Latest / All Figured Out with Andrea Barr: Figuring Out Work, Life and Parenting / 21. Scotty Barr on figuring out how to navigate medical challenges, work and a baby on the way
Transcript
- 0:00Welcome back to the all figured out podcast.
- 0:02I'm your host, Andrea bar. Today, on the podcast, I am
- 0:05interviewing hands down the strongest person that I know
- 0:09Phil. I'm also incredibly lucky to get
- 0:12to call my husband. Scott Ivar is joining me today.
- 0:15Kicking off, an all figured out podcast first, as the first man
- 0:19to join me on the mic. Okay.
- 0:21I'm really, really biased here, but I honestly couldn't think of
- 0:23a better person to fill this role.
- 0:25My husband has had one, heck of a health life and career
- 0:29Journey. Knee.
- 0:30And this is actually the first time that he's sharing his story
- 0:33top to bottom and in such a public way.
- 0:36So who is this man that I've chosen to spend my life with
- 0:39well. Scotty Barger up in Whistler BC
- 0:41with a snowboard strapped to his feet and a Frisbee and hand.
- 0:44He was born with a congenital heart defect, which caused him
- 0:47to have a few cardiac-related surgeries when he was younger.
- 0:50But it really never slowed him down.
- 0:52And he lived a totally happy, very outdoorsy life throughout
- 0:56his 15-year marketing career. He's actually worked for some of
- 1:00And it has top advertising agencies.
- 1:02He's LED award winning campaigns across different brands, like
- 1:05Subaru, McDonald's and Dal and so many more and if you become
- 1:10friends with this guy, be warned, that you will be sent a
- 1:14lot of personalized. Funny content that he will send
- 1:17you direct via Instagram in your DMs. The best part about him is
- 1:23an again, I'm biased here but he is the best husband and father
- 1:27we have a two-year-old daughter Addy like Some of you might know
- 1:30if you listen to the podcast and we have one on the way currently
- 1:34very very pregnant sandwiching his entry into fatherhood when
- 1:38we had a d was a health Journey that he's going to be talking
- 1:42about today. That is pretty wild and it was a
- 1:46extremely crazy and traumatic Time.
- 1:48Spoiler alert were talking about eight surgeries in a year and a
- 1:52half, which brought him to a lifetime total of eleven.
- 1:55Cardiac-related surgeries. As my mom, says, everyone's got
- 1:59their stuff. And Scotty knows that many
- 2:01others have or will go through extraordinarily hard times.
- 2:05And so we both hope to share this episode that a big fat
- 2:09light is possible to find that the end of the tunnel and Scotty
- 2:12has some tips for you on how to survive the journey if that's
- 2:15you before diving in. I also want to share an extend,
- 2:18the offer that both Scotty and I are extremely passionate about
- 2:22supporting others, who are going through really hard challenging
- 2:25medical times from Scotty's perspectives a patient or might
- 2:28as a caregiver Please don't hesitate to reach out.
- 2:31If you're feeling alone in your own journey.
- 2:33I always recommend counseling for anybody, at any stage of
- 2:37Life at any time, but if you're craving support from someone who
- 2:41can say, I get it, we are here for you.
- 2:43So, without further Ado, my husband, Scotty bar.
- 2:48You're listening to the all figured out podcast, I'm your
- 2:51host Aundrea bar. As a career coach for parents, a
- 2:56mom and entrepreneur. And someone who spent ten plus
- 2:59years in the corporate world, I still don't have it all figured
- 3:02out and maybe you don't. Either this podcast, I'll share
- 3:06tools and strategies that I use as my clients and in the many
- 3:09areas where I don't have things figured out.
- 3:11I'll be bringing you some amazing guest experts to help us
- 3:14fill in the gaps. So tune in each week as we
- 3:17explore how to make career and life decisions that truly work
- 3:20for you, your family and your big goals.
- 3:24Let's make moves. Well today is a different
- 3:29episode one that I am equal parts excited and maybe a bit
- 3:34nervous for Welcome to the podcast.
- 3:36My husband, the love of my life, the apple of my eye Scotty far,
- 3:42thank you so much for joining me today.
- 3:44You know, when I agreed with you, that you need a more male
- 3:46representation on your podcast. This is not what I had in mind.
- 3:51Guess number one. I mean, who better, then my
- 3:55husband? So I know lots about you, but as
- 3:58always, I feel like whenever I interview people who I know,
- 4:01intimately, I always learn something new.
- 4:03So I'm actually very excited to see where this goes.
- 4:06For those who don't know, you, lots of listeners, do know you
- 4:09friends and family. But for those who don't know,
- 4:11you can you share a bit about who you are and more
- 4:14specifically for the theme of today's episode?
- 4:17Can you share what the last five years or so have looked like for
- 4:21you? Sure I can do that.
- 4:22I feel like this is a test into whether I actually was Dear
- 4:26episode around, how to introduce yourself.
- 4:31I am Scotty bar. I am a marketer by trade.
- 4:36I've spent the last 15 years working in, mainly the
- 4:41advertising World working as a client lead.
- 4:44That means the bridge between the agency and the client
- 4:48themselves. Solving the clients business
- 4:50problems through Creative Solutions that the agency can
- 4:53provide over the course of my career.
- 4:55I've been fortunate Went to work at some of Canada's top,
- 4:58creative agencies, working on some Brands and doing some
- 5:03award-winning work for clients like Subaru.
- 5:06AutoTrader McDonald's Del Technologies.
- 5:10The was could go on forever when I'm not at work.
- 5:13I am spending time with my family, which includes my lovely
- 5:18wife. You have to say that.
- 5:21Yeah. Even when you stick me in a
- 5:22podcast Booth, our two-year-old daughter.
- 5:26And our soon-to-be addition to the family, which is coming from
- 5:31the time of this recording and about kind of four to five
- 5:34weeks. They really fit this in down to
- 5:37the wire. Yeah.
- 5:39And as Andrew mentioned, I also, which will be talking about
- 5:43today. I guess, I've had a bit of a
- 5:45interesting Health Journey over the last couple years as well.
- 5:48I think you did listen to that episode, that was a nice intro.
- 5:50I really liked how you kind of pissed yourself from the
- 5:52marketing perspective, like a few, you know, handguns going
- 5:56on. Off, obviously, doing the
- 5:58marketing pitches a bit easier because I've been on a lot of
- 6:01conversations with potential clients, where you have to give
- 6:03yourself your background and what tends to revolve around
- 6:07clients? You worked on and the years and
- 6:09business. The stuff I need to brush up on
- 6:11is the outside of work and what I like to do and I wonder, I
- 6:15guess is probably a good Bridge into our topic for today when
- 6:18people ask you currently. So, how are the last couple of
- 6:21years for you? Knowing what I know about your
- 6:24last couple years? How do you respond?
- 6:26That maybe that can take you into telling a bit of a story
- 6:28about your health Journey. Last couple years has been
- 6:31interesting for sure that tends to be the answer that I give
- 6:35words honest, but leaves some things unanswered, but to give
- 6:41your listeners, just a bit more perspective.
- 6:43So, for context, I have a congenital heart defect.
- 6:46I had three heart-related surgeries.
- 6:49By the time I was 11 years old. My first one was when I was six
- 6:53months old, which now being a father, I I can't imagine what
- 6:57my parents would have gone through at six months old, when
- 7:00I had my first surgery and thinking about what that would
- 7:02be like if we had to deal with something somewhere on our end
- 7:05and thankfully, our daughters completely LT from our
- 7:09perspective. And all tests are positive.
- 7:13As far as our future baby coming in a few weeks.
- 7:17If I was bored, I've lived I would say pretty ordinary life
- 7:21for somebody. Who's had three art surgeries?
- 7:24I didn't feel like I was Were wrapped in bubble wrap or
- 7:28anything to that extent, when it came to Growing Up and being
- 7:33active and playing outside and throw myself, all over the
- 7:36ultimate field and living in Whistler which should give that
- 7:39context. This isn't just playing outside.
- 7:41This is playing on mountains. Yeah, spent a lot of time
- 7:46snowboarding and mountain biking so forth fast forward.
- 7:50I always knew that there was potential for additional
- 7:53surgeries in my lifetime. Some of those surgeries that I I
- 7:56had when I was young included replacement of mitral valve and
- 8:01they put in an artificial valve. So as you can, imagine the size
- 8:04that they were able to shoehorn into a three-year-old will
- 8:08slowly get a bit too small. So at the age of, I guess it was
- 8:15early. 2019 age of? 35, the doctors felt like it was
- 8:19time for a tune-up. What was going in?
- 8:23We thought was going to be one surgery, actually, Up being 3.
- 8:28So it was an interesting time for us and from there it just
- 8:33went on and kind of spiraled and over the course of about 18
- 8:38months, ended up being eight surgeries and total that were
- 8:42heart-related are complication related and those three
- 8:45surgeries to start out with those were even though we
- 8:49thought it was going to be one surgery.
- 8:50We knew in advance it was going to be three.
- 8:53Yeah it's right. Going into the meeting with the
- 8:55surgeon. At that time we thought it was
- 8:58going to be one surgery to repair my aortas.
- 9:02The big artery that's coming out of the heart.
