Amy Dockser Marcus, WE THE SCIENTISTS: How a Daring Team of Parents and Doctors Forged a New Path for Medicine

Totally Booked with Zibby · Mar 16, 2023 · 25m

Zibby interviews Pulitzer Prize-winning reporter Amy Dockser Marcus about We the Scientists: How a Daring Team of Parents and Doctors Forged a New Path for Medicine, a gripping and deeply compassionate account of a fatal genetic disease and the collaboration between families and researchers to one day vanquish it. Amy talks about her mother, who died of a rare form of cancer and inspired this incredible project. She also describes the 10-year period she spent with the community of families whose children suffer from the rare and fatal Niemann-Pick Disease Type C and the unique way they…