Latest / Where We Rise / 29 | "Beyond Her Capabilities" | Not Defined by Disabilities
Transcript
- 0:00Khalila McCoy: Hey, I'm Khalila McCoy, and this is a show that empowers you to keep moving forward, not only for yourself, but for others as well.
- 0:08Khalila McCoy: This is where we rise.
- 0:12Khalila McCoy: Hey there, welcome to the show.
- 0:15Khalila McCoy: I'm very excited to be here with you as we continue our back to school series where we explore how others learn, both literally and figuratively, and how they see the world so we can learn a little bit more ourselves.
- 0:28Khalila McCoy: This week has been a very busy week for me, as it is my first full week back to school.
- 0:34Khalila McCoy: As you guys know, I've been in education for many years, but this is my fourth year as a math specialist, and we have been hitting the ground running.
- 0:41Khalila McCoy: Now, when I told my former middle school teacher, Miss Roshong, that I spend my days teaching math and supporting others with math, she had to laugh.
- 0:51Khalila McCoy: Growing up, you guys, I hated math.
- 0:54Khalila McCoy: And I told everybody.
- 0:56Khalila McCoy: I had convinced myself that it was too hard, that I wasn't capable, and that it simply wasn't for me.
- 1:02Khalila McCoy: Ms.
- 1:03Khalila McCoy: Roshang was my history teacher, not my math teacher, but she knew of the strong dislike that I had for math.
- 1:10Khalila McCoy: But after she left, and we talked about how much I've grown to love working with others around math, she said something that I truly appreciated.
- 1:18Khalila McCoy: She said she wasn't surprised because she always knew I could do anything I set my mind to and that I was meant to be an educator.
- 1:26Khalila McCoy: When I think about the kind of teacher I am today and the way I connect with students and families, so much of it comes from growing up with teachers like her and people who saw me, believed in me, and shaped the way I show up in the world.
- 1:38Khalila McCoy: I'm truly grateful for the people who have cheered me on, but I've also had experiences where teachers and other adults have tried to limit me.
- 1:47Khalila McCoy: Sometimes intentionally, and other times they thought they were being helpful.
- 1:51Khalila McCoy: Our guest today, Michelle Steiner, knows that experience well.
- 1:56Khalila McCoy: Living with the math disability dyscalchalia, she was told many times what she wouldn't be able to do.
- 2:03Khalila McCoy: I'm sure some believe that they were guiding her towards an easier path, but Michelle refused to let limited expectations define her.
- 2:11Khalila McCoy: She didn't allow her disability to stop her then, and she doesn't allow it to stop her now.
- 2:16Khalila McCoy: Today, Michelle is going to share with us what it was like growing up being labeled with a disability from kindergarten, what it was like feeling different than her peers, and navigating moments of struggle, but choosing again and again to keep moving forward.
- 2:31Khalila McCoy: Let's listen.
- 2:33Khalila McCoy: Michelle, how are you?
- 2:36Khalila McCoy: I am great.
- 2:38Khalila McCoy: How are you?
- 2:39Khalila McCoy: I'm doing really good today.
- 2:40Khalila McCoy: We talked about the sun is shining, it's a beautiful day, so I'm excited to be here talking to you.
- 2:46Michelle Steiner: Yes, same here.
- 2:49Khalila McCoy: I'm gonna start us off by reading what you sent me when you learned about the show and decided that you wanted to be a guest.
- 2:56Khalila McCoy: You said, Hi, my name is Michelle, and I have a learning disability.
- 3:00Khalila McCoy: I'm a writer, speaker, photographer, and paraeducation educator.
- 3:04Khalila McCoy: I was told that I could not go to college, get my bachelor's degree, or have the job I wanted.
- 3:09Khalila McCoy: I was able to do all of that and more.
- 3:12Khalila McCoy: I would love to share my story with you.
- 3:14Khalila McCoy: So when I read that, I just heard the power and confidence in your words, and so I knew I would not pass up on the opportunity to have a conversation with you.
- 3:23Khalila McCoy: So I would just love to just start where you are comfortable and just tell us the name of your disability and then describe it in your own words.
- 3:33Michelle Steiner: Sure, I would be happy to.
- 3:35Michelle Steiner: I have a learning disability.
- 3:36Michelle Steiner: I have dyscalculea, which is a math learning disability, and that affects on how I um with numbers.
- 3:44Michelle Steiner: It can be hard.
- 3:46Michelle Steiner: It's I don't see numbers backwards, but it's hard with no understanding how they work, forgetting the steps in a math problem.
- 3:52Michelle Steiner: Um, but it goes beyond that.
- 3:55Michelle Steiner: I'm not able to read the face of a clock, and I can I confuse my right from my left, and those are uh pretty common symptoms of that.
- 4:03Michelle Steiner: I also have limited hand dexterity in both of my hands.
- 4:07Michelle Steiner: Okay, and that affects me with my fine motor skills, uh locking doors, unlocking doors, uh things can fall out of my hands.
- 4:16Michelle Steiner: I also have visual perception issues, but that is in my brain, not in my eyes.
- 4:22Michelle Steiner: So that affects more of my reaction time and my eye-hand coordination, and I'm not able to drive because of that.
- 4:30Khalila McCoy: Okay.
- 4:30Khalila McCoy: So I told you before, too, I find this really interesting because I am a math coach myself.
- 4:37Khalila McCoy: So that's my job is to help students with math.
- 4:40Khalila McCoy: So, and a lot of times we see kids who might struggle with these certain things, and dyscalculia is not something that we are trained on, knowing about and, you know, knowing what to look for and things like that.
- 4:53Khalila McCoy: So, how old were you when you first found out that you had this disability?
- 4:58Michelle Steiner: They found out I had a learning disability in kindergarten.
- 5:01Michelle Steiner: My teacher could really see that I was struggling in the classroom.
- 5:04Michelle Steiner: And whenever my teacher recommended I get tested for having a learning disability, and whenever they did the evaluation, uh it came as no surprise to them that I have one.
- 5:15Michelle Steiner: And I can remember they did not, as I said, they didn't give it a specific name, but they knew when I was five or six I was not going to be a mathematician.
- 5:22Michelle Steiner: That was not in the cards for me.
