Latest / Live Free Ride Free with Rupert Isaacson / Voices Beyond Words: Helena & Lina Hjalmarsson-Lyons on Autism, Love & Communication | EP 37
Transcript
- 0:00Rupert Isaacson: Thanks for joining us.
- 0:01Welcome to Live Free, Ride Free.
- 0:03I'm your host, Rupert Isaacson, New York Times bestselling author of
- 0:06The Horseboy and The Long Ride Home.
- 0:08Before I jump in with today's guest, I want to say a huge thank you to you, our
- 0:13audience, for helping to make this happen.
- 0:15I have a request.
- 0:16If you like what we do here, please give it a thumbs up,
- 0:19like, subscribe, tell a friend.
- 0:22It really, really helps us to make the pro.
- 0:24To find out about our certification courses, online video libraries,
- 0:29books, and other courses, please go to rupertisaacson.com.
- 0:34So now let's jump in.
- 0:36In this episode, you're gonna see something absolutely unprecedented.
- 0:40It's a girl, Lina, who has been nonverbal until quite recently, who has become
- 0:45verbal and communicative through a letter board, and you're gonna see her spelling
- 0:50out the letters both verbally and with her finger on her letter board, and putting
- 0:56together the sentences to answer my podcast questions, which is extraordinary.
- 1:01As you can imagine, this is gonna be a slightly laborious
- 1:05process at the beginning.
- 1:06So the first time she answers me, we will start off with the first one where
- 1:10we actually let her spell it all out laboriously, but in the inter interest
- 1:14of brevity Thereafter, we will cut ahead.
- 1:18Through that process to her answer.
- 1:20Otherwise obviously it'll take a very long time to listen to, but it is absolutely
- 1:23extraordinary and if anybody wants to listen to, listen to or see the full uncut
- 1:27version, we will put that up somewhere.
- 1:30So strapping guys, because this is something frankly I
- 1:33have never experienced before.
- 1:34Someone going from nonverbal to verbal in this way it's
- 1:38something incredibly beautiful.
- 1:39Welcome back to Live Free, ride Free.
- 1:41I have a very, very old friend and dear friend Helena Hjalmarsson here.
- 1:44Mm-hmm.
- 1:46And her daughter Lina, who I've also known from time.
- 1:50Those of you who know me and my story know that I'm an autism dad.
- 1:55And that in the early years of my journey with my son Rowan he was nonverbal.
- 2:01And this changed through interactions with horses and nature and so forth.
- 2:08HeLina has been one of my heroes for a long time.
- 2:13Swedish, living in New York.
- 2:15Autism mom and Lina, her daughter also we're so honored to have
- 2:21with us have been a team f.
- 2:24And have gone through.
- 2:27You guys have gone to Hallenbeck, you know, and, and yet here you're,
- 2:30and yet, and listen, lads, listeners, these guys really have gone.
- 2:37There's no, there's no, there's no.
- 2:40So the fact that they're sitting here glowing and smiling in upstate my toast.
- 2:45So I'm gonna, yes.
- 2:47I'm gonna ask you guys to introduce who you are, what you do, how you
- 2:52came to New York, how you came to this adventure, where you are now.
- 2:56So over to you.
- 2:57Helena Hjalmarsson: JL what is I talk about in toast?
- 3:00On?
- 3:01Mm-hmm.
- 3:01DY mm-hmm.
- 3:04Day.
- 3:05MD, day L rig, Uhhuh a rig, horse, and toast.
- 3:12M Yeah.
- 3:12Mm-hmm.
- 3:14Y Wrigley d Uhhuh.
- 3:16Really?
- 3:17That's what had him toe down.
- 3:18I see.
- 3:19C ni, TDD excited back in toe stem, O to, mm-hmm.
- 3:26B, D to B-H-D-R-D-I am already rly.
- 3:33Excited to be here.
- 3:36Rupert Isaacson: Thank you so much.
- 3:37Well, the, the fact that I'm, you here, Lina speaking off the, the letter
- 3:43board is something incredible because in my past interactions with you we
- 3:49haven't been able to have this kind of verbal contact, so I've had to guess
- 3:52switch on if I'm getting it right.
- 3:54So at this is, it's amazing.
- 3:57At what point did this ability to communicate through the letter
- 4:02board really start for you?
- 4:06Helena Hjalmarsson: I.
- 4:08RD Day LY Iray for him.
- 4:13Toast on it really was S.
- 4:15Mm-hmm.
- 4:16Day A L do NG.
- 4:20Long day Uhhuh, ND, and, and some toast on.
- 4:25Mm-hmm.
- 4:26And D.
- 4:28Mm-hmm.
- 4:32X, yeah.
- 4:34C, right?
- 4:37U, yeah.
- 4:38T nine.
- 4:40Mm-hmm.
- 4:43D.
- 4:44Yep.
- 4:44Pick it up a little.
- 4:45T.
- 4:45Yes.
- 4:46You got it.
- 4:46Nine.
- 4:46Mm-hmm.
- 4:47NG.
- 4:48Yeah.
- 4:50P.
- 4:50You got it.
- 4:50R.
- 4:51Mm-hmm.
- 4:51O.
- 4:52Mm-hmm.
- 4:52Mm-hmm.
- 4:52D.
- 4:53D.
- 4:54Yeah.
- 4:55S.
- 4:56S.
- 4:56Yeah.
- 4:56It really was a long and excruciating process.
- 5:01Rupert Isaacson: Can you tell us when it began and what were the main challenges?
- 5:07Helena Hjalmarsson: Yes.
- 5:09Na nan s no, I real one, Yeah.
- 5:15LE in so many ways, I mastered the impossible, and it
- 5:19really did feel impossible.
- 5:21And, and, and it was very hard for you to even sit and Yes.
- 5:25You know, it was pretty dramatic session.
- 5:28Yes.
- 5:28Yeah.
- 5:28Rupert Isaacson: What made you persevere with, with it, Lina?
- 5:32Yeah.
- 5:32Why not just stay inside your world?
- 5:34Why not just stay inside your bubble?
- 5:36Why go through this excruciating process?
- 5:38Yes.
- 5:39Helena Hjalmarsson: Mm-hmm.
- 5:40Yes.
- 5:41Na n yeah.
- 5:42DLD in my life, I always endure the impossible.
- 5:49Na, uhhuh nan.
- 5:52NL uhhuh.
- 5:55D.
- 5:56Yeah.
- 5:58W uhhuh in learning how?
- 6:00Two . In learning how to spell, I set hi on a cloud.
- 6:07Rupert Isaacson: Yes.
- 6:09So my question though is with it being so hard to learn how to do this,
- 6:15Helena Hjalmarsson: yeah.
- 6:15Why
- 6:16Rupert Isaacson: learn?
- 6:16Why not just stay inside your bubble?
- 6:19Helena Hjalmarsson: I think if, you know, sitting high on a cloud means happiness.
- 6:22Right?
- 6:23Rupert Isaacson: Yeah.
- 6:24Helena Hjalmarsson: So, you know, it just made her happy to be able to, okay.
- 6:27Mm.
- 6:29Rupert Isaacson: Fantastic.
- 6:30Alright, here's another question, Lina, before you were communicating
- 6:36through this letter board
- 6:38Helena Hjalmarsson: Yeah.
- 6:39Rupert Isaacson: Were you communicating in other ways?
- 6:43And if so, how?
- 6:44Helena Hjalmarsson: Mm.
- 6:45Okay.
- 6:48IN skip it in so many ways and go straight on.
- 6:53Mm-hmm.
- 6:53R,
- 6:54Lina Hjalmarsson: one be just having, having, have you, have you having, you,
- 6:59having you a, a slice of toast R mm-hmm.
- 7:02Helena Hjalmarsson: In real time I saw incredible opportunity.
- 7:03You wanna elaborate a little or No?
- 7:05No.
- 7:06Okay.
- 7:07Okay.
- 7:08Rupert Isaacson: Okay.
- 7:09So do you.
- 7:12Still or also communicate in other ways.
- 7:16Helena Hjalmarsson: Oh, yeah, that's what the, that's right.
- 7:18Mm-hmm.
- 7:18Yes.
- 7:22So in seeing how a, a real way that I can say what I think in
- 7:27saturating all, other languages.
- 7:32You, you're gonna have to explain this, but virtue you, you have
- 7:36celebration to bake some morran mm-hmm.
- 7:39And saturating all other languages.
- 7:41Uhhuh, . Just like one, one language.
- 7:44Yes.
- 7:44Yeah.
- 7:44But so are you then saying that you did have other languages before?
- 7:48Okay.
- 7:49And I think that what Lu Rupert is interested in is,
- 7:53can you describe any of that?
- 7:56First one, or you don't wanna elaborate on that first?
- 7:58You wanna speak to more celebration on?
- 8:00Yeah.
- 8:01So what do you think?
- 8:02Ni?
