What happens when it takes 20 years to get the right diagnosis — and along the way, doctors (and even your family) don’t always believe you?
In this episode, we explore Eva Minkoff’s delayed diagnosis, the reality of invisible illness, and the emotional toll of not being seen in the healthcare system.
Eva shares her journey to being diagnosed with Ehlers-Danlos syndrome, a connective tissue disorder that causes chronic joint pain, dislocations, and fatigue. Her symptoms began when she was a young ballet dancer. But for nearly two decades, she lived in diagnostic limbo — receiving partial…
The skinny
The skinny isn't ready yet — notes appear once the transcript is processed.