Latest / Sid & Friends In The Morning / Camille Fortunato & Anthony Filippazzo | The Anthony G Filippazzo Fund for Williams Syndrome Research (AGF) | 05-13-26

Transcript

Camille Fortunato & Anthony Filippazzo | The Anthony G Filippazzo Fund for Williams Syndrome Research (AGF) | 05-13-26 · Sid & Friends In The Morning

• 0:00
  Speaker 1: Whatever time restaurant you like.
• 0:01
  Speaker 2: I also like Harry's down by gold Street, my buddy
• 0:04
  Speaker 2: Danny's place. I think Michael's is the best at tie
• 0:06
  Speaker 2: restaurant in New York. Nostrand Avenue, Avenue R Michael and
• 0:10
  Speaker 2: Freddie the Legends and Danielle and I.
• 0:13
  Speaker 1: Daniell says hello, by the way, Hello, you're welcome. Hello, Hello, Hello, Anthony.
• 0:17
  Speaker 2: We saw Camille there a couple of weeks ago with
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  Speaker 2: Abby Saba's wife Rosberg. You do know me, don't you?
• 0:23
  Speaker 3: Yeah?
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  Speaker 4: I know you once?
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  Speaker 1: Yeah, I got.
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  Speaker 2: I put your videos up all the time. I find
• 0:28
  Speaker 2: so Michael's listening and Orange are and all our good
• 0:31
  Speaker 2: friends from Brooklyn. Because what have come to learn over
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  Speaker 2: the last year since Anthony was here? Last year, Camille
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  Speaker 2: and your daughter was here. No Rose today was Rose?
• 0:38
  Speaker 2: She had she had a final Okay, you are beloved.
• 0:41
  Speaker 2: Your husband's a great guy too. See he's a great guy.
• 0:44
  Speaker 2: But whether it's Mill basin, King's Highway or any part
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  Speaker 2: bay Ridge, you guys are really beloved in Brooklyn.
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  Speaker 1: What do you chalk that up to?
• 0:51
  Speaker 3: Oh?
• 0:51
  Speaker 1: Thank you?
• 0:52
  Speaker 3: Listen.
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  Speaker 5: You know, we're very lucky to have some great friends,
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  Speaker 5: great supporters. I always say, how we build our tribe,
• 0:59
  Speaker 5: has a lot to say about the people that we are.
• 1:00
  Speaker 5: So really just blessed to have so many great friends.
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  Speaker 2: Oh wow, yeah, do you feel like you loved Anthony?
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  Speaker 4: Of courseich, you said Rosenberg.
• 1:09
  Speaker 1: He's so cuty cool. I like the fact I have
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  Speaker 1: my kids.
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  Speaker 2: Oh, my kids when I want, even Gabriel, so I'll
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  Speaker 2: call them, he said Rosenberg. For folks that don't know
• 1:17
  Speaker 2: much about this, if they didn't hear you won this
• 1:18
  Speaker 2: show last year or event in Brooklyn, what exactly is
• 1:22
  Speaker 2: william sindral Sure?
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  Speaker 5: So it's a rare genetic disease caused by a micro
• 1:26
  Speaker 5: deletion along chromosome seven, and in a nutshell, it causes
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  Speaker 5: systemic cardiovascular disease, so sudden cardiac arrest plagues the community.
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  Speaker 5: There's currently no medication or treatment. We've dedicated the last
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  Speaker 5: fourteen years to awareness and advocacy to change that.
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  Speaker 1: How old was Anthony when he was diagnosed with that?
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  Speaker 5: So he was two years old when he was finally
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  Speaker 5: properly diagnosed. He was born very, very sick, but we
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  Speaker 5: didn't know what he had until his genetic testing.
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  Speaker 1: It too, so he's sixteen.
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  Speaker 5: Oh no, now he's fourteen.
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  Speaker 2: Okay, but he looks so cute. Look at first of all,
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  Speaker 2: who dressed you today? My dad?
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  Speaker 1: He's a handsome guy.