- 5:26Khalila McCoy: Hey, don't worry.
- 5:27Khalila McCoy: Some days I'm not sure I'm a mathematician.
- 5:29Khalila McCoy: Just try really hard to get it right and help other people.
- 5:35Khalila McCoy: So if since it wasn't first seen as dyscalclea, what did they say your disability was?
- 5:43Michelle Steiner: What they would what they still they still don't, this is where it comes into with the diagnostic criteria.
- 5:50Michelle Steiner: It'll come up as specific learning disability and math.
- 5:53Michelle Steiner: Okay.
- 5:54Michelle Steiner: But at that time, it was just learning disability.
- 5:56Michelle Steiner: And they they knew that the math, that's how it impacted me.
- 6:00Khalila McCoy: Right.
- 6:01Khalila McCoy: So talk us through how that felt going through elementary school, especially, you know, when math is a big part of your day.
- 6:09Khalila McCoy: It's a big expectation that you're moving, you know, along with your peers.
- 6:13Khalila McCoy: How did that feel for you?
- 6:15Khalila McCoy: It was really difficult for me.
- 6:17Michelle Steiner: I just remember feeling that struggle whenever I was a very small child.
- 6:22Michelle Steiner: I had to repeat kindergarten and I began to receive specialty instruction in all areas.
- 6:27Michelle Steiner: And I also had accommodations, but it was hard for me, not only academically but socially.
- 6:35Michelle Steiner: When I was in regular ed, everybody could see that I was struggling in the classroom.
- 6:39Michelle Steiner: And I couldn't hide.
- 6:41Michelle Steiner: I went to a very small school district where everybody knew each other.
- 6:43Michelle Steiner: They were close-knit if you fit in.
- 6:45Michelle Steiner: And if you weren't one of them, you certainly didn't fit fit in, and life was difficult.
- 6:51Michelle Steiner: And I can just remember I couldn't just blend in.
- 6:54Michelle Steiner: I mean, they saw me in the classroom struggling, going to learning support.
- 6:57Michelle Steiner: And the bullying started really early whenever I was young.
- 7:01Michelle Steiner: And when I was younger, it wasn't just, oh, um, a lot of times it was, well, you're not invited to my birthday party, and you can't play with me on the playground.
- 7:11Michelle Steiner: And it got a lot, um, not to jump too far ahead, but academically, school got a lot easier for me when I went to high school, but socially that got a lot harder for me.
- 7:22Michelle Steiner: But one of the things that was really key was writing.
- 7:27Michelle Steiner: They found out I was really good at writing and reading.
- 7:29Michelle Steiner: And my dad found a story about a dinosaur that I wrote in second or third grade and said, wow, this is really good.
- 7:35Michelle Steiner: And when he did that, I was like, wow, I am good at something because I didn't think I was good at anything.
- 7:42Michelle Steiner: I thought that I wasn't smart.
- 7:44Michelle Steiner: I thought I'm just I don't have any talents or any skills.
- 7:47Michelle Steiner: And writing and reading really became my world uh starting when I was young.
- 7:53Khalila McCoy: Yes.
- 7:54Khalila McCoy: Yeah, I think that's the hard thing.
- 7:56Khalila McCoy: A lot of times when a student is struggling in one area, there's so much pressure, right?
- 8:03Khalila McCoy: Because there's so much support and the intention is good, but you spend so much time helping them in that one area, we don't always get to focus on the strengths.
- 8:12Khalila McCoy: Or by the time you get to your strength, you're probably just mentally fatigued from trying so hard with math that you might not be able to give as much to the other areas.
- 8:22Michelle Steiner: Right.
- 8:22Michelle Steiner: Exactly.
- 8:24Khalila McCoy: When you talked about um being bullied and things like that, how did you handle that?
- 8:29Khalila McCoy: Were there adults in your life that you could kind of go to and talk to about it?
- 8:34Khalila McCoy: Or did you feel like you had to handle most of it on your own?
- 8:38Michelle Steiner: I was really lucky that I found a group when I was in high school that I was not connecting with people, peers in my school, it just wasn't happening for me.
- 8:48Michelle Steiner: So what I ended up doing was I found a group right outside of my school district that was an arts group, and I got to meet other peers that I didn't go to school with, and they had the same interests.
- 8:59Michelle Steiner: So I had that acceptance, and that helped a lot with my confidence, and I could shake that reputation that followed me ever since I was that little kindergartner, of being that outcast.
- 9:11Michelle Steiner: And I my parents were great for taking me places as well.
- 9:15Michelle Steiner: And then I once I transitioned out of that group when I was a teenager, I also found an adult, uh, a writing group for adults.
- 9:24Khalila McCoy: Okay.
- 9:25Michelle Steiner: And that was great because they were just a couple years older than I was, and they got to wr watch me grow as a writer and a person.
- 9:33Michelle Steiner: And at that time I thought, oh no, uh, they they told me, oh, you should write about having a disability.
- 9:37Michelle Steiner: I thought, oh no, I'm not having this, it's too personal.
- 9:41Michelle Steiner: And 20 some years later, uh, we still meet once a month to talk about our writing.
- 9:48Khalila McCoy: Wow.
- 9:49Michelle Steiner: And we're still in each other's lives, and it's just they've really made that difference.
- 9:54Michelle Steiner: And they got to watch me grow as that writer and that person.
- 9:56Michelle Steiner: Yeah.
- 9:57Michelle Steiner: And my my parents were just really great about taking me places, and my dad's the one that found out about the the writing group.
- 10:04Michelle Steiner: And I thought, okay, I'm gonna go and I'm going to see what that's about.
- 10:09Michelle Steiner: And it was also nicer having older friends that were of a good influence too, because driving was not that big of a deal.
- 10:17Michelle Steiner: Some of my peers were asked me, Well, are you driving yet?
- 10:20Michelle Steiner: And I only went to hang out with you for you drive.
- 10:22Michelle Steiner: But a lot of uh my friends who were older, just by a few years, that that wasn't a factor to them.
- 10:28Michelle Steiner: After, I mean, after they found out I couldn't do it, they're like, okay, we'll take you places, no big deal.
- 10:34Michelle Steiner: And they've always had that open um policy.
