Latest / Health Ethics Podcast / "Trust Me, I'm a Clinician": Medical Expertise, Trust, and the Patient Experience
Transcript
- 0:10Welcome to the COVID Ethics Series podcast, a conversation with leading experts about bioethical
- 0:15issues that have been exacerbated due to the COVID nineteen pandemic. On Brian Pilkington
- 0:21and I teach bioethics at Seatonhall University and at the Hackensack Marinian School of Medicine.
- 0:26I moderate the COVID Ethics Series in cooperation with the IHS Library and IHS
- 0:31Student Life. This podcast is a spin off collaboration with the IHS Library where
- 0:36we'll have the opportunity to go deep with the experts from our series. Thanks
- 0:41for joining our conversation. Welcome everyone to the COVID Ethics Series. I am
- 0:57Brian Pilkington, and it is my great pleasure to be speaking with Jamie Watson.
- 1:02Jamie Watson is a clinical ethicist at the Cleveland Clinics Center for Bioethics.
- 1:07Professor Watson studies primarily considerations of expertise, the nature of expertise, and the
- 1:12extent of expert authority. In addition to his work on expertise, he also
- 1:18does work in health literacy and moral distress. And Jamie and I met at
- 1:23a conference and gave a wonderful talk on trust, and I've been thinking a
- 1:26lot about trust in terms of the healthcare system, and so he was kind
- 1:30enough to join us on this on the COVID Ethics series podcast to talk through
- 1:34some considerations of trust. So, Jamie, thank you so much for taking
- 1:38the time. I'm glad you're here. Thanks Brian, appreciate the opportunity to
- 1:42talk with you. Thanks for the invite, of course, of course,
- 1:45and so before we jump into some of the arguments, sort of the detailed
- 1:49considerations of trust, what sort of big picture what brought you to bioethics generally
- 1:57and in particular what sort of motivated you to start thinking about the host of
- 2:00projects you have around expertise and trust. Yeah, so bioethics was, you
- 2:07know, an entryway from philosophy. For me, I've always been interested in
- 2:10the ways in which philosophy can be applied in the real world. I did
- 2:14some work in business ethics a while back, but then I started learning about
- 2:17the impact of clinical ethicist in real clinical spaces, the sorts of education they
- 2:23do, the sort of consultation they do, and and got really excited about
- 2:28it. And for me, expertise has always been sort of this, you
- 2:31know, front runner question when we talk about what do we know? How
- 2:37can we know? I'm an epistemologist by training, which means a study of
- 2:39knowledge, and you know, with expert authority comes this question of how do
- 2:46we know that someone's an expert? How do we know that someone is trustworthy?
- 2:50Under what circumstances should we trust someone? And you know, trust is
- 2:53everywhere. It's from political decisions to you know how many times the weather channel
- 2:59access is my location. You know, we're putting trust in people at every
- 3:04stage of our lives these days because the world's too big and complex not to
- 3:07we can't get by without it. But I think it's nowhere more intimate and
- 3:12personal than in clinical spaces. In the medical environment. You know, we've
- 3:15got people who are vulnerable because of health needs, who are talking with people
- 3:22who are ostensibly experts, who are literally gatekeepers to the medicines that they need,
- 3:28the treatments that they need, all of which are integral in some cases
- 3:31in some ways to their their well being. And so you know, the
- 3:36ability for providers to benefit and harm is huge, and so trust in those
- 3:40spaces is so critical. It's I mean, yeah, I think having well,
- 3:46having thought a bit about some of this at a lower level, and
- 3:47having been a patient not too long ago. It's sort of very eye opening
- 3:52in terms of the amount of trust that I placed in lots of folks,
- 3:58both health care practitioners and also the system in general. So there's yeah,
- 4:01oh, there's there's so much there. So what are the primary concerns around
- 4:08trust with healthcare? What do patients face daily? I mean to talk us
- 4:13through sort of what's going on in some of the ethical implications that you've been
- 4:15thinking about in your work. Yeah, you know, I think there's an
- 4:19easy way to divide the landscape. We can think about big concerns with trust
- 4:25that get a lot of attention. So things like COVID social restrictions, you
- 4:29know, under what circumstances are they justified and who's making these decisions and are
- 4:32there political influences? And then there are questions about opioid prescribing. Is it
- 4:38too much? Is it not? With the certain kinds of guardrails. So
- 4:44are lots of big questions, and they raise questions about well, who counts
- 4:47as an expert because there's lots of dissenting voices in these spaces, and how
- 4:51would novices know whether they were dealing with an expert? And I think these
- 4:56are these are big hard questions, no, no, no doubt about But
- 5:00I think in most of our daily lives, well, we're not concerned with
- 5:03whether someone's an expert. We're really concerned with what I call small concerns with
- 5:08a big impact, which are we recognize that the doctor in front of us
- 5:12is an expert in some sense. We recognize that the specialist that we've been
- 5:15sent to is an expert in some sense. The question is are they the
- 5:20expert that's going to meet our needs. There's this problem with a misalignment of
- 5:26values, where you've got physicians making different risk assessments than patients, and so
- 5:31we'll make recommendations based on their own risk assessment, patients will say no,
- 5:35and the conversation will end. Don't really recognize the reasons that a patient might
- 5:40be saying no, or that there's a difference in how a risk is assessed.
