Make A Difference Minute: Finding a Way Forward for Ruthee
On this Make a Difference Minute, I have Holly Parrish as she shares about her four-year-old daughter, Ruthee, who lives with Kabuki syndrome and needs specialized care that has been difficult to access. For Holly, one of the biggest needs right now is finding people who have already walked a similar road and can help point her toward the next step. She has closely followed Jessica Davenport and the Kruzn for a Kure Foundation, watching how Jessica Davenport has advocated for Kruz and Paizlee, pursued specialized care, raised money for research, and kept pushing when the answers were far from…
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