- 10:37Khalila McCoy: Yeah, I love that you had that group of people to be with who saw who you were beyond the disability.
- 10:43Khalila McCoy: When you because you already shared with us that you have limited ability in your hands and the perception, did that gradually decrease, or was that like right away when you were young, or all of that was noticed at once?
- 10:58Michelle Steiner: They noticed the vision perception when I was young.
- 11:01Michelle Steiner: I mean, they was uncoordinated.
- 11:03Michelle Steiner: I would blink every time a ball came in my direction.
- 11:06Michelle Steiner: And I always had poor handwriting.
- 11:10Michelle Steiner: But one of the things was and then the but the visual perception came first because they I was in school and they even went, I went to the eye doctor and had normal vision, but my visual perception was off.
- 11:23Michelle Steiner: So I remember there was like little activities.
- 11:25Michelle Steiner: Uh, my dad made me a balance beam, and then we had like a wiffle ball that we hung from our ceiling in the family room uh downstairs in the basement, and I would go and try to hit the the ball so many times, but it didn't turn me into an athlete.
- 11:39Michelle Steiner: Uh and that um certainly was something that came up whenever driving was it.
- 11:47Michelle Steiner: My my parents knew that that was going to be a challenge for me, so they thought, well, we're going to wait a year.
- 11:53Michelle Steiner: We didn't immediately try to get my license when I was 16, like a lot of families do, or start studying for that.
- 11:59Michelle Steiner: And then they gave me little tasks to do.
- 12:03Michelle Steiner: And we lived out in the country and the field, uh, well, we had a field in our house.
- 12:09Michelle Steiner: So they said, Well, can you go mow the field?
- 12:11Michelle Steiner: And instead of making beautiful long uh lines, I ended up making crop circles.
- 12:16Michelle Steiner: So I always say I know where crop circles come from.
- 12:19Khalila McCoy: And I almost uh not the aliens.
- 12:25Michelle Steiner: And I almost ran the family car into the garage.
- 12:28Michelle Steiner: And at that point, my mom and dad said, This is time to um get something you know established and see what's going on.
- 12:36Michelle Steiner: And I passed every test, just like at the eye doctor, that with my vision until we got the visual perception, and I just they said they they didn't recommend that.
- 12:45Michelle Steiner: Now the hand dexterity was not officially diagnosed until I was an adult, but the light bulb went off at that point because I not only had poor handwriting going through school, but things would fall out of my hands and people just thought I was clumsy and I couldn't uh use twist ties.
- 13:02Michelle Steiner: Uh if you give me a manual can opener, it's like trying to operate a spaceship.
- 13:07Michelle Steiner: So I and I just pass through them a little bit.
- 13:11Khalila McCoy: So what is so you said like not using twist ties or a can opener.
- 13:15Khalila McCoy: I'm sure like when you're trying, right, you're focusing on trying to get that open.
- 13:20Khalila McCoy: What is like do you not see it correctly, or are you like, I don't know which way to turn it?
- 13:24Khalila McCoy: How does that feel in the moment?
- 13:27Michelle Steiner: I I can see it, but it's making those connections with my hands.
- 13:32Michelle Steiner: Okay.
- 13:32Michelle Steiner: And trying to get it in the direction, and then sometimes just the dexterity of of that.
- 13:38Michelle Steiner: And that's also a sensory issue.
- 13:40Michelle Steiner: I can remember one of the tests, they were like, oh, they were touching my hands, and I couldn't figure out which which finger they were touching.
- 13:46Michelle Steiner: And then it's also just how they work in general.
- 13:50Michelle Steiner: I can remember they had they blindfolded me and had me put shapes in a shape sorter.
- 13:56Michelle Steiner: And my hand, I just that's how they measure how your hands work.
- 14:02Michelle Steiner: And I had a a lot of difficulty with that.
- 14:06Michelle Steiner: And it was always hard for me maybe to grip pencils.
- 14:09Michelle Steiner: I mean, my handwriting has always been bad.
- 14:11Michelle Steiner: I they in fact they put a W on my report card for weakness.
- 14:15Michelle Steiner: And finally, when I learned how to type, that really changed a lot of things.
- 14:19Michelle Steiner: And now I also like the dictation software that they have.
- 14:23Khalila McCoy: Right.
- 14:23Khalila McCoy: Yeah, there's a lot more things to help.
- 14:27Khalila McCoy: Right.
- 14:28Khalila McCoy: Now, again, like I said, as a math coach, like I work with a lot of kids, right?
- 14:33Khalila McCoy: And you talked about, you know, blindfolding you and having you do these activities.
- 14:37Khalila McCoy: And, you know, obviously we have to do different activities to see what the child is able to do and kind of rule out certain things.
- 14:45Khalila McCoy: Do you when you take those tests, did you ever feel like you know, you would know eventually that you didn't perform as they expected?
- 14:54Khalila McCoy: Was it ever like a kind of a down or two, like, oh man, like I'm not doing well?
- 14:58Khalila McCoy: Or was it more of a relief, like, oh good, they understand now and they can help me?
- 15:03Khalila McCoy: Where did you fall in that?
- 15:05Michelle Steiner: I think I kind of fell in very many uh all those places at once.
- 15:10Khalila McCoy: Okay.
- 15:11Michelle Steiner: I can't or or excuse me, at one point I fell, I've fallen in all those different places.
- 15:16Michelle Steiner: When I was really young, I can just remember not feeling very smart.
- 15:20Michelle Steiner: That was the hard part.
- 15:21Michelle Steiner: My mom and dad, we would study for tests and spend a lot of long, cheerful homework sessions, and I would go in and I'd take a test and I wouldn't do well and I'd feel defeated.
- 15:30Michelle Steiner: But then I can also remember when I would get they they weren't a surprise to me.
- 15:34Michelle Steiner: Whenever I would, for example, uh, we would get standardized test scores.
- 15:39Michelle Steiner: I always knew that the the bar was going to be really uh bigger in English and then it was gonna be really little in in math.
- 15:47Michelle Steiner: And I thought, okay, I I understand that.
- 15:49Michelle Steiner: But it was hard when I was young because I thought, well, what is wrong with me?
- 15:54Michelle Steiner: And then as an adult, I I started to realize I mean, I went through that time where it was still really hard, but then I started to figure out, okay, that's just a part of who I am.