- 5:44There's differences in how providers respond to disability. Some people think that it's
- 5:48going to be like inherently a lower quality of life depending on the disability,
- 5:53and they may make medical recommendations based on that assumption. Same with the end
- 5:58of life we talk about quality of life assessments. Some physicians will push for
- 6:01certain paths over others based on their own assumption of quality of life. And
- 6:06so if there's any mismatch or misalignment between experts and their patients, or experts
- 6:12and non experts with respective values, even if an expert is well intentioned,
- 6:16even if they really are an expert in their field, we can get non
- 6:19experts not getting what they need from experts. That's I mean, the framing
- 6:25is really helpful. It so we have these large questions who counts as an
- 6:28expert? And I'll do this throughout our chat for folks listening in. You
- 6:32probably remember if you've stayed tuned to all of our episodes. General Leva of
- 6:38seton Hall Law School sort of highlighted this early on in one of our conversations
- 6:42in the Pandemic, about folks who appeared to be experts and they truly were
- 6:45in certain contexts, but sort of not staying in their lane and broadening out
- 6:50and starting to comment on other kinds of things. So we've got that in
- 6:54the background, sort of big questions what the policies are and all that,
- 6:58and COVID's nice, no challenging example, and then to Jamie the but we've
- 7:01got this other concern which maybe is discussed less outside of your work, which
- 7:05is smaller concerns with a huge impact, like risk assessment. So throw your
- 7:12clinical ethics head on just to give a practical case for our students, and
- 7:15of course we give medical students at the Hackensack Marine School of Medicine and nursing
- 7:18students and health sciences students at Setonhole University who are all interested in this from
- 7:24a variety of perspectives. Any sort of identification of particular problems beyond risk assessment,
- 7:30any recommendations for navigating values conflicts, especially if excellent practitioners who are trying
- 7:40hard don't pick up on them. Yeah, so you know, you imagine
- 7:44you go to the doctor and you've got, you know, not a common
- 7:46condition, but not a especially rare condition. There's a little bit of data
- 7:50on it, and the clinician is trying to provide you with their expertise and
- 7:56a recommendation about how to go forward with a treatment plan. And they say,
- 7:59you know, there's an eighty percent likelihood that you're going to do very,
- 8:01very well with this treatment. And you can imagine the same conversation with
- 8:05the same with a different clinician who says, you know what, there's a
- 8:09twenty percent chance you're gonna have some very serious complications with this treatment plan,
- 8:13and just the framing the eighty verses twenty the same numbers, right, But
- 8:16if you're leading with what you're most concerned about, like based on your value
- 8:20system, then someone might be biased. We call this a framing bias,
- 8:26and this can be very subtle. And that's just a very blatant example.
- 8:28There are lots of others, but there's a very blatant example of how you're
- 8:33going to lead with the statistic or the number that makes sense to you and
- 8:37a lot of your values. And I think, you know, if I
- 8:39heard patients say, oh, twenty percent, well you know I got a
- 8:43twenty percent chance of getting hurt going down the highway, right, and so
- 8:46their risk assessment like twenty percents, no big deal. Other patients, it
- 8:50might be a very big deal. And the question is twenty percent of what
- 8:54can we deal with any complications? Like the conversation tends to stop at the
- 8:58initials and they say, well, twenty percent that X and you know what,
- 9:03we can treat X. We have We have X all the time and
- 9:05that's no problem. Or we might say, oh, twenty percent chance of
- 9:09X, and you know X is going to mean these changes to your life.
