Latest / DA CREW Podcast / delayed but never denied HOST LATONYA MICHELLE 5/23/25

Transcript

delayed but never denied HOST LATONYA MICHELLE 5/23/25 · DA CREW Podcast

• 0:51
  Speaker 1: Welcome to another episode of Delay but Not Denied the podcast.
• 0:56
  Speaker 1: I am your host, Latanya Little John and my co host, Uh,
• 1:00
  Speaker 1: nudge that Scott d d. Are you there, Nudge? Can
• 1:15
  Speaker 1: you can you hear me? Okay, I see you. Can
• 1:26
  Speaker 1: you see me? Can you hear me? Well? I know
• 1:28
  Speaker 1: you can't see me because whatever is happening is happening
• 1:35
  Speaker 1: trying to get my our well our guests, Uh Chad
• 1:42
  Speaker 1: Trivia Ms. Kennedy on and I'm not sure what's going on,
• 1:47
  Speaker 1: but Lord, have mercy left?
• 1:50
  Speaker 2: Father? The devil is a liar.
• 1:53
  Speaker 1: We're trying to work it out.
• 1:55
  Speaker 2: It's gonna work.
• 1:58
  Speaker 1: Before we get started, I would just like to go
• 2:01
  Speaker 1: to the Lord and prayer. Heavenly Father would come to
• 2:05
  Speaker 1: you tonight, asking you to be in the midst of
• 2:07
  Speaker 1: the conversation tonight. Lord, you know what's going on before
• 2:11
  Speaker 1: we do. We ask that you fix any technical difficulties
• 2:17
  Speaker 1: that may be a problem right now. Father God, we
• 2:20
  Speaker 1: ask you to make it all new and bless us
• 2:26
  Speaker 1: as only you can. And Father God, I also ask
• 2:30
  Speaker 1: that you continue to watch over the mckinnedy family tonight
• 2:36
  Speaker 1: during the loss of their loved one. We thank you you,
• 2:43
  Speaker 1: honor we praise your name in Jesus name, ma'am love
• 2:50
  Speaker 1: with God. But yes, ma'am, I have no clue as
• 2:55
  Speaker 1: to what is actually happening with this thing. So what
• 3:02
  Speaker 1: we're gonna do is just keep talking until I figure
• 3:06
  Speaker 1: this thing on out, because absolutely, But anyway, how was
• 3:13
  Speaker 1: your day today?
• 3:17
  Speaker 2: It's pretty good the whole. Now you have asked about how.
• 3:21
  Speaker 1: The story, well, I'm scared to ask them about I'm
• 3:27
  Speaker 1: scared to anybody about that week because my week has
• 3:31
  Speaker 1: been trash.
• 3:33
  Speaker 2: I have.
• 3:34
  Speaker 1: I came back to Georgia and I have to leave
• 3:40
  Speaker 1: back out in the morning to go back to South
• 3:43
  Speaker 1: Carolina so that I can get in contact with my
• 3:46
  Speaker 1: mother's doctors because they're saying her breast cancer came back.
• 3:55
  Speaker 1: She's eighty she's eighty four years old, and they're not
• 4:01
  Speaker 1: going to do chemo or rad anything. Yeah. I'm just
• 4:10
  Speaker 1: like father, I don't know what it is that you're
• 4:15
  Speaker 1: trying to teach me through this, but learn and I
• 4:23
  Speaker 1: learned it in peace, like.
• 4:27
  Speaker 2: Yeah, it's okay, it's all work yourself out. I got
• 4:30
  Speaker 2: a plane. It's around my reason.
• 4:33
  Speaker 1: Sometimes I just wish he let me in on it.
• 4:35
  Speaker 1: But I know that how that's supposed to know.
• 4:39
  Speaker 2: And if he do, can you let me know what
• 4:41
  Speaker 2: you said you so I can get it on Macau.
• 4:43
  Speaker 2: I trust believe he.
• 4:47
  Speaker 1: Talked to you when you're quiet.
• 4:52
  Speaker 3: Day.
• 4:53
  Speaker 4: He talked to you your sleep because.
• 4:55
  Speaker 1: You've been doing when you awake.
• 4:58
  Speaker 2: Look, Becau, won't be quiet.
• 5:01
  Speaker 1: Listen. Well, since we have no plan as to what
• 5:07
  Speaker 1: we were going to talk about, we're going to talk
• 5:09
  Speaker 1: about the surgery that I was supposed to have that
• 5:13
  Speaker 1: I am going to have June twenty fifth. It is
• 5:23
  Speaker 1: called an interstem interstem therapy, and what that does, I'm
• 5:36
  Speaker 1: getting ready to read it. The inner stem system is
• 5:40
  Speaker 1: a surgical implant used to treat bladder and bowel control problems.
• 5:45
  Speaker 1: It works by sending mild electrical pulses to the sacral nerves,
• 5:50
  Speaker 1: which control latter and bowel functions. This therapy can help
• 5:54
  Speaker 1: reduce symptoms like incontinence, urgency, and frequency, and improve quality
• 6:01
  Speaker 1: of life for individuals experiencing these issues. Can I get
• 6:05
  Speaker 1: an a man on the the big quality of life girl, Listen,
• 6:13
  Speaker 1: Glory to God.
• 6:13
  Speaker 2: When I tell you I'm excited for you, I'm excited.
• 6:17
  Speaker 2: I mean I don't have that particular surgery, but if
• 6:20
  Speaker 2: only I probably would have went that route. Listen, I
• 6:22
  Speaker 2: don't know what would have happened, but I'm glad. I'm
• 6:24
  Speaker 2: thank you for the route I did go. But I
• 6:26
  Speaker 2: am so excited for you because listen, you know, you
• 6:29
  Speaker 2: know we both know about this journey. Okay wegg, Yeah,
• 6:34
  Speaker 2: this is not fun. So when I tell you I'm
• 6:37
  Speaker 2: excited for you on that discuss, who door's gonna be
• 6:41
  Speaker 2: opening up? You ain't gonna you ain't gonna know what
• 6:43
  Speaker 2: to do with yourself. I really don't know what to
• 6:45
  Speaker 2: do with myself, for real, just.
