A Mother Navigating the Same Rare Condition as her Children | Stacey and Dean
In this episode, Kerri Fitzgerald speaks with Dean Salmon and Stacey Carpenter-Salmon, parents to two children who were diagnosed with a rare genetic condition called Alagille syndrome. Stacey later found out that she had Alagille syndrome, as well as some extended family members.
Dean and Stacey give advice for other parents and families helping a loved one through a health journey and talk about how impactful it was to find a community of families who could understand this condition first-hand. Dean and Stacey offer important advice to advocate for your loved one and to take time to relish…
The skinny
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