Latest / Coffee In The Park with Jennifer and Cam / A Coffee With Trina and Neil Merkel!
Transcript
- 0:00Hi, my name is Trina Merkel, and I'm here with my husband, Neil, and you are listening to Coffee In The Park with Jennifer and Cam.
- 0:16Well, good morning, everybody, and welcome to another edition of Coffee In The Park with Jennifer and Cam, and I'm Cam, and you're?
- 0:22Well, I'm hoping I'm Jennifer.
- 0:23We've never said that before, actually.
- 0:25We've never, I've never said I'm Cam, and you're Jennifer.
- 0:28Why did you decide to say that today?
- 0:29Because I think people might get confused sometimes.
- 0:32As to who's who.
- 0:33When we're up in public, it happens all the time.
- 0:37You know, can I just say though, there is more public sightings.
- 0:40Have you noticed that?
- 0:40I sure have.
- 0:41I've had people say to me, are you the guy from Coffee In The Park?
- 0:44I know.
- 0:44And I'm wondering how they know that.
- 0:45Cause we don't do video.
- 0:47We just do audio.
- 0:48Is it time for security detail?
- 0:50I think yeah. Soon.
- 0:51Those guys who talk to their thumbs, they need to be around us all the time.
- 0:54But anyway, hey, we're coming to you live from the Wall Coffee Roasters in the heart of beautiful downtown Acheson.
- 1:01So if you hear some noises in the background, coffee machines whirring, people talking, kids, no.
- 1:07You know, there's less and less kids now that school has started.
- 1:10Well, I would hope they're not skipping school to come to the Wall Coffee Roasters.
- 1:13They might, you never know.
- 1:13Cause last week you pushed the new flavors or the new drinks.
- 1:17I did the fall drinks.
- 1:18Yeah. Yes.
- 1:18And I thought maybe the, yeah, anyway, you know, but so I'm just saying it's live here in the coffee shop.
- 1:24So if you hear noise, that's why we like doing that.
- 1:27People say go into a studio.
- 1:28That's so sanitized.
- 1:30Oh, santized. There's a word, eh?
- 1:32Hey, word of the week, sanitized.
- 1:35And so, we should start the word of the week.
- 1:38Well, I did remember levity.
- 1:40Levity was your word. We need a little more levity.
- 1:41A little more levity in life.
- 1:43Word of the year.
- 1:44Word of the year.
- 1:45We're not going a whole year. Well we could.
- 1:46Because sometimes I have good words.
- 1:48Anyway, nonetheless, we're here.
- 1:50And we also want to let you know that we are brought to you by Wing Snob Canada.
- 1:54Where the wings are fresh, never frozen, 16 different flavors, 4 rubs.
- 1:59And they have parm fries and they have cornbread.
- 2:02And you know what else they have?
- 2:03We never talk about.
- 2:04We should talk about this because there are people, believe it or not, who do not eat meat.
- 2:09Did you know that?
- 2:11No, I was serious. No I do.
- 2:12I heard about this the other day.
- 2:13So at Wing Snob, they have cauliflower things.
- 2:17No, because I eat meat.
- 2:18But I'm just saying.
- 2:19But for those who say, no, I can't go to Wing Snob because I don't eat chicken, they have vegetarian options. They have vegetarian options, yes they do.
- 2:26So hey, Wing Snob, 10 locations, 8 in Edmonton, 1 in Calgary.
- 2:30Again, I do this. You do the point.
- 2:31I always point. Again not on video.
- 2:33Like everybody can see me point. People can't see him pointing to Calgary.
- 2:34There's Calgary.
- 2:35I was in Calgary on the weekend.
- 2:37I didn't go to Wing Snob.
- 2:38No offense, Mike.
- 2:39And one in Grande Prairie.
- 2:40And so hey, if you don't know what to do for dinner tonight, and the kids are, you know what's back in?
- 2:44Well, you know this because hockey and all that, you know hockey moms and you're in a rush, don't know what to do.
- 2:49Don't go to Wing Snob, get wings, take them to the kids, eat them in the car, and then go play hockey.
- 2:53We actually go to Wing Snob quite frequently during hockey season. You do, don't you. Yes we do.
- 2:56So, hey, check it out, Wing Snob, and I know you won't be disappointed because as Jennifer said, they are fresh, never frozen.
- 3:03Hey, it's a beautiful sunny day here in Acheson.
- 3:06It's a crisp, I'm saying it, it's fall.
- 3:09I declared that last week that it was fall, even though not officially.
- 3:12You declared it, that makes it.
- 3:14So, you're right though, it is, it's fall.
- 3:16And the leaves, some of the leaves are starting to turn, not all.
- 3:20I was driving from Calgary to Edmonton on the weekend, and there were leaves turning.
- 3:24But I have a question.
- 3:25There's my, you know this, you grew up on a farm.
- 3:27I have a question.
- 3:28Is it true that when the cows are laying, are sitting on the ground, it's gonna rain?
- 3:33I don't know if I believe that.
- 3:35You're my farm expert.
- 3:37Cows are just gonna do what cows are gonna do.
- 3:39Yeah.
- 3:39Oh, cause there was a lot of cows laying on the ground. It didn't rain.
- 3:42I don't think cows have high intelligence.
- 3:44I don't think.
- 3:45Don't underestimate a cow.
- 3:47He knows.
- 3:48Have you ever done cow tipping?
- 3:49No.
- 3:50I did.
- 3:50It's not true.
- 3:51It doesn't work.
- 3:51I tried, we pushed and pushed that cow.
- 3:54He would not go over for love nor money, but I'm just saying cows are, don't underestimate them there.
- 3:58I think they're smarter than we give them credit for.
- 4:00Well, maybe.
- 4:01Yeah.
- 4:01Anyway, enough of that.
- 4:03So it is fall and we're excited about that.
- 4:05I think.
- 4:06I am not.
- 4:06But anyway, cause it means winter is coming.
- 4:10Which we won't talk about.
- 4:11Do you know that the heater went on and my furnace went on this morning?
- 4:15Well, I had frost last night.
- 4:17I know.
- 4:17Zero.
- 4:18My furnace went on.
- 4:19I didn't like it.
- 4:19Anyway, enough of that.
- 4:22It's time to move on.
- 4:23I'm droning on anyway.
- 4:26But cause I'm really excited about today's guest. So am I.
- 4:28I am super excited about today's guest for many, many reasons.
- 4:32And we'll talk about all of them.
- 4:34And so, hey, let's just get into it.
- 4:36Do what you do.
- 4:36Introduce them.
- 4:37Hey, so this, well, it started with knowing one of the guests because we've been involved with her for the Christmas campaign Toy Drive for many years.
- 4:47The Kinettes.
- 4:47Yes.
- 4:48That's right.
- 4:49Here in Acheson, we raise like a bucket load of toys and money and gift cards for the Kinettes.
- 4:56Correct.
- 4:56Yes, we do.
- 4:57Every Christmas time.
- 4:58Every and it's coming up.
- 5:00I know we've got to think about it though because we do it in November.
- 5:03I know.
- 5:03And you and I both said today that in November, we're going to talk about it every day on the podcast.
- 5:08And we got some brilliant ideas as to how people can support marginalized families underprivileged kids with toys.
- 5:15That's right.
- 5:16And money and gift cards.
- 5:18We'll get to that.
- 5:18We'll get to that in November.
- 5:19Yeah.
- 5:20So I am super excited to introduce today Trina and Neil Merkel.
- 5:26So welcome both of you.
- 5:27Welcome to the podcast.
- 5:28Thank you so much for having us.
- 5:29Good to have you.
- 5:30Man, this is great to have you here.
- 5:31We don't often have a couple.
- 5:33I love it when we have couples, don't you?
- 5:35I love it when we have couples.
- 5:36I know.
- 5:36There's something about that.
- 5:38We should have more couples, but today we have a great couple.
- 5:41So we're going to give it up.
- 5:42We're going to start it off where we always do.
- 5:45And I'm going to ask each of you the same question.
- 5:48So I know.
- 5:49You didn't tell me about this.
- 5:51It's not a trick question.
- 5:52No, I need to know where you both were born and grew up.
- 5:57And Neil, we'll start with you.
- 5:59I was born in Edmonton, but I grew up in Sherwood Park.
- 6:02Oh, I know.
- 6:05The rival city.
- 6:08The rival city of Sherwood Park.
