154: Deaths in the Community | How it Affects Us + Our Relationship with the Parents w/ Rose Watson
As heart-breaking as it is, if you’ve been in the rare disease community for long enough, you probably know someone, maybe even someone close to you, who has lost a child. And because that potential reality looms large for so many of us, this loss can affect us as well.
In this episode, Rose Watson, whose daughter Lavender has Trisomy 18, joins me to discuss her experience of maintaining a relationship with a friend who lost a child and how that experience impacted her and her friend individually.
We also share thoughts from parents who have lost children on how they would like to be…
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