Latest / Go News To Go: More Good News / RAISING AWARENESS OF AN OFTEN UNDERDIAGNOSED HEART DISEASE DURING HEART MONTH IN FEBRUARY

Transcript

RAISING AWARENESS OF AN OFTEN UNDERDIAGNOSED HEART DISEASE DURING HEART MONTH IN FEBRUARY · Go News To Go: More Good News

• 0:04
  Okay, Hi, this is Paul Slapkis. We're going to talk about a
• 0:08
  serious health concern that I think people can be wiser and smarter about. And
• 0:14
  it's a lifestyle as well as medically maybe hereditary, I don't know. We're
• 0:22
  going to learn raising awareness of an often I undiagnosed heart disease during the heart
• 0:28
  month of February. And we have a patient actually and a doctor, so
• 0:34
  we're very lucky here. We'll start with the patient who's very brave. I
• 0:38
  believe you're a patient, Stephanie, You're very brave, and thank you very
• 0:45
  much for coming out and speaking with us. And doctor William Crowder as a
• 0:50
  board certified cardiologist and Jackson Hart and he knows how to treat HCM. What
• 0:59
  is HCM dot so eight CM is a condition where the heart muscle becomes thick.
• 1:08
  The thick heart muscle occurs at the area inside the left ventricle where blood
• 1:14
  is trying to get ejected to the body, and so that thick heart muscle
• 1:19
  can cause an obstruction to that blood flow. You know, traditionally we think
• 1:25
  of heart failure as being a weak heart muscle, but in this case,
• 1:30
  the muscle is strong and thick and actually is causing the problem. And so
• 1:34
  when that pressure builds up and you have fluid that can build up in your
• 1:41
  lungs, then you have those symptoms of shortness of breath, exertional intolerance,
• 1:48
  chest pain, and pressure, heart racing. All of these things can lead
• 1:53
  to even passing out spells or syncathy. All of those can be associated with
• 1:57
  this condition. And how does this occur or is this hereditary? As I
• 2:02
  mentioned, how does somebody you know have this unfortunate situation happen to them?
• 2:09
  Sure? So you know, the prevalence is about one in four hundred to
• 2:15
  five hundred individuals. The calls of it can be varied. Most of the
• 2:21
  time, we can find a genetic component to this, so there there is
• 2:25
  that hereditary component to the condition. The other thing that's tricky is that the
• 2:34
  condition can really develop any time after puberty, after your growing. Patients that
• 2:42
  are in have family members that have this particular disease process need to be screened
• 2:51
  throughout their life because it can sneak up on us. Uh huh, Stephanie,
• 2:55
  did this sneak up upon you? I sure did. Thanks, Paul.
• 3:01
  We're really happy to be here partnering with BMS to raise awareness about this
• 3:06
  disease. During Heart Month in my twenties, I was told I had a
• 3:09
  heart murmur, and then I was sent on my way. And I was
• 3:13
  an active person. I had three young boys, I was a marathon runner,
• 3:17
  and I started to have some of these symptoms in my thirties and forties,
• 3:23
  only getting worse. The heart palpitations, the chest pain, and a
• 3:27
  little shortness of breath. And I didn't understand where it was coming from,
• 3:30
  but I just I stopped running, and gradually the symptoms chased me through easier
• 3:38
  levels of activity to just I couldn't walk up a flight of stairs without needing
• 3:42
  to stop and catch my breath at the top. That was scary for an
• 3:46
  active person. It continued until I almost passed out one day, and then
• 3:52
  I finally sought care and I was diagnosed with obstructive HCM, and that led
• 3:59
  me to to doctor Crowder for treatment. Well, I got to ask you,
• 4:03
  Stephanie, I mean, you know you said the word finally. I
• 4:06
  mean I don't know when I when I stub my toe, I go to
• 4:10
  a doctor. I you know, I mean, you know you're a physically
• 4:15
  minded person. You waited, did you wait too long, if you don't
• 4:19
  mind me asking, I didn't wait too long. I did. I did
• 4:25
  mention these symptoms throughout the years, but I was such an active person I
• 4:30
  really didn't want to be told that something was wrong with me. I just
• 4:34
  kind of was under the impression that I wasn't training hard enough and maybe this
• 4:38
  was my fault, that these symptoms were happening to me. Okay, Well,
• 4:42
  that you know, that's a very once again, a very brave woman.
• 4:46
  Because there's a lot of people who don't I don't want to say don't
• 4:53
  take care of their health, but don't recognize their health scenarios, and lots
• 4:59
  of the viewers out there don't even take an annual checkup. So concerned,
• 5:05
  did you take annual checkups? Do you take? I did? I did,
• 5:11
  Yes, sir, I did. I took annual checkups. And again,
• 5:15
  like doctor Crowder alluded to, because my symptoms only at that time were
• 5:20
  when I was exerting myself and I seemed to be an otherwise healthy person,
• 5:27
