Latest / DA CREW Podcast / DELAYED BUT NEVER DENIED 4-25-25 host latonya michelle

Transcript

DELAYED BUT NEVER DENIED 4-25-25 host latonya michelle · DA CREW Podcast

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• 2:41
  Speaker 5: Good evening, good evening, Good evening, and welcome to delayed
• 2:45
  Speaker 5: but not denied the podcast. Tonight, we will be discussing
• 2:52
  Speaker 5: spining bit of the This spining bit of the Awareness month,
• 2:56
  Speaker 5: and so we will be discussing ins and outs of
• 3:03
  Speaker 5: it spin a bit. I have my co host with
• 3:06
  Speaker 5: me tonight, Miss Nadget Scott.
• 3:08
  Speaker 2: How are you Hi, I'm good.
• 3:12
  Speaker 5: Before I bring my guests on, I would like to
• 3:14
  Speaker 5: go to the Lord in prayer. Heavenly Father, we come
• 3:17
  Speaker 5: to you right now asking you to be in the
• 3:19
  Speaker 5: midst of the conversation. Allow it to breathe fresh air
• 3:25
  Speaker 5: into the atmosphere. Lord, let it touch who needs to touch,
• 3:30
  Speaker 5: and let it be received by those who need to
• 3:33
  Speaker 5: receive it. In Jesus' name, I do pray Amen. Without
• 3:38
  Speaker 5: further ado, I would like to bring on my guests,
• 3:42
  Speaker 5: Miss Shannon and Maddie Garrett.
• 3:49
  Speaker 3: Hi, Hi, beauty, how are y'all?
• 3:59
  Speaker 5: I don't mind if you don't mind, introduce yourself and.
• 4:04
  Speaker 2: In Madison.
• 4:05
  Speaker 3: Okay.
• 4:06
  Speaker 5: My name is Shannon Gearrett. We are from Dallas, Texas.
• 4:12
  Speaker 2: I have been a mommy of us.
• 4:14
  Speaker 5: Find a Bit for the Baby for thirteen years and
• 4:17
  Speaker 5: this is my little she ro is what I like
• 4:20
  Speaker 5: to call her. So your name, I'm Madison, and she's thirteen,
• 4:26
  Speaker 5: she's in eighth grade and she is a true girl teenager.
• 4:30
  Speaker 3: So yeah, I know how that goes.
• 4:34
  Speaker 5: Can welcome you, We welcome you, and we're glad to
• 4:38
  Speaker 5: be here with us tonight. Miss Don Ramsey, if you're there,
• 4:42
  Speaker 5: if you could join us?
• 4:48
  Speaker 4: Hello?
• 4:48
  Speaker 6: Can you all hear me?
• 4:50
  Speaker 2: Yes, ma'am? How are you hid?
• 4:55
  Speaker 5: And if you don't mind, miss Don, can you introduce yourself?
• 5:03
  Speaker 5: I think her scream may have frozen. Can you hear us?
• 5:14
  Speaker 2: Okay? Now I can hear yes, Okay, can you introduce yourself? Okay? Sure.
• 5:21
  Speaker 6: My name is Dawn. I have a channel called ice
• 5:25
  Speaker 6: Slate Spina biffada. I'm from Chicago, forty two years old.
• 5:33
  Speaker 6: I was born with Mino maningosil spina biffada and I'm
• 5:42
  Speaker 6: just happy to be here, okay.
• 5:45
  Speaker 5: And for those who don't know anything else, you want
• 5:48
  Speaker 5: to know.
• 5:51
  Speaker 2: That's it right now.
• 5:53
  Speaker 5: Spina biffada is a congenital defect of the spine in
• 5:57
  Speaker 5: which part of the spinal cord is ninjas are exposed
• 6:02
  Speaker 5: through the gap and the backbone, often causing paralysis of
• 6:06
  Speaker 5: the lower limbs. It's not it's also considered the snowflake
• 6:12
  Speaker 5: disorder because no two people have it the same. So, Maddie,
• 6:17
  Speaker 5: if you would like to answer, how does spain a
• 6:22
  Speaker 5: vi at your life? And if you don't want to answer,
• 6:29
  Speaker 5: your mom can for you, like on a daily basis,
• 6:41
  Speaker 5: she also has the male.
• 6:46
  Speaker 3: Her effects are mainly her bladder and about.
• 6:51
  Speaker 5: Difficulty, so she does have to cathorize on a daily basis.
• 6:56
  Speaker 5: We are on a bowel regiment. She fortunately she has
• 7:00
  Speaker 5: heard all her mobility and she has been ooh opal
• 7:10
  Speaker 5: since she was I think two thinks she started walking
• 7:13
  Speaker 5: at two and a half.
• 7:16
  Speaker 3: She's had.
• 7:19
  Speaker 5: One, two, three, three surgeries that were geared towards finding bifferda.
• 7:23
  Speaker 5: So again most of her complications are but batter, bladder
• 7:27
  Speaker 5: and vow.
• 7:28
  Speaker 3: So she had a bladder augmentation actually last.
• 7:30
  Speaker 5: Year, so we are a year into recovering from that,
• 7:36
  Speaker 5: and then she also has the VP shunt.
• 7:39
  Speaker 3: Fortunately we've never had any revisions to that.
• 7:44
  Speaker 5: So for the most part, her biggest thing is just
• 7:46
  Speaker 5: cathorizing stand on top of being independent in her inconsonence issues.
