234: Carolina’s Story | A Surprise Diagnosis, A Liver Transplant, + When Relaxing Feels Risky
When Carolina’s daughter Cruz was just days old, newborn screening revealed she had maple syrup urine disease. Almost overnight, Carolina went from first-time mom to managing hospital stays, oxygen, G-tube feeds, and a condition that could become dangerous very quickly.
In today’s episode, Carolina shares what those early years looked like, including the hypervigilance, the pressure to get everything exactly right, and the fear that if she relaxed even a little, something bad would happen.
We also talk about the decision to pursue a liver transplant after years of managing Cruz’s condition…
The skinny
The skinny isn't ready yet — notes appear once the transcript is processed.