- 16:07Khalila McCoy: Yes.
- 16:08Michelle Steiner: And it's one small part of me.
- 16:10Michelle Steiner: And I start that also influenced the kind of classes that I took.
- 16:14Michelle Steiner: And I I found out if if you didn't put math in front of me or you gave me a group project or a paper to write, I had I had much better scores than the test.
- 16:25Michelle Steiner: And that was in all areas in my in school too.
- 16:29Michelle Steiner: I always did a lot better with that.
- 16:32Michelle Steiner: And I also sometimes felt relief because I whenever they found out what was going on, it was hard at first because I there was just so much emphasis on what I couldn't do.
- 16:44Michelle Steiner: But looking back on that, I I didn't know I had hand dexterity issues.
- 16:50Michelle Steiner: I didn't know that that was really even a thing.
- 16:53Khalila McCoy: Right.
- 16:53Michelle Steiner: And I can also remember how it did influence in a certain way, too.
- 16:57Michelle Steiner: And when I was in college, when I was going to take my math course, and I thought, okay, I'm I'm in a program that has the least amount of math and science possible.
- 17:04Michelle Steiner: And I had a choice.
- 17:05Michelle Steiner: It was either going to be a logics class or it was going to be like an uh intro to algebra or something really along those lines.
- 17:14Michelle Steiner: And I didn't know what I was going to do.
- 17:16Michelle Steiner: And I was sitting on campus one day, and this guy came up.
- 17:19Michelle Steiner: There was a chess board, and he goes, Do you want to play chess?
- 17:22Michelle Steiner: I said, Sure.
- 17:23Michelle Steiner: And we had the shortest chess game in history, which, spoiler alert, I lost.
- 17:28Michelle Steiner: And I looked at him and I said, Yeah, I have a math disability and I got to take a math class, and I don't know what I should take, whether I should take this intro to logic or should I should take an algebra class.
- 17:39Michelle Steiner: And he looked at me and goes, Well, I'm in the math department, and I think you really should take the intro to logic because a lot of the guys in my department are very nice.
- 17:47Khalila McCoy: Aw.
- 17:48Michelle Steiner: And I had the most understanding professor for that intro to logics class.
- 17:52Michelle Steiner: I was not, I did not do well at all.
- 17:54Michelle Steiner: But he knew I was trying and doing everything I could do.
- 17:58Michelle Steiner: And I he passed me along, and all I needed to do was get a D, and that's that that's satisfied with the degree I was getting.
- 18:06Khalila McCoy: What was your degree in?
- 18:08Michelle Steiner: Um community programming for Americans with disabilities.
- 18:12Michelle Steiner: And then I had at community college, I was able to get a math waiver, and that was at an associates in early childhood education.
- 18:20Khalila McCoy: Okay, nice.
- 18:21Khalila McCoy: Um so before we kind of talk about your degree, let's go back to your writing.
- 18:27Khalila McCoy: What type of writing do you do?
- 18:30Michelle Steiner: I do a lot of creative nonfiction and I do a lot of uh with the nature metaphors.
- 18:35Michelle Steiner: So I might talk about the process of accepting my disabilities like a flower that's on blooming, or the process a transformation that a butterfly goes through, or a long season of winter with having a disability that we certainly had this year.
- 18:50Khalila McCoy: Right.
- 18:51Khalila McCoy: When you were younger, did you write about your disability as well, or was it something that you didn't really want to talk about and acknowledge?
- 18:59Michelle Steiner: I wrote about it a little bit, but for the longest time I wrote really bad poetry.
- 19:04Michelle Steiner: And some other, like, I thought I was gonna be a children's book writer.
- 19:09Michelle Steiner: Uh-huh.
- 19:09Michelle Steiner: And I stole a fiction, and uh that just hasn't worked out in my favor.
- 19:14Khalila McCoy: So is that still a goal of yours?
- 19:19Michelle Steiner: I do have a children's book idea um story about dyskalculea that I would love to get published because I think that's a good thing for for young children to be able to understand that.
- 19:30Michelle Steiner: Because there really is not a lot of books on it.
- 19:33Khalila McCoy: No, there's not.
- 19:34Khalila McCoy: Yeah, that would be great for educators as well.
- 19:38Khalila McCoy: When you like what I read in the beginning, you talked about how people told you you could not go to college.
- 19:45Khalila McCoy: What was that conversation?
- 19:48Khalila McCoy: Like, was it just because you're not good at math, they discount they this, you know, discounted everything else that you were capable of doing, or was it more of the like the driving and things like that?
- 19:58Michelle Steiner: It was more the math.
- 20:00Michelle Steiner: I can remember that's I heard that was when I was in high school with my learning support teacher.
- 20:05Michelle Steiner: And she didn't think I could handle it.
- 20:07Michelle Steiner: She said, You could probably write the bestseller, but you're probably not going to be able to go to college.
- 20:11Michelle Steiner: And I can just remember really and she wanted me to go to a trade school.
- 20:17Khalila McCoy: Okay.
- 20:17Michelle Steiner: And the the funny thing is, when I look back on that, the trade school would have been harder than a college class.
- 20:24Khalila McCoy: Right, with using your hands and things like that.
- 20:26Michelle Steiner: Yeah, I I certainly nobody would want me to cut their hair or to dye it.
- 20:31Michelle Steiner: I don't think I could definitely uh drive an ambulance or a cop car with driving.
- 20:37Michelle Steiner: Cooking involves math.
- 20:39Michelle Steiner: I mean, it's a lot of things that I just didn't think that I it didn't have if they had an early childhood program, I might have considered that.
- 20:48Michelle Steiner: That would have just given me a good start, but they didn't have that.
- 20:52Michelle Steiner: So what I did was I just thought, okay, I'm gonna go to community college, and I got connected with office for vocational rehabilitation.
- 21:00Michelle Steiner: And one of their uh stipulations was you had to get tested for having a disability all over again.
- 21:06Michelle Steiner: And that's when I had a psychiatrist who told me you're not going, most likely not going to go beyond community college because I scored low in every area, not just math.
- 21:16Michelle Steiner: And that was really discouraging because I thought, well, I'd like to get my bachelor's degree someday.
