Latest / The KCNA2 & Rare Epilepsy’s Podcast
One Family's Journey After Receiving A New KCNA2 Diagnosis with Alysha Applebaum and Nancy Musarra
If you’ve just received a KCNA2 diagnosis or you’re still searching for answers, this video is for you.
KCNA2-related disorders are rare, complex, and often overwhelming at first. You may be feeling scared, confused, or unsure of what comes next. But one thing we want you to know right away: you are not alone.
In this video, Alysha Applebaum, parent and board member on the KCNA@share2 Epilepsy foundation shares her experience and perspective of navigating a KCNA2 diagnosis. You will hear what this journey can look like, what challenges families often face, and how support and understanding…
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