• 7:52
  Speaker 5: So okay, and how does find a bit for the
• 7:58
  Speaker 5: affect you.
• 8:03
  Speaker 6: I have bladder control issues, vowel issues, I believe. Also
• 8:14
  Speaker 6: it affected my vision and that's because I had a
• 8:20
  Speaker 6: history of hydrocephalis. But I don't have a shunt. And
• 8:29
  Speaker 6: I was walking. I was kind of like Madison. I
• 8:34
  Speaker 6: was walking, but then as I gotten older, it's you know,
• 8:40
  Speaker 6: my balance wasn't great and I couldn't stand to walk
• 8:46
  Speaker 6: no more than five minutes. And I used to fall
• 8:53
  Speaker 6: all the time too. But I did walk with leg
• 8:56
  Speaker 6: braces and crutches. And also I I've experienced pressure wounds
• 9:04
  Speaker 6: and I lost.
• 9:05
  Speaker 2: A limb.
• 9:08
  Speaker 6: My left leg and this this was recently. So yeah,
• 9:14
  Speaker 6: that's about it. That has really affected my.
• 9:19
  Speaker 2: You know body.
• 9:21
  Speaker 6: But I try to take better care of myself, you know,
• 9:25
  Speaker 6: and I do live by myself, so which is the
• 9:29
  Speaker 6: awesome thing. I did achieve that, right, So that's and
• 9:36
  Speaker 6: I also have a learning disability.
• 9:40
  Speaker 2: Okay, did you got questions?
• 9:44
  Speaker 7: No, I don't have questions, but I do want to
• 9:46
  Speaker 7: let don know that I can kind of relate because
• 9:49
  Speaker 7: I'm also currently now dealing with a author. Yeah, I agree, because.
• 9:59
  Speaker 2: My parents was told, huh m, can you hear us?
• 10:15
  Speaker 2: Can you hear us? I don't think she can hear me.
• 10:25
  Speaker 7: She can't hear you.
• 10:27
  Speaker 5: May you may have to go out and come back.
• 10:31
  Speaker 5: Oh yeah, she definitely don't have to go out and
• 10:33
  Speaker 5: come back.
• 10:34
  Speaker 7: Yeah, but yeah, no, I definitely can relate to what
• 10:38
  Speaker 7: she's going through because who Maddie.
• 10:44
  Speaker 5: Yeah, Maddie has gotten wounds and things on her on
• 10:47
  Speaker 5: her feet that she won't even know that they're there
• 10:51
  Speaker 5: becaucause there's no feeling there.
• 10:53
  Speaker 3: So we have the experience. That's part that's you don't
• 10:59
  Speaker 3: really have to know, is that you should have it.
• 11:02
  Speaker 5: We went on a vacation to Orlando and at a
• 11:05
  Speaker 5: water park, I mean she's just running around playing and
• 11:09
  Speaker 5: made it back to the hotel and before we knew it,
• 11:11
  Speaker 5: somebody just like, somebody's bleeding and it was nobody knew.
• 11:15
  Speaker 3: So yeah, but she's dealt with that a few times
• 11:18
  Speaker 3: as well.
• 11:19
  Speaker 2: Yeah.
• 11:20
  Speaker 7: I actually stepped on the nail and didn't realize it
• 11:22
  Speaker 7: and started and started bleeding.
• 11:24
  Speaker 5: Was like, okay, well, for me, I also have that
• 11:28
  Speaker 5: same type of spina bifida with all the letters. And
• 11:35
  Speaker 5: for me, I started walking about three or four. I
• 11:40
  Speaker 5: went from from what I can remember, from crawling to
• 11:45
  Speaker 5: pulling myself up on things and and going from there.
• 11:50
  Speaker 5: I had to wear like a baby diaper until like
• 11:54
  Speaker 5: maybe third yeah, third grade because of the incontinence and
• 12:00
  Speaker 5: things of that nature. And it has definitely been a challenge.
• 12:07
  Speaker 5: School has been crazy. So Shannon, my question you, does
• 12:14
  Speaker 5: Madicine have to deal with being bullied and picked on
• 12:18
  Speaker 5: because of her circumstances?
• 12:21
  Speaker 3: Oh? So she hasn't in a while. I can't recall
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  Speaker 3: in her younger grade years.
• 12:29
  Speaker 2: I remember, I.
• 12:31
  Speaker 5: Want to say, in kindergarten is maybe when we first
• 12:33
  Speaker 5: noticed it and it wasn't more of like a bullying
• 12:36
  Speaker 5: issue it would be. I think one time a little
• 12:40
  Speaker 5: boy like she was going up the letter to go
• 12:43
  Speaker 5: down the slide, and a little boy like kind of
• 12:46
  Speaker 5: pushed her out the way and went in front of
• 12:47
  Speaker 5: her because she said she was taken too long, but
• 12:50
  Speaker 5: you know, physically it just took her longer to get
• 12:52
  Speaker 5: up the letter.
• 12:52
  Speaker 3: So things like that, I think her biggest things have been,
• 12:56
  Speaker 3: like phil.
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  Speaker 5: Day has not always been fun for her, especially a
• 13:00
  Speaker 5: fifty days where they give awards.
• 13:03
  Speaker 3: And she had issues again.