• 6:50
  Speaker 1: Saying a lot. I don't know what I'm doing with myself.
• 6:52
  Speaker 2: You really gonna not know what to do with yourself
• 6:54
  Speaker 2: because when I tell you it's gonna give you a
• 6:55
  Speaker 2: whole another change of life, it's gonna you ain't gonna
• 6:59
  Speaker 2: You're gonna be like, what did I do before? Without
• 7:02
  Speaker 2: Why I didn't have this years ago? Because when I
• 7:03
  Speaker 2: tell you, when I had mine, I was like, well,
• 7:07
  Speaker 2: not that particular surgy with my Slingker theater. I was like, father,
• 7:11
  Speaker 2: I could have used this a long time ago. What happened? Yeah,
• 7:18
  Speaker 2: So I'm excited for you, and you know you know
• 7:20
  Speaker 2: I'm gonna be praying, and I'm gonna be here. I'll
• 7:23
  Speaker 2: be back from where I'm going, so I'll be back then.
• 7:27
  Speaker 1: So absolutely I will be in my hometown of Spartanburg
• 7:33
  Speaker 1: when I have the surgery done. They're going to do
• 7:38
  Speaker 1: it in office because it's not that evasive.
• 7:43
  Speaker 2: It's not that invasive. Oh that's even beta. Oh my gosh.
• 7:48
  Speaker 1: What I'm getting first is the lead, and I keep
• 7:53
  Speaker 1: that unless they change, unless they change how they do that.
• 7:58
  Speaker 1: I'll keep that for fourteen days to see if it works.
• 8:02
  Speaker 2: Got you. Oh wow.
• 8:03
  Speaker 1: Then then after the fourteen days, the uh, the implementation
• 8:10
  Speaker 1: of the the part of it.
• 8:12
  Speaker 2: And that's still all impatient, all of it is still
• 8:15
  Speaker 2: outa wow, that's amazing. Look at God. Wow. We had
• 8:23
  Speaker 2: nothing like this, So you know, God give people some.
• 8:25
  Speaker 1: Knowledge, right right, And you know, just having to go
• 8:30
  Speaker 1: back and think about all the different things that I've
• 8:35
  Speaker 1: actually tried, you know, not work. Living like this has been.
• 8:45
  Speaker 2: Hard, yes, ma'am.
• 8:50
  Speaker 1: And you don't realize how hard it is until you
• 8:53
  Speaker 1: become an adult.
• 8:56
  Speaker 2: Yeah.
• 8:56
  Speaker 1: I was frustrating as a kid and a teenager, but
• 9:00
  Speaker 1: I didn't know what it was.
• 9:02
  Speaker 2: So like.
• 9:06
  Speaker 1: It's you know, what is what is wrong with me,
• 9:09
  Speaker 1: but as having more of an understanding of my body
• 9:18
  Speaker 1: and spin a bid for the as a whole, you know,
• 9:24
  Speaker 1: you know, being having a different.
• 9:28
  Speaker 2: But now we're just at the stage of exhaust this is,
• 9:38
  Speaker 2: you know, can we just just a little bit and
• 9:43
  Speaker 2: we have some relief, just a little.
• 9:46
  Speaker 1: Bit, that's all I need, just meg. And people don't understand,
• 9:53
  Speaker 1: you know, what it's like to live with the disability,
• 9:56
  Speaker 1: you know, being born with the They assume that you
• 10:02
  Speaker 1: can do what they can do, and then you can't.
• 10:06
  Speaker 1: They look at you funny, like you got to play. Okay,
• 10:13
  Speaker 1: it's funny that you say the play because somebody, somebody
• 10:16
  Speaker 1: in my family. I can't remember who it was, I
• 10:21
  Speaker 1: was asking about my disability but worded it in a
• 10:26
  Speaker 1: way of its sounding contagious, and I was like, nothing
• 10:33
  Speaker 1: I got going on, you can catch catch you you fine?
• 10:40
  Speaker 1: You fine, I'm fine, It's gonna be fine.
• 10:43
  Speaker 2: Be please. You know, if I could give it to somebody,
• 10:46
  Speaker 2: people would find way to be.
• 10:48
  Speaker 1: Honest, I wouldn't even want to give it to anybody
• 10:50
  Speaker 1: simply because.
• 10:53
  Speaker 2: Picking was just much.
• 10:54
  Speaker 1: Yeah, I mean, out of everything I deal with, you know,
• 11:00
  Speaker 1: the spin is I would rather deal with the hydro
• 11:03
  Speaker 1: syphilis than the spina biffita. Like the headaches, they hurt,
• 11:09
  Speaker 1: they do, no hurt. But the spina biff of that
• 11:15
  Speaker 1: that's different. That that that's embarrassing.
• 11:19
  Speaker 2: That's a whole nother ball of whack, is what it is.
• 11:23
  Speaker 1: Yeah, m hm m h. But have you tried anything
• 11:32
  Speaker 1: that that well, nothing corrects it. Let me say that
• 11:36
  Speaker 1: because there's no correction. M you got it. You got it.
• 11:43
  Speaker 1: They just come up with ways to make it where
• 11:49
  Speaker 1: you can live with it a little better.
• 11:52
  Speaker 2: M h.
• 11:54
  Speaker 1: How many things have you tried before you found that
• 11:57
  Speaker 1: right thing that worked.
• 11:59
  Speaker 2: The funny part is I had never really tried a
• 12:02
  Speaker 2: lot of stuff growing up. My mom just automatically assumed
• 12:06
  Speaker 2: that I just needed to cast and I would be okay. Well,
• 12:12
  Speaker 2: didn't serve a purpose because why because I was already
• 12:17
  Speaker 2: done by the time I want to go do that,
• 12:20
  Speaker 2: So that weren't gonna help at all. So they tried.