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  Speaker 4: Yeah, I know, no, but sometimes I call him Steve,
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  Speaker 4: but you can.
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  Speaker 3: But I can call him dad.
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  Speaker 2: You can do that right now. So I think that
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  Speaker 2: your sister is not taking a final. I think you
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  Speaker 2: made sure she stayed home today so you get more
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  Speaker 2: microphone time.
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  Speaker 3: That's I know.
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  Speaker 4: But Rosie is going to school today.
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  Speaker 1: Yeah. Where do you go to school now, Anthony?
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  Speaker 3: Uh?
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  Speaker 4: It was my second year?
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  Speaker 1: Second year?
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  Speaker 3: Yeah, aren't you weapon?
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  Speaker 1: Like he's like in Cape cod or something.
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  Speaker 3: Yeah?
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  Speaker 1: You like it there.
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  Speaker 4: I like it there, going to adventures like we never
• 2:41
  Speaker 4: seen before.
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  Speaker 1: Very cool. But you love Brooklyn though, right?
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  Speaker 4: I yeah, this is where I live, but not in
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  Speaker 4: Cape com Massachusetts.
• 2:49
  Speaker 1: Right, but you do? But you go to school in
• 2:51
  Speaker 1: Cape Common?
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  Speaker 4: No no, no, no, no, no no no. I go to a
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  Speaker 4: boarding school. A boarding school, right is that right?
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  Speaker 3: Yeah?
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  Speaker 4: But but I stay it. I do some sweepovers at
• 3:04
  Speaker 4: the dorum sometimes, but not all the time.
• 3:06
  Speaker 1: Not all the time. You love your bedroom in Brooklyn? Right?
• 3:09
  Speaker 4: Yeah?
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  Speaker 1: All ride look out cute.
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  Speaker 4: Joe and my roommate is Beck get ready.
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  Speaker 3: What's his name, Beck, get Ready?
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  Speaker 1: Is he listening right now?
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  Speaker 4: No? No, no, no, no, no, no. He's my roommate.
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  Speaker 1: He's your roommate. And where is he from, Anthony?
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  Speaker 3: He is from Washington, Georgia. Oh, George, Oh, Georgia.
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  Speaker 2: Okay, So his kid's great. So and you put him
• 3:31
  Speaker 2: on all the like. He's gonna be on Z one
• 3:32
  Speaker 2: hundred tonight with Martinez. You're doing a podcast I think
• 3:36
  Speaker 2: coming up. So you guys, you're making your run in
• 3:40
  Speaker 2: and around New York making people Camille aware of but
• 3:43
  Speaker 2: he's so likable, he's a lovely little boy. But making
• 3:45
  Speaker 2: people aware of williamson drome. It looks like a lot
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  Speaker 2: of big time people in this city, me the biggest,
• 3:50
  Speaker 2: are giving you this great opportunity.
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  Speaker 5: Right, fantastic, It's been amazing. We as you know, passed
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  Speaker 5: a resolution with Ami Williams and Sam Piizolo two years
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  Speaker 5: ago declaring May william Syndrome Awareness Month in the State
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  Speaker 5: of New York would love a federal resolution to get
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  Speaker 5: a National Williams Syndrome Day.
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  Speaker 1: So, well, who did you give that to him? Curious?
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  Speaker 5: Well, Sam Piizolo, Jamie Williams on.
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  Speaker 2: The state local I know they went to the baseball
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  Speaker 2: game with us last year. The Jamie's out of Brooklyn,
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  Speaker 2: Samy's out of Staten Island. But who are you working
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  Speaker 2: with on the federal No one.
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  Speaker 1: I love it now. Listen.
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  Speaker 2: I'm doing the same thing with my son Gable. He's
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  Speaker 2: got this proxy. He saw Gabe Machas a couple of
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  Speaker 2: weeks ago. So I'm working with Democrats and Republicans and
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  Speaker 2: Congress as well to do something on a federal level
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  Speaker 2: there too. But you're up to a great start already
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  Speaker 2: getting it done here locally. That is not a small beatmeal.