- 6:11And I was born and raised in Spruce Grove.
- 6:14So yes, I know.
- 6:16In Spruce Grove?
- 6:17Well, I was born in a hospital in the city, but I lived my life in Spruce Grove all my life.
- 6:23That's pretty cool.
- 6:24Yeah.
- 6:24So it's a pretty easy thing.
- 6:25Because when we met, we actually met in Calgary.
- 6:28Right.
- 6:28It's where we first met.
- 6:29And I said, like as it continued on, I said, like, just so you know, I'm never leaving Spruce Grove.
- 6:34If that's the deal breaker Like we can just end it right now.
- 6:37So I put out there early.
- 6:38If he wasn't moving to Spruce.
- 6:39It wasn't going to happen.
- 6:40No, and Spruce is a happening place.
- 6:42It is.
- 6:42Sort of, kind of.
- 6:43It's growing.
- 6:44Yeah, no, it is growing.
- 6:45I remember when it turned to 10,000 people and became a city.
- 6:47All right.
- 6:48Neil, what high school did you go to?
- 6:50Archbishop Jordan, Catholic High School.
- 6:52Archbishop.
- 6:53Oh, Archbishop.
- 6:53He might be our first guest from Archbishop.
- 6:55I don't think we've ever had an Archbishop on.
- 6:57Okay.
- 6:58Trina?
- 6:59St.
- 6:59Marguerite.
- 7:00It is now a K to 4 school, but back then it was the high school.
- 7:04That's right.
- 7:04Yeah. Back in the good old days.
- 7:05I remember when we met in Calgary, that Trina thought I was witty, funny, handsome.
- 7:13Okay, okay, this is my...
- 7:14Tell us, how did you meet?
- 7:15Tell us the story of how you met.
- 7:16I was actually at a wedding, my best friend's wedding and her best friend's wedding.
- 7:20They both were getting married and I was best man.
- 7:26So, I told a couple of funny stories and she thought I was pretty funny, like I said.
- 7:33Actually, it's funny, we did meet formally.
- 7:36We kind of started talking to each other on the dance floor.
- 7:39So you asked her to dance?
- 7:41No.
- 7:41No?
- 7:42You cut in?
- 7:43You cut in on somebody?
- 7:45No, she found out I couldn't dance at all.
- 7:47And that is still true today.
- 7:51It's okay, neither can I.
- 7:52So, okay.
- 7:53So you met at the wedding.
- 7:54Was it love at first sight?
- 7:57Was it a couple of drinks in at first sight?
- 7:59Couple of drinks in? Well it's a wedding! I know.
- 8:02Well, you know, it's a long day when you're part of a wedding. Yeah, no you're right.
- 8:05Yeah, it's a long day.
- 8:06We had a few bevies.
- 8:07Yeah.
- 8:08Yeah. We just.
- 8:09But it was in Calgary.
- 8:10It was in Calgary and we just got to know each other from there and it was just a...
- 8:15So he came back home to Sherwood Park.
- 8:17He went to Sherwood Park.
- 8:18I went to Spruce Grove.
- 8:19Who called who first?
- 8:20Oh, good question.
- 8:22So this is so funny.
- 8:23Actually, I called him, Cam.
- 8:25Oh.
- 8:27Trina, good for you.
- 8:28It was probably a couple of weeks after the wedding.
- 8:30Yeah.
- 8:31And then I didn't hear from him for a couple of weeks.
- 8:33He wasn't calling back, so I thought, he's done.
- 8:35Guys.
- 8:36Next.
- 8:36And then all of a sudden, out of the blue, he called.
- 8:39Oh, okay.
- 8:39And then, yeah.
- 8:40So just to add to it.
- 8:43He gonna have a reason why.
- 8:44Because the guy always has to add something.
- 8:46I tried phoning her, but I always got her answering machine.
- 8:50Oh, that's a complete lie right there.
- 8:52Did you leave a message or no? She's like not true.
- 8:54No, I was too shy.
- 8:55Yeah.
- 8:55See, I'm like you.
- 8:55I wouldn't leave a message.
- 8:57No, I wouldn't do that.
- 8:58So you did the right thing.
- 8:59No, actually, it was love at first sight, but it was more in the sense that Trina is a wonderful person.
- 9:05She's very outgoing, talkative, and I'm kind of the opposite.
- 9:09I'm quieter.
- 9:10Yeah.
- 9:11Takes a lot to pull him out sometimes.
- 9:13Yeah, yeah.
- 9:13No, yeah.
- 9:14Just a little encouragement.
- 9:15Definitely attracted to her personality.
- 9:17The yin and yang, you know, it all has to work, right?
- 9:20So you started dating?
- 9:21Yeah.
- 9:22Long distance dating, Sherwood Park, Spruce Grove.
- 9:23Sherwood Park, Spruce Grove For our listeners who don't know, because we have listeners all over the place, Sherwood Park is, well, what is it now?
- 9:31It is a city.
- 9:32No, it's not.
- 9:33It's a hamlet.
- 9:34It's a hamlet.
- 9:34No, it's not a hamlet.
- 9:36It's the largest hamlet.
- 9:37Really?
- 9:38There's trivia for the day, Cam.
- 9:40That, no, I would never, okay, but regardless.
- 9:43So it's like, by the Henday, well, they didn't have the Henday in those days.
- 9:48How long would it take you to get from Sherwood Park to Spruce Grove?
- 9:51About probably 45 minutes.
- 9:53Okay, so yeah, so yeah.
- 9:55So you drove, yeah.
- 9:57Okay, so yeah, so just the point is to our listeners who are geographically not understanding.
- 10:02It's really not that far.
- 10:03Edmonton's in between.
- 10:05There's Sherwood Park, Edmonton, Spruce Grove.
- 10:07Correct.
- 10:08Yes, that's right.
- 10:08Yeah, you got it right.
- 10:10And you would always come to Spruce.
- 10:11Pretty much. Yep.
- 10:12Good for you.
- 10:13That's a good guy thing.
- 10:14No, that's a good guy thing.
- 10:15He did the driving.
- 10:16Yeah.
- 10:16No, that's, that's, that's a good.
- 10:18See, it's chivalry.
- 10:19I might, I shouldn't say, oh, I was going to say my daughter had a boyfriend in another city and he always made her drive and they broke up.
- 10:28So anyway, that's a good thing because that's not.
- 10:30Well, we're still together.
- 10:31So I guess, I guess it's worked.
- 10:33Because he did that because he was the man of the relationship.
- 10:35There you go.
- 10:36Okay, good.
- 10:38We got that covered.
- 10:38Very good man.
- 10:39Yeah, very good man.
- 10:40Okay.
- 10:40Yeah, I know.
- 10:41So after high school, Neil, what did you want to do with your life?
- 10:46Like what was your aspiration?
- 10:48To go to university because my best friends went.
- 10:51I like that.
- 10:52I'm just going cause my friends went too.
- 10:53Not because mom and dad told me to, but my best friends.
- 10:55It's a good influence, right?
- 10:56So I'm going.
- 10:57I like that.
- 10:57Peer pressure.
- 10:58You heard about the university party life, right?
- 11:00Yeah.
- 11:02I had to check it out.
- 11:03Okay.
- 11:03I don't know if you're as quiet as you're making yourself out to be here.
- 11:06But anyway, what did you study?
- 11:08I took forestry at U of A.
- 11:09Did you really?
- 11:10Yeah.
- 11:10And how long did that last for, honey?
- 11:13I completed the degree.
- 11:15And then how long did you work in the industry?
- 11:17I worked in the field for about two years.
- 11:18Yeah. Okay, that's pretty good.
- 11:19I found out that I didn't want to live in a small town.
- 11:21That's fair.
- 11:23It's pretty isolated.
- 11:24But actually, in all honesty, the market or the industry took a downturn.
- 11:31So I ended up going back to school.
- 11:33I went to NAIT and took Mechanical Engineering.
- 11:35And I ended up working with close friends of mine for my entire career, basically.
- 11:41Wow.
- 11:42Okay.
- 11:43Forestry to Engineering.
- 11:44I know.
- 11:45That's pretty cool.
- 11:45Yeah.
- 11:46And I made him stay in Sherwood Park.
- 11:48So he was close.
- 11:49Trina, you graduated.
- 11:50What did you do?
- 11:52I graduated and I just worked for a few years.
- 11:55Just wanted to make some money and get on my own.