- 8:02Mm-hmm.
- 8:04. I think Rupert loves the other languages.
- 8:10Rupert Isaacson: Well, that is very astute.
- 8:12Yeah.
- 8:13So I, I've come about it, I suppose the opposite.
- 8:20Helena Hjalmarsson: Hey, let's listen to what, so
- 8:22Rupert Isaacson: I, growing up,
- 8:24Helena Hjalmarsson: yes.
- 8:24Rupert Isaacson: Had a very private language with yes, one could say God
- 8:29or the divine as a very small boy.
- 8:32And I always to some degree could talk to animals and I could
- 8:37always, to some degree feel the landscape and nature talking to me.
- 8:42But as one gets older, this gets quieter.
- 8:47And then I fell in love with words and became a writer.
- 8:52And a word Smith you could say.
- 8:54And now increasingly I am, let's say I love both.
- 9:01I value the.
- 9:03Ability to speak as we're speaking in real time.
- 9:08And I'm, I know that you're also writing Lina and I, I'd love you to Yes.
- 9:12Share some of what you've been writing, but I am also interested Yes, of course.
- 9:17And I do love your right these other languages because I think if it's
- 9:23something that we need to know, and so people like you who have a, had access
- 9:29to those other languages in a very real way, I think have a lot to teach us.
- 9:33Because I think we all could access them if we, if we're shown how.
- 9:39And we probably know them when we're very, very small and
- 9:44then little by little, yeah.
- 9:47The noise of the world takes them away.
- 9:50So you are right.
- 9:51I do love those other languages, but I also love this language
- 9:54that we are sharing now.
- 9:55And I, and I really value your.
- 9:59Mastering of it in those other languages that you are so right.
- 10:02That I love.
- 10:05What can you share with us who are stuck in this type of language?
- 10:12What can we learn from those other languages?
- 10:16And can we learn, can we learn to speak them and hear them?
- 10:21We neurotypical people
- 10:23Helena Hjalmarsson: what you think?
- 10:23Yeah.
- 10:25Na,
- 10:26Rupert Isaacson: a very long question.
- 10:27Sorry.
- 10:31Helena Hjalmarsson: IS nan It is not for me to say if other
- 10:37people on the spectrum talks.
- 10:40In other languages.
- 10:41Yes.
- 10:42Rupert Isaacson: Right.
- 10:46Helena Hjalmarsson: NY . Thanks.
- 10:50H.
- 10:50Mm-hmm.
- 10:50D me.
- 10:51Did you get that?
- 10:53That can, can you put
- 10:54Rupert Isaacson: that together for me?
- 10:56Helena Hjalmarsson: Yeah.
- 10:56In the past I saw things about other people that was overwhelming to me.
- 11:03Rupert Isaacson: Okay.
- 11:05Helena Hjalmarsson: I, I, ST, . I still see, see things about others.
- 11:09Emotion first.
- 11:10Yeah.
- 11:10. I still see things about others emotion.
- 11:13That is almost comical to me.
- 11:15Rupert Isaacson: Almost what?
- 11:16To me, comical.
- 11:21And
- 11:21Lina Hjalmarsson: can you tell us
- 11:22Helena Hjalmarsson: a little more about
- 11:23Lina Hjalmarsson: that?
- 11:24First?
- 11:25First, you want,
- 11:26Helena Hjalmarsson: you wanna be behind black, black chocolate arms.
- 11:28Uhhuh?
- 11:28Yes.
- 11:29Nine
- 11:30Lina Hjalmarsson: first you go, go first.
- 11:32You go in the red car.
- 11:33Helena Hjalmarsson: Mm-hmm.
- 11:33Lina Hjalmarsson: Yeah.
- 11:34I see
- 11:34Helena Hjalmarsson: how incredibly intensely.
- 11:36And then my, and then I lost you.
- 11:39NY my I see.
- 11:42How incredibly intensely my not so rallied mom wants to help me.
- 11:49I, yeah, I, I, it's like a little bit, sort of hard to
- 11:53understand it, but I think.
- 11:54If I'm guessing you're saying I'm very intense and, and,
- 11:58and, and wanting to help you
- 12:02first.
- 12:03Rupert Isaacson: I'm not sure mothers have a choice in that.
- 12:06I think, I'm not sure parents have a choice in that.
- 12:08I think because
- 12:10Lina Hjalmarsson: become a
- 12:10Rupert Isaacson: parent, you have an intense desire to your child.
- 12:14What can you do?
- 12:14Yeah.
- 12:15Helena Hjalmarsson: Right.
- 12:16Exactly.
- 12:17DI . Yeah.
- 12:19So I guess you, you're saying that it's it's okay.
- 12:24She can see the love
- 12:25Rupert Isaacson: makes you feel love.
- 12:26Helena Hjalmarsson: Yeah.
- 12:27Rupert Isaacson: Yeah, yeah.
- 12:27Yeah.
- 12:28I follow that.
- 12:29Helena Hjalmarsson: Yeah.
- 12:30Rupert Isaacson: That's lovely.
- 12:31I, do you speak to or hear from nature?
- 12:37Helena Hjalmarsson: Na.
- 12:37I-S-D-D-C-H kind of forgot what you were saying.
- 12:42Can you say it in a simple way
- 12:44Lina Hjalmarsson: first?
- 12:44Your first Mt.
- 12:45Cuts in the same uhhuh,
- 12:49Helena Hjalmarsson: you're saying you wanna be on this planet?
- 12:50Yeah.
- 12:51And what else then?
- 12:54I, IS see incredible beauty in this.
- 12:58On you say on, but in this world.
- 13:00Mm-hmm.
- 13:01. . Other Dance Planets.
- 13:04Am I to realize real life?
- 13:06Yes.
- 13:07Or other planets?
- 13:09Yes.
- 13:09Do you have an answer to that?
- 13:13S.
- 13:13This PL day planet Uhhuh?
- 13:18Yes.
- 13:19And what do you think you're gonna be doing on this planet?
- 13:22What?
- 13:22Why are you here?
- 13:25Nine I think I'm here to share my real feeling of love.
- 13:31. . So you are here.
- 13:32Are you taking a break?
- 13:35So she says, I think I'm here to share my real feeling of love.
- 13:38Very good.
- 13:40Rupert Isaacson: And then
- 13:40Helena Hjalmarsson: that's more, and I don't know where we're going with it.
- 13:44Rupert Isaacson: Well.
- 13:45In terms of that sharing, I know that Lina's been writing.
- 13:48So would it be all right to read and share some of Lina's writings
- 13:56that are sharing that love?
- 13:57Helena Hjalmarsson: What do you think would you be up to for that?
- 14:02no.
- 14:03Still wanna share needing to master the courage.
- 14:06Mm-hmm.
- 14:09The courage.
- 14:10T, no.
- 14:11Two
- 14:13. To align with this planet, I still need to wanna share,
- 14:16needing to align with this planet.
- 14:19Yeah.
- 14:19I think that Lina is saying is that, you know, you know, but she, she
- 14:24is, she knows all the other stuff.
- 14:26You know, she can, you know, she, she has traveled Yes.
- 14:31All around, you know?
- 14:33But that this is that she feels that the main task right now is to be on this
- 14:38planet, to be here to, to not necessarily dabble too much in the, in the mystical.
- 14:47That's for her, like, for me being in, in that other space, to have a con,
- 14:52that kind of connection that saves me.
- 14:55But for Lina, she feels like different, you know?
- 14:59Rupert Isaacson: Yeah.
- 15:00Helena Hjalmarsson: So it's so obvious to her, you know what I mean?
- 15:01It's so obvious that stuff that, you know, she, she wants to try to be here.
- 15:08Is that correct, Lina?
- 15:10Is that correct?
- 15:10Yeah.
- 15:11Okay.
- 15:12All right.
- 15:12Yeah, you can add something or is
- 15:16that good?
- 15:17Rupert Isaacson: in that case, would you, okay, when you're ready.
- 15:20Helena Hjalmarsson: Yeah.
- 15:20U the So true.
- 15:23Yeah.
- 15:25Can I share what Rashid where?
- 15:29Tam toothpaste?
- 15:30Yeah.
- 15:31Yes.
- 15:31Can I share with you that what, what, what we were talking to with Ma Mari about?
- 15:38Yeah.
- 15:38Would that be okay?
- 15:39Yes.
- 15:40Okay.
- 15:40Because you were like, what were, you were kind of very young.
- 15:44We met with this, this you, west African, you
- 15:46Lina Hjalmarsson: were brush with base arm mm-hmm.
- 15:51Helena Hjalmarsson: Shaman.
- 15:52Yes.
- 15:52And he was saying that, you know, Le Lina, you know, he was doing divinations
- 15:58for us for all of us individually.