• 12:23
  Speaker 2: They tried to put me on a pill. I think
• 12:26
  Speaker 2: they had, like the pill that's supposed to kind of
• 12:29
  Speaker 2: lock you up or whatever until you your That didn't work.
• 12:32
  Speaker 2: That didn't work for me. I ain't gonna deal with that.
• 12:35
  Speaker 1: I'm currently taking probably that same pill.
• 12:39
  Speaker 2: Yeah, and they.
• 12:40
  Speaker 1: Told me to conue to take it up until my surgery.
• 12:44
  Speaker 2: I feel And because finan bsita is like a snowflake,
• 12:47
  Speaker 2: everybody's different, so it's probably it's probably somewhat gonna help you.
• 12:51
  Speaker 2: That's why they were telling you to take it. For me.
• 12:53
  Speaker 2: It didn't work because why because when I found out
• 12:56
  Speaker 2: at thirty plus years old, my thing was already hanging.
• 13:01
  Speaker 2: My eureka was already hanging, so my bladder wasn't holding
• 13:05
  Speaker 2: anything anyway. So no matter what I did, it still
• 13:09
  Speaker 2: wasn't gonna work because why did you still going in
• 13:11
  Speaker 2: six sacks? So that's what they had to go do
• 13:14
  Speaker 2: and is fix it. They had to lift it. It's
• 13:16
  Speaker 2: sort of like, uh, they say, when a pregnant woman
• 13:19
  Speaker 2: has you know, has a lot of kids, just like
• 13:22
  Speaker 2: my it just kind of like hangs down after a while.
• 13:25
  Speaker 1: You know what I'm saying.
• 13:26
  Speaker 2: I have a leakage issues. And that's what I had
• 13:28
  Speaker 2: my whole life. So I didn't have no kids. It
• 13:31
  Speaker 2: just the way I was going with it. And so
• 13:33
  Speaker 2: when I actually got with the eurrogs that actually found
• 13:36
  Speaker 2: out what was happening, I was like, are you arian?
• 13:40
  Speaker 2: He was like, yeah, we was going and lift it
• 13:43
  Speaker 2: up and then you'd be fine. I was like, what,
• 13:46
  Speaker 2: thirty plus years old, Okay, come on. So the first
• 13:50
  Speaker 2: time that he did the surgery, and I probably would
• 13:54
  Speaker 2: say maybe a week later, I noticed a huge different.
• 13:57
  Speaker 2: I know, it's a huge difference. When I went and
• 13:59
  Speaker 2: saw that man for the follow up, I hugged that
• 14:01
  Speaker 2: man because I think you have changed my life completely completely. Yeah,
• 14:07
  Speaker 2: but that's the only thing I've had done is called
• 14:09
  Speaker 2: that you just slam. But other than that, I've never
• 14:12
  Speaker 2: had anything else done because my mom just didn't realize
• 14:15
  Speaker 2: that's what my issue was, and I didn't have a
• 14:17
  Speaker 2: urologist that to figure that out.
• 14:21
  Speaker 1: So yeah, I wasn't offered anything to begin with. So
• 14:29
  Speaker 1: you know, once it started to become a problem, they
• 14:33
  Speaker 1: put me on pills, and the first it was that
• 14:37
  Speaker 1: they put me on didn't work. So now they have
• 14:40
  Speaker 1: something else. It works for the most part, but not.
• 14:47
  Speaker 4: Great.
• 14:48
  Speaker 1: And so I'm assuming that's why they want me to
• 14:51
  Speaker 1: keep taking it up until I have the surgery, and
• 14:55
  Speaker 1: possibly I guess, I don't know, but.
• 15:00
  Speaker 2: It's try to just preparing your body for it. That's
• 15:02
  Speaker 2: probably why they tell you to keep taking it. It's
• 15:04
  Speaker 2: just preparing for the procedures so your body can get
• 15:08
  Speaker 2: kind of used to what it's supposed to probably do after.
• 15:11
  Speaker 1: You know, I'm hoping that, I'm hoping that it works
• 15:15
  Speaker 1: because the next step is botox and botox to the bladder.
• 15:29
  Speaker 2: Mm hmm.
• 15:30
  Speaker 1: Thirty three sticks mm hmm, and then they do it
• 15:35
  Speaker 1: twice a year.
• 15:37
  Speaker 2: I'm not I'm not gon we're gonna need this to work,
• 15:41
  Speaker 2: and the name of Jesus, but it's no need for
• 15:43
  Speaker 2: you to I mean, I wouldn't want you to keep
• 15:45
  Speaker 2: going through that type of thing, you know. I mean,
• 15:47
  Speaker 2: we want some relief, we want some help, we want
• 15:50
  Speaker 2: to be able to live normal lives. But you know,
• 15:55
  Speaker 2: it's just that's a lot. That's a lot to have
• 15:57
  Speaker 2: to go through. Do your boy for one, and then
• 16:01
  Speaker 2: for you, that's that's emotional, that's very emotional stress. So
• 16:05
  Speaker 2: to see you know what I mean.
• 16:06
  Speaker 1: So and it does a lot self esteem mm hmmm.
• 16:12
  Speaker 1: Because you as far as relationships go, whether it's ships
• 16:20
  Speaker 1: or trying to date or anything, just trying to find
• 16:26
  Speaker 1: a way to talk about it without them either feeling
• 16:31
  Speaker 1: sorry for you or without them feeling.
• 16:35
  Speaker 2: Like, you know, they don't know what to say.
• 16:40
  Speaker 4: They don't they can't feel with it or you know,
• 16:44
  Speaker 4: what have you.
• 16:46
  Speaker 2: And that's the part that the killing me with people
• 16:48
  Speaker 2: is that people don't really actually realize that, Okay, yeah
• 16:52
  Speaker 2: we have those issues, and yeah we have to wear
• 16:54
  Speaker 2: certain things. Da da da da, But as we all
• 16:58
  Speaker 2: get older, that's going to happen. Yeah, they don't have
• 17:02
  Speaker 2: people in that's at homes wearing them for nothing. They
• 17:05
  Speaker 2: got old, They couldn't. They can't go by and tell
• 17:07
  Speaker 2: them it's what we just was born with. The clock
• 17:13
  Speaker 2: arreay on us.