• 13:07
  Speaker 5: In her early years, she used to wear pull ups
• 13:10
  Speaker 5: to school as well, and some kids would ask her,
• 13:13
  Speaker 5: why do you still.
• 13:14
  Speaker 3: Having to pull up? I don't wear those anymore.
• 13:16
  Speaker 5: So things like that, but not She was in a
• 13:20
  Speaker 5: bullying incident in the sixth grade, but it wasn't spinning.
• 13:23
  Speaker 3: It was just young girls and.
• 13:27
  Speaker 5: And yeah, so it wasn't spinning a bit of related,
• 13:30
  Speaker 5: but most of hers have just been because she does
• 13:33
  Speaker 5: things a little slower, or when she did used to
• 13:36
  Speaker 5: wear her pull.
• 13:36
  Speaker 3: Ups and things to school.
• 13:37
  Speaker 5: So, okay, since she had her surgery, you not have
• 13:42
  Speaker 5: to wear those anymore. No, so she stopped wearing the
• 13:48
  Speaker 5: pull ups to school. I would probably say second or
• 13:53
  Speaker 5: third grade.
• 13:54
  Speaker 3: It was the fourth grade. She's say in fourth grade.
• 13:57
  Speaker 3: She probably would know better than I would, so no.
• 14:02
  Speaker 5: So now with the surgery, nothing really changed besides how
• 14:10
  Speaker 5: often she cathorizes, and she no longer takes the bladder
• 14:16
  Speaker 5: medications that she were taking. Okay, so it seems like
• 14:22
  Speaker 5: it helps you a lot of ways.
• 14:25
  Speaker 2: Well that's good, Madison.
• 14:27
  Speaker 5: I want to say to you, you are a beautiful
• 14:30
  Speaker 5: little girl. And you know, life in itself is hard,
• 14:39
  Speaker 5: but you have the capability of doing and becoming whoever
• 14:43
  Speaker 5: you desire to be. So you know, no matter what
• 14:48
  Speaker 5: it looks like or even if you feel like you're
• 14:52
  Speaker 5: different from everybody else, you're beautiful and.
• 14:56
  Speaker 2: Disky's the limit for you.
• 14:57
  Speaker 5: So I want you to take that and walk with
• 15:01
  Speaker 5: it and keep your head up high because you're beautiful baby.
• 15:08
  Speaker 3: Yeah, and remember.
• 15:13
  Speaker 6: Remember always and this is what I used to quote
• 15:18
  Speaker 6: to myself and I still do. But I can do
• 15:21
  Speaker 6: all things through Christ Jesus. That strengthens me. Remember that
• 15:27
  Speaker 6: your final that does not define you, and it does
• 15:33
  Speaker 6: not control who you are.
• 15:40
  Speaker 3: I do have a question.
• 15:41
  Speaker 2: You got question?
• 15:43
  Speaker 7: Yeah, I got a question for Shannon. How is it
• 15:46
  Speaker 7: being a mother of a child from a mother's perspective?
• 15:51
  Speaker 2: Who?
• 15:52
  Speaker 5: That's a lovely question. So, but a little backstory. When
• 15:59
  Speaker 5: I found that I was pretty well manned. I was
• 16:01
  Speaker 5: twenty one in college, so you're talking about I already
• 16:05
  Speaker 5: feel like I screwed up because I'm in school, and
• 16:09
  Speaker 5: then I find out four months later like your whole
• 16:12
  Speaker 5: life has changed.
• 16:13
  Speaker 3: So of course it started out scary.
• 16:17
  Speaker 5: I think the biggest thing for me is I've had
• 16:19
  Speaker 5: like a very very good support system, but I think
• 16:25
  Speaker 5: the early years were a lot harder because I just
• 16:27
  Speaker 5: didn't know.
• 16:29
  Speaker 3: So it's like, every time we had an appointment, I
• 16:31
  Speaker 3: felt like they were saying something else. I'm like, look, yeah,
• 16:33
  Speaker 3: I'm men, tell me this last time. Yeah.
• 16:38
  Speaker 5: So I think I think her early years were a
• 16:41
  Speaker 5: lot harder. But the older she gets, I don't want
• 16:46
  Speaker 5: to say it gets easier. I think I just find
• 16:49
  Speaker 5: a way to it just better. And you know, it's
• 16:53
  Speaker 5: one of those things like I gotta stay strong.
• 16:56
  Speaker 3: If I'm worried, She's gonna worry, right.
• 16:58
  Speaker 5: So a lot of times I still freaking. I'm like,
• 17:02
  Speaker 5: what what's happening, Let's go get your stuff.
• 17:04
  Speaker 3: We got to go to the doctor, and she'd be like, Mama,
• 17:06
  Speaker 3: I'm fine.
• 17:07
  Speaker 5: So it's been it's been difficult, but there has been
• 17:11
  Speaker 5: a lot of joyous times because I've been allowed to
• 17:14
  Speaker 5: like see God work, you know, in ways that I
• 17:18
  Speaker 5: probably would have never seen had I, you know, birth
• 17:21
  Speaker 5: this little miracle baby. So there has been a lot
• 17:25
  Speaker 5: of difficult a lot of hospital stays, you know, a
• 17:33
  Speaker 5: lot of blaming myself somewhere in there, you know.
• 17:37
  Speaker 3: But I think for the.
• 17:38
  Speaker 5: Most part, I've learned a lot from it and i'm,
• 17:41
  Speaker 5: you know, still learning. It's not over, so yeah, but
• 17:45
  Speaker 5: it's it's been a lot of joy in that too.