- 16:00And saying that Lina, was just you know, she could read a book and go all
- 16:05the way back to when it was written and, you know, the intention before
- 16:09it was even written and sort of follow it back wherever, you know, and and
- 16:14just kind of, he, he was telling me also that, you know, you, you rash
- 16:20Lina Hjalmarsson: she wear.
- 16:20Yeah.
- 16:21I should just ask, wear yellow to paste.
- 16:23Yeah.
- 16:24Helena Hjalmarsson: Yeah.
- 16:24I should just ask as many questions as I possibly can to really try to
- 16:28learn as much as I can for as long as, you know, she is willing to share it.
- 16:32But I think there maybe there's like different Yes.
- 16:36You know, periods of life where now you're trying to get into college, you know,
- 16:41you're, you know, you, you know, and, and, and that, that, that he was also
- 16:46saying that Lina was initiated too early.
- 16:50And so it was too overwhelming, you know, not ready, not not, you know,
- 16:55and, and in fact Malema himself had that similar experience when he was little
- 17:00and he lived in the village of Dra dra.
- 17:04And he saw.
- 17:06One of these dwarfs in the bush and his mom said, oh no, you are never gonna
- 17:11come with me to pick up wood anymore.
- 17:13You know, you because he wasn't ready for it, you know?
- 17:17Rupert Isaacson: Yeah, yeah, yeah.
- 17:17And
- 17:18Helena Hjalmarsson: so le does, Lina wants to try to like really
- 17:20be here and not because at night she travels and she can't help it.
- 17:24But yeah, take a break, yell to yes.
- 17:29But for me, that's the only reason for living is to be
- 17:33connected with these things.
- 17:35Rupert Isaacson: Well, I suppose that for it, it's so interesting is we always want
- 17:38what you haven't got, you know, so people like you and me who are stuck here in the.
- 17:43Right.
- 17:46Other worldly experiences and alter sex of consciousness and spiritual experiences.
- 17:50Yeah.
- 17:51You know, we crave them.
- 17:52Yeah.
- 17:52I suppose, yeah.
- 17:53If that's your everyday reality, what you end up craving a
- 17:56cheeseburger and a and a Exactly.
- 18:00And a, and a and a heavy metal concert, you know?
- 18:02Right, exactly.
- 18:05And I suppose from a divine point of view, there's really no difference between the
- 18:08cheeseburger and the heavy metal concept.
- 18:10Lina Hjalmarsson: Exactly.
- 18:11Yeah, that's a good point.
- 18:12That's a great point.
- 18:13Rupert Isaacson: But all that said for those of us that are down, his
- 18:17suffering among the cheeseburgers and heavy metal concept Yeah, exactly.
- 18:21Which also include things like wars and yeah.
- 18:24Attacking our own planet.
- 18:25There's clearly a need, I think, for being
- 18:33led, I think not just open to, but led by the voices of people who.
- 18:38Are aligned with that mm-hmm.
- 18:41Spiritual realm that can then report back to us and, you know, basically maybe
- 18:45give us some quite clear instructions.
- 18:46Okay.
- 18:47When she comes, when she comes back I would love to hear perhaps
- 18:51what her instructions to we, the new typical people sort of
- 18:55Helena Hjalmarsson: Yeah.
- 18:56Rupert Isaacson: In the driving seat of the car as least you think we are.
- 19:00Yeah.
- 19:00Yeah.
- 19:01What, what, what her advice for us is, but also while she's out of the room, do
- 19:05you think she would mind if you read and shared some of what she's been writing?
- 19:10Helena Hjalmarsson: Not at all.
- 19:11Rupert Isaacson: She would, would you just share with us as, as it comes,
- 19:14what you think is the best stuff?
- 19:18Helena Hjalmarsson: So Lina, Lina was talking about the, you know, her, the
- 19:22idea that she's here to learn how to love.
- 19:25Right.
- 19:27And I think so this is something about, about that and it's like a
- 19:33little poem a love meaning to burst.
- 19:37I still think a love meaning to burst is a love, meaning to
- 19:40level with all that is real.
- 19:44I think a love meaning to burst is a love, meaning to test our insensitive souls.
- 19:50I think a love meaning to burst is alive and meaning to ind and
- 19:55react and rearrange and resolve.
- 20:01Rupert Isaacson: Can you read that again?
- 20:03Sure.
- 20:03Yeah.
- 20:04That burst hearing twice.
- 20:06And this, can you slow write down because.
- 20:09There was so much amazing meeting there.
- 20:11I was like, yeah.
- 20:15And then you went on to the next time.
- 20:17Say it again now.
- 20:17Off speed, please.
- 20:20Helena Hjalmarsson: And, and actually, I think that it sort of relates to
- 20:22what she was trying to say right now in a, it's like, we should
- 20:27Rupert Isaacson: absolutely
- 20:28Helena Hjalmarsson: nibbling and dabbling with things here, you know?
- 20:31Rupert Isaacson: Mm-hmm.
- 20:33Helena Hjalmarsson: I still think a love meaning to burst is a love,
- 20:36meaning to level with all that is real.
- 20:40I think a love meaning to burst is a love, meaning to test our insensitive souls.
- 20:48I think a love meaning to burst is alive and meaning to in differ and
- 20:55react and rearrange and resolve.
- 21:01Rupert Isaacson: And resolve
- 21:02Helena Hjalmarsson: mm-hmm.
- 21:03Rupert Isaacson: Bursting to resolve.
- 21:04Helena Hjalmarsson: Mm-hmm.
- 21:08Rupert Isaacson: Do you know what the context of that
- 21:09poem was when she wrote it?
- 21:13Helena Hjalmarsson: I don't quite remember.
- 21:14That's a good question.
- 21:17Rupert Isaacson: And is that a recent one?
- 21:20Helena Hjalmarsson: There's another one that's kind of funny.
- 21:21Should I read it?
- 21:22Oh yeah,
- 21:22Rupert Isaacson: please.
- 21:23Yeah.
- 21:24Helena Hjalmarsson: And I know very well this context 'cause I was going nuts.
- 21:28So this is, it's an unti untitled poem holding myself out of a hole.
- 21:35I erase my own crazy thoughts in the hope that I will be able to see myself soaked
- 21:43in seeing the, seeing soaked in a less sorry, in a less harsh world, salvaged by
- 21:52the wary tones of my always insane mother.
- 22:01Isn't that cool?
- 22:02That's
- 22:02Rupert Isaacson: beautiful.
- 22:04Helena Hjalmarsson: I think
- 22:04Rupert Isaacson: Soaked and sound.
- 22:05Yeah.
- 22:06Yeah.
- 22:06Okay.
- 22:06One more time.
- 22:07You got these bare repetition, please.
- 22:10Yeah.
- 22:11Okay.
- 22:11Read it again and read it.
- 22:12Even slower.
- 22:15Helena Hjalmarsson: Untitled.
- 22:17Holding myself out of a hole.
- 22:20I raised
- 22:21Rupert Isaacson: myself out of a hole.
- 22:22Helena Hjalmarsson: Yeah.
- 22:22And this is like while ago, and we had some crazy scenes, some really nutty,
- 22:27like everybody was falling apart.
- 22:30And, and, and Lina Not, not, not at least Lina.
- 22:34And me too.
- 22:35Holding myself out of a hole.
- 22:38I raised my own crazy thoughts.
- 22:41Rupert Isaacson: I erase my own crazy thoughts.
- 22:43Helena Hjalmarsson: Yeah.
- 22:43I raise, I think I raise,
- 22:45Rupert Isaacson: I raise them.
- 22:46Yeah.
- 22:46Helena Hjalmarsson: Yeah.
- 22:47I apprise them, pulling
- 22:48Rupert Isaacson: myself out of the hole.
- 22:49I raise my own crazy.
- 22:51Helena Hjalmarsson: Yeah.
- 22:51Yeah.
- 22:52That was what it was.
- 22:53A-R-A-I-S-E.
- 22:55Rupert Isaacson: Okay.
- 22:57Okay.
- 22:57Go on.
- 22:58Helena Hjalmarsson: In the hope that I will be able to see myself soaked
- 23:03in the seeing, the seeing soaked in a less harsh world salvaged by the
- 23:11wary tones of my always insane mother.
- 23:19Rupert Isaacson: It's so beautiful.
- 23:20And knowing you as I know you, I mean, I, I know that one of your great,
- 23:29I mean it as the highest of compliments.
- 23:31Yeah.
- 23:31I've seen you pushed to the wall
- 23:34Helena Hjalmarsson: Right.
- 23:34Rupert Isaacson: On so many occasions.
- 23:36So for those listeners who are not autism parents the experience.
- 23:44There's a lot of talk quite rightly about how difficult and traumatic
- 23:48it is for the children and the people who experience the condition.
- 23:51But what is not talked about and probably should be talked about is the
- 23:56trauma that we go through as parents.
- 24:00Trying blind with, you know, it's like you put, they put a blindfold
- 24:06on you, tie your arm behind your back and now tell you to Yeah.