• 17:14
  Speaker 1: And the thing, the thing that's aggravating me the most
• 17:18
  Speaker 1: about a lot of it now is we have women
• 17:23
  Speaker 1: that will go and buy those for their monthly instead
• 17:28
  Speaker 1: of you know what they're regularly used to.
• 17:36
  Speaker 2: So I so then we went out on the shelf
• 17:39
  Speaker 2: because y'all invoted for yourself and for you, right, they
• 17:47
  Speaker 2: got they got big bick lining pads that you could use.
• 17:50
  Speaker 2: I mean, if you that have that much of an issue,
• 17:53
  Speaker 2: why use what we propably need? You can get a
• 17:55
  Speaker 2: bigger pad, right.
• 17:58
  Speaker 1: But then, you know, I do understand some people that
• 18:01
  Speaker 1: you know, lead real bad, you know with their monthly
• 18:07
  Speaker 1: or whatever, because I went through that too. I had metriosis,
• 18:12
  Speaker 1: which made cycle come on and stay on m hm,
• 18:17
  Speaker 1: and so it was a lot, It was a lot.
• 18:26
  Speaker 1: But I just feel like, you know, there there's other options.
• 18:31
  Speaker 1: There should be other options for them as far as
• 18:35
  Speaker 1: you know what they can use to protect their their set,
• 18:39
  Speaker 1: their clothing, because that's basically all bulls down to, Yeah,
• 18:45
  Speaker 1: trying to keep your close together, because that's what we're
• 18:49
  Speaker 1: gonna do, right, because not only do we have to
• 18:54
  Speaker 1: deal with flow, we got everything else going on to
• 19:01
  Speaker 1: I just feel like it's not fair to go in
• 19:04
  Speaker 1: the store looking for what you're looking for and you
• 19:06
  Speaker 1: can't find it because somebody else done bought it and
• 19:09
  Speaker 1: they use it for the most craziest reasons. Like I
• 19:15
  Speaker 1: heard a lady say that she buys them and she
• 19:19
  Speaker 1: wears them on road trips when she takes along road
• 19:22
  Speaker 1: trips so that she doesn't have to stop and oh, okay, yeah,
• 19:27
  Speaker 1: I'm like, now, if God put you in a position
• 19:31
  Speaker 1: where you had to wear that all the time.
• 19:33
  Speaker 2: You wouldn't want to hm hm hmmm. And all you
• 19:37
  Speaker 2: doing is yourself So you want to say the eighty
• 19:40
  Speaker 2: six hour drive somewhere right, and all you doing is
• 19:43
  Speaker 2: messing your own slide up, man, because you're probably gonna
• 19:45
  Speaker 2: have a UCI buys time you get to you because
• 19:48
  Speaker 2: you're holding it. Absolutely why right, Wow, that is that
• 19:55
  Speaker 2: is crazy. I would have looked at her and been like, yeah.
• 20:00
  Speaker 1: It's a lot, it's a lot. And I know that
• 20:05
  Speaker 1: they don't realize stuff, but I feel like they should
• 20:09
  Speaker 1: be educated on certain things like that because you know,
• 20:15
  Speaker 1: not not everybody can you know, do anything with a
• 20:22
  Speaker 1: tampa or whatever. So you know a tampa everybody, and
• 20:30
  Speaker 1: you know, for me, I feel like, if you know
• 20:33
  Speaker 1: that you can't use a tampa, there is no point
• 20:36
  Speaker 1: in buying them because you're preventing somebody who can benefit
• 20:41
  Speaker 1: from from actually you.
• 20:43
  Speaker 2: Know mm hm exactly. Yeah, you're right.
• 20:47
  Speaker 1: And so I feel the same way about the briefs
• 20:54
  Speaker 1: and things like that. I think when in general, we
• 21:01
  Speaker 1: don't we don't have a soft spot for each other.
• 21:08
  Speaker 4: As as.
• 21:13
  Speaker 1: We're not understanding m you know, for the most part,
• 21:20
  Speaker 1: a lot of people would assume that, you know, I
• 21:24
  Speaker 1: wake up every morning, I get my days started, that
• 21:28
  Speaker 1: I can do the same thing that they can do.
• 21:31
  Speaker 1: Some of it I might be able to, but I
• 21:34
  Speaker 1: have to do it in.
• 21:35
  Speaker 4: A different way.
• 21:37
  Speaker 1: And then I just cannot do. And that part of
• 21:42
  Speaker 1: it trying to get understanding as far as what I'm
• 21:47
  Speaker 1: not able to do, and you know, getting people to
• 21:50
  Speaker 1: understand that it's not me making an excuse, that it's
• 21:55
  Speaker 1: real that I cannot do.
• 22:01
  Speaker 2: You know, I just.
• 22:02
  Speaker 1: Wish that people in general would soften their hearts a
• 22:07
  Speaker 1: little bit, and yeah, you know, just be a little
• 22:12
  Speaker 1: more kind, Like, don't people choose the people you want
• 22:16
  Speaker 1: to be kind? To be kind to everybody because you
• 22:19
  Speaker 1: want everybody to be kind to you.
• 22:21
  Speaker 2: You know. Yeah, but you know what the interesting part
• 22:24
  Speaker 2: is about this if God has given you a platform
• 22:28
  Speaker 2: so people don't people don't know what they don't know.
• 22:31
  Speaker 2: So you are being used to teach them what they
• 22:35
  Speaker 2: don't know because some of them just don't know. They
• 22:38
  Speaker 2: just they can't tell. They're not trying to learn it.
• 22:41
  Speaker 2: I give anything get up in the morning and not
• 22:43
  Speaker 2: have to do what I gotta do. I can just
• 22:45
  Speaker 2: flop myself down and going by my day. Yet NA
• 22:47
  Speaker 2: think of that.
