Latest / Living with Parkinson’s | Bryce Perry / Parkinson's Superpowers Mini-Series Part 1 – The Physical Side

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Parkinson's Superpowers Mini-Series Part 1 – The Physical Side · Living with Parkinson’s | Bryce Perry

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  They told him he had five good years left.
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  That was 15 years ago. He's still standing, still
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  speaking, still living. This is living with Parkinson's,
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  The good, the bad, and the reality.
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  A podcast about what happens when life throws you something
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  incurable and you fight back anyway.
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  Hosted by Bryce Perry, diagnosed at 4015.
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  Years into the battle, This is the truth behind the tremor.
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  Let's begin. You know what they don't tell
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  you when you have Parkinson's? That it's going to unlock some
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  really weird superpowers. Superpowers.
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  Yeah. Like, how about like one handed
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  ninja level laundry folding? Or how about the ability to
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  slide into a chair so smoothly that you think I trained in the
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  Matrix? Well, you know what?
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  This is Part 1 of my new miniseries, Parkinson's
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  Superpowers. The weird things that I have
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  gotten good at. And we're going to kick it off
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  today with the physical stuff. Hey, welcome back to Living with
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  Parkinson's, the Good, the bad, and the reality.
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  So if you're new here, I'm Bryce, and this channel is all
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  about real talk, encouragement, and a little laughter along the
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  way. You know that Parkinson's is a
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  thief and it takes things, but it also teaches us to adapt and
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  to get creative. And in some weird ways, it gives
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  us skills that we've never planned for.
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  So today I'm going to celebrate the weird, the useful, and the
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  kind of impressive physical superpowers that I picked up
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  since my diagnosis. And at the end, I'm going to
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  tell you about the one move I pull when I don't feel like
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  doing something it well, it might technically be called a
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  manipulative, manipulative, manipulative, but it depends who
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  you talk to, I guess. But guess what, I've got a
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  neurological brain disorder. Anyway, let's get into here.
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  Let's get into this right now. So here is my first superpower,
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  right? And again, play along with me.
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  If you, as you start hearing this stuff and maybe some
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  resonates, I want to hear what your superpower is.
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  Put it in the chat. Let me know and and we'll see if
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  if we have any, but mine is the one handed mastery right Master
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  street. I can fold the T-shirt, I can
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  zip up a jacket and I can prep a sandwich with one hand like I'm
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  training for a cooking show, like I'm training for a cooking
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  show speed round like I can do it one hand.
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  Why? Because sometimes my other hands
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  on strike. So I just had to adapt and now
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  my one handed game is strong. I mean I I would never
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  ambidextrous. I was always just right-handed.
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  It's crazy. I I'm right-handed like right
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  with my right hand. I throw, I guess throw baseball
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  at the right hand, but bat left. I shoot left.
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  Batting for baseball. Hockey is shooting and you're
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  outside of Canada, then maybe you don't know what hockey is.
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  But anyway, I shoot with my left hand, I bat with my left, I bat
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  left, I shoot left and I write with my right hand.
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  But anyway, I've never been as as many directors.
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  But you know what Parkinson's tried to steal like one of my
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  especially my right, right arm. So I've had to learn how to do
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  things with my other arm. The thing that the one that I
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  always thought wasn't as strong and the one that I, you know,
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  couldn't really do much with. And that's like I said, it's
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  become a one handed ninja. So anyway, that's my superpower
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  #1 how about this one superpower #2 this is my ninja level ninja
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  level chair control. I don't sit, I descend slowly,
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  smoothly, and strategically. Too fast and I'm jolted and too
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  slow and I look like I'm glitching but just right.
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  Stay with us. We'll be right back.
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  It's like chair poetry, You know, here's the thing.
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  Have you ever had one of those days, like those Parkinson days?
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  I just call them like Parky days, Like Parkinson days where,
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  you know, you just kind of like he just kind of like get pissed
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  off. You get pissed off at
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  Parkinson's. Well, I've been around here for
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  a little bit, you know that when I get pissed off, I kind of try
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  to make fun of it. I try to try to make fun of my
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  Parkinson's. I try to like just and get at
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  it. So I'm in one of those days and
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  hopefully, if you're going to enjoy this, I, which I hope you
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  will and I hope you do and you know, you're, you're going to be
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  the benefactor of my bad Parkinson's day because I want
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  to blast the hell out of my Parkinson's.
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  I want to make fun of it. I want to take back that power
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  and I'm going to do a three-part mini series because I was just
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  kind of like sitting here and I was just really thinking about
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  all the things that that I can do that are really cool anyway.
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  But I think they're cool and I'm going to share it with you.
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  And again, I want to hear yours. So put them in the comments.
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  This is all about engagements community.
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  So let me know. Don't let me hang in here.
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  OK. All right, so here's my third
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  superpower. I was thinking about.
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  How about this? Like I shuffle like a pro
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  shuffle. Yeah, shuffling.
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  I may not walk fast, but let me tell you, there's this tight
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  space, like a hallway or a crowd.
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  I can shuffle through there just like a ghost.
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  I mean, it's like, woo Hoo. I mean, I have the moves.
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  I have actual moves. I can't.
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  It's just kind of it's like, again, stealth mode activated.
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  It's so incredible. I can just slide through and no
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  one ever sees me. How about this when I never even
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  thought about superpower #4 my medication, timing, precision.
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  You know what, I may not remember what day it is, but I
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  can tell you exactly when I took my last Lemodopa and how long
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  I've got before I turn into a mannequin.