- 9:05We went in to chat to him and he said actually it's going to be
- 9:08more like three because we need to do some tune ups and other
- 9:12areas to ensure that your heart is operating at optimal capacity
- 9:18for us to do this surgery on your aorta.
- 9:22So, upfront going into those surgeries, we knew that it was
- 9:25going to come in. Form of three.
- 9:28So I guess, let's start there. So, this is pretty kids, but
- 9:31posts getting married starting a life in Vancouver.
- 9:34The world is our oyster, how did you prepare for those three
- 9:38surgeries? It was a different experience.
- 9:41Obviously being an adult when I was a kid, and I had my last
- 9:45surgery, you know, obviously, I don't remember for surgery at
- 9:48six months and the one at three, the one at 11, my parents
- 9:52actually didn't tell me. I was going in for surgery until
- 9:55the day. Before I was going in and the
- 9:57rationale for that was just a white me, continue being a kid
- 10:01and playing and not worrying about those things.
- 10:04So being an adult, obviously it was a different experience.
- 10:07I knew going in that this was going to be happening and it was
- 10:13on me in terms of preparing for that and what that would look
- 10:16like. So a couple things that come to
- 10:19mind various random things that I did to prepare first and
- 10:23foremost, I went to Spotify and I created My walk up playlist
- 10:28and you can imagine for any boxer, any fighter going into a
- 10:33big fight as they're walking into that ring?
- 10:35They've got that song playing. That is just going to motivate
- 10:39them and get them prepared for what lies ahead.
- 10:41So that was important to me. When it came time to drive over
- 10:46to have. Those surgeries andreea Took the
- 10:49Wheel, she drove in the car. We put that playlist on and I
- 10:53just sat with my thoughts and let That play and tried to get
- 10:58myself psyched up for what was coming.
- 11:00What were the thoughts that we're going through your head?
- 11:02At that point? I mean, obviously, there was
- 11:05concern over outcome was going to be a big one getting to a
- 11:09point in my life where I just felt so solid in terms of my
- 11:15wife our little family that we're looking forward to
- 11:18creating and I didn't want this to really prevent that from
- 11:23coming to fruition which kind of leads to The next thing that was
- 11:27helpful, during that time, I will listen to a timely podcast
- 11:31around that time, not knowing that it would be as helpful as
- 11:34it was and it was a sports psychologist, who was talking to
- 11:38GSP Georges st. Pierre.
- 11:40Who's the famous Canadian UFC fighter?
- 11:43And on that podcast, you talked about visualizing the upcoming
- 11:47fights. And for him, you said, most
- 11:50people it would ultimately, when you be thinking about the fight
- 11:53it would go, - he would start. Seeing what if I got hit really
- 11:57hard and knocked down? Or what if I got put in some
- 12:01sort of a whole their position where I was concerned?
- 12:05I might not be able to get out of.
- 12:06So he said it's natural to be thinking - when it comes to
- 12:10those visualizations. But his important way that he
- 12:14went about it is he said I never stopped the visualization in the
- 12:18- I will always see it through and continue it through and not
- 12:23ended until it ends, on a positive note.
- 12:26So, when he got into that holder La La Que, it's himself.
- 12:30How would I get out of it? How would I rise to the occasion
- 12:34and move forward in a positive way?
- 12:36And for me, that was just really helpful because ultimately
- 12:40thinking, about those situations and wrapping my head around what
- 12:43light I had, it would always tend to go - for me and so it
- 12:46was awful to just let myself get to that - place but know that I
- 12:51went and that situation there and I would just keep moving
- 12:55forward until it. Was and you know, I'm positive.
- 12:58What if I'm on the table? And I flat line or something
- 13:00like that, it would be the docks point out the paddles and give
- 13:03me a little shocked and coming back, like, easy on those shows
- 13:08and the line showing up on the monitor with the heart beats so
- 13:12things like to hide. We're helpful couple other
- 13:15things that come to mind. We almost some housekeeping
- 13:19items. We assign a comms person.
- 13:22So we talked about before, you know, how are we going to keep
- 13:24the family and friends? Updated and in a way that's not
- 13:28going to be inundating us and something where we're not going
- 13:31to have to sit on our phones and spend all day updating with my
- 13:37progress and also not in a dating myself when I should be
- 13:40focusing on getting better. So it was something that you
- 13:45took on and you did an interesting way where you
- 13:48created a Google doc where you could almost journal and create
- 13:52a daily update in terms of how things were progressing for me.
- 13:56Me, which people could look and see how things were going
- 14:00without having to bother us in inconvenient times.
- 14:04Also, a big one for me, which you'll have, but I shaved off my
- 14:08beard first time seeing it without a.
- 14:12Yeah, I grew my beard in 2011. I met Andre and 2013.
- 14:18She had never seen me without a beard, okay?
- 14:20I actually didn't know that. You had only had the beard for a
- 14:22couple of years. At that point, I thought you
- 14:24were just born with it. It was the only way that I could
- 14:27look older than 19 fake became part of my identity.
- 14:31So it is definitely a big change and that was a small thing that
- 14:36we could do. Judges feel like we had some
- 14:39control of the situation and we're doing everything that we
- 14:41could to support. And while a small thing things
- 14:45like bacteria can grab onto hairs and so to remove that was
- 14:51something that we could do. Even though most of this process
- 14:54was out of our control, went to the barber every opportunity.
- 14:58I could before surgery is to get a fresh cut to feel good going
- 15:03in. He would take down my beard,
- 15:05which is a very uncomfortable look and I was very excited to
- 15:09get back. Was it the first time that I
- 15:11came? Yeah, I mean, we're just talking
- 15:13about a beard but there was so much symbolism in that I
- 15:17remember coming with you and I remember feeling nervous and
- 15:19then Carlos your Barber, like, spins around of the chair to
- 15:23feel like, oh, When I don't know, you just, yeah, he looks
- 15:29like a totally different person. It was almost like foreshadowing
- 15:32for like this person that you'd have to become over this period
- 15:35of a time. Like he kind of had to channel
- 15:37this different self to get through what you end up getting
- 15:40through. Yeah, and then the last thing
- 15:43that comes to mind in terms of how I prepared for the surgeries
- 15:46was, my dear andreea letters that we've never really talked
- 15:50about what other people, but it was definitely a heavy process
- 15:54for me. It got But certainly easier as
- 15:58surgeries went on, but the first one was definitely tough.
- 16:01And what they were is, I decided that I wanted to provide you,
- 16:06with some level of comfort during that time because I knew
- 16:10that during the surgery. It was actually harder for you
- 16:15than what we for me. If you think about it, I had the
- 16:18easy job or I was just laying on a table asleep and the surgeons
- 16:23were hard at work, whereas you had to Supply and wait, and wait
- 16:28for the call from the surgeon. So, I decided to write you an
- 16:32email that I would schedule and God and stop tearing up and it's
- 16:37going to make me tear up. I would schedule this end and I
- 16:41would talk about my perspective during that surgery and try and
- 16:46get you. I can positively and happy as if
- 16:49I was awake during that time. And here's what's happening and
- 16:52the surgeons are busy at work doing their thing.
- 16:56Yeah, and I'm going to look like Captain America when he came out
- 17:00of the Pod after the surgery. So really trying to put a smile
- 17:04on your face and it was a tough thing to write.
- 17:07Because, you know, at the time I'm writing and know where I
- 17:10didn't necessarily know the outcome, but like I said, as
- 17:14surgeries went on, it certainly became an easier thing to write
- 17:18and get some positivity across to you during that time.
- 17:22I wasn't sure if I was going to cry, but here we are four
- 17:25minutes. Or whatever we're at, they were
- 17:28like the most special things I've ever received.
- 17:32For sure had me ugly crying at the same time as laughing with a
- 17:36little inside jokes that you peppered in and jokes about some
- 17:40of the funny quirky doctors that we had but they'd be up to in
- 17:43the or this pretty unbelievable. Thanks Google for the schedule
- 17:47sent ability. It's really trippy.
- 17:50Yeah, that cool. Then everything went out the
- 17:52window with subsequent surgeries.
- 17:54Yeah, we made it through through that point and got through these
- 17:58surgeries, you were walking this Stanley Park.
- 18:01So you all weeks later and just crushing it, you were mountain
- 18:07biking months later. So I guess if we were to kind of
- 18:10just give a bit of a time frame, three surgeries happen between
- 18:13September and December of that year by 1920, 19, 20, 20,
- 18:17pandemic hits were smug. We're like, oh, thank God.
- 18:21Those surgeries happened in 2019.
- 18:22Imagine them happening now and jokes on us.
- 18:26Joke's on you, then had a great summer in your mountain biking
- 18:31and we were actually hunkered down and kind of enjoying our
- 18:34time, just two of us and all of our neighbors were joking about
- 18:37what's it like to be in a pandemic without kids and yada
- 18:40yada. We got pregnant because we were
- 18:43like, we're through the shit and it started to kind of crumble.
- 18:48What happened? Yeah, the pandemic made rehab.
- 18:52It interesting, for sure, but things headed the right
- 18:55direction. It meant that I couldn't
- 18:57necessarily go and see paramedical services and get
- 19:02Physio and things that I needed given.