- 11:58I was pretty independent and then I realized, okay, I need to go into school.
- 12:03So I actually took travel to be honest.
- 12:05Did you?
- 12:05I did.
- 12:06At Grant MacEwan.
- 12:06You're a travel agent.
- 12:07Well, I was.
- 12:09I make fun of- Trina, I didn't know this about you.
- 12:11I know.
- 12:12In all these decades, Jen.
- 12:13I'm booking my flights with you from now on.
- 12:14Because you know why?
- 12:16That's why I laugh at Neil being in the industry for such a short period of time.
- 12:19Well, so was I.
- 12:20Yeah, that's right.
- 12:21You know. You've been given him a hard time.
- 12:23Tell him where you worked.
- 12:24So, well, for what?
- 12:26He makes fun of me because I worked for a summer in High Level doing travel. No you didn't! Did you really?
- 12:30Because they were looking for somebody for the summer time to give this lady like, time off because she had worked for like 10 years straight basically.
- 12:37And then he wanted a second year student.
- 12:39I was only a first year.
- 12:39I thought, well, why not?
- 12:42So I went out there and I gained so much experience.
- 12:44It was a small northern town or whatever.
- 12:46Yeah, High Level is way up there.
- 12:47Yeah.
- 12:48But then it was hard on the industry.
- 12:49Same thing, industry changed.
- 12:50They started capping commissions.
- 12:52And I did a lot of corporate travel, so you made lots of commission.
- 12:55And my kids are small, it's hard.
- 12:58And it's evenings and weekends.
- 12:59And so I changed my path.
- 13:01And you came back to the Grove?
- 13:03Well, I was only four months.
- 13:05I was only four months in High Level.
- 13:08Listen, I was born in Grande Prairie.
- 13:10You can't stay very long in that area.
- 13:12There ain't a lot to do up there.
- 13:13But anyway.
- 13:13No offense.
- 13:14We don't want mail.
- 13:15No, I'm proud of where I was born.
- 13:17I moved when I was two, but that's how that went.
- 13:19But anyway, yeah.
- 13:20Okay.
- 13:20So you moved back.
- 13:21So I moved back.
- 13:22Yeah.
- 13:23And then went to the wedding, met Neil.
- 13:25Yeah, pretty much.
- 13:26Yeah.
- 13:27And how long did you date for till Neil popped the question?
- 13:30Three years, I think.
- 13:31Three years.
- 13:32Yeah.
- 13:33Okay.
- 13:33Three years before he popped the question.
- 13:35Okay.
- 13:36Yeah.
- 13:36And then you got married.
- 13:37Then we got married.
- 13:38How long have you been married?
- 13:40Twenty-two years coming up. Twenty-two years.
- 13:43Yeah.
- 13:43I was gonna say twenty-five.
- 13:47I think it's just twenty-two.
- 13:48That's always the best question.
- 13:50How long have you been married? Let me think.
- 13:51I don't know.
- 13:51Let me think.
- 13:52I had to calculate the kids' ages.
- 13:54I love the way he looked at her and said, I thought it was twenty-five.
- 13:58And she thinks it's twenty-two.
- 13:59Hey, Cam, if it's twenty-five, that's a big anniversary.
- 14:01There may be a big trip plan now, right?
- 14:03You need to plan the trip.
- 14:04That's right.
- 14:06Oh, Neil, now you're in trouble.
- 14:08Big event coming up here pretty quick.
- 14:10Well, that should be cool.
- 14:12So you were engineering.
- 14:15Yeah.
- 14:15And you were- So I was still in a little bit in the travel, then I worked at ICON Office Solutions, just ran their data center there for a bit.
- 14:24And then when Joshua was born, he was born with autism.
- 14:29So just took- Yeah. It became.
- 14:32Full time.
- 14:32Yeah.
- 14:33A full time job as a mom.
- 14:34And then I just waitress in the evenings actually, because I still needed that adult interaction.
- 14:39So I just, yeah.
- 14:40Wow.
- 14:41And then- Where did you waitress?
- 14:42At Peter's Pizza and Steak.
- 14:43Oh, Peter's Pizza.
- 14:44You know Peter's Pizza?
- 14:45Oh, that's just- Everybody knows Peter's Pizza.
- 14:48Is it still there today?
- 14:49No.
- 14:49No, it's gone?
- 14:50Oh, no, no.
- 14:51It was a Grove legend.
- 14:53It was.
- 14:53Yeah.
- 14:54Yeah.
- 14:54The best pizza ever.
- 14:56Many years there, just waitressing.
- 14:57And I loved it, because I loved to chat with people and see friends coming in, just the regulars.
- 15:02So yeah.
- 15:03And then- I know.
- 15:05All right.
- 15:05So Neil, you said you worked- after school with friends.
- 15:11What's that dynamic like when you're working with friends?
- 15:14Because someone over here also works with his best friend.
- 15:18Yeah, my best friend.
- 15:18I work for him.
- 15:19Yeah.
- 15:20Yeah.
- 15:20It's definitely interesting.
- 15:23If you're listening, Wes.
- 15:24Listen carefully.
- 15:25Okay.
- 15:25Yeah.
- 15:26No, I love them to death.
- 15:28They're like brothers to me.
- 15:32But you definitely get to know the inside of the family.
- 15:37Like you get to see the family squabbles and the fights, and it's pretty crazy.
- 15:45You can relate, hey Cam.
- 15:46I'm not saying nothing.
- 15:48I just think Neil and I should go for coffee after.
- 15:52But you do learn that you keep friendship separate from business.
- 15:56Yeah.
- 15:56Friendship stays outside of the business, out in the street, and we always had that understanding.
- 16:01But we were like a brotherhood, we had a trust.
- 16:05Yeah.
- 16:05And that was part of what formed the group, is we were so close growing up that we just bought friends in.
- 16:11And you might think, well, that's not the right way to do it, but it ended up turning out to be very successful.
- 16:16Yeah, I agree.
- 16:17Yeah.
- 16:17Because you know the person, right?
- 16:20Yeah.
- 16:20And you know you can trust them, you know you can count on them, they're going to go the mile for you.
- 16:24And the same way vice versa for my friends that own the business.
- 16:29I knew that they would always be there for me and help me out.
- 16:32If they treat me more than just as a business partner, they treat me as family.
- 16:35Right.
- 16:36Yeah.
- 16:36I concur.
- 16:37You can concur to that 100%.
- 16:39100%.
- 16:40Yeah.
- 16:40Cool.
- 16:41And how long you worked for them?
- 16:43It's 22 years.
- 16:45Wow.
- 16:46Yeah.
- 16:47Cool.
- 16:47Yeah.
- 16:48Basically right up until I got my diagnosis for Parkinson's.
- 16:51Right.
- 16:52All right.
- 16:52So let's switch to that.
- 16:54Let's talk about that a little bit.
- 16:55And yeah.
- 16:56So tell us about that.
- 16:58Tell us about that.
- 16:59Sort of where that, how that all started and the journey of that.
- 17:03So I started having symptoms.
- 17:05I noticed a tremor in my hand, in my right hand, in October of 2021.
- 17:12And we kind of went through going to the family doctor and asked them, you know, what he gave his diagnosis and basically said it was essential tremors.
- 17:20There's nothing to worry about.
- 17:21Don't worry.
- 17:22Nothing serious.
- 17:23He gave me some different meds for it and it didn't do anything.
- 17:26So we kept going back and going back.
- 17:28And about a year later, finally, it was maybe eight months or a year.
- 17:33There's Trina said, okay, there's something more to this.
- 17:37I went to the doctors and I just said, I'm not leaving until we get something further.
- 17:40I said, because it's not getting better.
- 17:43She was a nice way she said it.
- 17:44She actually never told him.
- 17:46I just said, it's not getting better.
- 17:48It's been eight months. Good for you though.
- 17:49And this tremor is constant now.
- 17:51It's not brought on by stress that you said.
- 17:53It's brought on by and it was just like, and because he was wasn't traveling for work as much, I noticed obviously more because I didn't notice it the year before as much because he traveled so much for work and he did a good job of hiding a lot of things, right?
- 18:06Like you don't want it to be seen at first.
- 18:08So Neil, that's a good point.
- 18:09So how, how were you feeling?
- 18:11Is it, you knew, did you know or sense something was wrong?
- 18:16I honestly, when I got the diagnosis, I was actually blown away.
