83 ~ Navigating Life with Neurofibromatosis Type 1, Spinal Injury, Scoliosis & Chronic Pain - Katie's Story
I sit down with Katie, who has been living with Neurofibromatosis Type 1 (NF1), a rare genetic condition known for its tumor-growing tendencies. Diagnosed at a young age, Katie’s journey with chronic illness began at just four years old. By the time she was 12, her spine had crushed her spinal cord, leading to a life-altering spinal cord injury. Alongside NF1, Katie also manages Scoliosis, chronic pain, and fatigue, challenges that have shaped her life in profound ways.
We dive into Katie’s medical journey, from the surgeries and treatments she’s undergone to manage mobility and pain, to the…
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