- 19:04I really got through those surgeries and was in a state
- 19:08where I could get those services around February and then,
- 19:11depending make it a grand jury mentioned, was mountain biking,
- 19:14doing all those things and we were ready to start a family.
- 19:18We had put that on hold during those surgeries and things were
- 19:23looking positive and going the right way and so I decided to
- 19:26start trying, speaking of biking, it was back-to-back
- 19:30weekends, where we decided to go for a bike ride.
- 19:33We went on this same Trail and the first weekend was great and
- 19:37we're having such a good time and the second weekend you were
- 19:40just dogging at you're so slow. I thought it was going so fast.
- 19:45What is wrong with? You are just huffing and puffing
- 19:48and then you thought it was because I was Ryan on a
- 19:51different bike and I was going faster and turned out.
- 19:55I was the weekend that we found. Found out we were pregnant soon
- 19:58as great things were falling into place.
- 20:00We overcome those surgeries the hardships that we had dealt
- 20:03with. We were starting our family and
- 20:06looking forward to what was coming in the future, fast
- 20:09forward to, this is September of 2020 and I remember it.
- 20:13So clearly I hopped on my mountain bike and was going to
- 20:17go for a ride and I was Ryan up pretty small incline behind her
- 20:21house and I don't know where my legs just completely.
- 20:26Seized up on me and it was something that I never felt
- 20:29before, it felt like I had just done a thousand squats out of
- 20:33nowhere. I stopped and I could barely get
- 20:37off my bike. I couldn't even swing my leg
- 20:39over. My see, it was such a weird day.
- 20:42I remember. So clearly sitting on the side
- 20:44trying to stretch out my legs and understand what is going on.
- 20:48Meanwhile, I see these two teenagers riding their bikes
- 20:53hands-free with their slushies, having just a great time.
- 20:57I guess just before school and started that year and where's
- 21:01the girl lose the control of her bike hits the curb and goes
- 21:05flying into the bush. She was completely fine, but
- 21:07obviously super embarrassed slushy everywhere and the boy
- 21:12turning to look at what happened, he also crashes, his
- 21:15by quizzes smoothie, all over the concrete and I was just
- 21:18thinking like what is going on right now.
- 21:21So you're on the curb, these two kids are on the ground, slushies
- 21:25everywhere. Did you guys give each other
- 21:27like a knowing nod? Like no, they just screw it away
- 21:30there. So embarrassed, I was going on
- 21:33slushy, all over them but I just decided it was a bit of an omen
- 21:36to call it a day here. Dark on my bike ride.
- 21:39So I went home and things are starting to deteriorate.
- 21:42I got a fever, I didn't actually throw up but kind of that urgent
- 21:48sort of dry heaving. So we spent the night on a merge
- 21:50and they eventually came to the conclusion that I had some sort
- 21:53of virus at the time, which which we thought was incredibly
- 21:57weird given pandemic. We were super lock down on our
- 22:01and we didn't want to risk catching anything that would
- 22:05harm the work that we had done and everything.
- 22:08Do we gone through and we don't want to go backwards.
- 22:10So it seemed a little weird that they were saying.
- 22:13You must have some sort of virus, so we continued to go
- 22:16through our due diligence. This is, you know, weeks and
- 22:20turning into months. But following up with my
- 22:23cardiologist, making sure everything was good at the time.
- 22:26They also said yeah it's probably just some weird virus
- 22:29your legs. We understand that there are
- 22:31still not 100% after that episode but you know I'm sure
- 22:35they'll get better over time. But why don't we just do an MRI
- 22:39just to be sure that Mr. I took you know another waiting period
- 22:42And so a couple months later do they MRI and quickly get a
- 22:47callback for emergency CAT scan, CT, scan, and it revealed that
- 22:53there was a clot in the repair that they had done to my aorta,
- 22:58all those months prior and I was shortly after that and made it
- 23:02to the hospital and shortly after that went in for
- 23:06subsequent surgeries, tell the story of the MRI that morning.
- 23:11I mean I actually tried to track down the technician because I
- 23:14owe him a lot of. Thanks and appreciation.
- 23:17I slept in, I didn't set a proper calendar notification
- 23:22which is very unlike you to not be organized.
- 23:26Prepared for something like that.
- 23:27I'm not being funny. Like, he's like, one of the most
- 23:29organized dialed people, I know. So I get this call.
- 23:33I'm still in bed and it's the MRI technician.
- 23:36Saying, hi, you were actually supposed to be in an MRI machine
- 23:40right now. Are you on your way?
- 23:43What's going on? And I was shocked that I had
- 23:46completely missed that and felt terrible and said, I'm so
- 23:50apologetic. I'm so sorry for missing this
- 23:53said, you know what? I think I can fit you in a
- 23:55little later. Or which I'm sure wasn't an easy
- 23:57task, because it was like a two-hour session.
- 24:00He said, come by the hospital to st.
- 24:03Paul's downtown will try and fit you in.
- 24:05So, I Rush downtown waited for a couple hours, then.
- 24:09He was able to squeeze me in, get me in for that MRI, which is
- 24:13ultimately the test that revealed, this quote, that have
- 24:17formed in my aorta. So, without him out of the
- 24:20goodness of his heart, making time for me to come in that day,
- 24:24we really could have been in Much worse off position that we
- 24:28ended up being will find a Monday.
- 24:30Will tell them the story will send in this episode.
- 24:32Yeah, go dedicate this episode to hatcheries listener.
- 24:37That's a legend. He's like, wait, that was me.
- 24:40My gosh. If it's you please send me a
- 24:42note. We'd love to see them.
- 24:44Give you a kiss, a fruit basket, a million dollars something.
- 24:49Oh my goodness. Okay.
- 24:50So this is the end of 2020 December.
- 24:56And you have to go in for a really, really big scary surgery
- 25:01that how do we even put it? They were basically making it
- 25:05up. Yeah, for context of a surgery
- 25:07that never been done before and it was my aorta, which is what
- 25:12God repaired when I was six months old because of the time
- 25:15it was too narrow so they had wind it and just over the course
- 25:19of me growing up and blood flowing through that area.
- 25:22It it enlarged which often happens to that Area post
- 25:27surgery and it was an aneurysm, so it had gotten quite large to
- 25:32the point where there was concern over a rupture.
- 25:34So that was what all those surgeries were Four and Twenty
- 25:37nineteen was to repair that area and they put in a graft, which
- 25:41is artificial. It was actually, we always
- 25:44laughed about it is material. I think called Dacron, which is
- 25:48essentially like Gore-Tex that they had put in to replace that
- 25:51area in my aorta. So anything that is artificial
- 25:56All in your body doesn't tend to agree well with infections.
- 26:01So I had formed that quad and at the time it was a bit perplexing
- 26:05to the doctors because I'm on all these blood thinners and
- 26:08things that you prevent me from having any sort of quat, so they
- 26:12can understand why this had formed.
- 26:14It took some time to properly, diagnose.
- 26:17I was thankful to my surgeon who is just a dog on a bone, in
- 26:21terms of trying to fully understand what was going on.
- 26:25They finally did a biopsy. See which revealed it was a
- 26:28fungal infection that had grown in that area.
- 26:31They really didn't know where it come from, it was kind of a
- 26:34one-in-a-million situation. Could have been something from
- 26:37the previous surgeries and infection and got in at the
- 26:40time, we don't really know so they had to replace that area.
- 26:45But it wasn't as simple as just taking out the piece of Dacron
- 26:49and replacing it with a new one, they had to fully redo that
- 26:52surgery, but they couldn't put another piece of artificial.
- 26:56Ariel. And so they instead had to build
- 26:59that portion of my aorta using veins or whatever magic that
- 27:04they do from my thighs. So it ended up being all up
- 27:10about a 16 hour surgery. It was not a fun rehab and it
- 27:16certainly took a lot out of me but it was a big hurdle and big
- 27:19thing to go through after we had just been through the three
- 27:24surgeries and we felt like that was all before.
- 27:26Behind us. So as much as it was a physical
- 27:28hurdle, it was certainly a mental hurdle for us and we were
- 27:32pregnant at the time so it was the time where I was excited to
- 27:37be focused on you. My wife who was pregnant after
- 27:43you being that rock through all my surgeries and taking on so
- 27:47much of that load and caring for me, I was excited to be able to
- 27:53give that back to you which didn't end up being the case.
- 27:56It was you were seven eight months pregnant and having to
- 27:59visit me in a hospital bed. Then it's just we could always
- 28:03talk about like the expectation versus reality.
- 28:05Like we just had these expectations and it says, if we
- 28:08thought like Universe owed us, something it's not how we
- 28:11actually, like go about life and by any means, but we were like,
- 28:14okay, scary stuff is done. Now, it's time to make a baby.
- 28:17This is going to be a magical experience, butterflies and
- 28:20rainbows and whatever and then boom.
- 28:22You know, you're spending this incredible amount of time to
- 28:26Solid months in the hospital that first month, you kind of
- 28:29glossed over it. But I think back on that time
- 28:31that one month as probably one of the worst months of my life,
- 28:34I imagine yours like there was so much not knowing there was so
- 28:39much stuff that happened in that time to with your liver.