- 24:11Climb Everest while liberating a city.
- 24:15Yeah.
- 24:15Using, using an old Yeah.
- 24:20Sausage, you know?
- 24:22Right.
- 24:22Exactly.
- 24:25And we, we've got no choice.
- 24:27We kind of go, oh, okay.
- 24:30Exactly.
- 24:31And little by little we figure out, but it does send us a bit nuts.
- 24:33But, but then it goes, that nuttiness mm-hmm.
- 24:37Is what then allows one to.
- 24:39Break wide open.
- 24:41Helena Hjalmarsson: Yeah.
- 24:41Rupert Isaacson: You know, people, the cliches see outside the box.
- 24:44Yeah.
- 24:44But you know, you can't see outside the box until you get, God puts
- 24:50a boot to your ass and kicks you out there and then Right.
- 24:54You're like, well, I went back in the box please.
- 24:56And I like, well, no, sorry.
- 24:58Then you look around and go, well, it is, it is actually quite interesting out here.
- 25:02That's right.
- 25:02Yeah.
- 25:03But I've really seen you suffer and never give up and, and always be
- 25:09very intentional about the road to
- 25:20a parallel road mm-hmm.
- 25:23Of functionality and inspiration at the same time.
- 25:27So not saying, I don't want you to change me, I don't want
- 25:30you to stop being who you are.
- 25:31And at the same time, I, I have to give you the tools to survive in this world.
- 25:36And that tightrope
- 25:40Helena Hjalmarsson: Yeah.
- 25:40Rupert Isaacson: Is not an easy one.
- 25:42So that poem, what I love about it mm-hmm.
- 25:45Is that it really shows that you are seen.
- 25:50Yeah.
- 25:51Because you, I, I started this podcast saying, you know, that you are one
- 25:55of my heroes and you really are.
- 25:57And at the same time, it sounds like your lean is too.
- 26:02And I love that because particularly when someone isn't verbal, I mean, the
- 26:09leaner I'm seeing today is extraordinary.
- 26:11I've, I've, here's another thing for the listeners and viewers.
- 26:15Yeah.
- 26:15I have met Lina quite a few times and I have never, ever, ever
- 26:18had this interaction with her.
- 26:20Helena Hjalmarsson: Right.
- 26:20Right.
- 26:21I've never had
- 26:21Rupert Isaacson: a conversation.
- 26:22I've never had this back and forth out it, it's, you know, yeah.
- 26:26Part of me is trying not to jump out of my chair Yeah.
- 26:30Noises, because, you know, but another part of me is my mind is blown.
- 26:35Helena Hjalmarsson: Yeah.
- 26:36Rupert Isaacson: But HeLina, you've obviously
- 26:43helped bring her here and, and this is just beautiful.
- 26:47So to read a poem in which you ease the value of your craziness as to how it's a
- 26:53lifesaver, your craziness as a lifesaver is if you're not a bit crazy, you don't
- 26:58see how to make the raft out of Yeah.
- 27:01Old diapers and that's right.
- 27:03You know what I mean?
- 27:04And, and a thrown away toothbrush and transform that into a space shuttle,
- 27:10you know, while never sleeping.
- 27:13And, you know.
- 27:17I, I, I love, I love that.
- 27:18Can you, can you share another one with us, please?
- 27:20Helena Hjalmarsson: Sure.
- 27:20Certainly.
- 27:22Rupert Isaacson: Such a treat.
- 27:23Helena Hjalmarsson: This is not a poem.
- 27:25This is more like, okay, well, this, yeah.
- 27:27You want poem or sort of like,
- 27:29Rupert Isaacson: I want anything.
- 27:30Helena Hjalmarsson: Okay.
- 27:32MS.
- 27:32Per here is, she's talking about telepathy and this is another poem.
- 27:38It's called Incisions, and the other one is called soaring.
- 27:43And here she's talking about the paradox of autism.
- 27:46That might be interesting.
- 27:48Do you wanna hear?
- 27:48I want all
- 27:49Rupert Isaacson: of it.
- 27:49All, all of the above, please.
- 27:51Helena Hjalmarsson: Okay.
- 27:52So then I'm gonna, okay, we'll start, we'll continue with the poems then in
- 27:57sessions, hollering at the moon, hollering at the sun, hollering at the earth.
- 28:04I align with all, I align with everything.
- 28:08I am seeing my life transform.
- 28:11I'm seeing all the suffering that I have.
- 28:13So sorry.
- 28:14I'm seeing all the suffering I have endured, eclipsing into a
- 28:18tentative incision of sawdust and sun in mountains and ocean is my
- 28:24transformation in real yearning and real gestations is my salvation.
- 28:32Rupert Isaacson: Whew.
- 28:37I guess the power of suffering.
- 28:39Yeah.
- 28:39The value of suffering.
- 28:41Helena Hjalmarsson: Right.
- 28:42Rupert Isaacson: More, more.
- 28:43Keep going.
- 28:44Helena Hjalmarsson: Yeah.
- 28:45I'm soaring in real life.
- 28:47I'm a soaring eagle.
- 28:49Need I always indicate the soaring truth Is my life a tentative,
- 28:54talking tedious, ageless havoc?
- 28:58All I am is a loving eagle without wings, I am ahead of pestering people.
- 29:04I am ahead of my ignorance.
- 29:06I am ahead of seeing yearnings without end.
- 29:12Rupert Isaacson: I am ahead of seeing yearnings Without end, I
- 29:16wouldn't mind being ahead of that.
- 29:17Helena Hjalmarsson: No, me neither.
- 29:20Rupert Isaacson: Okay, go on.
- 29:22Helena Hjalmarsson: So that was a little bit of that and then
- 29:24Solina was talking about paradox of autism or she's talking about Yes.
- 29:28Rupert Isaacson: Paradox of autism.
- 29:29Yeah, yeah, let's
- 29:30Helena Hjalmarsson: do that.
- 29:32Lina.
- 29:34Helene.
- 29:36Okay.
- 29:37I see autism as the most profound inspiration that has ever existed.
- 29:43It is also the most profound challenge.
- 29:46I think it's so hard and I, I just think that it's so important that she's
- 29:49writing about this because a lot of us are either, we just see the, you know,
- 29:53a lot of people see just the beauty and it's all about inclusion or whatever, and
- 29:57then the others see just the sort of the medical issues and, you know, all that
- 30:01Rupert Isaacson: shit.
- 30:01And the challenges.
- 30:02The very real challenges.
- 30:02Yeah, yeah, yeah,
- 30:03Helena Hjalmarsson: exactly.
- 30:03And, but there's no integration.
- 30:06Rupert Isaacson: Mm-hmm.
- 30:06And
- 30:06Helena Hjalmarsson: I think that Lina, that's, that's why I feel like
- 30:09her, the book that she's writing my life on the planet, that that
- 30:12is really important because she's talking about all of it, you know?
- 30:16Yeah.
- 30:16Both the challenges and the bliss, you know?
- 30:18Rupert Isaacson: Yes.
- 30:19As you know, if you followed any of my work, I'm an autism dad and we have
- 30:25a whole career before this podcast in helping people with neurodivergence,
- 30:32either who are professionals in the field.
- 30:34Are you a therapist?
- 30:35Are you a caregiver?
- 30:37Are you a parent?
- 30:38Or are you somebody with neurodivergence?
- 30:42When my son, Rowan, was diagnosed with autism in 2004,
- 30:47I really didn't know what to do.
- 30:49So I reached out for mentorship, and I found it through an amazing adult
- 30:54autistic woman who's very famous, Dr.
- 30:57Temple Grandin.
- 30:58And she told me what to do.
- 31:00And it's been working so amazingly for the last 20 years.
- 31:04That not only is my son basically independent, but we've helped
- 31:09countless, countless thousands of others reach the same goal.
- 31:13Working in schools, working at home, working in therapy settings.
- 31:18If you would like to learn this cutting edge, neuroscience backed
- 31:23approach, it's called Movement Method.
- 31:25You can learn it online, you can learn it very, very simply.
- 31:29It's almost laughably simple.
- 31:32The important thing is to begin.
- 31:36Let yourself be mentored as I was by Dr.
- 31:39Grandin and see what results can follow.
- 31:43Go to this website, newtrailslearning.
- 31:48com Sign up as a gold member.
- 31:51Take the online movement method course.
- 31:55It's in 40 countries.
- 31:57Let us know how it goes for you.
- 31:59We really want to know.
- 32:00We really want to help people like me, people like you, out there
- 32:04live their best life, to live free, ride free, see what happens.
- 32:09Helena Hjalmarsson: Anyway, I see all this mess, the most profound
- 32:11inspiration that has ever existed.
- 32:13It is also the most profound challenge.
- 32:15I think it's so hard for people to incorporate the paradox of autism.
- 32:20Is autism the love for people's soul, or is it the excruciating challenge?
- 32:26For the individual and his or her family?
