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Steps For Sight 2026 with Kristen MacDonald | The Eye Believe Podcast · The Eye Believe Podcast

0:03
alright everybody welcome back to the Eye Believe Podcast
0:05
I'm Danet and I'm joined with my co host Megan
0:08
and we have Kristen from the KMac Fights Back team
0:12
and she is guys
0:13
she's famous in the steps for sight community
0:15
I'm not even joking um
0:17
so Kristen
0:18
when you were first diagnosed with ocular melanoma
0:20
let's just like get into that part of your story
0:22
what were you feeling um
0:23
and how has that moment of being diagnosed
0:26
shaped the advocate that you are today
0:28
yeah thank you
0:29
and thank you guys for having me
0:30
so I was diagnosed back in 2021
0:33
there wasn't much out there on the internet
0:35
about eye cancer so my first kind of
0:38
you know feelings were fear and confusion
0:40
and just a lot of questions um
0:43
about what was coming next
0:44
so the year of 2021 I was diagnosed in January um
0:48
started with a lot of just surgeries um
0:51
you know different things to just do first
0:54
and then I found community after that
0:57
um I started connecting with A Cure In Sight that fall
1:01
and then watched their Eye Believe conference
1:05
and remotely from um Covid Times
1:09
and we all were remote that year um
1:12
but then they were hinting at this big fundraiser
1:14
coming up in January of 2022
1:16
steps for sight the first annual um
1:19
and so I kind of got plugged in that way I
1:23
I started you know
1:25
just with my own diagnosis and asking questions um
1:30
and then
1:30
I got this opportunity to give back to this community
1:33
that I was a part of um
1:35
I saw such a need for fundraising
1:37
for a cure of a super rare cancer that had no cure
1:41
um and a need for visibility and
1:43
you know social media presence of a call to action and
1:47
um to join this walk with us
1:49
you know it was uh
1:51
I was looking at a long diagnosis
1:53
a long prognosis with this cancer um
1:56
even being no evidence of disease at the time
1:59
um I was just looking ahead at
2:01
you know years to come
2:03
with or without treatment
2:04
and um
2:05
I knew that I needed a team behind me
2:08
Kristen your team
2:09
KMac Fights Back
2:11
continues to be the largest and strongest fundraiser
2:14
what does that support mean to you personally
2:17
you know I have a really huge team behind me that for
2:21
KMac Fights Back each January
2:23
and I'm so grateful for that
2:25
I'm grateful that it consists
2:26
not only of family members
2:27
but friends and co workers
2:29
and people from all walks of life um
2:32
from in state out of state
2:33
people who just want to join
2:35
and be a part of this fundraising
2:37
annual tradition um
2:40
and while the growth
2:42
and the numbers we've been able to raise towards this
2:45
each year have grown
2:46
and I'm so blessed to see that um
2:49
I've I've seen
2:50
you know multiple teams come up underneath each year
2:54
and fight for those spots
2:56
and that's really awesome to see
2:58
you know like
2:58
I think as we um
3:01
you know continue steps for sight
3:03
it's great to see other people challenge
3:05
their family members um
3:07
their co workers
3:08
their friends and family from in state and out of state
3:10
to join this virtual call to action
3:13
it doesn't have to be a walk
3:16
that everyone comes in person for
3:17
but it's a walk that we do throughout the month um
3:20
to honor those in the community
3:22
to honor um
3:24
people like me with this disease and um
3:27
just kind of acknowledge the year that we
3:29
maybe have had the past year and
3:31
you know the challenges that that has brought
3:34
and celebrate the victories along the way um
3:36
that brought us to another New Year
3:38
and another reason to fight again
3:40
oh my goodness
3:41
Kristen I love that
3:42
I feel like I have watched you participate just on like
3:45
with Instagram and in the
3:47
in the steps for sight the charity footprints app
3:50
where we have like
3:50
the scrapbook and like
3:51
the pictures that you guys share
3:53
and your team is probably one of the most active teams
3:55
in terms of kind of the scrapbook aspect
3:58
which is if you think of it as like
3:59
a news feed for the the steps for sight challenge
4:03
those of you guys listening
4:04
um it's a place where you can upload photos
4:06
you can just snap a picture
4:07
of where you're taking your walk
4:08
we see pick you know
4:09
pictures of people like
4:10
doing a walk outside
4:12
some people take their dogs for a walk
4:13
some people are running in the snow
4:15
and they're like
4:15