- 28:42And there was like, literally, every type of doctor that you
- 28:45never even knew existed was visiting, you on the regular and
- 28:48remember this one nurse, she didn't realize the impact of her
- 28:50words, I don't think, but she was like, man, every time I come
- 28:53on to my shift, it's something new with you.
- 28:55I don't know. The intention of it like she was
- 28:57probably like joking or whatever, but it was like that's
- 29:00how it feels and thinks for like, pointing that out.
- 29:03Yeah. When I don't know what their
- 29:05position, those social workers /.
- 29:07Pastor spiritual person? Yeah, comes to visit you and
- 29:12frequently check in on you, you know, at that point should seen
- 29:16the fan and they're talking about and trying to figure out
- 29:19how to do surgeries. They've never been done before.
- 29:21That's when she gets real scary because having a A wife and a
- 29:27child on the way that you want to meet and see grow up.
- 29:33It was a heavy time for sure. If you are to do it all over
- 29:36knowing what you know. Now would you wave a magic wand
- 29:39and change anything in terms of us being pregnant?
- 29:43Yeah, that's a good one change. The timing of it.
- 29:45Would you change the timing of all that?
- 29:47Do you think that we should have waited a five-year buffer before
- 29:49we started having kids to make sure everything was okay?
- 29:51Or what do you think? I guess I would preface this by
- 29:54saying, I wouldn't ask This early Advocate if you're going
- 29:58in for a major surgery but that would be a good time to try
- 30:02having a baby. Probably not what you want to be
- 30:07doing. That's sad I certainly wouldn't
- 30:10change anything. Obviously it was a huge extra
- 30:13load on. You not only were you carrying
- 30:15for me but then once we had a d, you were also managing both a
- 30:21newborn and me still going through my health Journey but it
- 30:26Just ended up being such to quote, my mother-in-law a
- 30:29blessing. It was a time that having her
- 30:33around just allowed us to focus on something other than the
- 30:39depressing Health crap, that we were going through, it allowed
- 30:43us to just get excited about our daughter and everything.
- 30:48You know, obviously is a new parent.
- 30:50Every little thing is just so magical and so fun that it just
- 30:55oh wow. Add me to have just incredible
- 30:58destruction. So yeah, I definitely wouldn't
- 31:00change it. I wouldn't change the timing or
- 31:05anything but yes I wouldn't Advocate try that Big takeaway
- 31:10here is not to make a baby If You're Going Through Hell stuff.
- 31:14Got it. Yeah.
- 31:15So that one surgery, I went back for ended up being there was a
- 31:19subsequent surgery, so that clot they repaired it.
- 31:24I was ready to go home. They just want to do a CT scan
- 31:27to clear to make sure everything was good.
- 31:30It revealed that the clotted actually moved lower down and my
- 31:34aorta and was now in my abdomen, whether it's left off during the
- 31:39biopsy or surgery or what. So that meant another large
- 31:43surgery that they were concerned about.
- 31:45That was quite the time. Thankfully though, we got out
- 31:48nine days before he was born. So was able to be there, I lost
- 31:55probably over. 30 pounds which for people that don't know me.
- 31:59I don't have that amount of weight to lose.
- 32:02I'm like 150 soaking wet, right? Or walking around andreea,
- 32:06definitely way more than me her pregnancy and I continue to tell
- 32:11you. But yeah, we got out at that
- 32:14point, nine days before he was born.
- 32:16So I got to be there for that stick then, but got to win this,
- 32:19that I guess I was just thinking about.
- 32:21We haven't actually talked about the people that we met on our
- 32:24journey and that could be its own.
- 32:26Episode for sure but not that we wanted to forge such meaningful
- 32:30relationships. But when you're in that
- 32:31situation so many times, with the same cast of characters of
- 32:34nurses, ICU, nurses, doctors surgeons Specialists.
- 32:38We did, I think it's worth mentioning that we had an
- 32:41incredible team surrounding us. And I say us because you know,
- 32:46maybe half that time, you were asleep and I was just sitting
- 32:48there it's cracked up he had there were some funny things
- 32:52that you said was pretty incredible to form those
- 32:55meaningful. Actions and get to know the
- 32:56people behind the face masks and Shields and all that, who cared
- 33:01so deeply, who were calling, you know, we would joke about her
- 33:04surgery ends in some, of the quirky behavior is.
- 33:06However, these people are getting on the line with like
- 33:09they're University buddies, who now work out of Texas, and
- 33:13they're collaborating with them. And spending time for sure off
- 33:16the clock, trying to figure out what's going on, sending samples
- 33:19getting grants from the government, or four, or whatever
- 33:21it was like, they were having to get, like, special permission
- 33:23from the government to be sending infections.
- 33:25Balls down to Ohio like it was just crazy stuff was happening
- 33:30in the background and I'm sure there's so much more stuff that
- 33:32we don't even know about that they were doing on our behalf
- 33:34and just being an ear Patty. Shout out to you.
- 33:37You know, we love you totally so much.
- 33:39She was the nurse practitioner on the cardiac surgery floor,
- 33:43who we got to know very, very well and she is a true Angel but
- 33:48I don't say that lightly. She was just sitting there
- 33:51listening to us. She'd say, do you have any
- 33:52questions? I don't think we would often ask
- 33:54her questions. We would just be crying.
- 33:55Hi to her, and she would just sit and listen when often she
- 33:59would be that conduit for us as well, because like you
- 34:02mentioned, surgeons are quirky Bunch.
- 34:05They are incredibly good at their jobs case in point me, but
- 34:09they aren't always the best communicators.
- 34:11And Patty was somebody where she knew that we often had a million
- 34:16questions and wouldn't necessarily know how to make
- 34:20sure that we got enough of the surgeons time or translated
- 34:24everything in the right way. And she was The do that.
- 34:26So for all the things but that was one thing that was so
- 34:29helpful that she made sure that she was able to be that bridge
- 34:33to hold up. The surgeon to ask more
- 34:36questions of them or be able to translate what they had said
- 34:40which we appreciate very much given when I was the only person
- 34:43allowed in the hospital to visit you and we couldn't have our own
- 34:46Mother's like we couldn't have your mom.
- 34:48We couldn't have my mom in their height of covid.
- 34:50Patty was like our mom who was mom's kind of get in there.
- 34:55And they, like they really stick with you and help you get the
- 34:58answers that you need. Okay, so we have a baby and I
- 35:03should ask about that. This is a parenting podcast.
- 35:05What was it like to go through a blood?
- 35:08And to be now off, work on medical leave.
- 35:10And to have this new little human, I know you said it was
- 35:13great. Something to focus on someone
- 35:15else to focus on. Get us out of this weird cycle
- 35:18that we were in. What was the journey into
- 35:20Parenthood? Like for you?
- 35:21Yeah, obviously we had all this additional stuff going on with
- 35:25the house. Journey, which unfortunately
- 35:27didn't and when Daddy was born, there was three subsequent
- 35:30surgeries. So for anybody, who's keeping
- 35:32track, that was eight surgeries and a year and a half over 100
- 35:36days in the hospital. At this point in time, we're at
- 35:37five. Yeah, we're probably at 5:05
- 35:40that point. I mean, if we count the
- 35:42surgeries when I was before a live in were at ate already.
- 35:46So, yeah, it was definitely a different journey into
- 35:49Parenthood, you know, walking down the Halls, when you're
- 35:51seven eight months pregnant to come visit me.
- 35:54It was I Think about once between my own rehab, journey
- 35:59and parenting. And I think the one thing that
- 36:04we were really grateful of as crappy as that situation, was
- 36:08that at that point, I ended up wasn't clear to go back to work
- 36:12for about 10 months. And so it meant that we were
- 36:15both together during that time because you are on mat leave.
- 36:20I was on medical leave and it was the two of us being able to
- 36:25navigate. Parenthood journey together
- 36:28through it. All it wasn't either, I'm going
- 36:31back to work or you're going back to work.
- 36:33And one of us with the child, it allowed us to fully take team
- 36:37everything, which was cool to be able to be around for all the
- 36:40experiences and as well. Just being able to collaborate
- 36:45on everything and problem solve, everything that comes up
- 36:48together which you do a lot as a new parent.
- 36:51So it was great during my rehab like I said to be able to focus
- 36:55on On a Diaz. Something to take my mind away
- 36:58from things and also just grateful that we were almost as
- 37:02consolation for that Journey we went through, we were able to
- 37:07spend that extra time together as a family so I loved it.
- 37:12So unique to give it was covid. We had so much help that could
- 37:17have been available. Like we have incredible
- 37:19families, incredible friends, who also another shout-out would
- 37:23be like the support that we got from our friends and family
- 37:25through it. With the messages in the field
- 37:27and that just unbelievable. Kindness.
- 37:30That continued to when we had a baby but you can only do so much
- 37:33in a pandemic. Like I think there's probably a
- 37:34lot of pandemic parents listening who think back and
- 37:38maybe there's a bit of, maybe a bit of trauma around that or a
- 37:40bit of just, whoa, that was a hard time because we had to do
- 37:44it all on her own. I think for us, it actually
- 37:46allowed us this space and I'm thinking of, like meditation,
- 37:50when you kind of just are able to go quiet and just reset.
- 37:53You were healing, we were all here.
- 37:55Feeling emotionally from unbelievable experience.