- 32:28I think it's both.
- 32:30I think that life with someone on the severe end of the spectrum is a life full
- 32:34of suffering and a life full of bliss.
- 32:36In my own experience as an individual with very severe autism,
- 32:40I see the suffering being a lot stronger than the bliss in my life.
- 32:44I also have earnings for a life without autism.
- 32:48I see how autism my OCD and anxiety destroys so much for me.
- 32:54If I was free of what I if, if I was free of that, I wouldn't have autism.
- 33:02Rupert Isaacson: Can you read that again?
- 33:04Helena Hjalmarsson: Totally.
- 33:05Rupert Isaacson: Because there's some questions I'd like to pick up on that.
- 33:09Yeah.
- 33:10I could ask.
- 33:11Okay.
- 33:12We get paper?
- 33:13Helena Hjalmarsson: Mm-hmm.
- 33:14Rupert Isaacson: Yeah.
- 33:15Helena Hjalmarsson: Cool.
- 33:15Rupert Isaacson: Alright.
- 33:16Pick off again, please.
- 33:17Helena Hjalmarsson: Yeah, SeLina.
- 33:19So we're reading about that stuff, about paradox of autism and so.
- 33:23I'm just gonna reread it.
- 33:25I see autism as the most profound inspiration that has ever existed.
- 33:29It is also the most profound challenge.
- 33:32I think it's so hard for people to incorporate corporate.
- 33:36The paradox of autism.
- 33:38Is autism, the love for people's soul, or is it the most excruciating challenge
- 33:42for the individual and his or her family?
- 33:45I think it's both.
- 33:46I think that life with someone on the severe end of the spectrum is a life full
- 33:50of suffering and a life full of bliss.
- 33:53In my own experience as an individual with very severe autism,
- 33:57I see the suffering being a lot stronger than the bliss in my life.
- 34:01I also have yearnings for a life without autism.
- 34:05I see how autism by OCD and anxiety destroys so much for me.
- 34:11If I was free of that, I wouldn't have autism.
- 34:15Rupert Isaacson: Okay,
- 34:17Helena Hjalmarsson: so
- 34:19Rupert Isaacson: I've got three questions.
- 34:23Helena Hjalmarsson: You ready?
- 34:24Yes.
- 34:25Rupert Isaacson: All right.
- 34:30. You talk about the bliss from the inside.
- 34:34As an autistic person, what is the bliss of autism?
- 34:41Helena Hjalmarsson: It, SO, then G.
- 34:46Okay.
- 34:46Okay.
- 34:47It's a ongoingly.
- 34:49Incredible seeing and alignment with one's soul.
- 34:56Can you say that in simple terms, Lynn?
- 34:58Yes.
- 34:59Direct As direct as you can get.
- 35:01It's hard for not to be like run direct,
- 35:03Rupert Isaacson: but we have time.
- 35:04Helena Hjalmarsson: Yeah, so try to go, go straight to a little bit.
- 35:09Nine in my life I hollow out to the universe the love I feel.
- 35:13Are you saying that you just feel that love so strong it almost
- 35:16more makes you wanna shout?
- 35:18Is that what you're saying?
- 35:19Okay.
- 35:19Mm-hmm.
- 35:20So that, that love is very strong.
- 35:24Rupert Isaacson: Okay.
- 35:25Helena Hjalmarsson: And, and that, that, yeah, in many situations
- 35:29that that is always there inside no matter what craziness is
- 35:33happening, that it's always there.
- 35:35Does that
- 35:38somewhere, you know, in there.
- 35:42Rupert Isaacson: Okay.
- 35:42I have a second question.
- 35:47That's the bliss.
- 35:49This being able to sort of exist in and dance in this universal love that is life.
- 35:59Okay.
- 36:00Now you also talk about the suffering.
- 36:04How can we suffer less?
- 36:06Lina?
- 36:20. Helena Hjalmarsson: TD I think I'm suffering now le less now in
- 36:25my life that I am anticipating.
- 36:31Create THDN.
- 36:35She's suffering less now because she can anticipate the
- 36:38moments of calm and create them.
- 36:42Rupert Isaacson: Okay.
- 36:43How do you create them?
- 36:44Yeah.
- 36:46Helena Hjalmarsson: YISD.
- 36:49See so many reasons to be happy.
- 36:54I I, C, so MUCH much.
- 37:00Love.
- 37:00Rupert Isaacson: Here is another question.
- 37:03If you are your mother.
- 37:05If you are the parent of a person like yourself, how can your mother suffer less?
- 37:14How can somebody in that position as guardian and caretaker, but also who
- 37:21doesn't want to get in the way and wants to nurture how, how, how could
- 37:28we, the autism parents suffer less.
- 37:32Helena Hjalmarsson: My T-H-I-N-K, I think nan?
- 37:38No.
- 37:38I think my soul mom is not suffering now.
- 37:44But if I did, what would you tell me?
- 37:47Tell me.
- 37:48Na ITHI , I think I see real soul in my aligned mom.
- 37:55Yes.
- 37:55Mm-hmm.
- 37:56Yes.
- 37:56I, I am doing pretty well, but right now, but you have seen me in
- 38:02many different places and you know, we have both gone totally nuts.
- 38:06So what would you say to some somebody, or what did you say to me?
- 38:09I don't remember when I was totally tripping.
- 38:11And what, what, you know, or to, to parents who feel like they just can't
- 38:19take it and they're going, they go, they're going crazy with everything.
- 38:22What, what should be done, what should be told, what can
- 38:26help them us when we are first
- 38:28Nine h-D-L-D-N-G.
- 38:31Okay.
- 38:32So I think Hena needing to shout and be pissed is a lovely thing.
- 38:37So would you, would you say that to other parents too?
- 38:41That they should be, they should shout and let their emotions out?
- 38:46Yes.
- 38:46Uhhuh?
- 38:48Yeah.
- 38:48You see, I was just reading, I'm reading male dos autobiography and he's talking
- 38:53about grief and how the villagers, you know, when they're grieving.
- 38:57His grandfather died and everybody was grieving and
- 39:00they took three days to do it.
- 39:01And, you know, shouting and screaming and running away sometimes
- 39:06and, and then stopping, you know.
- 39:08Because when they grieved overtook them and they ran down the, the road
- 39:12and, and then, you know, at some point, and they had people around them,
- 39:16the ones who grieved the most, had people who watched them to help them.
- 39:20Not to be totally overcome, but that whole idea that in the Western society,
- 39:25we just always put a lock on our emotion.
- 39:28We just like, we get passive aggressive.
- 39:30You know, we, you know, we, we, we just try to control ourselves to every degree.
- 39:35You know, like that is some kind of like incredible virtue.
- 39:38You know, first blue, first and blue instead of sometimes just
- 39:42if you have excruciating f blue
- 39:47Lina Hjalmarsson: ber kra, would you Yes.
- 39:47Helena Hjalmarsson: Go get that?
- 39:48Lina Hjalmarsson: Yeah.
- 39:49Helena Hjalmarsson: You can do it.
- 39:50You know what I mean?
- 39:51So, yeah, I think you know, yes.
- 39:53I was also talking to Elsa about this, that, you know,
- 39:56Rupert Isaacson: Elsa being your other daughter
- 39:58Helena Hjalmarsson: Yeah.
- 39:59That some Lina's younger sister and um mm-hmm.
- 40:02Sometimes, you know, she, well, we were all like, basically, basically
- 40:10feel, it was a, it was a mad house.
- 40:12Mm.
- 40:13Then the beauty and the love and the, you know, sense of connection and peace
- 40:20when everybody had tried to express what they are feeling, the despair, you know?
- 40:24Rupert Isaacson: Mm-hmm.
- 40:25Helena Hjalmarsson: Fully, and feeling that, that everybody accepts, you know,
- 40:31what they are experiencing, you know?
- 40:33That I think there's something to that.
- 40:37I think that, that helps us go fresh into the next day, you know?
- 40:42And I think that that's something in the Western society, we
- 40:45don't know how to do that.
- 40:46We just don't.
- 40:47Rupert Isaacson: If you made it this far into the podcast, then I'm
- 40:51guessing you're somebody that, like me, loves to read books about not
- 40:56just how people have achieved self actualization, but particularly
- 40:59about the relationship with nature.
- 41:04Spirituality, life, the universe, and everything.
- 41:08And I'd like to draw your attention to my books.
- 41:11If you would like to read the story of how we even arrived here, perhaps
- 41:15you'd like to check out the two New York Times bestsellers, The Horseboy
- 41:20and The Long Ride Home, and come on an adventure with us and see what engendered,
- 41:25what started Live Free Ride Free.
- 41:28And before we go back to the podcast, also check out The Healing
- 41:31Land, which tells the story of.
- 41:35My years spent in the Kalahari with the Sun, Bushmen, hunter gatherer people
- 41:40there, and all that they taught me, and mentored me in, and all that I learned.
