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Skyclarys Decision Rocks Ireland | Cork News
A tense countdown is underway as Ireland’s Health Service Executive prepares to decide whether to fund Skyclarys, a promising drug for Friedreich’s Ataxia—a rare neurological disease. Already approved in eleven European countries, the treatment could slow disease progression but faced rejection last month over concerns about clinical data. Families are rallying with vigils and protests, desperate for access, while politicians including Michael Collins and Fianna Fáil members push for reform and fair pricing negotiations with Biogen. With a final decision looming August 25th, the stakes are…
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