- 9:13Is that acceptable to you? Right? So these sort of deeper questions
- 9:16that go beyond the sort of loaded assumptions that go into the numbers themselves.
- 9:24And so I think when you're navigating these in the clinical spaces, the best
- 9:26thing to do is ask questions. And so if I'm a clinical ethicist,
- 9:30I'm in the room, I'll make sure I'll I'll if I'm a clinical ethicist
- 9:35and I'm in the room, i will play the medical outsider. I'll say,
- 9:41Doc, tell me what this means is twenty percent? What does this
- 9:43mean for this patient? What does that look like? They'll start talking,
- 9:46So, is there something that we can handle with X that is in that
- 9:50twenty percent range? What does this eighty percent look like? You're saying eighty
- 9:52percent chance of that you're going to do very well? What does very well
- 9:56mean for this patient? And so we can start diving in. So we
- 10:00could turn to the patient and say, well, what are you hearing When
- 10:03the doctor says twenty percent chance of X. And in some cases the answer
- 10:07will blow you away because it comes out of nowhere. It's like, oh,
- 10:09well, my sister had X, and like she was miserable and I
- 10:13would never ever want to X. I wouldn't live with X. And you're
- 10:16like, oh wait, let's talk about your sister for a second, because
- 10:18your case may be very different, all right, And if so, you've
- 10:22not engaged with the patient about their values and what's what they're hearing when those
- 10:26numbers come out, then you can't formulate a care plan that's going to again
- 10:30line up with the clinicians values and the patient's values. I mean, so
- 10:37this sounds exactly right, right, But the response that we're going to get
- 10:41right, so I'll play the person doesn't know what's going on here. Finding
- 10:45your example. The response that many of my students mentioned when I talk about
- 10:48all the kinds of things you can talk through to help values alignment, well,
- 10:54I only have twelve minutes to see this patient, so there are other
- 11:00kinds of constraints and other sorts of things that impact what they would like to
- 11:05do, right of course, and they don't want to get out there to
- 11:07go you know, home. They want to just see the next patient be
- 11:11able to provide care within a stress system with you know, a sort of
- 11:16waning workforce. So what do you do then help help? I mean,
- 11:22how do we have these conversations effectively more quickly optimally? Yeah, I mean,
- 11:28so it's a big challenge, right, there's a structural challenge here.
- 11:31We know that if we had infinite time and infinite space, we could we
- 11:35could be the good providers that that we want to be. We recognize that
- 11:39there are ways of um, you know that that is sort of truncated and
- 11:41hastened. I think what we're learning is we listen to more patients that they're
- 11:48less concerned with a lot of the sort of medically jargon that we give them.
- 11:54They're more concerned that they're heard. So I think there are two things
- 11:58that we can do. I think we can do more in the time that
- 12:00we have, So if you've got that twelve to fifteen minutes, still,
- 12:03patients respond better when they're listened to more and talked at less. The other
- 12:09thing is to make use of the resources that are now expanded in our clinical
- 12:13spaces. The way that the medical chart works, the way that your virtual
- 12:18communication can go the way that you can have telephone calls and virtual calls,
- 12:22I think we can make more use of those, better use of those for
- 12:24dealing with specific technical issues outside of that space. Because when you're in that
- 12:28clinical space, space to face, that's when the trust is built, that's
- 12:33when the body language matters, that's when the listening occurs, because you're not
- 12:37going to get that through your virtual portal. But if they have questions that
- 12:41they can ask on the virtual portal about the technical stuff and you could provide
- 12:43it, that's great. So I think it's hard, and this is not
- 12:46a perfect solution by any stretch of the imagination, but I think if we're
- 12:50in those clinical spaces and we lead with you know what I'm going to call
- 12:54a trust first knowledge economy, hopefully in a few minutes, and then and
- 12:58then use the technology that we have to kind of expand some opportunities. But
- 13:05it's tough when you're in you've only got fifteen minutes with a patient, it's
- 13:07tough to build the trust you need, especially for critical medical care. Yeah,
- 13:15I mean, the challenges are real, and the move right to listen
- 13:18first sound just like very helpful advice. Well, I got some other questions
- 13:24we might come back to around disability, but let's jump to what you just
- 13:28mentioned. Talk to us about this trust first, sorry, knowledge evidence yea,
- 13:33go yeah now yeah. So you know the way that we typically respond
- 13:37to these the big questions that I talked about, the big questions about trust
- 13:41that to get a lot of attention. The typical response is to, you
- 13:46know, push competence, push credentials, push experience, push professionalism, will
- 13:52push the follow the science mantra. The problem with that sort of approach is
- 13:58again it misses the smaller clinical space relevant question. People aren't questioning their doctor's
- 14:05expertise, They're wondering if their doctor has thought about their specific needs right.