- 41:44Come on that adventure with me.
- 41:46Well, sure, because I think, I think there's two things.
- 41:47One is that that takes tribe, that takes community, right?
- 41:51Yeah.
- 41:51We're talking about, you know, that's true.
- 41:52Someone is there to anybody that, not to be too overcome by the grief, or
- 41:56that requires those people to exist and to be there and to be available.
- 42:00Right.
- 42:00We.
- 42:01We in our society do no longer live in that tribal way.
- 42:04Right.
- 42:04And, you know, it's seen as a sign of weakness to reach out for help.
- 42:08But I think those of us who are autism parents know that if we don't
- 42:12have that kind of community, yeah.
- 42:13We can go on.
- 42:14And that's why how people like you and I have found each other and yeah.
- 42:18That we've created that community, I think you could say, even when we
- 42:20are long distance from each other.
- 42:22Right.
- 42:24There is a question, a very practical question that comes to mind.
- 42:27If Leer say, feels that it's a beautiful thing if you express your craziness
- 42:33and your grief and your despair and your overwhelm, there is of course
- 42:37when an autistic child is very young, a fear that that might freak 'em out
- 42:42and scare them and overwhelm them.
- 42:46Helena Hjalmarsson: Yeah.
- 42:47How
- 42:47Rupert Isaacson: does one, as an autism parent tread that line?
- 42:51Yeah, having to just sort of constantly contain and control yourself because
- 42:56when, when someone is very, very young, you know, how do we do that?
- 43:00How, how could we express those big, raw emotions without,
- 43:04without traumatizing the child?
- 43:06I'd like to have thoughts on that.
- 43:08Helena Hjalmarsson: Yeah.
- 43:09I mean, I, I think that there's also instinct involved in this.
- 43:12I mean, you, you wouldn't you know, shout at the a a little child.
- 43:18It, it's just something no, not shout
- 43:20Rupert Isaacson: at, but you might, you know, if, if, if you are
- 43:23overwhelming, your grief makes you Yeah.
- 43:26Shout at the planet or God or whatever, you know, how, how, how do you
- 43:29express that Will without Yeah, yeah,
- 43:34Helena Hjalmarsson: yeah.
- 43:34I mean, I think it's, it's a little different, you know, you
- 43:38can almost instinctively feel you know, even, even when Lina was like
- 43:44a young teenager, it wasn't really.
- 43:48Lina Hjalmarsson: First blue, first,
- 43:49Helena Hjalmarsson: first of blue cucumber with you.
- 43:53Yeah.
- 43:53You can go and get the cucumber and then bring it back.
- 43:55Yeah.
- 43:56Yeah, totally.
- 43:57It's not the same thing as when she's like, closer to, you know,
- 44:01Rupert Isaacson: yeah.
- 44:0220
- 44:02Helena Hjalmarsson: and, and, and be beyond.
- 44:04You know, it's really now that more than anything, like, you know, this
- 44:08last bout of mycoplasma well was, you know, now she's 21 and a half, and
- 44:14there's a new bout of mycoplasma and it comes with a lot of, of, of, of crazy
- 44:19OCD and a lots of acting out and loss of control and, you know, anxiety.
- 44:24It's just really brutal.
- 44:25OCD.
- 44:27And so then, you know, this was just a, a time when, you know, I really
- 44:33put the law down in a way that I have never done and not eloquently.
- 44:38But very, very decisively.
- 44:41And I felt actually that Lina it really, really helped Lina and I, you
- 44:47know, it, it just calmed her down.
- 44:50Rupert Isaacson: By that say she say she was ready for that,
- 44:53Helena Hjalmarsson: she was ready.
- 44:54She was so ready to basically see me not as that one that's always helping her,
- 45:01but also as, as a human being, you know?
- 45:03Rupert Isaacson: Yeah.
- 45:04Helena Hjalmarsson: She and I have been talking a lot about like
- 45:07that, you know, at certain point she complained or you just talk
- 45:10about yourself and your own needs.
- 45:11Now, suddenly all the time, I'm tired of it.
- 45:17Whatcha
- 45:17Rupert Isaacson: allowed
- 45:20Helena Hjalmarsson: make up for, don't you think?
- 45:24Because I've been nagging about that all, all the time and, you know, but I felt
- 45:29that I absolutely, this is, this is, it is now, or, or this is not gonna work.
- 45:33This ship is gonna sink.
- 45:35Rupert Isaacson: Yeah.
- 45:36Helena Hjalmarsson: And, and, and actually now after that is, is we've
- 45:39had such beautiful time and I feel like there's just more equality
- 45:44between us and she's really taking me into account, you know, much more.
- 45:48And, and I don't know.
- 45:50It's just, I feel, I feel good because, eh, being able to, you know,
- 45:54you know how it's the, the anxiety and the rage comes from feeling
- 45:59like you cannot, you are helpless.
- 46:01You can't, you cannot actually push against the situation
- 46:07or this person or whatever.
- 46:08But if you feel that you have the right, then it's very calming.
- 46:13You know?
- 46:13It's, it's just really quite different.
- 46:16Rupert Isaacson: Mm-hmm.
- 46:17Mm-hmm.
- 46:17The right to express.
- 46:18Yeah.
- 46:19That pain.
- 46:20Helena Hjalmarsson: Yeah.
- 46:20Yeah.
- 46:20Rupert Isaacson: Yeah.
- 46:21Helena Hjalmarsson: But also, like a kid on the spectrum three or four or
- 46:24five, it's a very different feeling.
- 46:27Yeah.
- 46:28You don't want, you don't feel anger.
- 46:29You, you just feel like, what is happening to my child?
- 46:31Stress.
- 46:31Yeah.
- 46:32Rupert Isaacson: Yeah.
- 46:32Helena Hjalmarsson: And when they're 13, you know, now you're feeling
- 46:35like, no, you can't fucking hit me.
- 46:39Rupert Isaacson: Yes.
- 46:42Helena Hjalmarsson: So it's different and it's different, you know.
- 46:46Rupert Isaacson: Can you tell us, can you tell us a bit about you?
- 46:48You just referred to mycoplasma.
- 46:51Can you not, a lot of people will not know what that is and
- 46:54Helena Hjalmarsson: Oh, yeah.
- 46:55Rupert Isaacson: Behavior.
- 46:56Can you tell us a bit about 1, 2, 3 on it?
- 46:58Helena Hjalmarsson: Totally.
- 46:59Totally.
- 46:59It's, it's an autoimmune disorder.
- 47:02There's death, there's pandas you know, that comes from strep, right.
- 47:06And pandas
- 47:07Rupert Isaacson: and pans, which is the type of streptococcal infection Exactly.
- 47:11That can hit the brain.
- 47:12And Exactly.
- 47:13People with autism seem to be particularly prone to it for Exactly.
- 47:17We dunno, there you go.
- 47:18And often get it around adolescents and, and it can turn people into effectively
- 47:22almost, well violent, let's say.
- 47:25Yeah.
- 47:26But it can be treated if they catch it.
- 47:28So that's pandas and pans for those.
- 47:31Yeah.
- 47:32You and all listeners who, dunno what it is.
- 47:33If you have an autistic kid and, and they're approaching adolescents, do
- 47:36get 'em checked out for pans and pans.
- 47:37Helena Hjalmarsson: Totally.
- 47:38Okay.
- 47:38But micro plasma,
- 47:40Rupert Isaacson: talk to us about and,
- 47:41Helena Hjalmarsson: and ly also.
- 47:42Yeah.
- 47:42Rupert Isaacson: And Lyme.
- 47:43Okay.
- 47:45Helena Hjalmarsson: I think that, and, and you should have somebody
- 47:47who knows how to test Lyme.
- 47:49Okay.
- 47:50It's you know, you can test Lyme until you're blue in the face and
- 47:53you see nothing until you go to somebody who's actually able to how do
- 47:58Rupert Isaacson: you, how do you identify that person?
- 48:00Helena Hjalmarsson: I think that very often naturopaths actually have a
- 48:04better handle on what blood tests to order than, for instance, a regular
- 48:09medical doctor, I have to say.
- 48:10Yeah.
- 48:11Then of course, a good medical, medical doctor, I'm not saying
- 48:14that, but, you know, definitely more, more naturopaths are, are,
- 48:17they're better, better able to order.
- 48:21Much more subtle and you know, extensive blood test than,
- 48:26than than most medical doctors.
- 48:27Rupert Isaacson: Okay.
- 48:28And then talk to us about mycoplasma.
- 48:29What is it?
- 48:30Helena Hjalmarsson: So that is actually the pan actually.
- 48:32That is, that is the pan.
- 48:33Okay.
- 48:34Rupert Isaacson: That is,
- 48:34Helena Hjalmarsson: and that is bacteria.
- 48:36And everybody has mycoplasma.
- 48:38It's a very small bacteria and it does not have a cell wall.