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  And absolutely that is ha ha ha ha moment.
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  I'm saying that to get power over it because I have no idea
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  when I take my medication. I really don't.
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  I, I actually could take a pill and I could forget 5 minutes
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  later I'll tell my my wife. I'll be like, she'll be like,
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  hey, it's time for your meds. And I guess I take them and if 2
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  minutes go by and I'm kind of did I take my pills?
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  Do you remember if I took my pills?
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  It's quite crazy. So a lot of times I'm on a three
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  hour cycle with my, with my levodopa.
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  And a lot of times I think I end up taking it about an hour, an
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  hour and a half in because I'd rather take it.
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  And I'd rather, I'd rather the error on the side that I missed
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  it. And I'll take a little bit more
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  than run out. I'd rather have a little bit
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  more let it open me then run out.
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  But anyway, I don't want to turn into a mannequin, believe me.
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  Which leads me into superhound #5.
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  How about this? Coffee tables, doors, frames,
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  kitchen counters, They're not just furniture, They're part of
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  the team. They're part of my team.
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  I moved through my house like I'm playing real life book art,
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  using everything to balance. Like, I mean, literally, I've
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  become like this master furniture, like my furniture is
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  like my support system. It's like they're like a friend
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  of mine. I I mean, especially if I wake
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  up in the middle of night and and it's like a pinball time for
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  me. I'm like, I got the dresser on
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  the way by. I got the door on the way
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  through the door frames on the way.
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  I hit the wall by the, by the toilet or whatever and I grabbed
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  a side of things. It's like become like this.
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  I, I, you think about, you know, they think people like get
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  accessory the, the, the, the handicap or handicap.
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  My goodness, you know, people need like railings.
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  I guess what I'm trying to say is they need railings and, and
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  ways to get through things. I mean, who needs railings when
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  you've got dressers and you've got tables and coffee tables?
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  I mean, who needs that anyway? But here is my bonus superpower.
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  This is my bonus one. This is like what I call my
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  built in excuse and I don't play.
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  I don't know about you. And in the comments.
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  Do you use, do you ever play the Parkinson card?
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  You know, I went for so many years of, of pretending I didn't
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  have it or not knowing I didn't have it or not wanting anybody
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  to know I had it, that it's really was hard for me at the
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  beginning to even mention that I had it, had Parkinson's and was
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  diagnosed. But do you ever play the card?
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  Like do you ever like all those days you just want to cash it in
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  here and you're kind of like, no, I'm going to have a
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  Parkinson day. I'm going to call into work.
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  I'm going to do whatever because I'm just, I'm having a Parkinson
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  day. OK, well, this one for me isn't
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  physical, right? That makes me giggle.
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  I don't know why. I really don't know why.
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  But anyway, it makes me giggle and and here it is.
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  It's not physical, but it feels like a superpower.
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  You know, sometimes I just look at my wife and I give her these
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  eyes like she calls them like my little puppy dog eyes.
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  And I'll just look at her and I'm like, and I'll forget.
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  Let's say I forgot the garbage. Like, you know, could you take
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  the garbage out? I don't need to do anything
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  today. But when I come home, by the
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  time I go home, can you just make sure the garbage is out
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  because it's garbage day. And of course I forget.
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  And, you know, she'll just look at me and I know she's got that
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  look and I'm just going to look at her.
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  And I just go like, I'm really, really sorry, but I don't know
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  if you know this or not or if you maybe forgot.
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  But I have a neurological brain disorder and it makes like this
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  particular task really difficult.
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  And I'm really sorry it wasn't something I asked for and it's
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  not something I want, but it is a progressive brain disorder
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  anyway. And, and I'll pull that out when
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  I need it. Trust me, it doesn't work.
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  It really doesn't work, but it just makes me feel better.
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  And I don't know why that is, but it does makes me feel
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  better. Anyway, this is Part 1.
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  I'm going to do a three-part miniseries part you're in Part 1
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  right now. Part 2, Part 3, I'm dropping
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  them all at the same time so we can just kind of walk, watch
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  them in order. And I broke them into different
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  parts. And this was like the physical
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  things, my physical superpowers. But I wanted to know what your
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  superpowers are, what physical, What can you do now with
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  Parkinson's that you couldn't do before?
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  I want to know because it's incredible the things that teams
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  that we can, we can, if you really sit down, you can
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  actually think of like these crazy, wild, weird things that
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  you can do that you couldn't do before.
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  So you know what, Parkinson's messes up a lot of things, but
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  it's also made me very weirdly good.
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  And it's stuff that I never expected.
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  All right, again, what's your Parkinson's superpower?
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  And you're going to join me for Part 2.
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  So thanks for watching because I'm going to see you there right
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  now and let's get stealthy and we're going to end the Part 2.
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  Part 2 is going to be the mental and the emotional side.
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  What are superpowers mental and emotional?
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  And if you're watching right now, let's go there right now.
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  Parkinson's may be part of your life, but it doesn't get to
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  define it. Thanks for listening to Living
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  with Parkinson's, the good, the Bad, and the Reality.
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  If this episode moved you, helped you, or reminded you
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  you're not alone, share it with someone who needs to hear it.
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  Want to go deeper? The Inner Circle is waiting.
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  Monthly Zoom calls, 24/7 community, and a Direct Line to
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  Bryce. You'll find the link in the show
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  notes. Until next time, keep showing up
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  and keep doing life today.