- 14:11And so when we say follow the science, in some cases, science hasn't
- 14:15caught up. You know, when we're talking about COVID, especially in the
- 14:18early stages, we didn't have the science behind us, and so there were
- 14:22lots of talking heads, there were lots of experts who again very well intentioned
- 14:26and clearly experts in their field, but the science just hadn't caught up.
- 14:28Also, science is valuating. We saw this with the pandemic. We have
- 14:33certain risk assessments. So when we're making a public health risk assessment, we're
- 14:35automatically going to risk on the conservative side because we don't have the information yet,
- 14:41because it's happening too fast, And people respond negatively to that because they're
- 14:46like, oh, you're overreactive and nobody knows right, and so you're in
- 14:50that weird space. So when you push competence first knowledge economy, you can
- 14:54get caught in an odd sort of trap, you know, and you can
- 14:58fall into your patterns. So, for example, if you're trying to appeal
- 15:01to the masses, you're trying to say, well, look, we're the
- 15:05experts, and we're saying that, you know, breastfeeding is natural. So
- 15:07this was a very big, common, you know, common sort of framing
- 15:11of encouraging breastfeeding for women, millions and millions of women. Right, But
- 15:16then we get to the vaccines and that they're clearly not natural, right in
- 15:20a in a specific sort of sense. They're scientifically created in a lab.
- 15:24And so you've got, you know, breastfeeding women who are saying you've been
- 15:28pushing natural all this time, and now you're telling me to get this vaccine
- 15:31that's not natural. So you've put yourself by being the expert. But trying
- 15:35to appeal to the masses with your competence and your framing, you put yourself
- 15:39in this weird position. So what I think the change is, and again
- 15:43this is to focus on these small concerns that have this big impact. Is
- 15:48to focus on the trust building first. If you trust someone you're you're less
- 15:54concerned with how it's framed. You're not going to perseverate on the fact that
- 15:56they're you know, using natural in one sense and you know, pushing something
- 16:02that's not natural in another. And so if we're focused on the trust economy,
- 16:04the competence is still necessary. You still have to be the expert in
- 16:08the field, you have to have the science that you have to offer.
- 16:12But what the trust first economy allows you to add is those things that count
- 16:18as social capital, like listening, more like asking more questions, more than
- 16:23making more statements. In contrast to the competence first knowledge economy, I think
- 16:30that we should focus on a trust first knowledge economy. Again, assuming that
- 16:34the competence question has been answered, that the person in front of us,
- 16:37we really have good reasons to believe they're an expert. We know that trust
- 16:41is not established by rehearsing the reasons that they're an expert. That doesn't increase
- 16:45trust. What increased trust is personal relationships and the roles that you develop in
- 16:52relationship with one another. And so once we've presumed that the competence question can
- 16:56be answered, we can look for things like responsiveness, How did you respond
- 17:00to my specific question? How well did you demonstrate that you listened to me?
- 17:04Is the information you're giving me values based? You know, patients care
- 17:10very much less about whether it's a treatment as sixty five percent successful or seventy
- 17:15five percent successful because they can't conceptualize that in terms of their individual lives.
- 17:21If you tell them that this is what it would mean for you if X
- 17:23were to happen, that helps them build a sense of whether they're going to
- 17:27accept a treatment or not, or whether it's right for them or not.