- 37:59I had a C-section. I guess I was recovering from a
- 38:02surgery. Myself, we were just like
- 38:03surgery, family, and Addie was just the cutest.
- 38:06Smallest, little sweetie who we were able to pour our love and
- 38:10energy into, which was pretty fun.
- 38:12So much light and dark. I feel like we talked about that
- 38:14a lot over the last couple of years about how awful things can
- 38:18be. But how I think we got through,
- 38:20I don't know. I think I got through by always
- 38:21seeing like what was the light of that and like you just
- 38:25articulated I did that. So well water cool experience to
- 38:28get to raise our daughter and that first year completely
- 38:32together as a little unit, it's pretty fun.
- 38:35Okay. So I think we'd be remiss if we
- 38:37didn't close out the story with the what happened next?
- 38:41And we've got a whole to shave every March, April, 1 week old,
- 38:45and things are too kind of go a bit awry.
- 38:48Tell us what happened next. Yeah, it went awry.
- 38:55This This kind of Journey that were on Now is all just various
- 38:59complications as a result of some of these major surgeries
- 39:03and they're things that you wouldn't even think would
- 39:06necessarily be a complication. When you're going in for a
- 39:09cardiac surgery on your heart, you think of complications about
- 39:13things not working out from our perspective?
- 39:16You don't think of things where where they're operating is
- 39:19around your vocal nerve and sometimes that can get nicked.
- 39:23During that process sometimes, See you lose your voice,
- 39:26sometimes you lose your voice, that was actually something that
- 39:30happened coming through my first set of three surgeries back in
- 39:332019 and I came out with one of my vocal cords paralyzed and it
- 39:38took some time for it to come back and thankfully it did and
- 39:42it was a period we're talking wasn't the easiest I had low
- 39:47voice I'm saying that it with voice that's all turn out as
- 39:51well. But so coming out of these
- 39:53surgery is now We've got our daughter gone through those
- 39:57major ones and these other complications are popping up.
- 40:01We were going for walks at with our daughter and you know as
- 40:05part of her nap time and me rehabbing and I was just having
- 40:10a tough time breathing and it wasn't until I had had a
- 40:14subsequent follow-up with my ENT or nose throat stock where they
- 40:20had realized that during these last surgeries both my vocal
- 40:25cords. Had become paralyzed in a fixed
- 40:28position. Basically closed, essentially
- 40:31closed. So talking was all right,
- 40:35swallowing was all right, but breathing not so easy and it
- 40:42just seemed to be progressing and getting worse.
- 40:45And so, as I tried to rehab and stuff, it was actually getting
- 40:49harder and harder to breathe. So, they initially performed a
- 40:53surgery where they literally put in a balloon.
- 40:55And they blow up the balloon to just just wide in that area that
- 40:59unfortunately didn't work. It didn't do a single thing,
- 41:02didn't do a single thing. So weeks later, it was quite
- 41:05terrible to the point where I could hardly move Addie would be
- 41:10upset on the floor and Andre was away, she'd be upstairs or one
- 41:14night and I felt like, I couldn't even generate the
- 41:17strength to be able to go and comfort her just because I just
- 41:21literally was being strangled by my own throat.
- 41:25So at that point, there was other steps that could be taken
- 41:29the ear nose and throat surgeon said at this point, the only
- 41:34thing that she could see that would properly fix things.
- 41:38I guess it hasn't been to fold, but the main thing was putting
- 41:41in a tracheostomy for those who are familiar with it, it's
- 41:46essentially a tube that gets inserted directly into your
- 41:49throat, which remains in your throat and allows you to Breathe
- 41:54In and Out directly. Only through your throat by
- 41:57passing your mouth at that time. They also did a procedure called
- 42:02a chordata me where they shaved off a portion of my vocal cords
- 42:06to try and just in large, open up that space to give me more
- 42:10room to breathe. They obviously, don't want to
- 42:12mess around with that too much, because if they enlarge it too
- 42:15much, then when may not close enough when you're swallowing,
- 42:18which could lead to you swallowing water and going
- 42:21directly into your lungs. And I mean, the risk that they
- 42:24were talking about going into that.
- 42:25Was your voice will be altered forever and oh yeah, your voice
- 42:30will probably be a whisper for the rest of your life which was
- 42:33real icing on the cake. Yeah.
- 42:35That one you talked about through all the surgeries what
- 42:39was the point where you hit rock bottom?
- 42:40I definitely think it was when they handed me that brochure
- 42:44that said how to live with your tracheostomy that point just
- 42:48absolutely sucked. At that point, they were
- 42:51managing my expectations and telling me that this was a
- 42:54situation that I was going to have to Live with, for the rest
- 42:56of my life. I was going to have a
- 42:58tracheostomy, my vocal cords through the surgeries and
- 43:03impact, and the chordata me was going to be impacted to a point
- 43:06where I wasn't going to have much of a voice.
- 43:09Obviously, what you're hearing through the mic.
- 43:10Now, this isn't my natural pre-surgery voice.
- 43:13It's obviously been altered as a result of those surgeries.
- 43:17Thankfully, it projects pretty well.
- 43:19I don't need aren't good. I don't do well in loud
- 43:22situations. So noisy restaurant stuff like
- 43:24that. I get Ground out pretty quickly.
- 43:27But ultimately, you know, it is functioning the trach though,
- 43:31that was shit. It's again, one of those
- 43:34complications that you don't think would happen going for
- 43:36your heart surgery. All of a sudden you're breathing
- 43:38through tube in your throat. It's something that required
- 43:42constant maintenance, changing it, it's completely changed
- 43:47things. In terms of going about daily
- 43:49life, I can properly have a shower because you can't get a
- 43:53wet and you can't have water going.
- 43:55In there because it's a direct line into your lungs which meant
- 44:00I could no longer swim for us every vacation that we go on
- 44:04everything that we do revolves around water that wasn't an easy
- 44:07pill to swallow and knowing that there was a good chance that I
- 44:10was going to have that for my life was definitely a tough pill
- 44:13to swallow a few times. I think I saw you cry, I don't
- 44:16know how there was only a few handful but during all this
- 44:20stuff the second the surgeon very roughly four ladies.
- 44:25Information that no, you will never swim again in your life go
- 44:28underwater. I'll never forget the look on
- 44:30your face. Like that was unbelievable and
- 44:33we expressed wow that's really hard to hear.
- 44:35And I think what her response we didn't have a great relationship
- 44:38with a surgeon. Let's just say that her response
- 44:41was like well at least you're not a fisherman.
- 44:42Like the last guy I worked with and we're like that doesn't make
- 44:45us feel better. And now we just feel really bad
- 44:47for the fishermen. So thanks not gonna call her
- 44:50out. Yeah.
- 44:51I mean like we've said we had amazing Health practitioners.
- 44:55She was the one Lip. Yeah, there was a couple in
- 44:57there. There's mod nurses but other
- 44:59than that. Yeah, we were very fortunate to
- 45:02have such a great crew working with us but yeah, not that one.
- 45:05No, not that one. Okay, I want to ask you for.
- 45:08There's a couple funny stories that came up in all this and
- 45:12then of course before we end, I want to hear how obviously
- 45:15you're going to tell the story of how you are today and how
- 45:19things are looking. But there's one story with the
- 45:21trach, the trach was not a fun experience but there was one
- 45:25experience And so you had that we still laugh about stay share
- 45:28that story. Yeah.
- 45:30So starting to return to work. It was like, I had mentioned
- 45:34after 10 months of being off work and it was a slow
- 45:38progression, it was didn't want to rush it with my vocal cords.
- 45:42They weren't at the range that they're at today and breathing
- 45:47through a drake isn't easy because it's a direct line
- 45:50through your lungs. You don't have the filtration
- 45:53that you have through your mouth and Throat.
- 45:56So are that is Dusty and stuff. That's going straight down your
- 46:00lungs. Air that is dry isn't great.
- 46:04So it's nice to be moist and all those things can be very
- 46:08irritating, so I haven't been talking a lot but now I'm
- 46:13getting into a work setting where I'm starting to talk to
- 46:15people and I've got what's called a speaking valve, which
- 46:19is a little plastic knob that goes on the end of the trach
- 46:23that allows you to inhale through The tracheostomy.
- 46:26But exhale, the valve closes and it pushes air through your vocal
- 46:31cords, which allows you to talk and make noise.
- 46:33And so, I had this, stick it on the end of my trach and I was on
- 46:37a video call and meeting somebody for the first time and
- 46:40was chatting to her. And inevitably things were gain
- 46:44irritated with in my throat and I had to cough.
- 46:46And so I turned to cough, I put myself on mute so it wasn't
- 46:51going to cough in her ears and a cough and I cough so hard.
- 46:55And it was like a spit ball through the straw or whatever.
- 46:58But basically there was enough force that my speaking valve
- 47:02shot across the room, it just flew across which the person I
- 47:08was speaking. Do didn't know where understand
- 47:10what was going on. So here I am scrambling to find
- 47:13the speaking valve around the room to stick it back on so that
- 47:18I can return to the call and try and not be super-awkward on it.
- 47:24That was your way to speak. Like, without that you had to
- 47:27let's call it. A collude the words that we know
- 47:29now is just makes it sound so fancy but he'd have to cover the
- 47:32trach on the exhale in order to speak and make sound speaking.
