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Life with IQSEC2 A Mother’s Story of Caregiving Grief and Hope
Trigger Warning This episode discusses medical trauma chronic sorrow seizure activity and the emotional realities of caring for a medically complex child. Please take care while listening.
Today’s episode of For The Hayters shares Misty’s story of raising her seven year old son, Jackson, who lives with IQSEC2, a rare and severely debilitating genetic disorder. Misty opens up about the shock of a normal pregnancy, the sudden onset of seizures, the search for answers, and the moment she learned that her child’s diagnosis had no clear roadmap or cure.
She talks about the weight of being a full…
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