Rare Leader - Patricia Weltin, CEO, Beyond the Diagnosis
ONCE UPON A GENE - EPISODE 056
Rare Leader - Patricia Weltin, CEO, Beyond the Diagnosis
Patricia Weltin shares her organization, Beyond the Diagnosis, an art exhibit with a focus on portraits of rare disease. Their goal is to put a face to all rare diseases through a traveling exhibit around the globe.
EPISODE HIGHLIGHTS
Can you tell us about your work and about Beyond the Diagnosis?
I started working with the Rhode Island Rare Disease Foundation and we had a rare disease day event once per year. Senator Whitehouse reached out to work on a piece of legislation called The Expert Act, to allow…
The skinny
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