actually running
4:16
because they're enjoying the running part
4:18
but what have you noticed
4:20
and been kind of the most excited for each year
4:22
as you've done the steps for sight
4:25
kind of initiative alongside your team and
4:27
and what do you wish that you could see some more of
4:29
like from other people participating this year
4:31
yeah thank you
4:32
I really think the social participation is huge
4:35
it's really cool to see
4:37
not only my own team members posting photos
4:39
where they are
4:40
whether that's in the snow or on the treadmill
4:43
but just taking that time to be like
4:45
I'm here I'm walking
4:46
but also to see you know
4:48
the other teams as well like
4:50
I get to see people walking in Florida and in Arizona
4:54
and last year
4:55
I was posting on my honeymoon that I was walking
4:58
and so it it's
4:59
it's fun to you know
5:01
just kind of acknowledge you know
5:03
it doesn't matter where you are
5:05
like we're moving today
5:06
and we're moving towards this number of 7,000 steps
5:09
each day
5:10
in honor of the 7,000 people diagnosed each year
5:13
with ocular melanoma
5:15
and honestly it's
5:16
it's such a great call to action
5:18
because not only is it a good number to reach for
5:20
in our own daily lives
5:22
but it's it's
5:24
you know the start
5:25
of a New Year
5:25
a lot of people already have these fitness goals
5:27
and it's attainable it's
5:29
it's a number that a lot of people feel like
5:31
that they can start and then sometimes outperform
5:34
and get their own satisfaction from that too
5:37
and so I I do
5:38
I get excited to see you know
5:40
the leaderboard and people on my own team uh
5:43
race each other for their their own top spots
5:47
that's always fun to kind of make it your own
5:49
one of the things that you have mentioned in the past
5:52
and that I've seen you do personally
5:53
is that you actually have like
5:54
put a little personalized um
5:56
bio in your steps for sight page
5:58
like that you're sending out to friends and family
6:00
why do you feel like that
6:01
like personalized story
6:03
and for patients you know
6:04
patients or family members of patients
6:06
why do you think it's so important for them
6:07
to add that personalized aspect to
6:10
kind of why they're doing steps for sight
6:12
yeah I think it's a
6:13
important to kind of
6:14
summarize where you're at in your journey
6:16
kind of adding a bio to your own page
6:18
helps other patients kind of see
6:21
you know um
6:22
currently I'm working on my metastatic journey
6:25
I'm in a trial
6:26
is actually where I am right now in my journey
6:28
but then a lot of times
6:30
to people I don't see as often during the year
6:33
it's a good opportunity to give an annual report
6:36
in a summary of maybe
6:38
what the past year has looked like
6:40
and where you're going this year
6:42
um a lot of times
6:43
ocular melanoma patients we might like
6:46
physically present
6:48
just kind of like your everyday person
6:50
when people don't get to see the battles
6:52
that you struggle with underneath or you know
6:55
whether that be mental or physical
6:57
and just kind of those those
6:59
the realness of the disease
7:01
you know like
7:02
even if you're at a stable part of your journey
7:05
it's still very much a journey to you
7:07
and so
7:08
I think it is important to tell others where you're at
7:11
in this space and it gives myself a
7:14
a good reminder
7:15
to reflect back on how far I've come over a year
7:18
and look back on past years too
7:20
to be like okay
7:22
that's where we were then
7:23
and here we are now and um
7:26
this is our goals for moving forward into 2026
8:00
so for patients and families
8:02
who feel isolated after diagnosis
8:05
what would you want them to know about this community
8:07
yeah I think it's important for people to know that
8:09
there is a strong community
8:10
presence for ocular melanoma
8:12
friends and family here at A Cure In Sight
8:15
there are patients who meet every Tuesday night
8:19
over zoom and we connect
8:20
and we are able to talk through where we're at
8:23
in each stage um
8:24
but it's also important for people to see others
8:28
gather teams gather support
8:30
fundraise for a cure
8:31
and see so much movement towards that direction
8:35
for a rare cancer that has such a small
8:38
small platform in the cancer community
8:41
it's really important for people who maybe feel small
8:44
to start somewhere and then watch that growth
8:47
for me my first year was steps first sight
8:50
I I wasn't sure how I felt about asking for money
8:54
and that's kind of how it felt at first
8:56
for fundraising was like I don't know that