• 17:47
  Speaker 7: And the doctor to scare you do it's not necessarily
• 17:52
  Speaker 7: the truth, you know. And I'm glad that you were
• 17:55
  Speaker 7: able to keep your child and see that God can
• 17:59
  Speaker 7: do anything. And I mean she is she is beautiful.
• 18:05
  Speaker 7: I love that girl. She's my sister. So it's like
• 18:08
  Speaker 7: you just see God doing what he do and do.
• 18:11
  Speaker 7: They don't know everything God knows, and like said, she
• 18:15
  Speaker 7: can be anything or whatever you want to be, whatever
• 18:18
  Speaker 7: she wanted to.
• 18:18
  Speaker 3: As long as you put your mind to.
• 18:19
  Speaker 7: My mom used to always say, as long as you
• 18:21
  Speaker 7: put your mind to, when you can do whatever you
• 18:23
  Speaker 7: want to do.
• 18:23
  Speaker 2: In life and can't nobody stop you.
• 18:28
  Speaker 3: That's right.
• 18:30
  Speaker 5: Yeah, Shannon, if you don't mind, could you explain the
• 18:35
  Speaker 5: surgery that she recently had. M So it was kind
• 18:40
  Speaker 5: of bladder augmentation, uh, But essentially what they did was
• 18:43
  Speaker 5: they went in and took part of her intestines and
• 18:47
  Speaker 5: attached it to her bladder to make her bladder larger.
• 18:51
  Speaker 5: So before she had the surgery, I don't remember the
• 18:55
  Speaker 5: exact numbers, but if I was to guess, I think
• 18:59
  Speaker 5: she was.
• 19:00
  Speaker 3: Only holding.
• 19:04
  Speaker 5: Like her bladder was the size of it was still
• 19:07
  Speaker 5: the size of like a two year old baby.
• 19:11
  Speaker 3: Trying to hold yurine. So after the surgery and the
• 19:13
  Speaker 3: way that they elarged it, now she holds three times
• 19:17
  Speaker 3: more than the average okay, which can be a.
• 19:20
  Speaker 5: Good bath because it can hold so much that she's fine.
• 19:26
  Speaker 5: And six hours later it's like, oh, crap, I forgot
• 19:29
  Speaker 5: to go to the bathroom because it wasn't bother me,
• 19:33
  Speaker 5: but to the surgery yet, So they took part of
• 19:35
  Speaker 5: her intestants, they enlarged her bladder.
• 19:38
  Speaker 3: She was hospitalized for a week. It was a six
• 19:41
  Speaker 3: hour surgery.
• 19:43
  Speaker 5: And I think that's that back to the question about
• 19:46
  Speaker 5: being a parent's final b if.
• 19:47
  Speaker 3: I think that's the hardest part of sitting in the
• 19:48
  Speaker 3: waiting room trying to figure out what y'all doing back
• 19:51
  Speaker 3: there to my baby?
• 19:51
  Speaker 2: What is how she doing?
• 19:53
  Speaker 3: Can somebody come tell me? Can I just look through
• 19:54
  Speaker 3: a window?
• 19:57
  Speaker 5: So it was a six hour surgery that kept her
• 19:59
  Speaker 5: in the hospital for She came home with drainage tubes
• 20:04
  Speaker 5: and her belly and.
• 20:05
  Speaker 3: In her her bladder.
• 20:10
  Speaker 5: And she kept those for a week, and she also
• 20:15
  Speaker 5: had staples that she kept for two weeks. So the
• 20:17
  Speaker 5: way that they did the surgery is they ended up
• 20:19
  Speaker 5: opening her as if she had a cesarean. She has
• 20:23
  Speaker 5: a bikini cut. They were going to do it the
• 20:27
  Speaker 5: vertical way just because he said he needed more space
• 20:32
  Speaker 5: to go in or you know, do what he needed
• 20:34
  Speaker 5: to do.
• 20:34
  Speaker 3: But they came out of surgery and said.
• 20:37
  Speaker 5: We were able to do a bikini cut because by
• 20:39
  Speaker 5: the time we put her on the table, she was
• 20:40
  Speaker 5: so tiny that I can get in there and do
• 20:43
  Speaker 5: what I needed to do. So yeah, it was like
• 20:45
  Speaker 5: a bikini cut.
• 20:46
  Speaker 2: But the.
• 20:48
  Speaker 5: Main reason for the surgery was because she was having
• 20:50
  Speaker 5: a lot of bladder leakage, getting a lot of ut
• 20:53
  Speaker 5: eyes just because her bladder was so small and it
• 20:56
  Speaker 5: was holding on in so much bacteria that kept reflecting
• 20:59
  Speaker 5: into her keys, knees, and she kept She had about
• 21:04
  Speaker 5: three or four runs with sis and so finally it was.
• 21:07
  Speaker 3: Doctor said okay, so it's time. So yeah, yeps for
• 21:13
  Speaker 3: like three years, so we finally said.
• 21:15
  Speaker 5: Yes, miss Donne, you said that you don't have a shunt.
• 21:23
  Speaker 5: How how how did they go past not having to
• 21:30
  Speaker 5: give you one.