- 48:41So it can sit latent in somebody's system for years and then suddenly flare up.
- 48:48Yeah.
- 48:49You know, suddenly there's too high of a count, you know?
- 48:53And they're super tricky and they can create OCD like crazy.
- 48:56First time Lalina had mycoplasma.
- 48:58She all she said, and I, you know, all she said was red and black.
- 49:03Red and black all night long with increasing intensity.
- 49:06It was like the worst torture.
- 49:08You know how in prison, you know, people get these drops of water on their head.
- 49:13This was like the same thing like that, you know, but just red and black, red
- 49:17and black, red and like increasing.
- 49:19It's just, it's just insane.
- 49:22I try to then introduce green, you know, and just little by little.
- 49:28But then, then you know, we did all kinds of things including very
- 49:32strict keto diet to bring down, to not feed the bacteria at all.
- 49:37At that microplasma was so incredibly intense that we had
- 49:40to do antibiotics for a while.
- 49:43When she was 13.
- 49:44But now this time around we did antibiotics because she had Lyme also
- 49:49you know, kids on the spectrum and young adults on the spectrum, they always get
- 49:53everything, particularly the autoimmune.
- 49:56Rupert Isaacson: There seems to be.
- 49:57Yeah.
- 49:57There seems to be a deficiency somewhere in the gut bacteria that
- 50:00just doesn't lets these things in.
- 50:02Helena Hjalmarsson: Yeah.
- 50:03And or, you know, a toxic overload, whatever you wanna Yeah, yeah,
- 50:06Rupert Isaacson: yeah, yeah.
- 50:07But,
- 50:07Helena Hjalmarsson: but so now we did we did antibiotic get to address
- 50:10the Lyme, but for the mycoplasma, now we are working with the naturopath.
- 50:14His name is Dr.
- 50:15Engles.
- 50:15He's incredible.
- 50:18Rupert Isaacson: Dr.
- 50:18Helena Hjalmarsson: Engles?
- 50:18Engles.
- 50:18Yeah.
- 50:19Engles.
- 50:19Rupert Isaacson: Where's he based?
- 50:20Helena Hjalmarsson: He's in California.
- 50:22Rupert Isaacson: Okay.
- 50:22Yeah.
- 50:23Maybe I could have him on the show.
- 50:25Helena Hjalmarsson: He's incredible.
- 50:26You should.
- 50:26He knows a lot about autism, autism.
- 50:29Another incredible woman, her name is Mary Coyle and she's the home of toxicologist.
- 50:35We worked with her for many years because Lina had seizures and it was because of
- 50:40all the, so she helped us detox in a soft and gentle way, not a harsh way, you know?
- 50:46So then at some point the seizures stopped.
- 50:50So, and she what did, what did
- 50:51Rupert Isaacson: the naturopath attribute the seizures to
- 50:54Helena Hjalmarsson: the naturopath?
- 50:54He doesn't, he didn't work with seizures because that was, we worked with Mary, but
- 50:58Rupert Isaacson: Mary Coyle, what, what did she what To the toxicology,
- 51:01what did she attribute seizures to?
- 51:02Toxic overload.
- 51:04Any, but toxic is a, is a wide term.
- 51:06Helena Hjalmarsson: Yeah.
- 51:08Well, in, in Lina's case you know, we have found that she has an overload of mercury
- 51:15and aluminum and I, I don't, I don't.
- 51:19Those are the main thing.
- 51:20The aluminum actually is, is the biggest culprit for Lina.
- 51:23And,
- 51:25Rupert Isaacson: and which of course kills brain cells like crazy if it
- 51:28gets, crosses the blood-brain barrier.
- 51:31What, what what do you think got all that aluminum into her system?
- 51:37Helena Hjalmarsson: I think that it is, I think that it is kind of
- 51:41like a lot of different factors.
- 51:44And I think that the triggering factor was her second MMR vaccine.
- 51:49Okay.
- 51:51And it could be also the DBT vaccines.
- 51:54You know, we, you, you know, we can't know for sure, but with the MMR vaccine
- 51:58the second time she took it at three and a half, she had her first seizure
- 52:02right after she lost all of her speech.
- 52:05Rupert Isaacson: Okay.
- 52:06Helena Hjalmarsson: So, you know, you know, and it's not that I'm against
- 52:09vaccines, but I do think we should just check out and see what's in them.
- 52:13We shouldn't preserve them with toxins that we then inoculate young, young people
- 52:18with who have not yet a a mature immune system that can cope with these things.
- 52:25Right.
- 52:26And I, I think so.
- 52:27I think that,
- 52:29Rupert Isaacson: yes, maybe, maybe to have safer, safer
- 52:32Helena Hjalmarsson: products
- 52:32Rupert Isaacson: or with a bit more oversight.
- 52:34Helena Hjalmarsson: Yeah.
- 52:35With, with a lot of oversight.
- 52:36Maybe more oversight than any other medications.
- 52:38I mean, this is our kids we're talking about.
- 52:41Rupert Isaacson: One would what we can, we can pray for that,
- 52:44for that universe to happen.
- 52:46Alright.
- 52:48Okay.
- 52:48I have a, another question for Lina.
- 52:51Sure.
- 52:51Lina.
- 52:52When at the end of, of that last text that you read me, she said,
- 52:58if I didn't have the OCD, I seem to remember that's what she said.
- 53:03Then I wouldn't have the autism.
- 53:04Helena Hjalmarsson: Exactly.
- 53:05Yeah.
- 53:05I knew we were gonna ask about that.
- 53:07Rupert Isaacson: So here's my question for her.
- 53:08Yeah.
- 53:08If you, this is as if I'm speaking to Lina and perhaps she can answer this.
- 53:12If you, Lina, if you didn't have autism mm-hmm.
- 53:15What would you have?
- 53:16What would you have?
- 53:18Helena Hjalmarsson: Yeah, exactly.
- 53:18Let me, let me go and get her.
- 53:20Rupert Isaacson: Yeah.
- 53:21Helena Hjalmarsson: Lina, she has a question for you.
- 53:23So Ru, but can you repeat that again?
- 53:25Rupert Isaacson: Yes, yes.
- 53:27In the text that your mom read me that you had written at the end of
- 53:32it, it said, I think it said yes.
- 53:34If you didn't have the OCD, you wouldn't have the autism.
- 53:39So my question is, if you didn't have the autism, what would you have?
- 53:45Helena Hjalmarsson: Mm, yes.
- 53:46She said if I didn't have the, my OCD and anxiety destroys so, so much
- 53:50Rupert Isaacson: anxiety.
- 53:50That's right.
- 53:51Helena Hjalmarsson: If I was free of that, I wouldn't have anxiety.
- 53:53Yeah.
- 53:54Rupert Isaacson: I wouldn't have autism.
- 53:56Helena Hjalmarsson: Yeah, exactly.
- 53:57Yes.
- 53:57Sorry.
- 53:57So what
- 53:57Rupert Isaacson: would you have?
- 53:58What?
- 53:58What would you be,
- 54:00Helena Hjalmarsson: yeah, what would you be, what would you have in
- 54:04I,
- 54:07I think I, I would B
- 54:11really
- 54:12a
- 54:13lovely, okay.
- 54:14But you're already a lovely young woman, but I think I would
- 54:18be really a lovely young woman.
- 54:22Rupert Isaacson: Okay.
- 54:22But Lina, you clearly are a lovely young woman, so, I mean, I think by
- 54:27anybody's standards you're a lovely young woman, so Yeah, I, I think I,
- 54:32do you feel you would have any, yeah.
- 54:36I don't know what, what's the word?
- 54:38Condition quirk.
- 54:41If you didn't have the anxiety and the OCD or like, what would you,
- 54:47you say, I wouldn't have autism, or do you mean I wouldn't have
- 54:50the negative symptoms of autism
- 54:52Helena Hjalmarsson: Uhhuh?
- 54:53Mm-hmm.
- 54:54I think I would myself, I..
- 54:56I see
- 54:59Joy.
- 55:00I think I would myself talk about incredible joy
- 55:04and
- 55:06happiness.
- 55:07Rupert Isaacson: Mm-hmm.
- 55:10Do you think that day's coming, do you feel that day is coming?
- 55:14Helena Hjalmarsson: Yes.
- 55:15My
- 55:16seeing, This U see it.
- 55:21I think my seeing it is less important.
- 55:24I think what is important, HeLina and Rupert is that you see it.
- 55:31Yeah.
- 55:32Rupert Isaacson: Do you want, do you want to, do you want to expand on that?
- 55:34On that?
- 55:34Yeah.
- 55:35Can you
- 55:35Helena Hjalmarsson: expand on that?
- 55:36I,
- 55:39I think the reason that I'm, that I'm saying that is that
- 55:42I am, I really am happy.
- 55:45And I
- 55:46think I
- 55:47Good want.
