Patient Advocacy, FDA Partnerships & Building the Infrastructure of Drug Discovery
Rare diseases. Patient advocacy. Drug development. FDA partnerships. Clinical trials.
Patient organizations have evolved into powerful engines of drug development, building registries, funding research, shaping clinical trial design, and partnering with regulators to accelerate new treatments.
This week on the Making Medicine Podcast, John Stanford sits down with Lisa Bonebrake, Executive Director of the Alport Syndrome Foundation, and Janis Naeve, world-class VC and Co-Founder & Partner of Bright Frontier, to discuss the evolving, high-impact role of patient organizations in modern drug…
The skinny
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