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  Speaker 2: That's a big deal.
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  Speaker 5: It was a beautiful day. We all went to Aubity.
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  Speaker 5: We were on the floor while they passed the resolution.
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  Speaker 5: It was incredible, and so we're using May to really
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  Speaker 5: advocate awareness, especially because this is the month. Had so
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  Speaker 5: many great things already. We did a book signing with
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  Speaker 5: the creator from How I Met Your Mother the other
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  Speaker 5: night I came back.
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  Speaker 3: It was so cool.
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  Speaker 5: He just came out with a fantastic book about raising
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  Speaker 5: a child with a physical and intellectual disability. The podcast,
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  Speaker 5: which is launching on Thursday. Were super excited for all
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  Speaker 5: these different things.
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  Speaker 4: Cash Washington oh Thursday for what and set? What is
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  Speaker 4: interset mean?
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  Speaker 2: That's an excellent question, Anthony, that's an excellent question. By
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  Speaker 2: the way, you have no intellectual issues. Trust me, no
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  Speaker 2: one knows what that means. But it sounds fancy, right, Yeah, I.
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  Speaker 4: Know it sounds fancy, said Rosenberg. Should sing a song
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  Speaker 4: or you.
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  Speaker 2: Can do whatever you like. You know, you did that
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  Speaker 2: last year and the people went nuts.
• 5:34
  Speaker 1: They loved it. They loved it. What song did he
• 5:37
  Speaker 1: sing last year, Camille?
• 5:38
  Speaker 4: Do you remember I Know My Way by Frank Sinach?
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  Speaker 2: Oh, that's you know, my bounch on cats Matitis. That's
• 5:45
  Speaker 2: his favorite song. And Joe Piscopot does that song as
• 5:48
  Speaker 2: well as Frank Sinatra did. Now you can do it again.
• 5:51
  Speaker 2: You can pick a different song with that was That's
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  Speaker 2: a band favorite, right there, Anthony.
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  Speaker 1: They love My.
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  Speaker 3: Way, of course.
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  Speaker 4: But this song that I didn't the jungle play is
• 6:00
  Speaker 4: is look for the bare necessities, the simple, bare necessities.
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  Speaker 4: Forget a boucher, worries and your stripes, I mean the
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  Speaker 4: bare necessity some mother's nature's recipes that brings up bare
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  Speaker 4: necessities of life.
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  Speaker 2: Oh, that is fantastic. I think I hear that song
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  Speaker 2: when I go to Disney World also, right then, I
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  Speaker 2: hear that song a bunch of times. It's such a
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  Speaker 2: cute song. Well, don anthy you got talent man, Yeah,
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  Speaker 2: I know. Oh you know that already. Okay, I like
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  Speaker 2: when you wind the sentence with I know sid Rosenberg.
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  Speaker 2: So if you could you repeat that again, please, Anthony?
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  Speaker 2: What I know sid Rosenberg?
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  Speaker 4: I know you?
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  Speaker 1: You know me?
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  Speaker 4: So?
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  Speaker 2: Is there a big gala coming up here too in
• 6:41
  Speaker 2: the very near future? There is is that it's.
• 6:43
  Speaker 5: Our Night of Love Celebration of life signature events held
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  Speaker 5: at the beautiful Elcarib.
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  Speaker 2: You know the when I was a child living on
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  Speaker 2: Quentin Road in Brooklyn that my mom and dad we
• 6:53
  Speaker 2: had a summer cabana at the Elkarib.
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  Speaker 5: Really, yes, I didn't know.
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  Speaker 3: Do they still do that?
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  Speaker 2: I don't they have a camp there. My son Gabriel
• 7:00
  Speaker 2: went to their day camp years and years ago when
• 7:03
  Speaker 2: it looked at my sister and no basin like six
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  Speaker 2: years ago. It's a great camp. Jack runs that thing.