8:58
you know after the holidays
8:59
how that feels about asking for money
9:01
but it's really fundraising for a cure
9:04
and then I just saw it grow and um
9:07
exponentially from there it's not
9:09
people wanted something to be a part of with me
9:12
and while I was feeling fine um
9:15
financially in those early years
9:19
people wanted to still give towards something they
9:21
they still wanted to give back
9:23
and show their support in that way
9:25
and so from what I thought was just gonna be immediate
9:28
family members quickly grew to friends
9:30
family and co workers from there
9:32
and I was just so touched
9:33
to see
9:34
so many people wanted to put in the donation money
9:37
to be a part of the team
9:38
or put in their time to walk with me each day
9:41
and that support alone can go such a long way
9:44
I think that's so true
9:45
cause I think people really do wanna help
9:47
and they wanna do something
9:48
but
9:49
they find themselves in that position where they're
9:50
like I just don't know what to do
9:52
and they're afraid they're gonna say the wrong thing
9:53
and do the wrong thing
9:55
so I think giving them something tangible
9:57
you can do this this is what I want
9:59
this is what I need
10:00
you're giving them that opportunity to support you
10:03
without them having to figure out what to do
10:05
on their own I think that's really cool
10:07
yeah I agree
10:08
it's really been unique for steps for sight
10:11
the last few years cause the first year was 2022
10:14
so this is 22 23
10:16
24 25
10:17
this will be our 5th year doing steps for sight
10:19
if I'm doing the math correctly
10:20
yes 5th year
10:21
yes yeah
10:22
5th year
10:23
which is kind of crazy when you think about it
10:24
like looking back just from a diagnosis perspective
10:27
I know Kristen and I you were
10:28
you and I were diagnosed pretty um
10:30
pretty close together in in
10:31
like the I was 2021
10:33
you were 2022
10:34
so like
10:34
to be at that milestone of like okay
10:36
like we are five plus years into our diagnosis
10:39
that's huge and I
10:41
I love what you said about kind of looking back and
10:43
and using steps for sight as a kind of a way to gauge
10:46
like okay I
10:47
I came this far last year
10:48
and now we're starting the year strong
10:50
like we're starting the year fresh
10:51
but I think that one of the other
10:52
really unique things about steps for sight has
10:55
been the opportunity for patients to see
10:57
the real time impact
10:58
that their fundraising efforts have
11:01
so Kristen
11:02
you have been doing steps for sight
11:03
this will be your fifth year participating
11:05
and we are so glad to have you back
11:06
with KMac Fights Back
11:08
and we're so glad to have someone
11:09
who's such a strong advocate in the community
11:11
for the fundraising that we do with steps for sight
11:14
what have you noticed over the last five years
11:16
about just the impact like
11:17
the real world impact that this fundraiser every year
11:20
has had on the ocular melanoma community
11:22
and the research the support that patients receive
11:25
yeah thank you
11:26
well I have definitely seen just so much growth
11:29
from A Cure In Sight alone
11:31
over the last five years
11:32
I was able when I had just started
11:35
I was telling people this is where I'm getting
11:37
you know my information
11:38
every Tuesday night I'm doing these patient calls
11:42
and everyone's telling me
11:44
you know these are the next steps
11:46
that you might need to consider
11:47
and it was very clear
11:49
that A Cure In Sight had their head in the game
11:51
they knew where the research was going
11:52
they knew who the pharma people were to talk to
11:56
and then out of that became
11:58
you know this podcast
11:59
you know
12:00
that this podcast had really grown in popularity
12:04
and information and the doctors
12:05
that you guys have been able to have on this
12:08
you guys have been able to do walks
12:10
nationwide throughout the year
12:13
and then this year alone
12:14
I've seen so much research movement come out
12:18
and a lot of excitement with the patient registry
12:22
and how that's gonna be making waves and
12:26
you know research and data alone
12:29
and it's
12:31
it's very exciting to see people are now able to
12:35
kind of align their doctors appointments
12:37
and their biopsies with tissue sample donations
12:41
and so these are real things
12:42
that are gonna point towards
12:44
how we find a cure for ocular melanoma in the future
12:49
and so these dollars that we're raising
12:51
are really making a huge impact
13:11
so Kristen
13:12