• 21:32
  Speaker 6: Or do you know, I really don't know, but well,
• 21:37
  Speaker 6: let me just explain. Because by my parents believing in
• 21:41
  Speaker 6: God mm hmm, they prayed about the situituation, you know,
• 21:50
  Speaker 6: and that what they was telling my parents was I
• 21:55
  Speaker 6: needed this shunt or else I was going to die
• 21:59
  Speaker 6: in three days. They gave me three days to live, okay,
• 22:04
  Speaker 6: but they was explaining to them that, you know, as
• 22:09
  Speaker 6: I grow, they're gonna have to you know, keep placing
• 22:13
  Speaker 6: a shunt in, you know, and they was telling them
• 22:16
  Speaker 6: about the side effects and all of that different kind
• 22:19
  Speaker 6: of stuff. And my my mom just simply asked, God,
• 22:25
  Speaker 6: you know, either hello from that.
• 22:30
  Speaker 2: Or take our.
• 22:30
  Speaker 6: Home with with you, because I guess she just didn't
• 22:35
  Speaker 6: want to see me suffer. And that's a lot on
• 22:39
  Speaker 6: a child to keep, you know, going in and you know,
• 22:46
  Speaker 6: placing shunts in their head as they grow. So, you know,
• 22:51
  Speaker 6: my my parents just believed in God.
• 22:55
  Speaker 2: They didn't want that to happen.
• 22:57
  Speaker 6: And so I my parents took me to church and
• 23:02
  Speaker 6: they prayed over me, and there was no sign of
• 23:06
  Speaker 6: hydrocephalis that even though they still say I do have
• 23:11
  Speaker 6: like water in the brain, but it's not where it
• 23:15
  Speaker 6: affects me where I would need an emergency surgery. It's
• 23:21
  Speaker 6: like it's no build up, it's a little, just a little.
• 23:27
  Speaker 5: So you said, okay, and Shanny you said that Maddie
• 23:34
  Speaker 5: also has a shunt.
• 23:35
  Speaker 3: She has a VP since she was a week old.
• 23:41
  Speaker 2: Okay.
• 23:42
  Speaker 5: Yeah, I've had mine since since birth and I've never
• 23:47
  Speaker 5: had to have a revision that I'm aware of.
• 23:50
  Speaker 2: So and.
• 23:54
  Speaker 3: We've had some scares, but every time we get there
• 23:58
  Speaker 3: and they do like a thorough check, it's like, okay,
• 24:00
  Speaker 3: it's not this, She's fine here. So she's never had
• 24:03
  Speaker 3: a revision.
• 24:04
  Speaker 5: There was a point where they did think that it
• 24:07
  Speaker 5: was time to remove it because they didn't show much usage.
• 24:12
  Speaker 5: But I actually had her nerves surgeon that said, I
• 24:15
  Speaker 5: wouldn't advise that she's you know, she told me she removed,
• 24:18
  Speaker 5: you know, a shunt and it just didn't go well
• 24:22
  Speaker 5: for that particular kid. So she just said, if it's
• 24:24
  Speaker 5: not bothering her, just leave it alone, right, And she
• 24:28
  Speaker 5: she never had any issues with it, So I don't
• 24:31
  Speaker 5: I don't fully know if she's using it now. They
• 24:33
  Speaker 5: do check it every year, but she hasn't had hasn't
• 24:38
  Speaker 5: had to have a revision.
• 24:40
  Speaker 2: Okay, Diddy, there's a question.
• 24:44
  Speaker 5: I see that I call on you because I know
• 24:48
  Speaker 5: you have a brother that yes, so you may be
• 24:52
  Speaker 5: able to.
• 24:54
  Speaker 7: I mean, I don't know if it's prevalent in either
• 24:58
  Speaker 7: or sex. But for my my background, because my family
• 25:02
  Speaker 7: is from Haiti, and I think that it was a
• 25:06
  Speaker 7: genetic thing for us because my parents had had me first,
• 25:12
  Speaker 7: then they have my other brother who doesn't have anything
• 25:15
  Speaker 7: wrong with him, and then they have another brother who
• 25:17
  Speaker 7: has the same exact spine fit for that I have.
• 25:20
  Speaker 7: So I think it's a genetic genetic thing. I really
• 25:23
  Speaker 7: believe it's prevalent in Haiti, but I don't know in
• 25:26
  Speaker 7: other cultures if how prevalent it is for.
• 25:29
  Speaker 2: Men or women.
• 25:30
  Speaker 7: But I mean being on social media, you see both.
• 25:34
  Speaker 7: You see both men and women, you know, so it's
• 25:38
  Speaker 7: not I don't think it's a higher risk on any sex.
• 25:41
  Speaker 7: To be honest with you, I don't believe it.
• 25:44
  Speaker 5: And I will say when I had my son, they
• 25:48
  Speaker 5: wanted to have him tested for everything. But when I
• 25:50
  Speaker 5: take her to her Spinea Bee for the events, it's
• 25:53
  Speaker 5: like equal across the board. There's just as many young boys.
• 25:58
  Speaker 3: So that that's what I would believe.
• 25:59
  Speaker 8: Yeah, Okay, I think women just like the the event,
• 26:09
  Speaker 8: the events that you take her to, do you know
• 26:13
  Speaker 8: that's everywhere.
• 26:15
  Speaker 5: Or is that just spepecific for Texas. So the one
• 26:21
  Speaker 5: that we are a part of it is called the
• 26:23
  Speaker 5: Spina Bit of the Association of North Texas. I don't
• 26:27
  Speaker 5: know if they have them anywhere else, but she's been
• 26:29
  Speaker 5: a part of it, oh since she was I think
• 26:32
  Speaker 5: we went to the first event when she was one.