- 17:30And so if you're looking for the responsiveness, you're looking for the values based
- 17:37framing. If you're the way that it lines up with their lives, then
- 17:41you've got an opportunity to make recommendations that people find appealing, that they find
- 17:48reasonable. And so I think the trust first version is what works for these
- 17:53smaller clinical spaces. And then I think that has an impact on the bigger
- 17:59question. Once we've established the trust with the people that we already recognized as
- 18:03experts, then when we hear similar statements outside that context, in the broader
- 18:08public or institutional context, that we have a tie in, we have a
- 18:12connection to some personal relationship that we already find trustworthy, that is saying something
- 18:18similar, and so we find it confirming rather than having the sense that we
- 18:22need to react to it. I find attractive this idea of trust first and
- 18:26sort of can see sort of very easily and obviously the benefits of this move
- 18:32And I imagine, and I don't know the literature well enough, I don't
- 18:36know if folks have done empirical studies on reduction of medical errors in light of
- 18:41this kind of move, right, because I imagine the sort of enhanced communication
- 18:47here and potential values alignments of and the increase of trust avoids a lot of
- 18:52potential mistakes, both because the clininician in a way knows the patient better and
- 18:59they're just i mean, just more on the same page, to use a
- 19:03boring cliche. So that's is their empirical workout here around that's a total off
- 19:07the Cuugh question. Any empirical work to suggest this reduces medical error, maximizes
- 19:12outcomes, those kinds of things. I think what it does is it reduces
- 19:17the perception that the decision happened too fast, reduces the perception that the decision
- 19:23was pressured, and it reduces error in the sense that perceived error is less.
- 19:32And so, for example, we have lots and lots of cases as
- 19:33an ethicist, we see lots and lots of cases at the end of life
- 19:37where families are making decisions about loved ones and how they know how their medical
- 19:42care is going to go, whether they're going to go with an aggressive treatment
- 19:45plan, whether they're going to go with a palliative treatment plan. And we
- 19:48have lots of empirical evidence that surrogate decision makers experience PTSD like symptoms after making
- 19:55a decision or say comfort care you know to or withdraw life sustaining treatment,
- 20:00for example. And so I think that the better that they get the sense
- 20:03that we're oriented to what the patient would want and they feel supported by the
- 20:08clinical team and a decision that is benefiting the patient, I think they feel
- 20:12like it's less likely to have those sort of symptoms like the PTSD symptoms the
- 20:18sort of traumatic symptoms. And we also have empirical evidence that people are happier
- 20:25with their care when doctors are sensitive to those trust relevant issues. So people
- 20:32are happier when their care when their doctors are on time, which is a
- 20:34weird one, right, because doctors are always sort of running behind. But
- 20:37if a doctor is on time and they listen more than they talk, patients
- 20:41are happier with their visit. Does that mean that the doctor was more or
- 20:45less competent, No, but they were exhibiting again, more of that social
- 20:48capital, the respect for the person, the sense that I'm concerned about your
- 20:52interests enough to take you seriously as a person's I mean, that's really help
- 21:00when I can imagine as a patient that's going to you know, sort of
- 21:04all be more inclined to do the kinds of things which would result from any
- 21:08competent doctor if I have this trusting relationship with a physician, healthcare practition,
- 21:15whoever that might be. So I want to think a bit or push you
- 21:19a little bit and think about the small wonderful response. And I really appreciate
- 21:25you both the framing and the sort of trust first economy. I see how
- 21:27that works on the individual or even maybe group of patient level. Can this
- 21:34be taken up to systems levels, because I'm thinking about health systems who have
- 21:40wonderful sets in the best case scenario of healthcare practitioners, maybe so much so
- 21:45that they think about you visit I'm not going to name anything, but you
- 21:48visit the health system, you don't visit doctor Watson. I'm interested in that
- 21:52kind of thing, how trust economies get played out, or how the trust
- 21:55economy gets played out there. And also in the background is sort of systems
- 22:00of oppression, systemic bias, and other kinds of what I think are sort
- 22:04of big challenges, large structural challenges which might impact then the smaller interactions.