looking ahead to steps for sight this year
13:14
what is your goal for KMac Fights Back
13:16
and for steps for sight in general
13:18
and what do you wanna let everybody know
13:22
so
13:22
going into our fifth annual steps for sight fundraiser
13:25
I'm really excited to write my annual email to my team
13:29
kind of let them know where I'm at in my journey
13:31
um
13:32
have that call for us to come together again this year
13:35
and fundraise for a cure
13:37
I challenge everybody to join um
13:40
and you know
13:42
feel free to join KMac Fights Back
13:44
but also look at who else is joining
13:46
and maybe learn about some of the other patients
13:49
who are also fighting this fight with me
13:51
um I'd love to see
13:52
you know the competition um
13:54
not only on the fundraising dollar side of things
13:56
but on the steps itself it's so
13:58
fun to see people chase each other for those top spots
14:02
and you know
14:03
interact with the scrapbook and
14:05
you know post some social media
14:07
post and share that this fundraiser is going on
14:10
and not only for my team but for others
14:12
and I think that it goes really far
14:14
when
14:14
it's not even people that I know from my own circle
14:17
but they're sharing it with their neighbors
14:19
and they're inviting them to walk with them
14:21
and I think it it starts small
14:24
and it grows from there
14:25
and so that's what I'm excited to see
14:26
is the things I couldn't have planned for this year
14:29
and the people who I don't even know who are involved
14:32
um coming together for this year
14:35
so you send an email out
14:37
kind of prefacing what's coming
14:39
what do you say in your email
14:40
if somebody else wants to get a team together
14:42
and they're like oh
14:42
that's a great idea
14:43
how would they go about putting their email together
14:45
what should they include
14:46
I would say like
14:47
for me when I write my email to my team
14:50
well number one
14:51
it can start like small
14:52
you can kind of do your own quick little social post of
14:55
like hey
14:55
I'm summarizing my ocular melanoma journey
14:59
from this past year
15:00
if you would like to receive this email
15:02
and learn some information about steps for sight
15:05
which I will be doing in January
15:07
please drop your email below
15:08
and you'll be part of that email list
15:10
but for my own email that I type up and sent to my team
15:14
uh it's just really summarizing
15:16
you know
15:16
maybe the different treatments I've had over the year
15:19
for me I had two Hepzatos
15:21
three chemo embolizations
15:23
and now I'm starting a drug trial
15:25
and so it's just kind of like
15:26
a reminder about
15:27
some of those things
15:28
that we've encountered over this year
15:30
and you know
15:31
it is you know
15:32
you learn to use a lot of medical jargon
15:34
and so it's
15:35
it's nice to kind of have that wrap up and reminder of
15:38
you know these sound similar
15:40
but they're different
15:41
and this is where it's leading to now
15:43
and what I'm looking forward to for next year
15:45
and where things are headed
15:47
for patients
15:47
who also want to kind of use that as a summary
15:50
it's it can be as small as
15:52
you know I
15:53
I did my scans in may and again in November
15:57
and things are stable and I'm excited to
16:01
you know keep up with the patient community
16:02
with A Cure In Sight and see what next year brings
16:05
um I'll have scans again next may or however that looks
16:09
and just kind of putting those pointers out there
16:11
for people who might feel like
16:13
maybe even like
16:15
their own diagnosis
16:16
is kind of made it to the background
16:17
it's like this is a real journey for me
16:19
this is what it looked like last year
16:21
and this is what it'll look like for next year
16:23
sounds like a lot of the impact from this email
16:25
that you send out has come from
16:27
you know
16:28
creating a personal connection with your community
16:30
and just inviting them to be part of the journey
16:33
um
16:33
I know it can be really vulnerable as a cancer patient
16:35
to put yourself out there and to tell people like
16:37
what's going on you know
16:39
whether it's that you lost your eye
16:41
because of enucleation
16:42
or that you just have radiation damage
16:44
um maybe you look totally normal on the outside
16:46
and nothing really has changed
16:48
but you just feel all of these changes
16:50
um if you guys are listening
16:51
like I hope
16:52
Kristen's story just illustrates
16:54
just how impactful it is
16:55
to bring your community alongside with you
16:57
and it doesn't have to mean that they get all of the