• 7:07
  Speaker 2: So I'm mu sure they saw the cabat is. I
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  Speaker 2: know Silver goll Is popular for that. They still have
• 7:11
  Speaker 2: a really good day camp at Alchorib. Yes, it was
• 7:13
  Speaker 2: a big deal.
• 7:14
  Speaker 1: They make beautiful weddings here too, and they do.
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  Speaker 5: They do such an amazing event for us. They give
• 7:18
  Speaker 5: us top shelf everything. We've held it there for several years.
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  Speaker 5: It's an amazing event. I hope said you will be
• 7:24
  Speaker 5: there to join. It is November fourteenth, It's a Saturday night.
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  Speaker 1: Oh good.
• 7:28
  Speaker 5: The event site is live. Sponsorships are available. Anyone takes
• 7:32
  Speaker 5: a sponsorship by five point fifteen that their name will
• 7:34
  Speaker 5: also be on a printed invitations which are going to
• 7:36
  Speaker 5: print the end of the month. We'll have three amazing honorees.
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  Speaker 5: One doctor from Penn who's the main researcher that we support.
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  Speaker 5: We purchased over six hundred thousand dollars worth of cardiac
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  Speaker 5: medical equipment for his research last year into sudden death
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  Speaker 5: and William syndrome. We'll have the head of the Riverview
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  Speaker 5: School from Cape cod also being an honoree. And Laurel Rossi,
• 7:56
  Speaker 5: who's changing the force for individuals with neurodiversity in the workplace.
• 7:59
  Speaker 5: You say you mean SIDS, No, so what they have
• 8:03
  Speaker 5: is system and cardiovascular disease ly iastolic issues which cause
• 8:07
  Speaker 5: a sudden cardiacri.
• 8:08
  Speaker 4: Goddess, Yes sir, yes, sorry, this is gonna be a
• 8:12
  Speaker 4: great date. But a wonder who's going to be an
• 8:14
  Speaker 4: r on our radio show today?
• 8:16
  Speaker 5: I no, No, we'll cross that bridge later on.
• 8:18
  Speaker 1: Right now, we're enjoying Sid.
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  Speaker 2: Yeah, Antony, I think come to that event and you
• 8:23
  Speaker 2: and I will do a song together. So you figure
• 8:25
  Speaker 2: that out. Okay, you want to do with what with me?
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  Speaker 2: I can sing to them pretty good.
• 8:28
  Speaker 1: What do you think? Anne? No, you just singing? That's fine,
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  Speaker 1: it's your party. Are you going to sing at that event? Anthony?
• 8:34
  Speaker 1: November your big galloy, You're gonna sing that again?
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  Speaker 3: Okay?
• 8:39
  Speaker 1: And are we doing a baseball game this year like
• 8:40
  Speaker 1: we did last year?
• 8:41
  Speaker 5: So no, because we have a few other events planned.
• 8:44
  Speaker 5: We're collaborating with alc Fashion House in East Hampton this summer,
• 8:48
  Speaker 5: nicne On, Veronica Beard, Alice and Olivia rh from Bay Ridge.
• 8:51
  Speaker 5: So we have a few different things. Hopefully next summer
• 8:54
  Speaker 5: we'll be back with the cyclone.
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  Speaker 1: All right, sounds good?
• 8:56
  Speaker 2: What else is out there you want to tell the
• 8:58
  Speaker 2: folks about before let you two beautiful people run out
• 9:00
  Speaker 2: of you today?
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  Speaker 5: So you know, first, I really just want to say
• 9:03
  Speaker 5: you've been such a great friend to us, Sid, your
• 9:05
  Speaker 5: kindness really, when we met you a few years ago,
• 9:07
  Speaker 5: you said to me anything you need, and you have
• 9:09
  Speaker 5: truly helped true to that. Last year you had us on,
• 9:12
  Speaker 5: you blew up our Instagram. Yeah, come into the game
• 9:15
  Speaker 5: to throw out the pitch. And then I asked you
• 9:17
  Speaker 5: for today and you said absolutely. So I hope you know,
• 9:20
  Speaker 5: truly from the bottom of my heart, not only to
• 9:23
  Speaker 5: our family, but truly for individuals all around the world
• 9:25
  Speaker 5: living with William syndrome. We are working very, very hard
• 9:28
  Speaker 5: to make a difference. So the last breath I take
• 9:31
  Speaker 5: on this earth, I'm not going to stop trying. We
• 9:33
  Speaker 5: have a fear sigh for therapeutic and that's our goal.