- 47:38Valve was vital. Oh my gosh.
- 47:39Okay, I don't even know if we have time for like there's so
- 47:41many other stories that include you know.
- 47:43Funny roommates, sweet sweet nurses and roommates that you
- 47:48had and sandwiches and all that maybe will say that for a
- 47:51funnies episode. But so that this doesn't become
- 47:53a three-hour episode. How How are you today and how
- 47:57did everything unfold? I think people probably can
- 48:01guess that you don't have a tracheostomy anymore.
- 48:03So what happened? Yeah, that was definitely
- 48:07amazing moment where after being told that I was going to have
- 48:10the tracheostomy for the rest of my life at the same time, the
- 48:15vocal cords have this interesting way of healing over
- 48:19a long period and up to a year, you can see Improvement the
- 48:23Nerf, right? The nerve yeah and everything
- 48:27and obviously we were doing with all kinds of swelling and
- 48:31inflammation and stuff as well so it was almost pretty well a
- 48:34year to the surgeries and I was kind of a woken in my sleep and
- 48:40really felt just my Airway opening up and we were very
- 48:45cautiously optimistic and took some frequent check-ins with the
- 48:49ENT who was a different ENT at that point and managed to be
- 48:55able to Remove the tracheostomy after having it for about a year
- 48:58which was an incredible experience that along with
- 49:03rehabbing my body and other ways and there's obviously still a
- 49:07long way for me to go in terms of getting back to Baseline.
- 49:10But I'm making big strides as far as regaining the body that I
- 49:15had and building myself back up. So yeah from a health
- 49:18perspective things are good I haven't been for a surgery in.
- 49:25Yeah. Since June of twenty, twenty
- 49:27one. So that's been a nice experience
- 49:31on a nice change, things are gone.
- 49:32Well, I don't think you told me right away when your Airway kind
- 49:36of opened up miraculously, and I think you forgot one piece, was
- 49:40that we were on some exceptionally expensive.
- 49:43We won't say the price, but the drugs that you were on to get
- 49:46rid of the fungal infection. Where, astronomically expensive.
- 49:51Where was in the prize? I don't know.
- 49:53You can say it is 5 grand a month.
- 49:55Month, the meds. I was on thankfully, we had
- 49:58really good through your workplace at the time, really
- 50:01good coverage. So we paid a small fraction of
- 50:04that, thankfully, but it was quite an investment to get me
- 50:09where I am today and then it was like, your Airway opened up your
- 50:13off, the antifungals, and then talk to me about your recovery
- 50:17Journey from there. So like you're recovering in and
- 50:19out of all these different surgeries and all that sort of
- 50:21thing, you hit that Rock Bottom. How did you find the motivation
- 50:24and what did you do? To come back from that versus
- 50:28the people who are like I deserve to just sit on the couch
- 50:30and just be an asshole. You mean, I'm not on our winter
- 50:36happen overnight. It was certainly, after being
- 50:38through everything that we had went through and where every
- 50:41little thing that came up ended up being the old thing of like,
- 50:45don't make a mountain out of a molehill.
- 50:47Literally everything that we came across ended up being a
- 50:49mountain, so there was a lot to get through and it definitely
- 50:53took its toll on me both physically like we Talked about,
- 50:55but also mentally it wasn't easy.
- 50:59I had a tough time with relationships outside of my
- 51:02immediate family, in terms of. How do I talk about things and
- 51:06just articulate what I went through without having to live
- 51:09through everything and there's quite a few even really close
- 51:13friends of mine that I still, haven't explained to this detail
- 51:16in terms of what I went through and so, it took some time, but I
- 51:20think when things started turning, is when I finally
- 51:23started being able to be physically, Active again for me,
- 51:27that's always been something that has been pretty critical
- 51:30for my mental. Health is staying active and
- 51:33being healthy and being able to do that.
- 51:36And it was kind of those Perfect Storm where I was clear to start
- 51:39being active. And at the same time, we were at
- 51:43a point with your work benefits that you had where it was kind
- 51:48of a use it or lose it situation.
- 51:50And we only had a month left of the benefits which I hadn't used
- 51:54any of them. I was just crushing massages,
- 51:58physio Osteo within that month. I was going, you know, basically
- 52:03just something every day and starting to work with a trainer
- 52:06and getting that slow progression and seeing the
- 52:09difference. And the trainer that I work
- 52:11with, they had this in body machine, that would kind of
- 52:14measure total body fat and weight, and all these metrics
- 52:19and spit it out. And it was pretty cool to be
- 52:21able to do that month-over-month and actually see in the As well
- 52:26and have that as an indicator of certainly, I'm starting to feel
- 52:29good, but these numbers are starting to look pretty great.
- 52:32And I'm putting weight back on and I Healthcare Providers are
- 52:35telling me to eat everything in sight, which was a pretty fun
- 52:38period where there's literally nothing that was off limits, in
- 52:41terms of eat as much as you can, we all got to enjoy that
- 52:44benefit, I had to support you in that.
- 52:49That was really the turning point for me to be able to start
- 52:52moving the right direction for things.
- 52:55Before even getting the trachea water that happen with the
- 52:58trach, still in. And then when I was able to
- 53:01remove the trach, it obviously got me to take the next Leap.
- 53:06Forward in terms of being able to continue my Improvement and
- 53:10start to get my body back over. Some of the biggest takeaways.
- 53:13You know, you go through these exceptional, times, people write
- 53:16books about stuff like this, like here's the obstacle I
- 53:18overcame, here's what I'm taking away.
- 53:21What are some of the takeaways that you feel like have changed?
- 53:24You changed your life. Four things that, you know,
- 53:26think about differently as a result of going through such a
- 53:29wild ride and you don't even like roller coasters.
- 53:32So yeah, interesting question, I don't know if I would have any
- 53:38silver bullets, you kind of expect the like I just went
- 53:42through hell and I'm going to be a completely changed person.
- 53:46I think that I'm just kind of returning mostly hopefully to
- 53:51the person I was Prior and moving past it, I think.
- 53:55There were some small things along the way, like
- 53:57understanding, how to communicate with somebody who's
- 54:00going through something, like what we went through and I
- 54:04didn't really know how to be a proper wedding guests.
- 54:08Until I had a wedding. And I think the same goes for
- 54:12people that go through, pretty, crazy experiences when it comes
- 54:15to surgeries and stuff like that and medical stuff that it's hard
- 54:21communicating with people that have gone through that sort of
- 54:24stuff, I You know, as much as I will preface this, by saying
- 54:27that everybody who reached out friends and family and whatnot,
- 54:31I knew it was from a place of love and I appreciated that it
- 54:35was just tough in the moment. Something as simple as somebody
- 54:39asking, hey, how are you doing? Oh my God, I was such a loaded
- 54:43question for somebody going through an ordeal, like we went
- 54:46through it. Well, you know what, I was
- 54:49feeling pretty shitty yesterday, I'm feeling pretty shitty today
- 54:52and good chance, I'm gonna feel pretty shitty tomorrow and I
- 54:55might have to live with the trick for the rest of my life,
- 54:57how are you? Yeah, totally.
- 54:59Aw, that's not an easy thing and there was some that cut through
- 55:04and just stuck with me. I have a very good friend, Casey
- 55:07Archibald, shout out to you, who didn't ask any questions of me.
- 55:13He wasn't trying to see what could he do or anything like
- 55:17that. He literally just sent
- 55:19ridiculously stupid, dad jokes, and, you know, that may not work
- 55:23for everybody. But in that time, Time frame.
- 55:26It was just such a breath of fresh air that he wasn't asking
- 55:29for information about how I'm doing, which makes me have to
- 55:32relive that situation. He wasn't asking what he could
- 55:35do, which then puts almost additional burden on that person
- 55:39to now have two tasks, somebody with doing something to make
- 55:43them feel better, about helping you out and things like that.
- 55:46It was just very simple and straight to the point.
- 55:48And like I said, now that I've gone through it, it's not an
- 55:51easy situation to communicate and navigate with people going
- 55:54through those situations. Nations.
- 55:55But I definitely think twice about how I approach those
- 55:58situations and always have a good dad joke on the ready for
- 56:02people that may need it. Yeah, it's such a hard one.
- 56:06We've even had friends who have gone through stuff recently and
- 56:08I've said, you know, I wish that I don't know.
- 56:10It's like we've learned so much through this experience and then
- 56:13you get back onto the other side of it where you're not on the
- 56:15receiving end, you are reminded how hard it is to navigate, what
- 56:19that person might need in the moment.
- 56:20Like what you needed was different from what I needed.
- 56:23Like, I had my roster of girlfriends Call and just cry
- 56:26too. And they knew that what I needed
- 56:28was just to listen and for me to sometimes just be irrational and
- 56:31complain and for them to not have time, give advice or
- 56:35anything like that, and maybe it's asking like, maybe it's
- 56:37asking somebody not pay. What errand can I run for you
- 56:41or, like, what are you craving in the moment?
- 56:43And like, the person could be, like silence.
- 56:46Like, I actually don't want to talk to anybody.
- 56:47There's definitely moments where we had that surgery is one
- 56:49through three. We were like, I had that
- 56:52document. We were updating people.