• 26:33
  Speaker 3: They do Christmas parties, Easter.
• 26:35
  Speaker 5: Egg hunts, they have a family camp that they do
• 26:38
  Speaker 5: every November, but then they age out of the family
• 26:41
  Speaker 5: camp and they go to the summer.
• 26:42
  Speaker 3: Camp where it's just kids, counselors, doctors, and nurses.
• 26:47
  Speaker 5: So they do a lot. They have a Spina Bit
• 26:49
  Speaker 5: to walk every year. So she's been doing all of
• 26:52
  Speaker 5: that ever since.
• 26:52
  Speaker 3: She was two. Wow, that's awesome. That's really great.
• 26:59
  Speaker 5: Yeah, So what I want to say to you now, Shannon,
• 27:03
  Speaker 5: is there anything that you don't know about Spina Bit
• 27:09
  Speaker 5: that either either of us could say to you that.
• 27:14
  Speaker 2: You know, would help you along along the way with her.
• 27:21
  Speaker 5: I'm sure there's a lot that I know.
• 27:28
  Speaker 3: I think.
• 27:32
  Speaker 5: My biggest don't know moments with her is how do
• 27:35
  Speaker 5: you feel about it? Right? Even with school, like, how
• 27:40
  Speaker 5: do you feel going to school?
• 27:42
  Speaker 3: You know, do you feel different?
• 27:46
  Speaker 5: Because Madison is pretty quiet and she will she to
• 27:49
  Speaker 5: you every everything's okay, mama, You're.
• 27:52
  Speaker 3: Doing everything right, and it's okay.
• 27:54
  Speaker 5: I'm fine, I'm great, I'm happy, and that they could
• 27:57
  Speaker 5: they could honestly be the case. But yeah, so I
• 28:01
  Speaker 5: don't know how to break through to her to say
• 28:05
  Speaker 5: open up.
• 28:06
  Speaker 3: But I don't know. Maybe it'll come and do time.
• 28:10
  Speaker 5: But Spina beff Spina Biffita specifically, Yeah, I'm a researcher
• 28:15
  Speaker 5: and that just comes from being in school, and then
• 28:17
  Speaker 5: i'm you know, I teach at the school, so I
• 28:20
  Speaker 5: research a lot a lot of stuff, and then I
• 28:24
  Speaker 5: talked to a lot of people, you know, like you
• 28:26
  Speaker 5: guys and y'all know. I don't mind asking questions, but
• 28:31
  Speaker 5: I can't think of anything at this moment. A lot
• 28:34
  Speaker 5: of my questions arise when something with her is different, right,
• 28:38
  Speaker 5: and I'm like, we ain't never had this symptom with this, Yeah,
• 28:42
  Speaker 5: I know, I'm text d D before.
• 28:44
  Speaker 3: And I'm like, the doctor said this, have you heard
• 28:46
  Speaker 3: of this? You know, things like that.
• 28:48
  Speaker 5: So a lot of minds come from when they present
• 28:50
  Speaker 5: something to me that I've never heard. But I'm also
• 28:55
  Speaker 5: a part of like a like the Spina Bitch from
• 28:57
  Speaker 5: North Texas group here. They have a mom's group on Facebook,
• 29:00
  Speaker 5: and so moms would like just throw out questions or
• 29:03
  Speaker 5: saying I went to the doctor and you know, they
• 29:05
  Speaker 5: told me this, and so I learned a lot of
• 29:07
  Speaker 5: stuff that they can too. So I honestly can't think
• 29:11
  Speaker 5: of anything at this moment outside of how do I
• 29:16
  Speaker 5: make sure my baby is okay?
• 29:20
  Speaker 2: So as a mom, I will say.
• 29:24
  Speaker 5: Just keeping the lines of communication open, being available when
• 29:32
  Speaker 5: she needs you, being able to listen, not to answer,
• 29:40
  Speaker 5: just be a listening ear. Yeah, yeah, yeah, definitely. School
• 29:47
  Speaker 5: for me was hard, Like if I could have been
• 29:49
  Speaker 5: a third grade dropout, I would have been doing yeah,
• 29:54
  Speaker 5: And like you know, it's he is a cruel and
• 29:58
  Speaker 5: these kids, you know, yeah, they're different, and you.
• 30:05
  Speaker 2: Know it's it's not fair to go to school to.
• 30:11
  Speaker 5: Try to get an education and you have to worry
• 30:14
  Speaker 5: about if you're going to have an accident or if
• 30:17
  Speaker 5: somebody's gonna pick on you. And see for me, I
• 30:20
  Speaker 5: walk funny, so they so they tell me I don't.
• 30:25
  Speaker 5: So you know, I've always had people like walking behind me.
• 30:31
  Speaker 2: Copying the way that.
• 30:32
  Speaker 5: I walk, and you know, you can't see that something's
• 30:36
  Speaker 5: wrong because it's you, you know. So I'm like, I
• 30:41
  Speaker 5: couldn't understand, for the loved goud why I had to
• 30:45
  Speaker 5: get picked on so much. And I think that's, yeah,
• 30:53
  Speaker 5: I applied. I think that's the mother that you are,
• 30:56
  Speaker 5: Thank you man, And I think that's what One of
• 31:00
  Speaker 5: my biggest things too, is Maddie, Like, if I don't
• 31:03
  Speaker 5: tell somebody.