- 18:20I didn't, you don't think it, you think it happens to someone else always, right?
- 18:24It doesn't happen to you.
- 18:26And the first thing I thought was what's, like anyone's going to think is how's this going to impact the rest of my life?
- 18:31Yeah.
- 18:32Am I, how long am I going to live?
- 18:34How fast are the symptoms going to, how fast is the onset going to happen?
- 18:38Right.
- 18:39And it was actually Trina that she, she gave the meaning to, a new meaning to caregiver.
- 18:45She was my rock and my, she was the person that carried me for the first little while and basically told me, look, there's, you need to get into this.
- 18:54She found an exercise class online.
- 18:57It's called the Buchanan Centre, where I've met, I basically got into the Parkinson's community through that exercise class.
- 19:04Yeah.
- 19:05And she's like, you got to move on.
- 19:06You got, there's more to life.
- 19:09How old were you when you were diagnosed?
- 19:12I would have been 40, 48, 49 now. Turning 48.
- 19:16So you would have been, that would have been considered young onset.
- 19:19Yes, under 50s, young onset.
- 19:22I told him when we got to, I'll never forget, we're leaving the K clinic and we're in the car and he was in disbelief.
- 19:28And I was like, oh, finally, we have an answer.
- 19:29I kind of thought it was.
- 19:31Just like when our son was diagnosed with autism, I'm like, oh, that's perfect.
- 19:33And the doctor was like, that's perfect?
- 19:35And I said, well, I know what it is, and I can work with it. Now you know.
- 19:37You know, yeah. You can work with it, deal with it.
- 19:37And so I said, you know what?
- 19:39I said, there's worse diagnosis in this world.
- 19:42You could be dying tomorrow.
- 19:43You're not.
- 19:44You have 24 hours to wallow in this.
- 19:46And I said, and in 24 hours, you're going to be starting out your new life.
- 19:51Wow.
- 19:51You're going to just, you have to have that mindset and go forward.
- 19:54And how, Neil, how did you feel?
- 19:56Where was your mind at when you heard the diagnosis?
- 19:59It's, yeah, it's like, I thought honestly, the first thing that popped in my head is I want to, am I going to have grandchildren?
- 20:05Am I going to be able to play with them?
- 20:07Am I going to be able to take them to the park?
- 20:09Yeah.
- 20:09And it turns out I can, because I have one.
- 20:11So.
- 20:11Yeah.
- 20:14And she takes Papa to the park every day.
- 20:17It was actually, it took me a while.
- 20:19Like I did a lot, spent a lot of time reading online.
- 20:23Right.
- 20:23And that's, that's, like you said, that's, that can be a rabbit hole.
- 20:26Totally.
- 20:27Yeah.
- 20:27There's so many conflicting websites and you know, some people, some people, some, some websites said, you live five years.
- 20:34Well, I knew that wasn't right.
- 20:36Right.
- 20:36You're still here.
- 20:37Yeah.
- 20:37Yeah.
- 20:38So then you, some, some websites will say you can live 20 years and you don't really know what to believe and what not to believe.
- 20:44Right.
- 20:45But I actually got into the movement disorders clinic at the down at the K clinic at the U of A.
- 20:49Oh, okay.
- 20:50And that's a specialized department for people with Parkinson's, for people with MS, for people basically who have chronic movement disorders.
- 20:59Right.
- 20:59Like this name says.
- 21:00And I met a physical therapist there.
- 21:04She's since retired, but she really hit home with me.
- 21:07She was a wonderful person, like an absolute godsend.
- 21:11Yeah.
- 21:12She looked at me, I'm going to never forget the first session I had with her.
- 21:15She looked at me and said, Neil, there's something missing.
- 21:18I can see it.
- 21:19There's something missing in your, in the way you're carrying yourself.
- 21:21Yeah.
- 21:22And she just basically went on and laid out a whole spiel for me.
- 21:25And she said, don't, I know I get it.
- 21:29You're kind of have a technical background, so you want to see the statistics, you want to see the numbers, but don't go based on that.
- 21:37Right.
- 21:38All you can do is live your life the best of your ability right now.
- 21:42Like don't spend your good years where you have good mobility, you have good functionality.
- 21:46Don't spend those years looking for answers and wallowing, like Trina said, wallowing in your, self-pity and just basically live your life.
- 21:56Go live today, go live each day.
- 21:58How old were your kids when you were diagnosed?
- 22:02So they were 16 and 25.
- 22:06So can I ask you a question on that?
- 22:08So how do you tell your kids?
- 22:12Obviously, you have to tell them.
- 22:14Oh yeah.
- 22:15You want to tell them.
- 22:15You want them to be a part of the journey.
- 22:18We were up front.
- 22:18And how did they respond to that?
- 22:20I think it was the same kind of thing.
- 22:22I think at first, obviously, they were kind of sad because they were worried about the same thing, like what does that mean for dad's life and his well-being?
- 22:29And then what does that mean for us?
- 22:31Are we not going to be able to do things anymore?
- 22:33But I think we just, same thing I said, it's just part of our next step in life and it's just part of what we live with.
- 22:40I said like, our son, Joshua, I probably has the most understanding because he has autism and he's functioning in society.
- 22:47Like he never talked till he was five, but you would never know he has autism.
- 22:50I'm like, you just, I think as long as you're positive about things and just go into life, you just keep moving forward.
- 22:56The biggest thing I remember, I'll never forget he asked me, he's like, dad, can we still golf together?
- 23:00Can we still ski together?
- 23:02He just wanted me to be part of his life still, right?
- 23:04Yeah.
- 23:05And I said, of course, as long as I can still move, I'm going to do whatever I can.
- 23:09So actually, I want to take a step back a little bit, and we talk about Parkinson's, but maybe just what is Parkinson's?
- 23:18Yeah, that's a good question.
- 23:19For people that don't quite understand what it is.
- 23:21It's a neurodegenerative disease.
- 23:24Basically, it deprives your body of dopamine.
- 23:27Your dopamine producing area of the brain, it slowly dies, and it can be a very long, drawn-out disease where you could live 20 years, 25 years with it.
- 23:38Right.
- 23:39But basically what it does is it takes away your motor skills.
- 23:42Oh, okay.
- 23:43Like your...
- 23:45It'll take away your mobility, it'll take away...
- 23:47Yeah.
- 23:48It can cause many different things in different people.
- 23:50Some people get stiffness from it, like rigidity.
- 23:53Some people get...
- 23:54It's called bradykinesia.
- 23:55Some people get just pure tremors.
- 24:01Some people get early dementia from it.
- 24:04It's a boutique...
- 24:05They call it a boutique disease.
- 24:06Right.
- 24:07It affects everyone differently.
- 24:08Yeah.
- 24:09I've read that there are 120,000 people in Canada who have Parkinson's.
- 24:14They think 10 million worldwide.
- 24:17So it's not like it's rare.
- 24:19No.
- 24:20It's out there.
- 24:20Yeah.
- 24:21And it's happening more and more.
- 24:22Probably the most famous, I guess, right now would be Michael J.
- 24:25Fox.
- 24:25Absolutely.
- 24:27Who's, you know...
- 24:27And he's lived a long life with it, which is great.
- 24:30Matter of fact, he was on the Emmys last night.
- 24:32I saw the clip of it.
- 24:33And yeah, he's 65, I think.
- 24:3765 years.
- 24:37I think he was in his early 30s or when he was diagnosed.
- 24:40So he's been living with us for a long, long time.
- 24:42So I think it's great.
- 24:44I think it's just...
- 24:45Unfortunately, like, I mean, we don't know what the outcome in the future is.
- 24:50But I think it's just...
- 24:52I always kind of said to him, I said, probably the best thing that happened in our life was him to get Parkinson's because we were just...
- 24:57A family that was always on the go, go, go, go, go all the time.
- 25:00So it made us stop. Wow, that's incredible.
- 25:02And think about, like, okay, we have to take a step back now, and what's important?
- 25:06Our health is important.
- 25:07Being with our family is important.
- 25:09Trina, that's incredible.
- 25:11What an amazing attitude.
- 25:12That's unbelievable.
- 25:13That's awesome.
- 25:14Well, it's just...
- 25:15It is just...
- 25:17I think it's just...
- 25:18I think we all get wake up calls at certain times in our life, and I think that was ours.
- 25:22And I mean, for Neil, the timing wise with work was good.
