Latest / The Eye Believe Podcast
Day 1 | Session 3: INSIGHT Registry; what it is and why we need one?
Join Melody Burchett, founder and President of A Cure in Sight, with communications and events coordinator, Hanna Hulick to discuss the INSIGHT Registry.
This is a unique rare disease patient registry.
insight.iamrare.org
The INSIGHT Registry is an online registry for patients with Ocular Melanoma (OM). It will be hosted by the National Organization for Rare Disorders (NORD); an independent non-profit patient advocacy organization dedicated to individuals with rare diseases and the organizations who serve them and as such is committed to the identification, treatment, and cure of rare…
The skinny
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