Seth Rotberg Founder of Our Odyssey and His Mental Health Surrounding a Huntington’s Disease Diagnosis
Our Odyssey is an organization that supports young adults living with rare disease and chronic illness. The founder of Our Odyssey, Seth Rotberg, is passionately driven by his mother's battle with a rare genetic disease called Huntington's Disease (HD). At the age of 20, he also tested positive for the disease. He dedicates his life to helping others on their rare disease journey and chronic illness.
EPISODE HIGHLIGHTS
What is your connection to the rare disease world?
My story started at age 15 when my mom was diagnosed with Huntington's Disease (HD), a rare neurological disease that slowly…
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