- 25:29He wasn't traveling as much with the kids, and the kids saw more.
- 25:32We have a granddaughter, she's just three.
- 25:34So, just spending those extra time with her, and just really taking a step back and...
- 25:39It changes perspective, doesn't it?
- 25:41Absolutely, it does.
- 25:42Yeah, it just kind of hits like a brick wall at first, and you're just like, okay, like we have this, and what's the reason why?
- 25:50That just blows my mind, because that's...
- 25:52What a fabulous attitude.
- 25:53Like really, like that's incredible.
- 25:56You never gave up, you never wallowed in it, you never, you just said, we're going to move forward and we're going to make this work and happen.
- 26:02And that's awesome.
- 26:03I mean, there is like, it's a roller coaster.
- 26:05Yeah, I'm sure.
- 26:06There definitely are some down times and there's...
- 26:08Do you want to talk a little bit, like what are the downtime?
- 26:11And the reason I asked some of these questions is because I know we're going to have listeners who are in the same situation. Who may be in the same boat.
- 26:17The reason I asked even about the kids, because how do we tell our kids or how do we deal with it with our kids?
- 26:23And yeah, so what were some of the, what were, or are, not were, are some of the down.
- 26:28The roller coasters, yeah.
- 26:30I think probably just, like I said, trying to figure out where to go next.
- 26:35Where do you go now?
- 26:36Like, what do I do with the rest of my life?
- 26:38Do I, I prioritize health, I prioritize family.
- 26:42Work's still important though, like it gives you purpose, right?
- 26:45So, where do I go?
- 26:48I kind of got stuck in that rut for a long time, and I think I still am a little bit.
- 26:52Yeah.
- 26:53It's like, what do I do with Parkinson's?
- 26:56I think when you live your life in like the same way for so long, it was almost 25 years, the same thing day in and day out.
- 27:05And so it was just, it all kind of happened, well, during COVID.
- 27:09So, everything kind of changed then, right?
- 27:11So, like I said, he was traveling lots, all of a sudden we're, everybody's at home, everybody was, I worked in the schools, and so we're teaching from home.
- 27:18And you're just like, it just changes everything.
- 27:20And then it was just, like he said, I think finding a new purpose is the hardest thing.
- 27:25Right.
- 27:26And it's just like, you have to just dip your feet into different pools of things just to try out and see if this is my, is this what I'm supposed to do now? Is this what i'm supposed to do now?
- 27:34I guess there's no book, is there?
- 27:36There's no book that tells you, and now, and now, and now.
- 27:40There's no cure, there's medication, there's medication that basically calms the side effects.
- 27:46I used to have a really bad tremor, but I'm on what's called levodopa, carbidopa, it's a medication that basically took that and calmed it down.
- 27:53There's no known cure, but they do know with 100% accuracy that exercise is very important.
- 28:01And I want to say that to all listeners.
- 28:03If anybody does, is listening and has Parkinson's, there's great hope in exercise.
- 28:10And it's what took me to the next level.
- 28:13It kind of got me moving forward, is joining that Buchanan Centre and working out twice a week, doing workouts at home, walking.
- 28:22You do boxing at the Avenue Boxing Club.
- 28:23They have one for Parkinson's specific.
- 28:26Does Tai Chi.
- 28:27Yeah, I do Tai Chi at the Parkland Tai Chi.
- 28:30Yeah.
- 28:31I think it's just important to find something that, it's just like if you don't use it, you're going to lose it.
- 28:35So if you're not moving and people say, well, and this is why I was just my whole like, you can wallow for 24 hours, but it's just like the whole, because if you get in that rut, and it's so easy once you stop, to never get going again.
- 28:47But I think if you just find your like, even if you're just going for a daily walk, and if it's only 10 or 15 minutes, and do 10 or 15 minutes, and do that three times a day, or do that after, you know.
- 28:58It takes a dark day and makes it positive.
- 29:01Yeah.
- 29:01Like really, like we said, it's easier said than done to be positive every day.
- 29:07Right.
- 29:07But when you hop on a bike and pump out 30 minutes of exercise, it definitely helps.
- 29:13It's therapeutic.
- 29:14What brings on a dark day?
- 29:16What?
- 29:16Well, probably one of the biggest things, I've had a lifelong is anxiety, and it's gotten worse with Parkinson's.
- 29:23Yeah.
- 29:23That's a typical trait of Parkinson's is to have higher anxiety.
- 29:28And it's just the worry.
- 29:30You worry about everything, right?
- 29:32Like I said, how long am I going to live?
- 29:33And you kind of go down the rabbit holes in the dark.
- 29:37There's no cure.
- 29:38Is there ever going to be a cure?
- 29:39Well, you can't worry about that stuff, right?
- 29:41Yeah.
- 29:41And I always said to him, like I said, to me, it's like the first thing, like when you wake up in the morning and you're laying in bed, you have that choice to figure out how you're going to live that day.
- 29:52So if you're already waking up with just some doubts or some, then just take that minute or two or three and just do some like positive thinking.
- 30:00Trina, do you recognize it in Neil right away when he's in those dark moments?
- 30:03Oh absolutely.
- 30:04You can see it.
- 30:04Yeah, it becomes really quiet all of a sudden.
- 30:09And I know he doesn't want me to worry about what he's worrying about.
- 30:11So he'll just be like, no, I'm good, I'm fine.
- 30:13I'm like, no, what is on your mind?
- 30:15What is holding you back?
- 30:16What is thinking?
- 30:17And I force it sometimes.
- 30:19Just because I know if you're in your own space sometimes, you need somebody to pull you out sometimes, right?
- 30:25So I think it's just like I might harp on him a little bit.
- 30:27It's like Neil said, you can go down that hole and the further down, yeah, the further you go down, the harder it is to get out of that hole. And it's easy to get stuck there right.
- 30:34So yeah.
- 30:35Not every morning can be Coffee In The Park.
- 30:37No, that's right.
- 30:39Trust me, not every morning is Coffee In The Park.
- 30:42That's guaranteed, Neil.
- 30:43That is guaranteed.
- 30:45Wow.
- 30:46This is incredible.
- 30:47And you know what?
- 30:47You talked about how you worked with your best friends.
- 30:53Now, how was it telling them that you have Parkinson's?
- 30:56Did they have any idea or was it a complete shock to them too?
- 31:00Because I think maybe working for your friends might be different having Parkinson's or having something you have to deal with.
- 31:06Let's say, an regular employer, where you have no connection. Who's just an employer.
- 31:10Yeah.
- 31:11No, they were absolute beauties.
- 31:12Yeah.
- 31:13They told me basically, the one brother told me, pack up your stuff and leave tomorrow if you want.
- 31:19We got this.
- 31:19But not in a bad way.
- 31:22Not, you're fired.
- 31:23You're out.
- 31:23No, no, no.
- 31:24Go take care of your health.
- 31:25Yeah.
- 31:25Don't worry about this.
- 31:26Go take care of your health.
- 31:27Even through it, they would always check in with me as well.
- 31:31They would see him at work and whatnot, and they would follow up with me like, okay, when's the next appointment?
- 31:37I remember when the doctor finally went for MRI of the brain, but that was just to rule out tumors or anything else that might be causing stuff.
- 31:45Yeah.
- 31:46It was during COVID, so I had to sit in the parking lot, but they were so supportive.
- 31:49They phoned during that appointment, okay, you're sitting probably outside, how are you feeling?
- 31:55They're just amazing people, right?
- 31:56It was just supportive all the way.
- 32:00It's a support system that you need.
- 32:02You do. Both of you needed.
- 32:02It was almost a blessing in disguise.
- 32:04I couldn't imagine working for someone else.
- 32:06It would have been hard working for, don't get me wrong, it's hard working with your best friend.
- 32:11But the other brother told me, he's like, I want you to go get checked out at the Mayo Clinic.
- 32:21Don't just take a local doctor's advice for it.
- 32:23This is what you should do.
- 32:25They were there the whole time, in stride with me saying, do this, do that.
- 32:30And it was good because sometimes at work, he might show a different anxiety.
- 32:34So I know that he found out that one brother was just like, he's worried that it may not be Parkinson's, it may be ALS because we had a couple ALS diagnoses that we knew.
- 32:44So he's like, here's the phone number, I told him to call the Mayo Clinic, and if you want to go get a second opinion, let's go.
- 32:52There's not, and so we did and it was great.