- 56:54We are like running, and Gutting.
- 56:55It was like this well-oiled machine.
- 56:57By the following year were eight months pregnant.
- 57:01We don't know what the hell's going on.
- 57:04People are asking what is he getting out of the hospital?
- 57:05We don't even know why he's in the hospital.
- 57:07So really don't know. And by that point everything
- 57:10went out the window, the needs changed and that's a big
- 57:13takeaway for me is also just if you're the one experience it in
- 57:16the moment to know that the blog post or what another person is
- 57:21telling you you should do to survive that moment, it could
- 57:25work. Day, it might not work the next
- 57:26and like, you know, the Google Doc worked for that one set of
- 57:29surgeries, it didn't work the next time.
- 57:30And what we needed was just to be quiet and we shut the world
- 57:34out and that's what we needed. And I have no regrets about
- 57:36that. It might have made a few people
- 57:38upset, or whatever, but it wasn't about other people at
- 57:40that point. It was about us.
- 57:42And how are we going to survive this situation?
- 57:44And we've come back to those friendships and those
- 57:46relationships when we have the capacity to breathe and
- 57:50communicate and record a podcast on it, there was a certain
- 57:55Initiative that was taken that we noticed that worked well in
- 57:58our case and you know less of reach out and be like hey how
- 58:01can we help? What can we do?
- 58:03It's hey I've got this frozen lasagna, I'm gonna drop off your
- 58:06house. Say no if you don't want it
- 58:08otherwise it's going to be here at X time or whatever.
- 58:11I think that the move I think that we appreciate some of the
- 58:14height and just not having to organize and coordinate any
- 58:19support and just have that kind of more TurnKey aspect of
- 58:22things. And I think that we've tried to
- 58:24implement Some of that in our lives when friends have a baby
- 58:29or something like that, we try and just do something about it
- 58:32versus tiptoeing around. Like that was what to do, what
- 58:35can we do? Which can be burdensome for that
- 58:38person. Totally!
- 58:40Okay. I want to switch gears now, it's
- 58:43so interesting to hear your perspective on the whole
- 58:45situation. And might, I say, you're a great
- 58:48Storyteller, you're welcome on the podcast again, but I want to
- 58:51just touch on work for a bit and that is Thing, that was coming
- 58:56and going constantly with surgeries and can you share a
- 58:59bit about what that work. Journey looked like, throughout
- 59:02all of this other stuff here of navigating and juggling.
- 59:05Totally, I was in a situation where I had moved into an new
- 59:12company at and a 20-18 going into 2019 and I was in a new
- 59:19role it was a leadership role. I was Reina Department, I had
- 59:24people reporting into me. I was accountable for a lot of
- 59:26stuff, and I found out that I was going to be going in for
- 59:30surgery is in February. So, I had been in the position
- 59:34for 23 months. People are still like, who are
- 59:37you? Yeah, totally.
- 59:39What's your name? I don't like.
- 59:41Oh, PS. I'm going in for these major
- 59:42surgeries coming up. So I wouldn't say that.
- 59:45I really know the exact way to navigate things, I can share my
- 59:51experience and what I found going through it.
- 59:53I don't know what the perfect answer is.
- 59:55Is you mean navigating things from like if you're going
- 59:57through health challenges, navigating work family whatever.
- 1:00:01Yeah. Navigating the work situation
- 1:00:04when you find out that you're going to be going through these
- 1:00:07words, I all challenges that may take you away from work for a
- 1:00:11period of time. For me, I told work right away
- 1:00:16when I found out that I was going to be going in for
- 1:00:19surgery, I told them February basically, right after I found
- 1:00:23out, it was a new job and So I wanted to be a front open
- 1:00:27transfer, even if it wasn't a new job, that's just the way I
- 1:00:30roll and the way I operate in hindsight, I don't know what the
- 1:00:33best way to go about that is in Canada.
- 1:00:36Our Healthcare System can take a bit to gain momentum and also in
- 1:00:41my situation there was further tests that were required and
- 1:00:45they need to line things up and is much as it was a major
- 1:00:49surgery. It wasn't desperate surgery, it
- 1:00:52was something that I had been living and It was kind of like,
- 1:00:56I seem to be operating in fine, but they need to go in and fix
- 1:00:59the plumbing and just do some tuning up.
- 1:01:03So, it was a surgery that didn't actually happen until September.
- 1:01:06And I told the organization in February that it was gonna
- 1:01:10happen. So it was this kind of weird,
- 1:01:12sort of limbo, where we went through these months, where I
- 1:01:15didn't know when I was going to get the call and when that was
- 1:01:17gonna happen, so we weren't in a position where we're really able
- 1:01:21to prepare that far ahead. And I found out I was going in
- 1:01:25for surgery. All of I don't know, maybe ten
- 1:01:28days before surgery which then ended up, even though I told the
- 1:01:31organization months I had it was a Mad Dash in a scramble to get
- 1:01:36everything organized before I went off.
- 1:01:38I think another thing in hindsight navigating that work
- 1:01:41relationship that I figured out after the first set of surgeries
- 1:01:45and I kind of learned from that experience is you should really
- 1:01:49figure out what your workplace, what your medical leave plan
- 1:01:53looks like up front. And figure out.
- 1:01:57Am I going to stay on salary? Am I gonna go oniy?
- 1:02:00I how do I apply for? He, I, what's my expected.
- 1:02:04Return date, in my case, given it was such a short Runway.
- 1:02:09Before I went in for surgery, my employers trying to help me
- 1:02:14navigate that they said, well, let's just figure it out.
- 1:02:16After you go in, you focus on your health, you get your
- 1:02:20surgeries done, we'll talk about it after which for me.
- 1:02:24Now And through it I realized that I should have really kind
- 1:02:28of push to figure out what exactly that was going to look
- 1:02:30like what we found out after the first set of surgery is you
- 1:02:34can't necessarily apply for EI retroactively, my company
- 1:02:38decided to leave me on salary but basically I had to pay back
- 1:02:44for some of that period that I was off, which meant that we
- 1:02:47finally decided and agreed on. We were just going to wipe out
- 1:02:51all my remaining vacation for that previous year and all All
- 1:02:55my vacation going forward for that next year seemed like an
- 1:02:59okay plan at the time, but jumping right back into work and
- 1:03:03going through that year without a single day off.
- 1:03:05After that experience, it was something that definitely didn't
- 1:03:10land me back in the hospital but it definitely wait on me.
- 1:03:13In terms of not being able to fully balance work and rehab and
- 1:03:19taking care of myself to jump right back into things without
- 1:03:23having any days off and looking. Back at how much time you ended
- 1:03:27up having to take off like that year, basically, when Addie was
- 1:03:30little that you ended up taking off thinking about those first
- 1:03:33three surgeries were major heart surgeries.
- 1:03:35And then taking after that last third surgery, which was really
- 1:03:38big and it was a really hard recovery, you were off for like
- 1:03:41a month or something. Yeah, I mean, those three
- 1:03:44surgeries happen over the course of a couple months.
- 1:03:46And so I was in and out of work, I would be off for a few weeks
- 1:03:49and then I'll be back and then I go in for another surgery and
- 1:03:52I'd be all for a week. And then back, I think the
- 1:03:54largest period I was awful. Was maybe six weeks.
- 1:03:57The doctors had recommended about three months given I would
- 1:04:00remained on salary with the organization.
- 1:04:03I just felt the pull to go back to work and get back to work as
- 1:04:07quickly as possible. So I brush it back and I
- 1:04:10remember being back at the first day of work and working on this
- 1:04:14big presentation for Dell technologies that I was at work
- 1:04:17in the office pre-pandemic till after 8.
- 1:04:21P.m. literally my first day, back in the office, coming back
- 1:04:25from These major surgeries and given we had the fact that we
- 1:04:29had more surgeries down the road in the do-over.
- 1:04:32We approach things very differently the next time around
- 1:04:34where it was like no I'm gonna go any eyes so I don't feel the
- 1:04:38pull to get back to work. I'm going to take the time that
- 1:04:41I need. I'm going to go along with
- 1:04:43exactly what the doctor recommends which ended up due to
- 1:04:46my vocal cords and whatnot was all of ten months being off.
- 1:04:49When I go back, I'm gonna go back in a graduate at format and
- 1:04:53not get slapped in the face. As with it a p.m. working on a
- 1:04:57presentation, the first time back.
- 1:04:59How did you make that bridge and that decision to get into the
- 1:05:02work that you're doing now? Maybe you can explain.
- 1:05:04So I think this is interesting. I think there's a lot of sorry
- 1:05:06before I go into like my actual question, I think there's some
- 1:05:09interesting parallels with perhaps the audience here where
- 1:05:12people might be coming or going from a maternity leave and they
- 1:05:15might actually resonate with a bit of the story around that
- 1:05:18feeling of like oh I should be going back, putting the word
- 1:05:21should in front of anything. So you're going back to work
- 1:05:24after. All is said and done.
- 1:05:26Eight surgeries and work. Looks a little different for
- 1:05:29you. Can you share a bit more about
- 1:05:31that in the decision-making process that went into all that?