• 22:50
  Speaker 1: And I told you, I told you when I spent
• 22:53
  Speaker 1: time with my cousin at her mom's house, the dog
• 22:58
  Speaker 1: has spinding the bit for them.
• 23:00
  Speaker 2: Yeah, I.
• 23:03
  Speaker 1: Love that, Like I'm scared of peoples. I swept on everything.
• 23:09
  Speaker 2: I'm I'm I'm a friend.
• 23:12
  Speaker 1: But when I tell you that particular dog and she's
• 23:15
  Speaker 1: fourteen years old, she her name is Casper.
• 23:20
  Speaker 4: She's all she's all.
• 23:22
  Speaker 1: White, and she's deaf on top of having spina biffity,
• 23:28
  Speaker 1: but she can see and you know, she can move,
• 23:33
  Speaker 1: but she can't move like other dogs. And when the
• 23:39
  Speaker 1: lady that owns the dog told me what you know
• 23:42
  Speaker 1: the dog had going on, I was like, oh my god,
• 23:44
  Speaker 1: I'm in love, Like you don't want this dog? Let
• 23:49
  Speaker 1: me have a yeah, because you know she she's sweet,
• 23:56
  Speaker 1: Like she laid beside me the entire time that I
• 23:59
  Speaker 1: was there, and when she felt like it was time
• 24:03
  Speaker 1: for me to go to bed, she come and like
• 24:06
  Speaker 1: because she she's deaf, her bark is different, so she
• 24:11
  Speaker 1: and make noise and like take her head and nudge
• 24:15
  Speaker 1: my legs, like get up.
• 24:21
  Speaker 4: Lady right like you you holding a little or whatever?
• 24:26
  Speaker 1: You know that being said spine, A bit of the
• 24:31
  Speaker 1: what I found out about it is that you don't
• 24:34
  Speaker 1: have to always be born with it. It can have yeah,
• 24:40
  Speaker 1: And that was crazy because it was like how but
• 24:46
  Speaker 1: they explained.
• 24:46
  Speaker 4: To you how you can.
• 24:50
  Speaker 1: There's certain things that you can do to the spine
• 24:52
  Speaker 1: and the cerebellum, the connection between the two that can
• 24:59
  Speaker 1: cau was it like there's people that are actually walking
• 25:02
  Speaker 1: around with spina biff of the today and don't know it.
• 25:07
  Speaker 1: It would take a car accident or something like that.
• 25:12
  Speaker 1: Because it's your back, they can't necessarily dictate where it's
• 25:16
  Speaker 1: coming from. That's why, Uh, you know a lot of
• 25:19
  Speaker 1: people go to these chiropractice and stuff and getting their
• 25:23
  Speaker 1: backs and stuff pops. I was the spina biffita. We
• 25:27
  Speaker 1: can't do that, so I've never I don't. Yeah, I
• 25:33
  Speaker 1: would never imagine on to somebody trying to get my
• 25:38
  Speaker 1: bones popped and they pop something and that that I
• 25:42
  Speaker 1: need and I'm messed up for a minute. But yeah,
• 25:53
  Speaker 1: I I'm excited about this, this surgery. I've ever been
• 26:01
  Speaker 1: excited about going to sleep, but especially not when they
• 26:07
  Speaker 1: have to put you under. Yeah, because it's not invasive
• 26:15
  Speaker 1: or whatever. They they said I should be back on
• 26:19
  Speaker 1: my feet within a couple of days. They didn't say days,
• 26:24
  Speaker 1: so that Yeah, I'm excited. I'm excited.
• 26:31
  Speaker 2: I'm excited. I can't wait for me and tell me
• 26:33
  Speaker 2: it's done.
• 26:35
  Speaker 1: Because nobody understands what we deal with. But if I
• 26:42
  Speaker 1: call you girl, guess what you are?
• 26:46
  Speaker 4: We have right?
• 26:49
  Speaker 1: They would be like, really, that's what you choose to
• 26:52
  Speaker 1: talk about.
• 26:53
  Speaker 2: But that's all life and the thing about it. That's
• 26:58
  Speaker 2: what I find funny about the dog and you and
• 27:01
  Speaker 2: the dog, because that's like humans. When I first actually
• 27:05
  Speaker 2: met people on social media that has spinas, I was
• 27:09
  Speaker 2: in owe why because I'm like, oh, this is my tribe,
• 27:12
  Speaker 2: you know, I say, because I've never had I have
• 27:15
  Speaker 2: a brother with spina baseho, but he was giving up
• 27:16
  Speaker 2: for adoption, so we don't really we connect, but we
• 27:18
  Speaker 2: don't connect right. To actually meet someone like you, says
• 27:24
  Speaker 2: and just be able to chop it up about just
• 27:27
  Speaker 2: anything and not feel uncomfortable, it's a blessing because you
• 27:31
  Speaker 2: can't talk to everybody about what we do because they
• 27:35
  Speaker 2: gonna look like, well, I'm gonna talk about that? Or
• 27:37
  Speaker 2: why do you guys talk about that? So that's what
• 27:39
  Speaker 2: I'm dealing with.
• 27:41
  Speaker 4: I feel like.
• 27:44
  Speaker 1: I'm a little more open now about it because look
• 27:51
  Speaker 1: at me. I'm sitting here on a podcast talking about
• 27:54
  Speaker 1: spina biffity, and that's not something that I would normally
• 27:58
  Speaker 1: do under any other circumstances. However, I do believe that
• 28:04
  Speaker 1: God chose this path for me to raise awareness because
• 28:11
  Speaker 1: people don't know what it is. And you can't be
• 28:14
  Speaker 1: mad if you know, people don't know because they you know,
• 28:18
  Speaker 1: they judge what they don't understand. And so I feel
• 28:21
  Speaker 1: like I'm being used to teach h what it is.