• 9:36
  Speaker 5: So really, thank you for helping us.
• 9:37
  Speaker 3: Get Oh God, you're welcome, You're beautiful.
• 9:39
  Speaker 1: How many people around the world actually suffer from this, dear.
• 9:41
  Speaker 5: Know, only only about thirty thousands, a small number. It's
• 9:44
  Speaker 5: a small number, and so we don't get you know,
• 9:47
  Speaker 5: federal funding or really people who want to necessarily be involved,
• 9:51
  Speaker 5: because it really just affects such a small proportion of
• 9:55
  Speaker 5: the universe. But when it's your child, of course, Now.
• 9:58
  Speaker 2: I'm going to send a picture to he's in China today,
• 10:01
  Speaker 2: but to President Trump, and usually when I asked him
• 10:03
  Speaker 2: to do something, he very at least listens. I can't
• 10:06
  Speaker 2: tell you he'll do something. But hey, you don't have
• 10:08
  Speaker 2: to meet Anthony once, uh uh to love this kid.
• 10:10
  Speaker 2: So hey, Anthony, youre gonna have to go home soon,
• 10:12
  Speaker 2: So you want to say something on the way out
• 10:14
  Speaker 2: to this audience that is going to love you so much.
• 10:17
  Speaker 1: Any final messages.
• 10:18
  Speaker 3: Anthony, No, I think we're good.
• 10:20
  Speaker 1: You think you're good. Yeah. Did you enjoy yourself today? Yeah?
• 10:24
  Speaker 2: You look very handsome. You sounded great. Yeah, and I'm
• 10:28
  Speaker 2: very proud of you, Anthony, and I love you very much. Okay,
• 10:31
  Speaker 2: you're living.
• 10:31
  Speaker 1: That's it. Okay, see you. He's just working out. That's it.
• 10:34
  Speaker 1: That's it. Hike's all hikephones are up.
• 10:37
  Speaker 3: He's done.
• 10:37
  Speaker 1: I think he's done. That said, he's got to go.
• 10:40
  Speaker 1: Are you guys can go up? My night's lunch now?
• 10:41
  Speaker 4: Yeah?
• 10:42
  Speaker 3: Are we're going to go?
• 10:42
  Speaker 1: We're okay? Your micro and I love you too? What's
• 10:46
  Speaker 1: the Instagram? Quickly? I love you too?
• 10:47
  Speaker 5: Have research grant is our Instagram message us. We'd love
• 10:50
  Speaker 5: to hear from everyone and anyone.
• 10:51
  Speaker 2: Alright, sick ground and to take a picture before you
• 10:53
  Speaker 2: went out of here. That is Camille and Anthony William Syndrome.
• 10:58
  Speaker 2: Come to the Big Gallup in November and check out
• 11:02
  Speaker 2: their Instagram. They've got events going on all the time.
• 11:05
  Speaker 2: Lovely family and just a beautiful kid. Folks, help them out.
• 11:08
  Speaker 1: Okay, do me a favor.
• 11:10
  Speaker 3: Thanks for listening to Sit and Friends in the Morning.
• 11:13
  Speaker 2: You can hear Sit and Friends in the Morning weekday
• 11:16
  Speaker 2: mornings at six.
• 11:17
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• 11:20
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• 11:24
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• 11:25
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• 11:29
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• 11:34
  Speaker 2: X see you next time for a new episode, so
• 11:37
  Speaker 2: you never have to wonder what the heck is going
• 11:40
  Speaker 2: on here.