- 55:48That four?
- 55:50Okay.
- 55:52For everyone.
- 55:53Rupert Isaacson: Wonderful.
- 55:55Beautiful.
- 55:56Thank you.
- 55:58Is there any piece of writing, Lina things, we got you here now.
- 56:04Is there a particular piece of writing that you would like to share
- 56:09with the people watching this and listening to this?
- 56:13Helena Hjalmarsson: What do you think, Lina?
- 56:14I, I don't know.
- 56:15We have, hmm.
- 56:17Actually Lina, we, we don't have that much more here.
- 56:20Like, but there's one thing that I don't know, Lina, if you feel like
- 56:25sharing the stuff you just wrote, this was like a little practice test.
- 56:29We, Lina is, Lina wrote something else today because she was doing the testing
- 56:34for the placement test for the college.
- 56:35Which college
- 56:37Rupert Isaacson: is she, is she placed in for?
- 56:38Helena Hjalmarsson: It's Passaic in New Jersey.
- 56:41That's where she's going to this, this school.
- 56:43Fantastic.
- 56:44Yeah.
- 56:44So and she did so amazing.
- 56:46I was like four hours just straight.
- 56:50Amazing.
- 56:50I think that's why you are a little fry right now.
- 56:52Yeah.
- 56:52I'm
- 56:53Rupert Isaacson: not surprised.
- 56:54And we don't have to go on much longer with this one 'cause I was
- 56:57thinking there's so much here.
- 56:58I would actually very much like to pick up with you guys for part
- 57:01two and a part three, so we don't have to exhaust you with no.
- 57:06But I'm just thinking here we are.
- 57:08We're sort of at the hour and a half mark.
- 57:10Helena Hjalmarsson: Yeah.
- 57:11Rupert Isaacson: Perhaps this might be a point to take a break.
- 57:14Yeah.
- 57:15But before we take the break, perhaps would you just share that piece of
- 57:19writing and then we can leave that with the listeners and then we'll, with your
- 57:23permission we'll come back to follow up.
- 57:26Helena Hjalmarsson: What do you think?
- 57:28Mm-hmm.
- 57:29Hi.
- 57:30I think
- 57:31that
- 57:32sounds
- 57:33amazing.
- 57:34Rupert Isaacson: Okay, cool.
- 57:34Okay,
- 57:35Helena Hjalmarsson: so now.
- 57:37Yes, there was another one.
- 57:39Okay.
- 57:40Alright.
- 57:40So which one should we pick?
- 57:41So, and maybe you can help us, Robert.
- 57:44There's, she, she did two practice tests 'cause we were just trying to prepare.
- 57:48Right.
- 57:48And she has certain time.
- 57:49She, it has to be like an introduction and then it has to be
- 57:52like a little bit of bulk of work.
- 57:53It has to be within a certain timeframe and then a little bit of a, a summary.
- 57:58Right.
- 57:59So now one you wrote about choosing one issue you would prioritize
- 58:03if you were president of the United States and the other one.
- 58:06Explain the value of diversity to you.
- 58:10Which one?
- 58:11The, I wanna
- 58:12Rupert Isaacson: hear from President Lina.
- 58:14Helena Hjalmarsson: Okay.
- 58:15Yes, yes.
- 58:15Yeah,
- 58:15Rupert Isaacson: definitely.
- 58:16Helena Hjalmarsson: Okay.
- 58:17Rupert Isaacson: I know where I'm casting my vote.
- 58:19Yeah.
- 58:19Helena Hjalmarsson: Okay.
- 58:19Are you cool with that?
- 58:21Alright, good.
- 58:23In so many ways, every president has failed the American people.
- 58:28And seeing some, in seeing how someone fails, we learn about how to succeed.
- 58:34I think one of the biggest failures in American history is how we fail to
- 58:38see the earnings of the weary poor.
- 58:40I think a society that secludes some people from the things
- 58:44that other take for granted is a really sad society in my life.
- 58:49I have everything I could ever ask for.
- 58:51I see how privileged I am.
- 58:53I have food and clothes and a nice house to live in.
- 58:56I have books and computer and seeing of of many material things.
- 59:01If I didn't have these things, I would not be comfortable.
- 59:04I'm sure most poor people would do almost anything so that they could
- 59:08have the things I have in seeing the inequalities in this country.
- 59:12I wish we had a precedent that wanted it to change.
- 59:16I think the American people would love such a precedent.
- 59:20Seeing a real and compassionate soul is what opens us up to incredible generosity.
- 59:25A love that includes everyone is what this country needs.
- 59:30I so believe that a compassionate precedent is the most
- 59:33important need in America.
- 59:36Such a leader would restore this country, and its people in real transformation.
- 59:41Everyone benefits.
- 59:42It's a long road to restore this country, but a road forward
- 59:46is the only road available.
- 59:48I center my thoughts on being able to see incredible transformation of this
- 59:52land when we elect a, a compassionate precedent that service the needs of
- 59:57the poor, as well as the wealthy,
- 59:59Rupert Isaacson: beautiful words to live by.
- 1:00:02Yeah.
- 1:00:02When you begin your presidential campaign, Lina, I will, yeah.
- 1:00:06See my vote for you.
- 1:00:08Yeah.
- 1:00:08And canvassing on your behalf, but you're absolutely dead.
- 1:00:11Right?
- 1:00:12And you know, sadly, of course, a lot of the people that are attracted
- 1:00:15to the job of being president Yeah.
- 1:00:19Unfortunately are not such compassionate people.
- 1:00:20But from time to time we get one.
- 1:00:23Helena Hjalmarsson: Yeah.
- 1:00:23Rupert Isaacson: From time to time we get one.
- 1:00:25And I think your, I, I mean, you are, you are absolutely dead.
- 1:00:30Right.
- 1:00:30Basically, you're dead.
- 1:00:31Right.
- 1:00:32And it wouldn't matter which political party that person came from.
- 1:00:35Helena Hjalmarsson: No.
- 1:00:35It wouldn't.
- 1:00:36Rupert Isaacson: Compassion is compassion.
- 1:00:38Helena Hjalmarsson: Yep.
- 1:00:40Rupert Isaacson: Lina, thank you.
- 1:00:41Thank you for coming and doing this, especially after
- 1:00:44you sat that four hour exam.
- 1:00:46Yes.
- 1:00:47And I'm just blown away.
- 1:00:48I, in all the interactions that I've had with you, I've never been able to
- 1:00:53sit with you like this and converse.
- 1:00:55I, it makes me so happy.
- 1:00:57I'm
- 1:01:01it.
- 1:01:02You've gland in my heart.
- 1:01:06To in a way that it's hard for me to express because in, in, in my
- 1:01:10job, the really, part of the reason for this podcast is I, as you know,
- 1:01:17campaign and work to help people like my son and people like you and so on.
- 1:01:26And I've been led by autistic people from the get go.
- 1:01:30It was never my dream to do this.
- 1:01:32And when I first got the diagnosis with my son, I knew that I didn't know what to do.
- 1:01:38So I knew I needed to be led by autistic people because they were the only people
- 1:01:42who could understand the condition.
- 1:01:44And I, that's why I made contact with Dr.
- 1:01:47Temple Grandin, who's autistic and got mentorship from her, from the get go.
- 1:01:52But we still need more mentorship.
- 1:01:55And if things are going to change for the better people like you, people
- 1:01:59like my son, need to mentor us.
- 1:02:02Yeah.
- 1:02:03So perhaps in the next podcast that we do, with your permission, I might
- 1:02:10pose some of those questions, like, what could, and should we do better?
- 1:02:15Perhaps in the interim you could ponder those questions with no pressure.
- 1:02:21Just see, just see what bubbles up, because honestly,
- 1:02:23Lina, I need your mentorship.
- 1:02:25I do.
- 1:02:26If I don't get guidance from you and those like you, I, I'm lost.
- 1:02:31So I'm just incredibly grateful that you are sharing this with us.
- 1:02:37And you could have stayed in your world and not come forward like this,
- 1:02:42and you'd have been just as beautiful and it would've been just as valid.
- 1:02:45But as you said, you know, the fact that you did go through this excruciating
- 1:02:50process to learn how to do this really is for the benefit of all, and that was
- 1:02:56a compassionate act of yours to do that.
- 1:02:59Helena Hjalmarsson: That's a good point.
- 1:03:00Rupert Isaacson: Yeah.
- 1:03:01So I'm grateful.
- 1:03:02Just want to say that.
- 1:03:06Alright, my friends.
- 1:03:07Shall we, shall we wrap it for today and come back to it in a few weeks perhaps?
- 1:03:12Helena Hjalmarsson: Okay.
- 1:03:13Rupert Isaacson: Is that okay?
- 1:03:13Shall I do that?
- 1:03:15Yes.
- 1:03:16I hope you enjoyed today's conversation as much as I did.
- 1:03:20If you did, please help us to make more.
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