  I these things were just kind of passed off or directed back to that you
• 5:35
  just have a heart murmur, you have a little bit of problem with your
• 5:38
  heart valve and it wasn't all. All the pieces of the puzzle weren't put
• 5:43
  together until I almost passed out, and that was in July of twenty twenty
• 5:47
  two. So I'm glad I found out. Yeah, I'm glad you found
• 5:50
  out too, Doctor Doughter. Let me ask you, I mean, is
• 5:57
  this annual check up somebody checks it over their cholesterol. What are some of
• 6:02
  the things that people check or what are some of the things that they should
• 6:05
  be checking like when they do get a check up. Yeah, so,
• 6:11
  Paul, I think your question is excellent, and you know, thinking about
• 6:15
  Stephanie's presentation to me, you know, as a cardiologist in particular, this
• 6:23
  idea that patients have been told they have a heart murmur. And so,
• 6:28
  yes, you're right, annual checkups involved lab work, but also involve a
• 6:32
  physical exam, and so physical exam, stephanoscope, listening to heart and lungs,
• 6:41
  the complete deal. You should be able to detect a murmur. And
• 6:44
  a murmur is a sound we hear a flow of blood through the heart,
• 6:48
  and so it can be a clue to an underlying heart condition and it can
• 6:54
  be a clue to obstructive eight cm and so Stephanie again classic case adult with
• 7:01
  symptomatic eight CM and come in to see how we're going to treat this.
• 7:06
  And traditionally treatments involved medicines, but also involved more so in the past,
• 7:15
  surgical interventions, invasive interventions. But since twenty twenty two, around the time
• 7:23
  when Stephanie was ultimately diagnosed, we have camzios or mavicanton, which is a
• 7:30
  therapy that can actually reduce the contractility and thickness of this heart muscle that we've
• 7:35
  been talking about, which can relieve the gradient or relieve that pressure back up
• 7:42
  and help relieve the symptoms in these patients. When we approach somebody with this,
• 7:46
  could I'm sorry, go ahead, I just said that's great. I
• 7:50
  mean I'm oh, oh yeah, so yeah, all right, So every
• 7:54
  passion from a great company coming out and sharing this, rister Meyers Squibs is
• 8:01
  you know, I'm into the pharma farmer really spends a lot of money and
• 8:05
  they figured these things out in many many cases, So please tell me more
• 8:09
  about it. Well, this, well, this is this is a great
• 8:11
  option for patients to relieve the symptoms, but as with any therapy, we
• 8:18
  have to look at side effects and with that decreased contractility of heart muscle.
• 8:22
  It can lead to heart failure, which can lead to death. We certainly
• 8:26
  talk about other pre existing conditions, We talk about pregnancy. We go through
• 8:33
  patient's medicine medicine list and make sure there are no drug interactions. Because everybody's
• 8:37
  different, Every patient is different in how they respond, and so in this
• 8:41
  particular treatment process, we do frequent echo cardigrams. Echoes are ultrasounds of heart
• 8:50
  muscle which not only help you know, see how the therapy is doing,
• 8:54
  but make sure we're not running into some of these other side effects. So
• 9:00
  it's definitely a relationship between you know, doctor and patient because everybody's different.
• 9:05
  Is a heart murmur. Something that my doctor has been checking with a stethoscope
• 9:11
  to start with is that the when they go, you know, it should
• 9:16
  be so when we when we put the stethoscope on the chest, especially on
• 9:20
  the front part of the chest, we're listening for heart sounds and normal heart
• 9:24
  examination. You're not supposed to have a murmur. Murmurs can be completely benign,
• 9:33
  but they also can represent conditions like what we're talking about, or can
• 9:37
  present with valve issues. All sorts of things can be you know, listened
• 9:43
  from the from the physical examination. So it's important to have a doctor that
• 9:48
  takes the stethoscope out of his or her code and listens to the chest.
• 9:56
  Very important. Stephanie, what's your thank you, what's your thought? And
• 10:01
  you know, how come you're here, how come you came out and are
• 10:03
  open to speak about things like this. I'm here because I want other people
• 10:09
  to know that this is a great treatment option. My symptoms are much reduced.
• 10:13
  I am active, I'm walking, I'm hiking, I'm back in the
• 10:16
  game. And I'm just really excited to ask people to speak to their doctor
• 10:24
  if they're having these issues, or go to Keimzias dot com for more information.
• 10:28
  And we just thank you so much Paul for taking your time with us
• 10:31
  today and letting us be here, and thank you both very much, very
• 10:35
  important information. Take care and stay well. Thank you, thank you,
• 10:41
  thank you, thank you. Paul the doctor to the doctor