- 32:55And then it settled that whole, like okay, this is what I have for sure.
- 32:59You'll never get that support. Thats the bonus of working for your friends.
- 33:03Yeah, you would never get that, I don't think anywhere else.
- 33:06Well, I shouldn't say you wouldn't get that anywhere else, but it's very hard to find a compassion like that.
- 33:09Yeah, I know, yeah, because there's a personal investment there more than just a career investment.
- 33:15I was actually, it's hard because I was kind of afraid to tell them, right?
- 33:19You felt as if you're letting them down.
- 33:22If I leave, I let them down, right?
- 33:24They were the exact opposite.
- 33:26They said, like, what do you mean, letting us down?
- 33:28You worked nonstop for 22 years.
- 33:31You never went on holidays with your wife or family sometimes.
- 33:34Like, you know, this is your time.
- 33:36Yeah.
- 33:36Don't worry about us.
- 33:37You had our back for all this time.
- 33:38We've got your back now.
- 33:39So are you still working now or you're just retired?
- 33:43I'm basically retired.
- 33:45About five of us that left the company have a small investment company.
- 33:49Okay.
- 33:49Yeah.
- 33:50Just playing around.
- 33:51Yeah.
- 33:52Just to keep them busy, try to find some purpose. No absolutely.
- 33:55It is.
- 33:56How does Parkinson, because people I've known and even seeing like Michael J.
- 34:02Fox and all that, how does it affect the mind?
- 34:06Does it affect your thought process?
- 34:09Yes, it does.
- 34:12It's hard to explain it.
- 34:16Like I said, it heightens anxiety, but it causes confusion a little bit.
- 34:23Like you don't have as clear a thought process.
- 34:26And I remember one of the nurses or doctors at the movement disorders clinic said you'll have a harder time multitasking.
- 34:34And that's definitely, I noticed it.
- 34:36Like I used to be able to do a work, you'd be talking to someone and you'd be reading a computer screen, and you lose that ability.
- 34:45It takes your way.
- 34:47You'd be more focused on the task at hand.
- 34:50Definitely, yes.
- 34:51And then another friend of ours that has Parkinson's, he applies that at best too.
- 34:54He's just like, I really have to think out every movement that I do.
- 34:58Like it's just like a plan thing.
- 34:59Like he goes like, you and I, you would just get up and go grab another coffee or whatever.
- 35:05I'm sitting here thinking, okay, I got to move my legs over to the side.
- 35:08I got to stand up.
- 35:08I got to walk about 10 steps.
- 35:10This is Andy?
- 35:11Yeah.
- 35:11So then I just said it was just, it was amazing how he told us that very early on, probably within the first, actually, it was Frank's.
- 35:19I told Neil before he had Parkinson's diagnosis.
- 35:21I said, let's call him over because we're friends.
- 35:24He's like, why would you want to have him over?
- 35:25I don't have Parkinson's.
- 35:26And then the day later he goes, so do you want to have him over?
- 35:31I guess we have the same thing.
- 35:33But it was really neat to explain that to me as a caregiver, as a wife, he's going to have to think about every step sometimes.
- 35:40So it's not like he's ignoring you.
- 35:42He's just in a thought process of how he's going to process the next thing he's going to do kind of thing.
- 35:47This actually leads me in to the perfect question that I want to ask you, Trina.
- 35:51Yes.
- 35:51Because you are now in the role of caregiver, of wife, of mother, of volunteer extraordinaire.
- 36:01Because you are... Kinettes.
- 36:04What do you do for yourself?
- 36:06Yeah.
- 36:07That keeps you physically, emotionally, and mentally okay. How do you take care of yourself?
- 36:13Grounded?
- 36:13Yeah.
- 36:14No.
- 36:15So, I think you do have to just take time for yourself.
- 36:21I do take time like once a week.
- 36:24Whether I go for, I mean, it sounds frivolous or whatever, but I will go for a massage one time or I'll go for a facial.
- 36:31Go meet a, specifically go meet a friend and just talk.
- 36:35This group that we've been kind of with at the Parkinsons, at the K Clinic, we had a program called Thrive.
- 36:43And I was like, we're the youngest couple by quite a number of years and whatnot.
- 36:47But I get the ladies together because they range up to I think the oldest ones are 88.
- 36:52I think the wives are.
- 36:53And so we get together once a month.
- 36:56And we just go for coffee to talk about what we're each dealing with, and how to support each other.
- 37:03And then I just try to, like in the mornings, I just try to go for a, hit the treadmill or go to some way to just have my own mind set for the day and whatnot.
- 37:11But sometimes you do the Canmore getaway too.
- 37:14I do.
- 37:14I do.
- 37:15I do like to go to the mountains just to- Who doesn't?
- 37:19And I will say to Neil sometimes, and sometimes I know the kids look at me like, like mom's like going by herself for a night to the mountains.
- 37:26And I do.
- 37:27Sometimes I just need that mind.
- 37:28I just need that reset or I'm actually really doing nothing.
- 37:31Sure.
- 37:32And yeah, because sometimes you do take it.
- 37:35It's a lot to take on sometimes because you're thinking, you know.
- 37:38And good for you for realizing that and taking that time because how easy is it to get caught up where you don't?
- 37:44I probably wouldn't have done that until like, so it was about three and a half years ago, I guess, May of 23.
- 37:50I had a heart attack.
- 37:51And so that put me into like, okay, I have to take care of myself as well.
- 37:56And part of it is just, there's a lot, I mean, it was after his diagnosis, there's a lot going on in our, like everywhere, family, work, or whatever.
- 38:04So I think that was my wake up call to make, okay, you have to also take care of yourself.
- 38:08So I did, I re-prioritized and I do take time for just myself.
- 38:13And I don't apologize for it now.
- 38:15Or I think I would have felt guilty in the past for doing that.
- 38:18I was thinking, okay, I can be doing this instead with this hour, or I could be doing this, but...
- 38:22Self care is huge.
- 38:24Yeah, so...
- 38:25A lot of times too, it's boundaries, right?
- 38:27Yeah.
- 38:27Knowing what you're responsible for and what people are pushing on you.
- 38:31I mean, like, whoa, no.
- 38:34Yeah.
- 38:34Neil, that's a...
- 38:35So obviously, you both had to set boundaries.
- 38:40Yep.
- 38:40Yes, definitely.
- 38:41Hard to do?
- 38:42Very hard to do.
- 38:43Yeah.
- 38:44Because I just, I don't know, I just like to be able to help wherever, but at the same time, I also...
- 38:50Yeah.
- 38:51Yeah, we need to have those boundaries.
- 38:53Yeah.
- 38:53And I've learned it's okay to say no sometimes.
- 38:55Hardest thing, to just say no sometimes.
- 38:56It is, it is, it is the word.
- 38:59No is very foreign to me at first, but...
- 39:01Especially when you're a servant, you have a servant heart, right?
- 39:03Yeah.
- 39:04You're that servant.
- 39:05Yeah.
- 39:05Yeah.
- 39:05You're always that helper in there when someone needs you.
- 39:08People, some people unfortunately do take advantage of that.
- 39:10Right.
- 39:11So what is the current prognosis?
- 39:14What is...
- 39:16Oh, hopefully we're married for another 25 years.
- 39:1950 years or 44 years?
- 39:21Well, we need to do math right now, Cam.
- 39:24Depending on who's calling it here.
- 39:28No, we've actually just taken some time because he's feeling really good right now.
- 39:32So we did some traveling back in March.
- 39:35We took almost a month.
- 39:36And we went to Asia for a month.
- 39:38And we plan to do some more long trips like that, like this is the time.
- 39:43Because he says like in 10 years, I don't know if I'll be as mobile.
- 39:45Because we do have times where he gets gait or gets freezing in the legs or whatever.
- 39:51And traveling on planes is not exactly as comfortable as it used to be.
- 39:55Asia isn't close, it's a long trip.
- 39:58So we've just been doing some traveling and plan to keep doing that, I guess.
- 40:04And when you're here at home, are you talking to people about Parkinson's?
- 40:10Yeah, well, we try to...
- 40:13Well, Neil's very involved in his, in the group.
- 40:15It's funny because in the community...
- 40:16There's actually, there's a step and stride.
- 40:18Unfortunately, I won't make it this weekend.
- 40:20Step and stride in Hawrelak Park.
- 40:22Rundle Park.