• 28:27
  Speaker 1: And I mean, the awareness month is October, just like
• 28:32
  Speaker 1: breast cancer awareness, just like suicide awareness and sexual assault awareness,
• 28:42
  Speaker 1: all of those things take place in October. So spin
• 28:45
  Speaker 1: of Spina Biffita really really does take the back seat
• 28:50
  Speaker 1: to a lot of stuff. And I try to get
• 28:55
  Speaker 1: everybody involved, you know, as far as my family, you know,
• 29:00
  Speaker 1: and and social media. I asked people to wear something
• 29:05
  Speaker 1: yellow or wear something for how and post a picture
• 29:10
  Speaker 1: and tag me and as their way of you know,
• 29:14
  Speaker 1: showing support, showing love. So Hi, Hi, thank y'all for
• 29:27
  Speaker 1: joining us tonight. We're just chopping it up talking about
• 29:32
  Speaker 1: birth defects. And I'm sorry that y'all can't see me because.
• 29:38
  Speaker 4: My camera is.
• 29:42
  Speaker 2: You know. Yeah, thank you.
• 29:49
  Speaker 4: Yeah, she's a crier.
• 29:50
  Speaker 1: She might break and I might break down and cry too, So.
• 29:55
  Speaker 2: Yeah that both you know, we both.
• 30:02
  Speaker 1: Right, I mean, I'm on a real emotional roller coaster today.
• 30:09
  Speaker 2: Right, you're making it through. You don't need You're done.
• 30:13
  Speaker 1: It's hard. And then that's another thing, being born with
• 30:17
  Speaker 1: a disability, having a parent that's elderly, that has breast
• 30:24
  Speaker 1: cancer and what is it dementia? H So being an
• 30:36
  Speaker 1: only child, having to deal with not only what I
• 30:41
  Speaker 1: deal with, but what mom deals with, and you know,
• 30:45
  Speaker 1: trying to navigate from Georgia to South Carolina to North
• 30:49
  Speaker 1: Carolina to make sure she's good. And because she's stubborn
• 30:54
  Speaker 1: as all get out, like she We've been trying to
• 30:56
  Speaker 1: get that lady to move and she's like, like, well,
• 31:00
  Speaker 1: what I'm gonna do with my furniture?
• 31:04
  Speaker 4: Sell it, maybe give it away something.
• 31:10
  Speaker 1: But and I mean, I understand where she's coming from.
• 31:14
  Speaker 1: You spend a lifetime working, trying to be in a
• 31:19
  Speaker 1: place where you can enjoy the fruits in your labor
• 31:22
  Speaker 1: and stuff like that.
• 31:24
  Speaker 2: That lady, Uh, but you know what Gods don't. God
• 31:30
  Speaker 2: gives you the strength that you need to keep it moving.
• 31:32
  Speaker 2: And you know you got mean you need to vent
• 31:34
  Speaker 2: call or yell or girl, we got to ride the
• 31:37
  Speaker 2: zack Troy, send the phone. You know, I'm still on
• 31:39
  Speaker 2: the phone with you. Get you there, you.
• 31:44
  Speaker 1: Three hour drive.
• 31:45
  Speaker 2: Listen. If I'm gonna be your sister, I'm gonna be
• 31:48
  Speaker 2: your sister. If I'm gonna be that person, I'm gonna
• 31:50
  Speaker 2: be that person because I know that she was on
• 31:52
  Speaker 2: the other foot, you would do the thing.
• 31:54
  Speaker 1: Absolutely.
• 31:55
  Speaker 2: I just know that. I just know that what you
• 31:56
  Speaker 2: would do. So that's what we do. So during this time,
• 32:00
  Speaker 2: I got you. Guys, got you, and you're stronger than
• 32:03
  Speaker 2: you think. Sure, I don't.
• 32:07
  Speaker 1: I don't want to be.
• 32:10
  Speaker 2: I don't want to be.
• 32:11
  Speaker 1: I want to up in the field position and lay
• 32:14
  Speaker 1: in the flow and cry.
• 32:17
  Speaker 2: After like a week, can I just do that? And
• 32:18
  Speaker 2: the father's like, I'm gonna need you to get up,
• 32:20
  Speaker 2: and we've got stuff to do. Why are we doing that?
• 32:22
  Speaker 1: We're gonna let me do that because I enjoyed that
• 32:25
  Speaker 1: just through much.
• 32:28
  Speaker 4: Because I don't take.
• 32:28
  Speaker 1: Naps, I take sleeps. Yeah.
• 32:32
  Speaker 2: When my father said, now, girl, listen.
• 32:37
  Speaker 1: Leave me alone for two three hours, two three hours,
• 32:41
  Speaker 1: leave her alone, I'm saying, I got you.
• 32:45
  Speaker 2: It's gonna it's gonna be okay. God's got a plan
• 32:48
  Speaker 2: and he's giving you somewhat of an outlet to be
• 32:52
  Speaker 2: able to talk here. You know what I'm saying. This
• 32:54
  Speaker 2: is your platform, this is your outlet. You know, if
• 32:57
  Speaker 2: you ever need me to come home with chop chopping up,
• 32:59
  Speaker 2: you you gotta get it out. You gotta let it
• 33:02
  Speaker 2: out some kind of way, because if you hold it in,
• 33:04
  Speaker 2: you're gonna be crazy. And we don't need that.
• 33:07
  Speaker 1: Yeah, I got depending on me, even though, like right
• 33:12
  Speaker 1: this very moment, I just feel like the world is
• 33:17
  Speaker 1: crumbling up under me. But it's not, and I know
• 33:22
  Speaker 1: it's not. This is just one of the things that
• 33:26
  Speaker 1: I have to go through to get through.
• 33:34
  Speaker 2: And you got a father you can lean on. You're
• 33:36
  Speaker 2: just waiting.
• 33:37
  Speaker 1: I'm trying to do it with my head up and
• 33:40
  Speaker 1: my chest out, just trying.
