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Raising Josephine with SATB2 Syndrome | New York City News
A Harlem family opens up about raising their five-year-old daughter Josephine, who lives with the rare SATB2-associated syndrome—a condition that can cause developmental delays and speech challenges. Though Josephine loves tea parties and dress-up, she communicates through sign language and a tablet. Diagnosed at two, her science-savvy parents dove into research to navigate the uncertain future. With fewer than 1,000 documented cases worldwide and no known inheritance pattern, the SATB2 Gene Foundation is pushing for more research and lifelong support. Early therapies like speech and…
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