- 40:22Rundle Park is our place this weekend.
- 40:25I'd be at that.
- 40:26I'd be at that normally.
- 40:27I attend all the events and I've been on the news a few times.
- 40:32Just spread the word as much as you can.
- 40:35And share the story.
- 40:36I think a lot of times people are afraid when they have a diagnosis.
- 40:41And I think it's hard.
- 40:43And Neil was like he said at the very beginning, like he was more the quiet one.
- 40:47So when they first asked him to do Global, I knew that brought on great anxiety.
- 40:51And I said, this is a good thing.
- 40:53And they were so good.
- 40:54Like in Lana at the Parkinson Society, she's so good when she's on with him.
- 40:59And I think once you did the first time, it was easier to do the next next times because it's sharing that story and hopefully connecting with somebody.
- 41:07And hopefully making them go, okay, this is not a life sentence. I still have lots of life.
- 41:12You're not the only one out there, right?
- 41:13Yes.
- 41:14I can't help but think there's people at home who are newly diagnosed or don't know exactly what's going on.
- 41:21Yeah.
- 41:22Go get that, go see your GP, go get a referral.
- 41:24Yeah, get it checked.
- 41:25Get it checked out no matter what it is.
- 41:27But most importantly, there's other people going through the same problems.
- 41:31There's always someone who's in the same boat and finding those people is huge, right?
- 41:35Yeah.
- 41:35And he does do like with the society too, you do, there's some zoom calls with early onset, like some of the younger, there's even people like in the 30s being diagnosed.
- 41:43So Neil's hopped on some of those calls and it's just to see somebody else live it and be okay with it.
- 41:49And just what he did might inspire somebody else.
- 41:53Just reading last night, 10 to 20 percent of Parkinson cases are early onset.
- 42:00So it's a lower number of, and you're right.
- 42:02I mean, you're young, you're healthy, you're doing everything.
- 42:05This isn't, it's supposed to happen to older people, not younger people.
- 42:09And now it's happened to you and you're younger and you, yeah, so working through all that, you're right.
- 42:15There are people who are listening that are like, well, I'm not going to get a check because I'm only 50.
- 42:19I'm only 52.
- 42:21It's probably maybe just stress or something, right?
- 42:24People sometimes make their own diagnosis.
- 42:25For sure.
- 42:26Absolutely, we all do.
- 42:27And so, you know, it'll pass.
- 42:29It'll pass.
- 42:29It'll pass.
- 42:31But I think the earlier you find out what it is, Oh, it's huge.
- 42:34It's a big thing, right?
- 42:35The treatment.
- 42:36Exactly.
- 42:37It takes some time.
- 42:38I mean, medication is not the...
- 42:41It's a hard combination to figure out.
- 42:43It's hard to figure out.
- 42:44Like, it's great.
- 42:44Now, he doesn't show up.
- 42:46You're like, Oh, I didn't even know he has Parkinson's.
- 42:48I don't see the tremor.
- 42:49It's like because the medication is so good and we have the right dosage at the right times throughout the day to prevent that, right?
- 42:56But it's just...
- 42:58I spent a lot of time being envious of people.
- 43:01And I think you still kind of look at people who are healthy and be like, why can't I be 100% healthy like that?
- 43:07But you just can't look at it that way.
- 43:10You have to do what you can with what you've been given.
- 43:13And just like I said, it kind of stresses living life, right?
- 43:17And I just think that's a natural response with someone who's, you know, whatever it is they have, you think, why me?
- 43:25Why me?
- 43:26Absolutely.
- 43:27It's your first, I think, reaction, initial response to just that.
- 43:30Of course.
- 43:30And you can't live there forever.
- 43:32No.
- 43:32No.
- 43:32But it comes up.
- 43:33Yeah.
- 43:35Well, we're human.
- 43:35Yeah.
- 43:37There's a million other people you could have chosen.
- 43:39Why me?
- 43:39You guys are absolutely incredible.
- 43:41Well, this is just, I mean, yeah.
- 43:44And I have to, you know, when you talked about having a servant heart and doing all that she does, this lady right here is a dynamite.
- 43:54She really is.
- 43:55People need to know this.
- 43:57Absolutely.
- 43:58She gives so much to the community.
- 44:01People don't realize what she does.
- 44:03And so shout out to her.
- 44:05And in fact, she won the City of Spruce Grove Award of Excellence this year.
- 44:10Awesome.
- 44:11Which is so well-deserved.
- 44:13Yeah.
- 44:13Well, thank you.
- 44:14It just, it was very hard, like when I, when I got the call that I was, had this, received this award, I was receiving this award because I just, to me, it's just, I think a just main part of it is because I grew up in this community.
- 44:27In Spruce Grove that I just think like everybody should give back what they can.
- 44:31Yeah.
- 44:31And when they can, because really it's the back, I want my kids to experience kind of Spruce Grove how I experienced it as a kid.
- 44:37Everybody knew everybody, everybody helped everybody out. We've lost that in society.
- 44:40And I think we, we, we have, and I think it's just so important to just like, and it's funny because when you meet, it's amazing how many, when you're at these events, like because it's when they dropped off something at my house the other day, I know you from somewhere, I don't know where, but I'm going to figure out where, whatever.
- 44:55And it was because their a friend had borrowed my tables for something.
- 44:57Right.
- 44:58And anyways, it was just, I just, I think it's just part of being part of a community.
- 45:05Yeah.
- 45:06I think and not everybody can give time, sometimes, not everybody can give, but if everybody can give something sometime, somewhere.
- 45:14I think Neil said it best.
- 45:15You have a servant heart.
- 45:17100 percent.
- 45:17Servant heart.
- 45:18And that's huge.
- 45:19That's, I wish we had a million of you.
- 45:22We don't.
- 45:23Well, we have you and that's awesome.
- 45:25That's incredible.
- 45:25I don't think she understands the difference she makes in people's lives.
- 45:28Absolutely! I agree! And again, I'm going to come back to it.
- 45:31Tell it.
- 45:31Okay.
- 45:32Just tell us about the Kinettes.
- 45:34Two minutes.
- 45:35Kinettes, Christmas, toy.
- 45:37Just tell us about it.
- 45:38Yeah.
- 45:38Okay.
- 45:39So it's our 53rd year.
- 45:4053.
- 45:4153 years coming up here of Spruce Grove Kinettes, providing Christmas for the less fortunate in Spruce Grove and East Parkland County.
- 45:48So we cover from Boundary Road, all the way through Spruce Grove, all the way through Acheson up to Winterburn Road, and all the way to Devon to the River.
- 45:55Yeah, yeah.
- 45:56So we provide families with grocery gift cards.
- 45:58So last year, it was just over $96,000 in grocery gift cards.
- 46:03So we have like really a three-month span here that we'll be collecting for that.
- 46:07And then last year, it was 825 kids, 17 and under that received a gift under the tree.
- 46:13Folks, let me tell you, you want to see something impressive.
- 46:16Go to where they assemble all the toys.
- 46:19You walk in and you see all this gym, a gymnasium full, full.
- 46:24I don't mean half.
- 46:25I mean full of stuff for the kids.
- 46:29And you got to be brain dead and dead to not just stand there and be moved by this.
- 46:34This is incredible. It's pretty amazing actaully.
- 46:35Like I'm going to say it just like that because that's the truth.
- 46:39It's overwhelming.
- 46:40It's unbelievable.
- 46:40You do, what you do is, it's amazing.
- 46:43Well it's great.
- 46:44It fills my heart.
- 46:46It fills some little guy's heart, some little girl's heart.
- 46:48We have so many volunteers that come back year after year that make it work, make it happen.
- 46:53Even just the families.
- 46:54We're going to talk about this lots.
- 46:56Because I want lots of toys.
- 46:58Cam, it's unreal to see the people just watching from birds' eye view, the people in that church working, and just running presents out to the people in the cars.
- 47:08Sometimes some of the people you see in the cars are like, they're crying.
- 47:12Yeah, we still have, back in the good old days, the pre-COVID days when they used to come in and receive the hampers.
- 47:19We would, some people just need to feel that, to know that somebody cares for them.
- 47:23Because I really have met lots of families and lots of people that are really, they're just so downtrodden.
- 47:30I'll just be like, do you need a hug?
- 47:31They're like, yes, and they're just grabbing you.
- 47:33They just need to feel loved.
- 47:35Like really, they just need to feel that somebody's there with them.