17:01
the sticky details so to speak from
17:03
you know every single doctor's appointment
17:05
every single harrowing
17:06
hard thing that happened this year
17:08
it just means that they're included
17:10
and I think that sometimes
17:11
for the people who are watching right
17:13
those watchers
17:13
they know that they want to support right
17:15
they want to support it's like
17:16
kind of like what Megan said before
17:18
they want to offer their support
17:19
they want to offer encouragement
17:21
and sometimes they don't really know how to do that
17:23
and on the flip side if we
17:24
as patients
17:25
are keeping things so private that nobody even knows
17:27
when you're going through cancer
17:29
how can we expect someone to rally right
17:30
like so I think that putting yourself out there
17:32
just being a little bit vulnerable
17:33
and just letting people know where you're at
17:35
how far you've come and just celebrating that
17:37
and inviting them to celebrate that with you
17:39
in the New Year is huge
17:41
and also I know it's always hard to ask for help and
17:45
you know especially financially and donations
17:47
but also remember that a lot of people do
17:51
like to do charitable giving every year
17:53
for their own tax benefits
17:55
and so if somebody's already looking
17:57
for somewhere to put their money
17:59
and then their friend pops up
18:01
with a opportunity like this
18:03
they might be like oh
18:04
my gosh that's exactly what I needed
18:05
I I need to give to a charity this year
18:07
for my tax benefit and
18:08
you know I just want to
18:10
I'm gonna go with A Cure In Sight this year
18:12
because it popped up and I was invited to
18:14
so
18:14
don't assume that you are putting people out by asking
18:17
you might actually be doing them a favor
18:19
I've noticed that people are just so generous and just
18:23
um it doesn't matter
18:24
you know if you have a set goal in mind
18:27
let's call it 10,000
18:28
I think people just wanna give to their own generosity
18:31
and their what they
18:32
you know they wanna give towards a cure
18:34
and so that's been the the cool thing to see
18:37
about steps for sight
18:38
is that we're not asking for a set dollar amount
18:41
you know we're asking for you to just join us
18:43
um and so to see each year
18:45
people join and hit some of these crazy goals is
18:48
is awesome
18:49
it's something that I'm proud to be a part of
18:52
and then um
18:54
also just excited to share with other people
18:57
um I
18:57
I love to do weekly updates too
18:59
to kind of show people who are walking with us
19:02
that impact um
19:04
and anyone who joins steps for sight
19:06
you can follow along in the app Charity Footprints
19:09
to see how we are doing each day
19:11
each week
19:12
and I know A Cure In Sight sets up a overall goal
19:15
as well to see if we can um
19:17
hit some of these big numbers
19:19
so it's it's really exciting to be a part of
19:21
to see the the numbers go up each week
19:23
each day and see everyone walk 7,000 steps um
19:28
and make goals for that landmark as well
19:31
Kristen thank you so much for joining us today
19:33
to talk about steps for sight
19:34
and your journey with the KMac Fights Back team
19:36
we're so stoked to see you guys just like
19:39
crushing it on the leaderboard again
19:40
um and also like
19:41
let's just put the challenge out there
19:43
there might be
19:43
there might be somebody who's up and coming
19:45
and they might just
19:45
totally beat you guys out of that top
19:47
number one spot um
19:48
so if that happens like
19:49
I mean I love that you're such a good sport about it
19:51
and yes
19:52
like I know I would love it
19:53
watch out for Kristen watch out for KMAC
19:55
we look forward to seeing you
19:57
participating in steps for sight again
19:58
this year so thanks Kristen
20:00
we'll talk to you later thanks
20:01
thanks for having me
20:02
how can you sign up for steps for sight
20:05
well I'm glad you asked
20:07
we will post the link for registration today
20:09
registration opens today it's December 21st
20:12
so you can register now
20:14
it does not start until January 1st
20:16
and it runs through the entire month till January 31st
20:20
so we have all January to walk and raise money
20:24
and you can sign up starting today
20:25
you can start sending out your email
20:27
recruiting your friends letting everybody know
20:29
and get everybody ready so that January 1st
20:32
everyone is ready to go absolutely
20:34
okay so let's just pretend I'm listening
20:36
and I am listening on January 30th
20:39
and is it too late for me to join
20:42