• 31:04
  Speaker 3: She has, they don't know, right, And.
• 31:09
  Speaker 5: We're grateful for that, but I think sometimes it puts
• 31:15
  Speaker 5: her like in.
• 31:15
  Speaker 3: A gray area, right, she always becomes that outlier.
• 31:19
  Speaker 5: So she looks just like you, but she struggles with
• 31:23
  Speaker 5: these things, and so I'm hard on her in regards
• 31:28
  Speaker 5: to her independence because I'm like, you know, you know
• 31:35
  Speaker 5: the things that you need to do, and other kids
• 31:38
  Speaker 5: they don't know and they don't care. So you know,
• 31:41
  Speaker 5: you need to go to the bathroom and take care
• 31:42
  Speaker 5: of your business. Go to the bathroom and take care
• 31:45
  Speaker 5: of your friends business. Your friend's still gonna be sitting
• 31:47
  Speaker 5: at the cafeteria table right when you get right now,
• 31:51
  Speaker 5: she's had gratefully, Maddie has had friends in fifth, sixth,
• 31:56
  Speaker 5: and seventh grade who will whisper to her, I think
• 31:59
  Speaker 5: you had an accident, and she'll go to the bathroom
• 32:03
  Speaker 5: and take care of business.
• 32:04
  Speaker 3: But that's not always the case. She's been to a
• 32:07
  Speaker 3: birthday party and they in the bounce house and somebody's like, ooh,
• 32:10
  Speaker 3: what's that. It's sinks in here, and.
• 32:12
  Speaker 5: She's had an accident, but they don't understand, and you
• 32:16
  Speaker 5: know it doesn't bother her. But I'm like, stay on
• 32:19
  Speaker 5: top of it because you know, I don't want you
• 32:22
  Speaker 5: to be in that position. So well, I'm going to
• 32:27
  Speaker 5: support Maddie and I'm gonna say, listen, I fully understand it,
• 32:31
  Speaker 5: because you want to be as normal as possible. So
• 32:34
  Speaker 5: I I fully understand that you're like, I don't want
• 32:38
  Speaker 5: to be kind to go to bath you know, it's
• 32:40
  Speaker 5: a struggle at at our young age.
• 32:43
  Speaker 7: We know we're supposed to do it, but we want
• 32:45
  Speaker 7: to be normal, you know. So it's kind of hard
• 32:48
  Speaker 7: to like. But I mean, I understand telling her and
• 32:51
  Speaker 7: she gets it, but she's like, why can't be normal?
• 32:54
  Speaker 7: Type scenario? You know what I'm saying. Yeah, with you
• 32:56
  Speaker 7: just feeling at her and talking to her, that helped
• 33:00
  Speaker 7: her because for me, I always carried on like I'm
• 33:04
  Speaker 7: good when in an actuality I wasn't. Yeah, so it's
• 33:09
  Speaker 7: good that you're keeping that communication because nobody would have
• 33:11
  Speaker 7: been able to tell.
• 33:12
  Speaker 2: For me, Madison is quiet.
• 33:14
  Speaker 3: I was not quiet, you know what I'm saying.
• 33:16
  Speaker 7: So everybody thought I was good when the actualety I wasn't.
• 33:21
  Speaker 7: So I get what Madison is same.
• 33:23
  Speaker 3: But she don't want I don't want to have to
• 33:25
  Speaker 3: keep going. My friends is over here.
• 33:27
  Speaker 2: But yeah, and she.
• 33:29
  Speaker 7: Gets old that she's gonna realize I gotta do this
• 33:31
  Speaker 7: and she's gonna set herself up. But I understand it.
• 33:35
  Speaker 7: I get it. Yeah, I get at that young age,
• 33:37
  Speaker 7: you just want to be like everybody else.
• 33:39
  Speaker 3: Yeah, and that's.
• 33:40
  Speaker 2: Hard to be a kid.
• 33:43
  Speaker 3: And yeah, basically, yeah, that we started this.
• 33:48
  Speaker 5: Thing a couple months back, just because I know she's
• 33:52
  Speaker 5: not a talker in regards to stuff like that.
• 33:56
  Speaker 3: And so I said, okay, so on a sheet of paper, write.
• 33:58
  Speaker 5: Down everything you want to say to me, and you
• 34:01
  Speaker 5: can give it to me and say, Mamma, don't read
• 34:02
  Speaker 5: this till you get to work, or read this when
• 34:04
  Speaker 5: I go to school. And I'm like, you know it
• 34:07
  Speaker 5: can be you know the way that you said this
• 34:10
  Speaker 5: to me made me feel like this, Right, whatever you
• 34:13
  Speaker 5: don't feel like you can verbally say to me, write
• 34:16
  Speaker 5: it to me. And so I think the very first
• 34:20
  Speaker 5: letter had me interiors at work, but it was helpful, right.
• 34:25
  Speaker 5: So we try to find ways to where, you know,
• 34:29
  Speaker 5: we can communicate. And I've noticed over the past few
• 34:32
  Speaker 5: months like she started to verbally open up about some
• 34:35
  Speaker 5: things that she wouldn't have.
• 34:38
  Speaker 3: Last year. So I think we're getting somewhere.