- 47:37Human connection.
- 47:38It is.
- 47:39We have a drive-through format now.
- 47:41But I still have- We're all going to start crying.
- 47:42I was going to say, we got the.
- 47:45Cam, there's a tear in your eye.
- 47:46But we have people that will be like, can, is Trina inside?
- 47:50Can we- and then I'll go outside and they just give me still the biggest hug.
- 47:53Like it's just- it's what makes it- all those hours worth it.
- 47:57Absolutely.
- 47:58So you do that.
- 47:59Yes.
- 48:00I swear that's more than a full-time job, Trina, because it is what you do.
- 48:04You are also- this is also where we have a connection.
- 48:08You are the billet coordinator for the Spruce Grove Saints Junior Hockey Club.
- 48:13I am, and Jen used to be a billet.
- 48:16Thirteen years.
- 48:17Yes, she's probably the long- I think she has the record for the amount of years.
- 48:20So you want to hockey play?
- 48:21You live in Spruce Grove, you want a hockey player?
- 48:23To live in your basement.
- 48:25Call Trina at 1-800-MyBasementIsFree.
- 48:29Trina, I always said I should write a book.
- 48:33Yeah, it's great.
- 48:34I love being involved with the team.
- 48:35I mean, these players are amazing young men that come to us.
- 48:38They've been wonderful.
- 48:39We have them all placed like this year right now.
- 48:42And yeah, so it's just, it's just.
- 48:44Well, you've turned that ship around too.
- 48:47So you're doing amazing things.
- 48:49Thank you.
- 48:49All over the place.
- 48:50It's fun.
- 48:51Some of the comments you get from the players and the parents, like I hear it all and they're just, they can't believe it.
- 48:57Well, I think it's just as a mom.
- 48:59Yeah.
- 48:59And I'm shipping my kid across the ocean or across the border or from the other side of Canada to some stranger's house. To play hockey.
- 49:06And I'm just like, I want to be able to make sure that they're okay.
- 49:10Like these boys are my boys too.
- 49:12And I know exactly what house they're being in.
- 49:14Like I've been to all these homes.
- 49:15I know the families and it's just, yeah, it's great.
- 49:18I mean, both you, Jennifer and you, what an amazing thing you did and that's incredible.
- 49:24And they're fun.
- 49:26Well, they're fun, aren't they?
- 49:30It's just, yeah, it's a...
- 49:32And season opener is Friday, seven o'clock.
- 49:35Get your tickets.
- 49:36Are we back into hockey?
- 49:37We are back into hockey, Cam. Holy doodles.
- 49:39Last year, the home opener was a sold out crowd, so...
- 49:42It's going to be a Trina's put up.
- 49:44I've only been, I've been to two Saints games.
- 49:46Only because Kyler.
- 49:47You have to come more.
- 49:48Kyler, when he played for, for Okotoks.
- 49:50Yeah, we used to go watch him. You need to come.
- 49:52Yeah, I need to come down and watch.
- 49:53Friday, we're going to have a couple of food trucks out front, face painting, temporary tattoo, the DJ, Cam.
- 49:58You need a temporary tattoo, Cam.
- 50:01I should've brought you one.
- 50:02You could have modeled it for us today.
- 50:03I need a few temporary things.
- 50:06Is this the first season in the new?
- 50:08Second season.
- 50:09In the new arena.
- 50:10Yeah.
- 50:11Okay.
- 50:11Yeah, the home opener on Friday is going to be the next level.
- 50:13All right.
- 50:14Yeah.
- 50:14So if you live around here, check it out.
- 50:16If you live in beautiful downtown Acheson, which nobody does, but if you're in the vicinity.
- 50:21I've heard though.
- 50:22Come on.
- 50:23People might live here soon.
- 50:24Yes, we have heard that.
- 50:25Yeah.
- 50:26Anyway, check it out.
- 50:27Yeah, that's another discussion for another podcast.
- 50:29But anyways, you guys, this is incredible.
- 50:34You are incredible people because you're just, what you're doing is amazing.
- 50:40Well, we're happy to be part of the community.
- 50:42And I mean, I gotta stop.
- 50:46I know.
- 50:48Spruce Grove really is a great community though.
- 50:49Honestly, we're like it is, and I just wanted to continue to our kids and our grandkids.
- 50:54I want them to be proud to be here.
- 50:58Okay, we have a final question that we ask each one of our guests.
- 51:01So I'm going to ask you each individually.
- 51:03Trina, I'm going to start with you this time.
- 51:05Okay, best piece of advice.
- 51:07You have been given either personally or professionally that you carry with you to this day.
- 51:13So our deacon at church is the one that told me, first minute that you wake up in the morning, you thank God for your life, and then you figure out how you want that day to go.
- 51:22And that's where I got the positive mindset to just lay there, I can decide how my day is going to go.
- 51:26So I can either think positive or think negative.
- 51:29So I always think with a cup half full at least.
- 51:32Yep, that's my advice.
- 51:34That's great advice.
- 51:35Yep.
- 51:35Neil?
- 51:36Mine's probably professionally, I was told by one of my bosses to worry about what you can control, and don't worry about what you can't control, because what you can't control is out of your control.
- 51:47I know it sounds simple, but it's easy to get caught up in it.
- 51:50It's the truth, isn't it?
- 51:51Yeah.
- 51:52We worry about things that sometimes we, yeah, we have no control over, so just let it go where it goes.
- 51:59Yep.
- 51:59Thank you both for saying yes to this.
- 52:01Well, thanks for having us.
- 52:03This has been amazing.
- 52:03You made my day, my week.
- 52:06This is fabulous.
- 52:11We appreciate being asked to come on.
- 52:12It's, you know, and Trina, I know we're going to get to see you a little bit in the next couple of months.
- 52:17You bet.
- 52:18We're going to be in full gear.
- 52:19Absolutely.
- 52:20Getting ready for hampers.
- 52:21We're going to do it.
- 52:22Neil, I, yeah, this is fabulous.
- 52:25You're, keep going.
- 52:27You have our thoughts and our prayers and our support and anything we could ever do.
- 52:33We're here for you.
- 52:34Thank you very much.
- 52:35And yeah.
- 52:36And hey, everybody, listen, if you know somebody who needs to listen to this podcast, tell them, tell them about it.
- 52:45Tell you, we always say, tell your friends, tell your neighbors, tell your coworkers, tell your enemies.
- 52:51If you don't have any friends, make one so that you can tell them about this podcast.
- 52:56Because listen, we always say share our podcast, but today I'm saying share our podcast.
- 53:03Because these are things people, this is a story that people need to hear.
- 53:08And lots of things here, you can support the Parkinson's Society.
- 53:15They can always use support, always.
- 53:18We'll actually put a link to the website.
- 53:20Yeah, we'll put a link.
- 53:20You can support the Kinettes.
- 53:22And we're going to do, I'm serious about this Kinettes thing.
- 53:25We're going to do this this Christmas.
- 53:26Stay tuned.
- 53:27Stay tuned because I got to go away and think about this.
- 53:30And if Jennifer gets on side, which I know she will because I've said it publicly.
- 53:35So what's she going to do?
- 53:36Come on the podcast and go, no.
- 53:38I'm not a grinch Cam.
- 53:39What?
- 53:39No, I know you're not.
- 53:40You're very giving, you're very, yeah, no, no.
- 53:43Jen's always supportive of the program.
- 53:45And so, yeah, so just make sure you tell everybody at this podcast, you can hear us anywhere you get your podcasts.
- 53:52I always find that's a funny thing to say because if you're listening, well, if you're listening, you've got us somewhere, yeah.
- 53:57Or you can, because some people don't know, you can get us at www.coffeeinthepark.com.
- 54:03And just want to say thanks again to Wing Snob for everything you do for us.
- 54:07We really appreciate it.
- 54:09You guys are awesome.
- 54:10And want to say thank you again to Trina and to Neil.
- 54:14And thanks to all our listeners, guys.
- 54:16We appreciate you taking the time to listen each week.
- 54:18And follow us on Instagram.
- 54:20And subscribe now.
- 54:22Subscribe, subscribe, subscribe.
- 54:24And you will not miss.
- 54:25You'll never miss it.
- 54:26It'll just pop up on your screen and you'll go, oh, it's Coffee In The Park.
- 54:30Yeah, thanks everybody.
- 54:31Thanks everyone.