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Skyclarys Access Battle in Ireland | Cork News
Families of Irish patients with rare Friedreich’s Ataxia are demanding urgent action after the HSE rejected funding for the potentially life-changing drug Skyclarys, citing high cost and uncertain efficacy — despite EU approval and availability in other European countries. Sinn Féin leader Mary Lou McDonald has called on the Taoiseach to intervene, insisting on full transparency about the HSE’s decision and urging a meeting with affected families to explore every possible avenue for access before another year of delay. Listen in comfort:Get a discount on a Soli Pillow…
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