- 21:21Michelle Steiner: Maybe not now, but I I knew I wanted to do that.
- 21:24Michelle Steiner: And even when I went after, because I wanted to ride uh paratransit that's for people with disabilities because they can't drive, I had to uh get evaluated again.
- 21:35Michelle Steiner: And I they were asking me questions like, oh, what do you want to do with your life?
- 21:38Michelle Steiner: So I put down, oh yeah, I want to write news articles, I want to uh do photography, I want to do all these things.
- 21:45Michelle Steiner: And they said, Well, based upon her scores, we're just not even gonna consider that because she can't, it would be beyond her capabilities.
- 21:52Michelle Steiner: And I just find that so funny that I was able to get things published and I was um I have a blog and I and and I'm able to do those things.
- 22:02Khalila McCoy: Yes.
- 22:02Michelle Steiner: And the area that my disability in is in math, um, handwriting, and um, you know, some hands work and the visual perception.
- 22:11Khalila McCoy: Yeah.
- 22:12Khalila McCoy: Was when they told you that and you decided to kind of go through with going to college and doing your best, was it kind of like this, I'm gonna show you that I can do this, or did you just kind of go through it hoping that it would work out?
- 22:28Michelle Steiner: I went through it hoping it would work out.
- 22:30Michelle Steiner: I was really discouraged for a lot of years.
- 22:32Khalila McCoy: I'm sorry to hear that.
- 22:34Michelle Steiner: Yeah.
- 22:34Michelle Steiner: It was it was those were hard years because it there was just such a stigma.
- 22:39Michelle Steiner: I can remember I asked a professor, do we can I use a calculator?
- 22:44Michelle Steiner: And she told me, no.
- 22:46Michelle Steiner: Oh no, we use our brains in this class, not calculators.
- 22:48Michelle Steiner: I had an advisor who told me I was going to have limited job choices when I was done because I would not know how much paper to give to children when we were doing an art project.
- 23:00Michelle Steiner: And I just want to know that this stuff does happen, but I'm able to know how to deal with it.
- 23:07Michelle Steiner: And but at that age, I didn't know how to deal with a lot of that.
- 23:10Michelle Steiner: So it was harder.
- 23:12Michelle Steiner: But when I was able to uh graduate, I moved out on my own and I went back to school, that's when I had that confidence.
- 23:21Michelle Steiner: And I knew that I could do it.
- 23:24Michelle Steiner: And I I mean I still was afraid.
- 23:26Michelle Steiner: I still had to get over a lot of that.
- 23:28Michelle Steiner: I mean, the math definitely loomed.
- 23:30Michelle Steiner: But once we got past the math and I was doing well in my classes, I mean, it it was a lot better.
- 23:36Michelle Steiner: I used all the accommodations.
- 23:38Michelle Steiner: I advocated for myself, and I made Dean's list for a semester.
- 23:42Khalila McCoy: So I mean Yeah, so you definitely have the capabilities.
- 23:48Khalila McCoy: Mm-hmm.
- 23:50Khalila McCoy: Talk to us about photography, because I know you talked about not being able to hold things in your hand.
- 23:54Khalila McCoy: How do you do that?
- 23:57Michelle Steiner: I found that using my phone is really an easy way for me to do that.
- 24:01Michelle Steiner: Okay.
- 24:01Michelle Steiner: I mean, I can do it.
- 24:03Michelle Steiner: And sometimes it's a little bit of patience to have things go into focus.
- 24:07Khalila McCoy: Right.
- 24:07Michelle Steiner: But I can do that.
- 24:08Michelle Steiner: And that sometimes that's just good practice.
- 24:10Michelle Steiner: And if my hand gets tired, then I'm I'm able to just kind of relax and be like, all right, you know, we can we can move on and then we can always come back to that.
- 24:19Khalila McCoy: Yeah.
- 24:20Khalila McCoy: And you've lived with this.
- 24:21Khalila McCoy: You said since you were in kindergarten, at least it's been diagnosed, and you talked about having patience.
- 24:26Khalila McCoy: Is it you having patience with yourself?
- 24:28Khalila McCoy: Do you still get frustrated sometimes?
- 24:30Khalila McCoy: Or is it more the people you're around just, you know, educating them on what you're going through and asking them for that patience?
- 24:37Michelle Steiner: Aaron Powell It's it's a mixture of both.
- 24:39Michelle Steiner: But I've learned while I have, I mean, I'm much more positive.
- 24:43Michelle Steiner: I do have my days where I wish it wasn't so hard.
- 24:46Michelle Steiner: I've sometimes it is difficult.
- 24:49Michelle Steiner: And but I've learned how to work with that.
- 24:51Michelle Steiner: And sometimes we just have to, we've I found ways to cope and to be able to learn know what I need to do.
- 25:00Michelle Steiner: And it's just better to do those things and then empower me to be able to do that.
- 25:06Michelle Steiner: But I also find it is hard for other people, though, sometimes to have patience with others.
- 25:11Michelle Steiner: Right.
- 25:11Michelle Steiner: Because a lot of times people think, oh, I can fix you.
- 25:15Michelle Steiner: All you need to do is you need this education program, or I I'm telling you how to do this, and I have to explain that, and people can't see my disability.
- 25:24Michelle Steiner: So I think that that can be really difficult as well.
- 25:28Khalila McCoy: You talked about something still being difficult.
- 25:31Khalila McCoy: Do you mind sharing what's something that's still difficult for you today?
- 25:34Khalila McCoy: And then how do you cope?
- 25:37Khalila McCoy: How do you manage that?
- 25:39Michelle Steiner: Sometimes it can be really hard for me, like with budgeting.
- 25:42Michelle Steiner: That can be hard, like knowing how much money I'm spending.
- 25:45Michelle Steiner: If you give me a credit card or a debit card, that's too abstract.
- 25:48Michelle Steiner: But if you give me cash, I can kind of get a range of what I'm spending.
- 25:52Michelle Steiner: It's not perfect, but it it helps with that.
- 25:55Michelle Steiner: Sometimes it can not even necessarily be math, but process directions.
- 26:01Michelle Steiner: Okay.
- 26:01Michelle Steiner: What somebody wants me to do.
- 26:04Michelle Steiner: And I I think that that that can be really hard.
