The Joy Doesn't Need to be Ambiguous Even Though The Grief is with Rare Merrf Disorder Mom - Jessica Fein

Once Upon A Gene · Nov 4, 2021 · 40m

ONCE UPON A GENE - EPISODE 107

The Joy Doesn't Need to be Ambiguous Even Though The Grief Is - Rare MERRF Syndrome Mom Jessica Fein

Jessica Fein is the mom to three children. Her middle child, 15 year old Dalia, has MERRF Syndrome, a rare form of mitochondrial disease. This degenerative disease has affected her being able to talk, walk or eat like she was able to do when she was younger.

EPISODE HIGHLIGHTS

Can you share a little bit about your children?

We adopted three children from Guatamala— Jojo, Dalia and Theo. Dalia's birth mother is the only mother we've met. The first time we met her…