• 33:42
  Speaker 2: To And you ain't gotta always have it out all
• 33:44
  Speaker 2: the time. You ain't gotta have your head and chest.
• 33:47
  Speaker 2: It's okay to not be okay some baby, because this
• 33:50
  Speaker 2: is a lot. You got your own health and your
• 33:52
  Speaker 2: mama help. That's a lot, beauty, and your only child.
• 33:56
  Speaker 2: That's a lot.
• 33:57
  Speaker 4: Yeah, that's a lot.
• 33:58
  Speaker 2: So it's okay to not be okay, But okay, be
• 34:02
  Speaker 2: not okay for a little while and then be like, okay, father,
• 34:05
  Speaker 2: what we're doing now.
• 34:08
  Speaker 1: And that's where that's where Trevita comes in at because
• 34:13
  Speaker 1: she'll give me my fifteen minutes to cut up, cry,
• 34:17
  Speaker 1: show out whatever I need to do, and then, in
• 34:22
  Speaker 1: only Trevida fashion, you're done, You finish, You get it
• 34:28
  Speaker 1: all over, you get it all out. But you know,
• 34:32
  Speaker 1: I'm grateful for both of y'all.
• 34:35
  Speaker 2: You got to have that person behind you because you're not.
• 34:38
  Speaker 2: You may feel alone, but you're not alone. I mean,
• 34:41
  Speaker 2: we always feel alone, but God gives us the people
• 34:44
  Speaker 2: we need in our lives. And absolutely, you know we
• 34:46
  Speaker 2: got you. You know we got you. You may not
• 34:48
  Speaker 2: can be there physically because God knows, you know, if
• 34:50
  Speaker 2: I had a car, I'll be there with physically every
• 34:52
  Speaker 2: time you came.
• 34:53
  Speaker 1: So it's taking everything I got, not the dry to
• 34:56
  Speaker 1: Virginia because I am not that great yet, but it's coming.
• 35:01
  Speaker 2: I know. It is girl like.
• 35:05
  Speaker 1: Just like smirk that got me here. Yeah my car
• 35:10
  Speaker 1: is blue, so it's smirked yea.
• 35:13
  Speaker 2: But yeah, it's gonna be okay, But it's gonna be
• 35:17
  Speaker 2: all right. We got you. Your whole crew got you,
• 35:21
  Speaker 2: Miss Angeler. Everybody got you. We got to be here
• 35:23
  Speaker 2: for you, so you know that. But feeling alone. I
• 35:28
  Speaker 2: understand that. I mean, I got siblings in on some
• 35:30
  Speaker 2: days I feel like what am doing it by myself?
• 35:34
  Speaker 2: I got my girls.
• 35:36
  Speaker 1: Biologically, I have siblings, but they I don't know because
• 35:42
  Speaker 1: I'm different.
• 35:45
  Speaker 4: That they or the way that they are.
• 35:48
  Speaker 1: You know, I had a conversation with my daddy today
• 35:51
  Speaker 1: and I was telling you, and we've never went that
• 35:54
  Speaker 1: deep with the conversations because we were talking about if
• 36:00
  Speaker 1: I had grown up in the family, Like it was
• 36:08
  Speaker 1: said to me that if my grandmother knew, you know,
• 36:11
  Speaker 1: about my existence, no matter what I was dealing with
• 36:16
  Speaker 1: health wise, I would have been in the house with her.
• 36:18
  Speaker 1: She would me and you know, just knowing that I
• 36:23
  Speaker 1: had a grandmother that would love me and not see
• 36:28
  Speaker 1: me as just somebody that can't do for themselves or whatever.
• 36:35
  Speaker 1: Conversation that I had with my daddy because he was
• 36:37
  Speaker 1: like he was, you know, he said, I sit and
• 36:41
  Speaker 1: I think about he said, I look at you all
• 36:43
  Speaker 1: the time, he said, and I look in your face
• 36:44
  Speaker 1: and I can see a little girl. He said, I
• 36:47
  Speaker 1: just don't know what I would have done with the
• 36:49
  Speaker 1: little girl. He said, because I got these hard headed boys.
• 36:53
  Speaker 1: And he was like, he said, I don't know how
• 36:57
  Speaker 1: I would have, you know, tried to raise you. He said,
• 37:00
  Speaker 1: you probably would have had me wrapped around your pinky.
• 37:03
  Speaker 1: He said, like you got me now, and it was like,
• 37:07
  Speaker 1: that's like the highlight of everything he got going on
• 37:11
  Speaker 1: is to tell.
• 37:11
  Speaker 4: People got a daughter. You know, it's it's it's cool, but.
• 37:19
  Speaker 2: That's a blessing because you needed that today.
• 37:21
  Speaker 1: I did with him.
• 37:23
  Speaker 4: I did that I needed.
• 37:25
  Speaker 2: That was a blessing.
• 37:26
  Speaker 1: Yeah, and that that felt like a hug to me.
• 37:29
  Speaker 2: That's definitely what it felt like to me. Oh wow, Yeah.
• 37:32
  Speaker 4: Yeah, he's sweet.
• 37:34
  Speaker 1: He's sweet.
• 37:35
  Speaker 2: Wind.
• 37:36
  Speaker 1: We chopped it up for about forty five minutes, and
• 37:40
  Speaker 1: that's rare because you talk a whole lot. I don't
• 37:46
  Speaker 1: never really have that much to say.
• 37:48
  Speaker 3: And I'm like, okay, well we can get off the phone.
• 37:51
  Speaker 3: If that's what you're trying to tell me, that ain't it.
• 37:56
  Speaker 3: I'm just saying. And I'm like, well, it sounds like
• 37:59
  Speaker 3: you're saying talking. So if that's the case, then we're
• 38:06
  Speaker 3: just gonna go ahead and let it.
• 38:09
  Speaker 1: Let it be right, because I know I'm a talker,
• 38:16
  Speaker 1: so you know me.
• 38:21
  Speaker 2: Yeah, So I think that's another reason why we click
• 38:25
  Speaker 2: right people don't know. We will talk for hours.