no it's never too late to join
20:44
even if you just joined for the last day
20:46
that's totally fine if you sign up
20:48
and you have a friend that comes to you and is like
20:50
oh man
20:50
I missed your post it's already the 20th
20:52
the month's almost over I'm so sorry
20:54
tell them sign up anyway it does not matter
20:57
we're happy to have you absolutely well
20:59
and I mean even if you think about it
21:00
like if you have 10 people who sign up
21:02
the last day of January
21:04
and they all walk 7,000 steps at least
21:06
on that next day
21:08
that's 70,000 extra steps that go toward the total of
21:11
how many steps did we walk toward ocular
21:13
or for ocular melanoma this year
21:15
no impact is too small
21:16
so keep that in mind you guys like
21:18
it is never too late to join for steps for sight
21:20
and
21:21
if you have had the opportunity
21:22
to connect with ocular melanoma patients
21:24
maybe start a team together
21:26
bring your communities together as like
21:28
you know the
21:28
you know Arizona Omies group or something like
21:30
to that effect
21:31
but also like
21:32
if you're part of any of the 5Ks that we have
21:35
they're looking for a cure
21:36
5Ks
21:37
send out an email to all of your team members
21:38
who came and walked locally
21:40
send out an email to any of those sponsors
21:42
that you helped find for us
21:43
and just make sure that they know
21:44
that they can participate in this
21:45
because like
21:46
there's
21:47
there's no reason we wouldn't want to walk twice
21:49
and like
21:50
what if instead of walking just for the one day
21:52
like we're walking every day for a month
21:55
um
21:55
how much more impact is that gonna have on our health
21:57
on our mental health
21:59
that's a huge thing for January as well
22:01
I just think
22:01
the ripple effect of all of us joining together
22:03
and just showing that we're on the same team
22:05
showing up together as a community online is huge
22:08
I agree and
22:09
we're gonna have to walk off
22:10
all these holiday desserts
22:11
we're about to eat so everybody
22:14
you can have your Christmas cookies guilt free
22:17
because you know
22:18
you're gonna do steps for sight
22:19
and you're gonna walk all of that off
22:22
haha absolutely
22:23
um okay
22:24
so I guess last question before we close out
22:26
what if I'm somebody who just physically
22:27
I can't walk right now
22:29
yes if you are having mobility issues
22:31
there are other activities you can do
22:33
this is all about community and coming together
22:35
and we want everyone to be involved
22:37
so
22:37
there is something for everybody with steps for sight
22:40
awesome okay
22:41
so couple things you guys need to know
22:43
you need to make sure that you sign up with the link
22:45
today ideally
22:46
and then start sending you know
22:48
sending the word out to your community
22:49
your friends and family
22:50
and download the Charity Footprints app
22:53
make sure that you are aware of how it works
22:55
it's pretty simple and user friendly
22:57
but it's just gonna pull up
22:59
it's gonna pull up an app
23:01
and it'll have a leaderboard at the bottom
23:03
and it'll have an area that you can go in
23:05
and you can log your activities
23:07
um and you'll be able to just go in and
23:09
and manually add an activity
23:10
you can also just link a smartwatch
23:12
whatever it's tracking on your steps
23:14
every day just from everyday
23:15
movement will automatically load into the app
23:17
so that makes it super easy
23:19
but I would encourage you guys
23:20
go ahead and download the app today
23:22
immediately after registering
23:23
just so that you can get familiar with it
23:25
and get excited
23:25
because we have weekly prizes for participants
23:28
um so Megan
23:29
how are the weekly prizes gonna work
23:30
or do the people need to stay tuned
23:33
so we'll be awarding weekly prizes
23:35
for the top activity points
23:37
and top funds raised
23:38
so every step and every share counts
23:40
it's gonna be so exciting
23:42
alright so
23:42
we already know KMac Fights Back
23:44
is the team to beat you guys
23:46
um so spread the word
23:48
let's get out there
23:48
and let's just make sure that we can make a difference
23:50
one step at a time one team at a time
23:52
and one patient at a time
23:54
um if you guys want to sign up
23:55
make sure head to the link in the show notes
23:57
or in the description below this video
23:59
you can sign up you can build your team
24:01
donate today
24:01
and just walk with us starting January 1st, 2026
24:05
toward a cure for ocular melanoma
24:06
we'll see you guys next time
24:08
bye guys