- 22:14So two huge questions. Anything on either one would be super helpful. Yeah,
- 22:19you know, health institutions have some power. They don't have all the
- 22:25powers. So when we're talking about the amount of time that you get with
- 22:27a patient, those are typically billable hours. So an insurance may only pay
- 22:32for a fifteen minute visit, and so there may be very little bit a
- 22:34health system can do to change that. I think what a health system can
- 22:38do, though, is to help support providers in those spaces with tools that
- 22:44will improve trust based relationships. So, for example, you know, one
- 22:49of the things that I've learned through some of the stuff that I've done with
- 22:52health literacy is improving communication styles, improving communications skills and the sort of tools
- 23:00that are available can make patients feel more comfortable with the decisions and so using
- 23:07plain language. And this sounds so simple because it's been around for so long,
- 23:11but one of the things that we do, and when we get into
- 23:11critical care situations and all providers do this, I as a clinical ethicis do
- 23:15this, and you just have to practice. But the moment that there is
- 23:19a potential for conflict or a potential for some sort of difficult thing to communicate,
- 23:25like you're at the end of life, we fall back into jargon.
- 23:29We fall back into the medical lange because that's our safe space. That's what
- 23:32we know. Like I can fall back into ethics language about non maleficens.
- 23:36Right, It's just very easy to go to that place where you feel safe.
- 23:40And if we practice you speaking to people and language that they understand,
- 23:45and not only language that they understand, but language that can apply to their
- 23:47life. So one of the things that we learned from health literacy research is
- 23:51that a lot of notes in the chart that say a patient is non adherent
- 23:56to their medications because they didn't know how to take their medication. What's on
- 24:00the bottle is inscrutable to them, and so they struggle with how to take
- 24:06medication. So they go back they're like, are you're taking your medication?
- 24:07Like, yeah, I'm taking a medication. Look, well, your blood
- 24:10work doesn't show that you're taking your medication. And so there are lots of
- 24:14plain language templates out there for medication prescribing that can benefit patients in those moments
- 24:19and empower them to do the things that they're being asked to do. They
- 24:22avoid those stigmas. Right, Because you get a patient that comes into your
- 24:26space that says non adherent with medication, right, then they're going to be
- 24:30treated differently by that provider, even if it wasn't their fault, right,
- 24:33And there are lots lots of lights of ways to handle this. One is
- 24:36to stop putting that in the chart the way it is. We can say
- 24:38patient struggles with medication, but cause like they're on seven medications and they have
- 24:44to take it four times a day and it's very complicated. Please provide information
- 24:48to help this patient. Right, that's a way to put a chart note
- 24:51in to help stop that kind of stigma. But then patients don't feel weird
- 24:53when they go to the doctor because they know that they're not going to be
- 24:56stigmatized for struggling when they realize is that it really is difficult. And the
- 25:02other thing that we can do is support our clinicians with decision aids, making
- 25:04sure that they have access to things that will help patients make hard decisions.
- 25:10When I was working at the University of Arkansas for Medical Sciences and the Center
- 25:14for Health Literacy, we're trying to put together a decision aid for mammograms at
- 25:18what age and how frequently should women get mammograms? And the decision aid was
- 25:25actually a calculus that was trying to put in age and risk factors and to
- 25:30try to empower people to understand just how complicated a decision is, because if
- 25:33you get too frequent or too early of mammograms, you may end up with
- 25:37a false positive that leads to a lot of negative treatments. And there are
- 25:41lots of big problems with this in a lot of areas. But that's just
- 25:45one example. So I think that's one way an institution can support practitioners.
- 25:51I think the other way is even before that and the health system, in
- 25:56the training and medical schools and colleges of health professions. You know, we
- 26:00do a lot of really cool things with simulation, Like I love I love
- 26:04simulations, And if you've got a sim center, like I would encourage you
- 26:08to use it, not just for the clinical stuff. I mean, we
- 26:11know from expertise literature how important sims are when we look at medical training and
- 26:15we look at didactics versus simulations, Like people don't get better that people don't
- 26:19become better doctors or better surgeons from lectures and from conferences where they're passively engaged.
- 26:25They get better when they're in simulations. What we can do is include
- 26:29more psychosocial simulations to get physicians and providers practice handling difficult conversations, practice handling
- 26:37ethical issues, practice handling conflict. Because once they've developed a set of schools
- 26:42that can adapt to different conversations like that, then they're more empowered to make
- 26:47patients fee old patients in their families feel more involved in the process. That's
- 26:52great, and I think a sort of really helpful twofold response to the first
- 26:57part, maybe bleeding into the second part of the question. So let me
- 27:00jump back to the second part because they threw so much at you for the
- 27:07trust first economy and sort of from the totality of your work on expertise,
- 27:11any recommendations for folks who are trying to address systemic racism at least in the
- 27:18US or systemic bias you mentioned sort of different considerations of disability from practitioners and
- 27:26patients previously. I mean, some of these big structural challenges. Values alignment
- 27:32sounds like a good move if you have time for the conversation, But some
- 27:37of these I know, you know, some of these challenges. There's a
- 27:40heck of a lot of really terrible things that happened historically. What's the move?