- 26:07Michelle Steiner: Sometimes I might have my hands full and I'm trying to open the door up.
- 26:10Michelle Steiner: I mean, that that can be difficult.
- 26:13Michelle Steiner: And that I think that can those things are hard.
- 26:17Michelle Steiner: And sometimes I wish that was, you know, easier.
- 26:20Michelle Steiner: Or uh just trying to like w manage with having one.
- 26:24Michelle Steiner: Or try um, and it's just we just have to kind of go through and we have a day like that, and we just have to kind of give ourselves that grace and figure out what does work.
- 26:34Khalila McCoy: Right.
- 26:35Khalila McCoy: I like that.
- 26:36Khalila McCoy: You're giving yourself that grace.
- 26:38Khalila McCoy: I think all of us have to remember that from time to time.
- 26:41Khalila McCoy: Like we all have something that we're struggling with.
- 26:43Khalila McCoy: Right.
- 26:44Khalila McCoy: To slow down, give yourself grace and kind of work through that.
- 26:48Michelle Steiner: Yes.
- 26:49Khalila McCoy: So tell us about some of the jobs that you have had that have been successful and the things that are have brought you joy.
- 26:58Michelle Steiner: I have been working as a paraeducator for about 14 years, and I find it so rewarding to work with students in the classroom, especially students who struggle uh with having a disability.
- 27:09Michelle Steiner: I know what that's like for many of them.
- 27:13Khalila McCoy: Yeah.
- 27:13Michelle Steiner: And I I think that that creates that empathy.
- 27:16Michelle Steiner: And all the kids know I can help you with anything except for math.
- 27:20Michelle Steiner: Or they'll soon find out.
- 27:23Khalila McCoy: Right.
- 27:24Michelle Steiner: So I think that that working with kids, especially the ones with having a disability, that has just brought me uh a lot of joy in my life.
- 27:32Khalila McCoy: What's the age range that you work with?
- 27:35Michelle Steiner: I work this year with seventh graders.
- 27:37Michelle Steiner: So yes.
- 27:39Khalila McCoy: Yeah.
- 27:40Khalila McCoy: What are some things that you say to encourage them, especially like you said, as somebody who's been where they are?
- 27:46Michelle Steiner: I will tell them, I oftentimes like hear me a recording of myself.
- 27:50Michelle Steiner: I hate my learning disability.
- 27:51Michelle Steiner: I wish I wasn't in this class, and I I feel really stupid.
- 27:55Michelle Steiner: And I get that chance to say, you're not dumbed, you're not stupid, you're you are smart and you're capable.
- 28:01Michelle Steiner: And I get to tell them I, you know, I know this can be difficult, but this is, I mean, this class is there for you, and I can show you how to, and I also show them how to advocate for themselves.
- 28:12Michelle Steiner: So if they have a question, I make them raise their hand, I will and ask the question.
- 28:17Michelle Steiner: I will go up with them if they gotta talk to the teacher and ask that question, but I really want them to be the ones speaking up for themselves because for so many of my students, they're going to, they'll all one day leave me, but for a lot of them, their disabilities are still going to be there.
- 28:33Michelle Steiner: So it's real important they get their skills now.
- 28:37Khalila McCoy: I like that.
- 28:38Khalila McCoy: What is something you would want to say to teachers for them to remember?
- 28:42Khalila McCoy: Because even when you were sharing earlier about like asking your teacher if you could use a calculator.
- 28:47Khalila McCoy: And I will be honest, I've said it before, like, hey, nope, no calculators today.
- 28:50Khalila McCoy: We're only using our brains today.
- 28:52Khalila McCoy: Never thinking that that could possibly hurt someone's feelings or be detrimental to somebody.
- 28:57Khalila McCoy: I'm thinking of as like, hey, you got this big, you know, big smart brain.
- 29:00Khalila McCoy: Let's use that today.
- 29:01Khalila McCoy: Let's not rely on this.
- 29:03Khalila McCoy: But like you said, that could be hurtful.
- 29:05Khalila McCoy: I'm sure the teacher who said that to you did not intend that.
- 29:09Khalila McCoy: So, what would you say to teachers to think about and remember?
- 29:14Michelle Steiner: I would say that the your students are really trying.
- 29:17Michelle Steiner: And even though it doesn't seem like that, maybe sometimes I really think, at least I know with myself, I was really trying, and not to give up on them and to think about different ways and think how it can work out.
- 29:28Khalila McCoy: Yeah.
- 29:29Michelle Steiner: And sometimes that is appropriate to use a calculator, other times that that that is not, and that's okay too.
- 29:36Michelle Steiner: I mean, some sometimes teachers do need to know what somebody knows and what what they don't know.
- 29:42Michelle Steiner: And I mean, there there is a there is that time and that place for that.
- 29:46Michelle Steiner: But there's other times maybe using a calculator could be something that can be a tool.
- 29:51Michelle Steiner: And I mean, even if I use one, there's still that chance I I will get it wrong because I don't understand the steps.
- 29:59Michelle Steiner: So, and I think it's reteaching where they need to to have that information and it's making that customized plan.
- 30:06Michelle Steiner: I just wish more people under teachers understood that.
- 30:10Michelle Steiner: I can remember whenever I was in my last year of middle school and we were getting ready to move up to the senior high, and I was in a learning support math class.
- 30:19Khalila McCoy: Okay.
- 30:20Michelle Steiner: And the teacher wanted everybody to be on grade level.
- 30:23Michelle Steiner: And I got and I was doing well until I got stuck on one area.
- 30:30Michelle Steiner: And rather than go back and try to reteach that area or see where I was stuck at, she just moved forward.
- 30:36Michelle Steiner: And she also said, Oh, there's no classes that are learning support at the senior high.
- 30:43Michelle Steiner: So you're just gonna have to take a basic math course.
- 30:46Michelle Steiner: And I just was worried all summer.
- 30:48Michelle Steiner: And I went there and it was no surprise that the teacher didn't know what to do with me, and it was a real struggle for me to be in the class.
- 30:56Michelle Steiner: And it turned out there was a learning support math.
- 31:00Michelle Steiner: And it's not to say that that teacher was always very understanding, but I knew that I had to, that's what I needed to do to get through all those years of math.