• 38:30
  Speaker 1: Yeah, we just got off of a four hour phone conversation.
• 38:36
  Speaker 1: Like what in the world could we possibly talk about
• 38:40
  Speaker 1: four hours? If these walls could talk.
• 38:43
  Speaker 2: We y'all have no clue if these walls could talk.
• 38:48
  Speaker 2: Oh God, but what God?
• 38:51
  Speaker 1: Because we.
• 38:54
  Speaker 2: I'm saying what I'm telling you, I'm so thankful for
• 38:57
  Speaker 2: you because I don't. I don't talk to others my
• 39:00
  Speaker 2: other cities like I talk to you. We can't chop
• 39:03
  Speaker 2: it up like this because they still see someone that's
• 39:06
  Speaker 2: little deep or No, I'm forty eight years old. I
• 39:10
  Speaker 2: ain't really anymore. I'm a grown woman saying, trying to
• 39:14
  Speaker 2: live this life. So yeah, no, and my crazy button's
• 39:18
  Speaker 2: going back to school like a nut.
• 39:22
  Speaker 1: Now you're just being obedient and doing what you're called
• 39:25
  Speaker 1: to do.
• 39:25
  Speaker 2: Well, I am so so I'm just like father, and
• 39:29
  Speaker 2: I'm telling you SI I fly. And it was like, okay, father,
• 39:32
  Speaker 2: are we doing this? Lady said, oh, you've been a
• 39:35
  Speaker 2: pro Oh okay, father, we're doing okay. That's that's a.
• 39:40
  Speaker 1: Yeah. He took you back to school. I'm sure he's
• 39:44
  Speaker 1: probably gonna take me back, and I'm cool with that.
• 39:47
  Speaker 2: He's gonna take you back. I'm playing that he takes
• 39:49
  Speaker 2: me back, because listen, I don't want to be only one.
• 39:51
  Speaker 4: On this right.
• 39:52
  Speaker 1: I would love to finish start it, and.
• 39:55
  Speaker 2: You will because I'm gonna push me like you push me. Oh,
• 39:58
  Speaker 2: you're gonna, says.
• 40:00
  Speaker 1: Absolutely, I'm going. I mean, I'm doing graduations and everything
• 40:05
  Speaker 1: because why not?
• 40:08
  Speaker 2: Why not you?
• 40:11
  Speaker 4: And I appreciate you, appreciate We.
• 40:16
  Speaker 1: Were about to take into an hour, so I'm about
• 40:18
  Speaker 1: to go on ahead and bid do because I know
• 40:26
  Speaker 1: you've got things to do.
• 40:27
  Speaker 2: And I just heard here.
• 40:31
  Speaker 1: I just heard my son's voice, so I need to, Yeah.
• 40:36
  Speaker 2: Go go take care of my nephew. Take care of
• 40:38
  Speaker 2: my nephew.
• 40:39
  Speaker 1: Yeah, that's what he got his woman for. She take
• 40:42
  Speaker 1: care of him. I'm just going to stare at him for.
• 40:44
  Speaker 2: A little bit. You know, you want to take a
• 40:46
  Speaker 2: look at you too.
• 40:49
  Speaker 1: I don't know, we're gonna. We're gonna see well for me,
• 40:56
  Speaker 1: absolutely absolutely, And I want to thank everybody for he
• 41:00
  Speaker 1: loves you too. He does and he loves you too.
• 41:06
  Speaker 2: Oh yes, yes, ma'am, Ye're absolutely because she.
• 41:13
  Speaker 1: Lets you know. But I want to thank everybody for
• 41:17
  Speaker 1: tuning in to delay but not denied. I also want
• 41:21
  Speaker 1: to ask you to continue to keep us lifted in
• 41:27
  Speaker 1: prayer as a group of women coming together in media,
• 41:34
  Speaker 1: just trying to build and connect with one another and
• 41:38
  Speaker 1: grow and have something bigger than bigger than what we
• 41:44
  Speaker 1: can imagine, you know, just staying the course even when
• 41:49
  Speaker 1: it's times where like today, I said a million times
• 41:55
  Speaker 1: I'm about to call Angelou, I can't do it. I'm
• 41:59
  Speaker 1: I'm bent, not broken, bent, but feeling broken. But you know,
• 42:07
  Speaker 1: my bounce back was, it's gonna be okay.
• 42:11
  Speaker 2: I'm not gonna let you do that.
• 42:13
  Speaker 1: It gets greater later, So it's something that I stand on.
• 42:18
  Speaker 1: It does get greater later. But again, I'll be back
• 42:22
  Speaker 1: on the second Monday of June with another show, hopefully
• 42:30
  Speaker 1: more organized than this one. However, I did what God
• 42:36
  Speaker 1: told me to do as far as this one goes.
• 42:38
  Speaker 1: So as long as I'm being obedient and doing what
• 42:41
  Speaker 1: I'm told to do, then I feel all is will
• 42:45
  Speaker 1: in my world. But you know, I want to thank
• 42:48
  Speaker 1: you all for coming out and watching and participating, asking questions,
• 42:53
  Speaker 1: just speaking or whatever. Did he thank you for being
• 42:58
  Speaker 1: my co host on Fridays, Yes, ma'am, and I appreciate you.
• 43:03
  Speaker 2: I thank you for asking me appreciate it.
• 43:06
  Speaker 1: I'm trying to get you out of your shell because
• 43:11
  Speaker 1: you got a story just like everybody else and somebody. Yeah,
• 43:18
  Speaker 1: God ain't gonna continue to let you hide it for
• 43:20
  Speaker 1: too long, ma'am. So if hiding is what you like
• 43:23
  Speaker 1: to do, go ahead, by all means, have at it.
• 43:27
  Speaker 1: But when God brings the forefront, be ready, be battle ready, yes,
• 43:36
  Speaker 1: ma'am I will. All right, we out, good night, good
• 43:42
  Speaker 1: night everyone,