- 1:05:34I was basically cleared to go back about four days of work a
- 1:05:40week with limited meetings. So trying to ensure that I had
- 1:05:46down time where I was able to reply to emails and do stuff
- 1:05:49like that. There would give my vocal cords
- 1:05:53break so I was cleared for I that that was, you know, in the
- 1:05:57fall kind of september/october time, period of 2021 and through
- 1:06:04working with the organization that I was with and coming back
- 1:06:07off medical leave, we had quite a bit of back and forth and I
- 1:06:11would say to anybody whether they're going through medical
- 1:06:14leave or mat leave, and they're starting those discussions up
- 1:06:18with an organization and they are unsure how to navigate it.
- 1:06:23I would say don't be afraid to Reach out for legal support
- 1:06:28through that. I initially had support from a
- 1:06:31good friend of mine. T who is a lawyer?
- 1:06:34And she was able to Ali's kind of give me some initial guidance
- 1:06:39and as we got deeper into the back and forth with
- 1:06:42organization, what I was going to look like my return and
- 1:06:45making sure that worked for me. I got to the point where I
- 1:06:47actually needed some additional more formal legal support.
- 1:06:51So reach out to an actual firm that deals in Employment law.
- 1:06:56And they were just very supportive and just ensured that
- 1:06:59I was set up for success and new what I should be negotiating or
- 1:07:04not in terms of my return and how to make it work for me,
- 1:07:07ultimately we decided what the organization that I was with.
- 1:07:11At that point that I wouldn't go back.
- 1:07:14I would part ways with our organization.
- 1:07:16So we amicably, parted ways, and I moved on for that
- 1:07:21organization, which I think mentally, I was ready to Hit the
- 1:07:25reset button and try something new at that point.
- 1:07:28Anyways from there I was kind of left with.
- 1:07:31Okay what do I want to do next? I've worked across a number of
- 1:07:34different agencies and different markets and different clients.
- 1:07:38What do I want to do from here? And at that point I was trying
- 1:07:42to figure out what I want to do and I kind of just fell into a
- 1:07:47couple contracts one from a good colleague of mine.
- 1:07:50You mentioned that they may need some marketing support with
- 1:07:54there. Organization.
- 1:07:56They're going through, a change organizationally from a branding
- 1:08:00identity perspective. They were going to be rolling
- 1:08:03out a new brand identity and they didn't necessarily know how
- 1:08:06to go about that. Then there is another company.
- 1:08:09They came about, I roll my eyes because my mother is gonna love
- 1:08:13that she has a shadow for this, but she was talking to the
- 1:08:16neighbor and they put me in touch with a colleague that
- 1:08:21landed me another contract. So I don't know where where I
- 1:08:24was This is really looking to be in the contract world.
- 1:08:28I kind of just fell into it and for me it was just at the time,
- 1:08:32just a bridge. Okay, I'm gonna work on this.
- 1:08:34It's going to be short term period.
- 1:08:35I'm going to feel it out and have an income come back to me,
- 1:08:40which is going to work. Well, well I figure out what
- 1:08:42ultimately, I want to do and then fast forward over a year
- 1:08:46later. I'm still working in this
- 1:08:48contract capacity and it's been great.
- 1:08:50I've never seen you happier in the workspace without like
- 1:08:54speaking on your behalf. A half just from my perspective
- 1:08:57seeing you finish up work at a very reasonable time we're
- 1:09:01cooking or playing with a d by 5:00, 5:30 or sitting down as a
- 1:09:05family to eat dinner at 6 every single night.
- 1:09:09Oh my gosh, it's just such a gift and to get to see you and
- 1:09:12just to chat about our days in this like fun positive way.
- 1:09:15Like, oh, this funny thing happened at work today or I can
- 1:09:18share like, oh this client did this really cool thing while
- 1:09:21protecting privacy. Of course our dinner
- 1:09:24conversations are just So different to, what advice would
- 1:09:27you give to anybody who might be considering contract work?
- 1:09:30As an option for shaking things up?
- 1:09:32When they become a parent, you know what I liked about, what
- 1:09:36I've been enjoying about contract work, is getting paid
- 1:09:39for every hour that I work, which is a complete change.
- 1:09:43I was always in world of advertising where I will work,
- 1:09:46incredibly long hours and sometimes my timesheets would
- 1:09:50show over a full week's worth of work and in two days of the
- 1:09:54week. And was Christian or going over
- 1:09:57the eight hour work weeks which was crazy.
- 1:10:00And I was always nervous to think about what if I calculated
- 1:10:03my hourly rate based on my salary and how much actually
- 1:10:06work and it was just kind of a draining thing in it and that
- 1:10:11was before I had kid soon-to-be. Kids said to now thinking about
- 1:10:17okay, how do I ensure that I had to have balance, which is really
- 1:10:20important for me and being able to have that game paid for Our
- 1:10:25means if I need to plug in after I put a tee down to bed for a
- 1:10:30couple hours, it just doesn't feel like this grueling
- 1:10:33exercise. It means I'm doing it, and for
- 1:10:37every hour that I'm putting in, I'm getting something out of it.
- 1:10:40And likewise, I don't have to feel incredibly guilty if I need
- 1:10:44that space and time within the typical work week to go and see
- 1:10:48my trainer for a session and do physical activity outside of it
- 1:10:52or something, comes up with the Agency for the new baby and I
- 1:10:56need to drive you to get checked out with your, OB, I can do that
- 1:11:01and feel like that's fine. I'm not getting paid for that
- 1:11:06time. I can make it back later or I
- 1:11:09cannot. So it just gives me a lot more
- 1:11:11control that I've preciate it during this time to work when I
- 1:11:15work best. And when I'm not working, that's
- 1:11:19okay. I'm not letting anybody down
- 1:11:21because I'm not charging you for that time.
- 1:11:23That's really cool. Scotty.
- 1:11:25Well, would you say you're still trying to figure out?
- 1:11:27Well, I would say everything, but if I was to narrow it down,
- 1:11:32I probably say, three buckets from a work perspective, this
- 1:11:35contract work has been great. I would say that contract work
- 1:11:40is really only as good as the pipe line of work that's coming
- 1:11:44in. So, I'm figuring out how to
- 1:11:47maintain a steady Pipeline and steady flow of work.
- 1:11:52So I have lots to dig into Scotty, barbaracle, Um.com,
- 1:11:56yeah, I'm getting. No, really, he's great.
- 1:12:03I would say, from a family perspective, I'm figuring out.
- 1:12:06Baby. Number two, that is fast
- 1:12:08approaching, which I'm finding seems to be a Common Thread with
- 1:12:11people that have more than one kids's.
- 1:12:13You tend to be over prepared for the first kid and drastically
- 1:12:17under prepared for the second. Get it.
- 1:12:19So we're figuring out. Where are we gonna put this
- 1:12:21baby? And what's that room going to
- 1:12:24look like and Are we going to work from home as to working
- 1:12:28from home adults and a house that we love.
- 1:12:32But we got it. Not thinking that we were both
- 1:12:35going to be working from home. So having two kids.
- 1:12:39Yeah. And then I would say lastly from
- 1:12:41a health perspective it's been a crazy Health Journey for me and
- 1:12:45I always appreciate it being active, but I am focusing even
- 1:12:50more attention on my body and getting that back to where It
- 1:12:55was and staying healthy. And so figuring out how to
- 1:12:58balance this work situation and family and giving my full time
- 1:13:05and attention to my family. Well, focusing on my help and
- 1:13:10continuing to push that forward. Your real life superhero.
- 1:13:13My Iron Man care, The Rock in our family.
- 1:13:17You've gone through so much for us and I guess with us and you
- 1:13:22inspire me a lot, it was really fun, getting to chat with you
- 1:13:24and Your side of the story, I've lived my own side of the story,
- 1:13:28but that was pretty cool and I think it's going to be super
- 1:13:30inspiring for anybody going through a hard time or rocky
- 1:13:33time know that you can go through some really crazy stuff
- 1:13:37and come out I think even better.
- 1:13:39I think you were saying you're on it to get back to Baseline, I
- 1:13:42think you're even better so thank you for coming on.
- 1:13:45I love you. Have you to thank you for
- 1:13:48listening. You can access all resources
- 1:13:50mentioned in this episode via my website andreea bar.com, /
- 1:13:54podcast, And let's chat on Instagram.
- 1:13:56I'm at andreea bar coaching and I reply to every DM, I get if
- 1:14:00you loved this episode, don't forget to quickly hit that
- 1:14:03button on your podcast app to give me a five star rating, and
- 1:14:06drop in a review. It would truly mean the world
- 1:14:09and if you're like me and love to share things that you love,
- 1:14:13send this episode to a friend who you think would appreciate
- 1:14:15this topic. Thanks again for listening, and
- 1:14:18I'll chat with you next week. And let's chat on Instagram.
- 1:13:56I'm at andreea bar coaching and I reply to every DM, I get if
- 1:14:00you loved this episode, don't forget to quickly hit that
- 1:14:03button on your podcast app to give me a five star rating, and
- 1:14:06drop in a review. It would truly mean the world
- 1:14:09and if you're like me and love to share things that you love,
- 1:14:13send this episode to a friend who you think would appreciate
- 1:14:15this topic. Thanks again for listening, and
- 1:14:18I'll chat with you next week.