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Friedrich’s Ataxia Drug Battle in Ireland | Cork News
Friedrich’s ataxia, a rare genetic disorder affecting roughly 200 people in Ireland, is at the center of a fierce debate over access to a groundbreaking drug, Skyclarys — approved by the EU but rejected for reimbursement by Ireland’s HSE due to cost concerns. Patients like Emily Felix, diagnosed at 12 and now fighting to preserve her voice and career, are taking legal action, calling the decision degrading. Others, like Barry Rice, acknowledge the high price tag but argue the government can afford it. With bipartisan support mounting and a final HSE decision looming August 25, this case could…
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