- 31:10Khalila McCoy: Mm-hmm.
- 31:11Khalila McCoy: At what point in your life did you find that you embraced your disability and you're like, this is who I am, I'm gonna do my best, and I'm going to succeed because that's who I am.
- 31:24Michelle Steiner: I think when I was 30, that's when I really embraced it because I was graduating from college and I thought, I used to think, oh, once I'm uh, you know, I'll have success if I can just get rid of this disability.
- 31:36Michelle Steiner: And when I graduated from university, I had a bachelor's degree, I had success, but I still had a disability, and I thought it's okay.
- 31:45Michelle Steiner: It's really all right if I still have that disability and I can move forward.
- 31:50Michelle Steiner: And it was that process of real just accepting that this is just a part of me and part of my life, and it's it's who I am.
- 31:58Khalila McCoy: Yeah.
- 31:59Khalila McCoy: I like that.
- 32:00Khalila McCoy: I think like we talked about before, there are things that all of us have to kind of overcome and think through.
- 32:07Khalila McCoy: And so it's inspiring to see somebody who has decided like, I'm not gonna let this, you know, count me out at all.
- 32:15Khalila McCoy: What is something, what's a goal of yours that you're working on currently?
- 32:22Michelle Steiner: One of the things I I'm in a disability program where we're doing disability policy.
- 32:27Michelle Steiner: So that's one of the things that I I'm working on with trying to um help to work to pass bills uh with with disabilities.
- 32:36Michelle Steiner: So that's one of my goals.
- 32:37Khalila McCoy: Excellent.
- 32:38Michelle Steiner: I'm also writing, I I have a book.
- 32:41Michelle Steiner: I I need to get out eventually too, about uh a memoir of my life and my and my story with with um having a disability.
- 32:50Khalila McCoy: Okay.
- 32:50Khalila McCoy: Why do you find it so important to share your story?
- 32:55Michelle Steiner: Because I feel like this can really help other people to be able to help somebody else out that can be maybe they feel discouraged.
- 33:03Michelle Steiner: Because I can remember whenever I was growing up, I didn't know anybody that uh had a learning disability that was female.
- 33:11Michelle Steiner: It was all for uh men, and they all had reading disabilities.
- 33:15Michelle Steiner: So I had no one that I could really relate to.
- 33:18Michelle Steiner: And I think I want to put this out there that there are people that do have disabilities uh that uh are not reading based and that uh just to encourage people to be able to go out and chase whatever dream you want to do.
- 33:34Michelle Steiner: And it may look different than my path, and that's okay too.
- 33:38Michelle Steiner: But I want people with disabilities to go out and to be able to find their path in life and have success.
- 33:46Khalila McCoy: Yeah.
- 33:46Khalila McCoy: So thinking about the listeners that we have, right?
- 33:51Khalila McCoy: We have a wide range of listeners, some with disabilities, some without, some are who are still just learning about, you know, somebody might never may never have heard of this disability before.
- 34:00Khalila McCoy: What would you say to that range of people that would encourage them to continue as they rise?
- 34:08Michelle Steiner: I would tell, I would just tell them for the people that have disabilities that success doesn't always come in the package that we expect.
- 34:15Michelle Steiner: Sometimes it comes in something even better.
- 34:17Michelle Steiner: And for people who maybe don't are aren't aware of uh math learning disabilities or learning disabilities in general, to please believe people when they say that they have one.
- 34:28Michelle Steiner: This isn't about being pretending.
- 34:31Michelle Steiner: It's not about it um being unmotivated, it's not about a society that's lazy, it's about people that have disabilities.
- 34:39Michelle Steiner: We just can't see what they are, but they they are real.
- 34:43Khalila McCoy: Mm-hmm.
- 34:44Khalila McCoy: Yeah, that's great.
- 34:45Khalila McCoy: Real quick, I know you talked about like the laws that you are trying to work about um change.
- 34:51Khalila McCoy: What are some of the things that you are hoping to bring about?
- 34:57Michelle Steiner: Sure.
- 34:57Michelle Steiner: One of the groups I signed up for, well, the group I signed up for was uh transition services for students that are getting ready to graduate from high school.
- 35:07Michelle Steiner: I'm really I'm not sure what bills are coming up uh, but what I want to do is I really want to improve transition services for students because we have students that are coming out of high school with disabilities and they're coming into a world that is not made for them, and there's not a lot of services for adults with disabilities.
- 35:31Michelle Steiner: And our students sometimes get lost whenever they leave school.
- 35:36Michelle Steiner: There's not a parent necessarily that's there to make sure that they're doing that.
- 35:42Michelle Steiner: There is not an IEP, it tr it transitions over to a 504 plan, or actually it goes over to like with ADA if they want to be able to use some of those services.
- 35:51Michelle Steiner: It's okay or an individualized service plan at that point.
- 35:55Michelle Steiner: So sometimes we might have kids that just really fall through the cracks, and people have hard to have a hard time with going to school and may uh getting a job and maintaining employment.
- 36:08Michelle Steiner: It's only 10% of people with disabilities are employed.
- 36:11Michelle Steiner: So I think that there's a lot of things that need to happen that can prepare somebody for success on the world outside of school.
- 36:19Khalila McCoy: Yeah.
- 36:20Khalila McCoy: So are you guys writing those laws and like doing all that research and then presenting it to who are you presenting it to?
- 36:29Michelle Steiner: We're working with uh the state of in Pennsylvania, we'll uh at the Capitol, and we're going to be in a group, and I'm not sure exactly what my role will be, and we'll meet later in the month to kind of talk about that.
- 36:43Khalila McCoy: Yeah.
- 36:44Michelle Steiner: Um some people are gonna tell personal stories, others are going to do other tasks, but we do get that chance to give that advocacy message out there or to speak to the representatives and for a few minutes, but that still gives that opportunity to be able to go out and speak about important issues.
- 37:03Michelle Steiner: And transitions is just one of them.
- 37:05Michelle Steiner: There's a lot of other issues that people are gonna be in groups talking about.
- 37:09Khalila McCoy: Yeah, I love that.
- 37:10Khalila McCoy: I love that you're taking your story and sharing it and trying to be a voice for other people.