- 27:47I mean, what can the trust first economy do. Not that it's
- 27:49going to solve the problem, but sort of how do you think about addressing
- 27:55these sort of big background challenges. Yeah, you know, a lot of
- 28:00the biases that we're trying to address now in healthcare are implicit and implicit biases,
- 28:07Implicit racial biases, implicit sex based biases. They work just like things
- 28:14like confirmation bias. They have the same sorts of mental structures as things like
- 28:18the availability heuristic. They're operating at a level that's unconscious and they're coming really
- 28:22fast. And the ways that we handle things like the availability heuristic and confirmation
- 28:27bias in research is to put in structures that limit or prevent those things from
- 28:36happening. So we put in the double blind experiment to help stop confirmation bias.
- 28:40I think the same thing happens in the clinic. We need to put
- 28:42in some structures that prevent the biases from manifesting themselves. And so for I
- 28:48mean a very simple example is we often put race in the demographic section of
- 28:53a patient, and we know that implicitly whether you're a black provider white provider,
- 29:00Like we have evidence that black patients receive less pain medication than white patients
- 29:06for similar similar claims to pain. If we take the race out of demographics
- 29:11and put it in say social determinants health, where it might actually have some
- 29:15causal efficacy if needed, then we can sort of stop the bias before it
- 29:19starts, before we have the you know, engage the patient. There are
- 29:25lots of little structural things that I think we can do that can help mitigate
- 29:30a lot of these biases. So understanding how they work and why they work
- 29:33is important to understanding what structures are going to be needed in order to mitigate
- 29:37them. You know, having certain reviews making sure that we're not you know,
- 29:42chart reviews to make sure that we're not disproportionately disadvantaging certain populations owe to
- 29:48others excellent. And again, I mean I love the small, specific practical
- 29:55changes that lead to big ethical impacts. So I mean this is I think
- 29:57a really helpful theme. So we've only got so much time today. But
- 30:02before I'll let you go, I want to or sort of I was gonna
- 30:04say shift, but sort of pick up on some of the educational features of
- 30:10our conversation. So, any big takeaways for students both sort of medical students,
- 30:18nursing students, ot s at s pts, sort of folks interested in
- 30:22healthcare who come to care for others and are facing and will increasingly face sort
- 30:27of trust challenges. So what can the trust first economy? What can a
- 30:32good epistemologist? Sort of what's the takeaway for students? Yeah, I think
- 30:37I think there are a couple of things. I think one is when you're
- 30:40starting critical care conversations and if it's something as simple as a broken bone.
- 30:45These are less important than when it's how to manage your diabetes long term.
- 30:49But when you're starting with critical conversations about medical care, start with values and
- 30:55interests. Start with who the patient is, Start with the things that matter
- 30:57to them and things that they like. Document these things because these can have
- 31:02an impact over time as the patient's medical condition changes, as their needs change,
- 31:07as your recommendations for treatments that will affect their lifestyle changes. You can
- 31:11refer back to say, look, you said that this really matters to you,
- 31:15but it's going to mean you can't do this anymore. And so I
- 31:18think starting every conversation with values and interests who the patient is, regardless of
- 31:22how much clinical time you have, because that little nugget is going to carry
- 31:26through. It's going to pay dividends and trust, and it's going to pay
- 31:29dividends for information for future healthcare. I think the next thing is learning these
- 31:34communication skills, this plain language, decision aids, action steps that fit patient's
- 31:41lifestyle. Learning how to frame your recommendations in ways that make sense in light
- 31:45of a particular patient's lifestyle. If a patient can't if you're recommending a treatment
- 31:49for a patient that involves the means that they can't go up and downstairs,
- 31:52but their bedrooms on the second floor and they don't have any other means of
- 31:56getting upstairs. That might not be the best treatment plan, and then they
- 31:59might end up being not adherent. Right, things like that that can compound
- 32:04a patient's care for the negative. Being very sensitive to what you put in
- 32:07the chart, making sure that if there are barriers to care, barriers to
