Advocates Come in Small Packages - My Life with Blau Syndrome with Keira Howell
ONCE UPON A GENE - EPISODE 083
Advocates Come in Small Packages - My Life With Blau Syndrome With Keira Howell
Keira Howell is a twelve year old living with Blau Syndrome joining me to share her story of living with a chronic disease.
EPISODE HIGHLIGHTS
Tell me about yourself.
I'm twelve years old and I have Blau Syndrome. I love to act, sing and do anything related to musical theater.
Why would you like to tell your story?
I've done presentations at school, but want to expand the people who know my story through the podcast because it's a rare disease and I want to spread awareness.
What is…
The skinny
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