- 37:16Khalila McCoy: Um and like you said, you've lived it, you understand it.
- 37:19Khalila McCoy: So I mean, if they don't listen to you, like who will they listen to?
- 37:23Khalila McCoy: And I'm sure there's a lot of people who are scared to step out and do that.
- 37:27Khalila McCoy: When you talked about, you know, only 10% of people with disabilities having jobs.
- 37:32Khalila McCoy: I did not realize that the numbers are so low.
- 37:36Michelle Steiner: Exactly.
- 37:37Michelle Steiner: Because it's hard to when they go into an employer.
- 37:40Michelle Steiner: Not every employer understands what somebody needs.
- 37:45Michelle Steiner: And sometimes people don't want to ask for accommodations because of the stigma.
- 37:49Michelle Steiner: And then sometimes I I even had trouble in the beginning with how to ask for them because that can be hard to know how to ask.
- 37:58Michelle Steiner: And I was not the greatest advocate for myself.
- 38:01Michelle Steiner: And there it's it's a real art to being able to know how to do that.
- 38:06Khalila McCoy: Mm-hmm.
- 38:06Khalila McCoy: If somebody listening wants to support, you know, either, you know, get involved in the political side of it or the law side, or even just supporting people in their community, what would you say?
- 38:21Khalila McCoy: Let's start with the easiest.
- 38:22Khalila McCoy: Maybe the easiest way someone could get involved in supporting the community with disabilities and then maybe a more committed role that they could take.
- 38:32Michelle Steiner: One of the easiest ways that people can do it with in terms of politics is if you know about a bill or you know about uh or a law that somebody's trying to pass with disabilities or something that's that that's going on that you want to see changed or you want to help somebody with, you can call one of your representatives that can do that.
- 38:53Michelle Steiner: That that's one of the greatest things to do.
- 38:56Michelle Steiner: And there's also formal programs of that that people can go through where you have that training and uh you have that leadership where you can learn about having a direct role and learning more about the disability um rights movement is is a big one, and just learning about just different programs, different kinds of disabilities too.
- 39:18Michelle Steiner: I mean, there's there is a lot of ways, but one thing somebody could definitely do is have that understanding.
- 39:25Michelle Steiner: And I think that goes through that talking and and being communicating those too.
- 39:30Khalila McCoy: Mm-hmm.
- 39:31Khalila McCoy: Yeah.
- 39:32Khalila McCoy: Is there anything else that you want to make sure that you share with us today?
- 39:38Michelle Steiner: I just would love to tell people that success doesn't often come in the package that we expect, but sometimes it comes in something even better.
- 39:46Khalila McCoy: Yes.
- 39:46Khalila McCoy: Well, Michelle, I really want to thank you for your time today and for sharing everything and for everything that you're doing, not just, you know, in your own world, but for everybody out there who needs that voice and who might not know how to be their own voice.
- 40:01Khalila McCoy: So thank you for your passion.
- 40:03Khalila McCoy: And I'm gonna be looking for your book coming out.
- 40:07Khalila McCoy: I'm excited for all you'll do in the future.
- 40:10Khalila McCoy: I titled this episode Beyond Her Capabilities, echoing something that someone told Michelle, but in the end, she truly did go beyond what others and even herself at times believed she was capable of.
- 40:27Khalila McCoy: Michelle reminded us that we have to chase the dreams placed within us.
- 40:32Khalila McCoy: There will be moments in everyone's life where a goal feels out of reach.
- 40:36Khalila McCoy: That's human.
- 40:37Khalila McCoy: It will happen.
- 40:39Khalila McCoy: I want to acknowledge that, and I hope you know that you're not the only one who feels that way.
- 40:44Khalila McCoy: But I also hope Michelle inspires you to not stay in that place of discouragement, to push, to stretch, and to fight for the dream and the goal that you carry.
- 40:55Khalila McCoy: And if that dream shifts or evolves along the way, that's okay.
- 40:59Khalila McCoy: Keep going.
- 41:00Khalila McCoy: Keep going and find your people.
- 41:03Khalila McCoy: Michelle's story began to shift when someone finally noticed her strengths, and then again when she found a community that embraced her, people who shared her passions, cared for her, and supported her even when her needs looked different from theirs.
- 41:17Khalila McCoy: We've said it often in the show, we need each other.
- 41:21Khalila McCoy: We need community, and patience and kindness go a long way.
- 41:26Khalila McCoy: I also found Michelle's work around disability and policy really compelling.
- 41:31Khalila McCoy: If you were here for episodes 25 and 26, our guests talked about having autism and other neurodivergencies and similarly shared that it felt like they are constantly navigating a world that was not designed with them in mind.
- 41:45Khalila McCoy: So, my question is within the realm of disabilities, how do we create a more equitable world?
- 41:53Khalila McCoy: Are we moving in the right direction?
- 41:56Khalila McCoy: What still needs to be done?
- 41:58Khalila McCoy: What can we, you and I, do about it?
- 42:01Khalila McCoy: What are we willing to do about it?
- 42:04Khalila McCoy: I think these are really good questions worth sitting with.
- 42:08Khalila McCoy: I want to thank Michelle for sharing her story with us.
- 42:13Khalila McCoy: If you've been with me for a while, you know people are sharing deeply personal things on the show.
- 42:19Khalila McCoy: And even though they volunteered to do it, it's not always easy.
- 42:22Khalila McCoy: I've had real candid conversations and tears that have been shed after the recording stops and we keep talking.
- 42:30Khalila McCoy: These are real people with real stories, and I hope as you listen, you never forget that.
- 42:36Khalila McCoy: I hope you use what you've learned here to be a light in your community.
- 42:40Khalila McCoy: And know that if you are looking for light, you belong here with us.
- 42:45Khalila McCoy: So thank you.
- 42:46Khalila McCoy: Thank you for being here.
- 42:47Khalila McCoy: And you guys, next week is the final week of our back to school series, and I don't want you to miss it, so make sure you mark your calendar.
- 42:55Khalila McCoy: And as you move through the rest of your day, I hope you take a moment to listen a little louder to yourself, to the people you love, and to the things that connect us in ways we sometimes forget to notice.
- 43:08Khalila McCoy: I'll meet you back here next time.
- 43:10Khalila McCoy: See you bye.