- 32:10access, that those are documented rather than simply noted here or noncompliant. That
- 32:15can facilitate better care conversations with the next person. It'll make the patient feel
- 32:20less isolated, ostracized, and empower them in their own care. I think,
- 32:27you know, the other thing that we need to be sensitive to is
- 32:29that we're often caught in the middle of the expertise battles. Right. We're
- 32:34not the lay public who you know, don't have access to experts in say,
- 32:38epidemiology, but neither are we the epidemiologists. Right, we're sort of
- 32:43caught in the middle. We're hearing the patients say things about, you know,
- 32:45all the national policy on this, or you know, the surgeon General
- 32:51said that, and that's nonsense. But we don't know what the Surgeon General
- 32:53knows either, right, and so making sure that we're recognized that we're sort
- 32:58of stuck in the middle, and that we can point them to places that
- 33:02that can empower them to make better decisions to come to stronger beliefs, just
- 33:07the way we would do for ourselves, knowing who to turn to and what
- 33:10sort of information is beneficial for them. So I think those those three practices
- 33:17can can benefit patient care. Excellent, excellent, super heafl And the last
- 33:24question I'll get you out on this one is you've already wrenched simulation and folks
- 33:29seton Hall is super lug, my colleague Jennifer McCarthy A phenomenal simulation is So
- 33:32there's a robust both at Seaton Hall and Hagensack Merinary School medicine, really robust
- 33:37work going on with a bunch of folks around or sort of involving simulation,
- 33:44anything else that healthcare education institutions can do, given the importance of trust,
- 33:51to foster trust, to foster sort of student inclination to really think about the
- 33:55importance of trust, What do you tell the folks in the dean's office when
- 34:00sort of the big curriculum questions make their way all the way to the top.
- 34:07Yeah, from the big curriculum questions. You know, anything interactive that
- 34:09allows clinicians to have better insights into who patients are and the decisions they make,
- 34:17any sort of case studies that are directly from patients, any kind of
- 34:22role play that's directly that's centered around real patient experiences, Because what we find
- 34:29is physicians saying like, I can't imagine living that way, right, or
- 34:35I can't imagine not making this decision, choosing this, and so just take
- 34:39something as simple as vaccine hesitancy. There's a phenomenal book called Vaccine Hesitancy by
- 34:45doctor Maya Goldenberg. Highly recommend it. She talks about the crisis of trust
- 34:49rather than the crisis of expertise, which is really what I think is critical
- 34:52here. And she said, there are lots of empirical evidence suggesting that mothers
- 34:58who are vaccine hesitant, there's a large population of them. It's not that
- 35:01they don't believe in vaccines. It's not that they don't believe vaccines work,
- 35:06and it's not that they have some conspiratorial beliefs. If they believe that there's
- 35:08something specific about their child's constitution or medical needs that make them not a good
- 35:14candidate for getting a vaccine. That's very different, Right, You're going to
- 35:19treat that person once you know that narrative, You're going to treat that person
- 35:22very different from the conspiracy theorist anti vaccer, right, And so to lump
- 35:27everyone together as if all stories are homogeneous in that sense, that's going to
- 35:31cause a problem for patient care. That's going to cause a lack of trust.
- 35:35And so think anything you can do to humanize patient's decisions and no matter
- 35:39how strange they may seem to your clinical mind, can enhance the opportunity to
- 35:45ask the right sort of questions and build that trust in clinical spaces. Excellent,
- 35:52super helpul And how I read that last question, given the importance of
- 35:54critical thinking, is just we need institutions need to hire more philosophers. I
- 35:59think that's the that's the move right Glass and ethicis Jamie. Thank you so
- 36:05much. Thanks everyone for tuning in. I've been speaking with Jamie Watson of
- 36:08the Cleveland Clinic. Check out the website, the Companion website as well.
- 36:14We're world list a number of Jamie's really helpful publications on expertise and trust.
- 36:20Thanks again, Jamie, it was great to have you. Thanks for having
- 36:22me really enjoyed being here. Thank you for listening to this episode of the
- 36:27covid Ethics series podcast. Be sure to check out video versions of our episodes
- 36:31online at library dot dot eedu slash covid ethics, follow the show on Twitter
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