Latest / Cork News Today | 2 Min News | The Daily News Now!
Ireland’s Rare Disease Crisis | Cork News
Families in Ireland are fighting desperately for access to Skyclarys, the only approved drug for Friedreich’s ataxia—a rare, devastating disease affecting about 200 people here. With the HSE recently rejecting reimbursement despite international support, patients and parents plead for a life-changing treatment that’s already helping others across Europe. Emily Felix, diagnosed at 12, now uses a wheelchair and fears losing her voice; Craig Coady mourns his son Paudie’s lost childhood, unable to play soccer. Neurologists confirm the drug improves quality of life, and with a final decision…
The skinny
The skinny isn't ready yet — notes appear once the transcript is processed.