• 34:41
  Speaker 7: As long as you keep that lot of communication open,
• 34:44
  Speaker 7: she knows she can come to mommy, and and that's
• 34:48
  Speaker 7: a blessing in itself.
• 34:49
  Speaker 3: I'm not saying I didn't have.
• 34:50
  Speaker 7: That, but I, you know, didn't want to put that
• 34:53
  Speaker 7: weight on my mom you know what I'm saying, because
• 34:55
  Speaker 7: she was already taken care of me and all the
• 34:58
  Speaker 7: other stuff, So I didn't want to put that weight
• 35:00
  Speaker 7: on her. But for you to have that communication with
• 35:02
  Speaker 7: her is a blessing. I'm telling y'all, both my heroes,
• 35:05
  Speaker 7: both of y'all.
• 35:09
  Speaker 6: Absolutely, it's a blessing to have parents. It's a blessing
• 35:16
  Speaker 6: to have parents that is very supportive family as well,
• 35:22
  Speaker 6: you know, because I have a great support of family,
• 35:26
  Speaker 6: and honestly them no people that I trust, you know,
• 35:34
  Speaker 6: especially when when you're dealing with bladder issues in my case,
• 35:42
  Speaker 6: I've had, I've been teased all my life, but it
• 35:48
  Speaker 6: still goes on and I'm adult. You know, people is
• 35:52
  Speaker 6: just crueling and ignorant and that kind of makes me
• 35:57
  Speaker 6: not one. It kind of makes me not want to date.
• 36:02
  Speaker 6: You get what I'm saying.
• 36:04
  Speaker 7: Because of that situation.
• 36:06
  Speaker 2: I'm like, I'm cool, but let let Jesus Christ be.
• 36:12
  Speaker 6: You know, that's the type of attitude that I have,
• 36:15
  Speaker 6: because I mean, you show me your attitude.
• 36:19
  Speaker 2: I'm gonna show you.
• 36:20
  Speaker 6: Man, I'm gonna trust God.
• 36:23
  Speaker 3: You know.
• 36:24
  Speaker 6: It's differ and so I'm still dealing with it.
• 36:28
  Speaker 7: Yes, it's difficult to explain. It's difficult to have to
• 36:31
  Speaker 7: explained because when you see me, you don't know the
• 36:33
  Speaker 7: inner of me. So yes, approach that situation of explaining, well,
• 36:39
  Speaker 7: I have this I deal with and I have this
• 36:40
  Speaker 7: ideal with that's a little that's that's a little hard
• 36:44
  Speaker 7: to kind of do.
• 36:45
  Speaker 2: Yeah, it is, Yeah, I get it. It is so
• 36:52
  Speaker 2: with me.
• 36:53
  Speaker 5: I I I deal with abandonment issues because I was
• 36:57
  Speaker 5: adopted in things of that nature. So now when I
• 37:01
  Speaker 5: meet new people, I lead with with everything. I have
• 37:08
  Speaker 5: spina benefita, I have hydrocephalus, I had an ulcer on
• 37:12
  Speaker 5: my gun and I had.
• 37:13
  Speaker 2: To have all my teeth removed. I show.
• 37:17
  Speaker 5: I mean, the only way you're going to get to
• 37:20
  Speaker 5: know the real need is for me to be able to.
• 37:23
  Speaker 2: I mean, here's the thing.
• 37:25
  Speaker 5: If they're gonna run, they're gonna run. But if they're
• 37:28
  Speaker 5: gonna stay, they're definitely gonna stay. And nothing that goes
• 37:32
  Speaker 5: on with you will make them run. So you know,
• 37:35
  Speaker 5: I don't I don't hide nothing from nobody no more,
• 37:38
  Speaker 5: because I mean, I just anymore.
• 37:42
  Speaker 2: Either. But I think what miss Billy come out, what really.
• 37:47
  Speaker 6: Made me come out of my shelle mm hmm, it
• 37:54
  Speaker 6: is when I started this my YouTube channel, and uh
• 38:03
  Speaker 6: so when I started, you know, talking about spina biffea
• 38:09
  Speaker 6: and things like that. Now I'm very blunt, like, Okay,
• 38:13
  Speaker 6: I have this problem because of spina biffida, and then
• 38:18
  Speaker 6: I find ways to help others that is going through
• 38:20
  Speaker 6: like leakage. You know, sometimes we can't find the hygiene
• 38:25
  Speaker 6: products in the regular stories. We can't use that because
• 38:29
  Speaker 6: it'll knock off our pH balance. So what can we
• 38:34
  Speaker 6: find to help our pH balance in our hygiene you know, so, I,
• 38:41
  Speaker 6: you know, review different products, and now I found something
• 38:44
  Speaker 6: that would that really helps me, you know so, And
• 38:48
  Speaker 6: and then I show them what's in my bag?
• 38:51
  Speaker 2: What do I carry in my bag? I may have
• 38:59
  Speaker 2: to share that I can share right now.
• 39:07
  Speaker 7: I can share right now?
• 39:08
  Speaker 2: Are you? I was low me? LOOI has helped me
• 39:13
  Speaker 2: a lot.
• 39:14
  Speaker 6: Oh wow.
• 39:15
  Speaker 2: And it actually.
• 39:18
  Speaker 6: Lasts for seventy two hours, even though I still take
• 39:21
  Speaker 6: my showers. I'm not gonna test it, but from what
• 39:25
  Speaker 6: I've from what I've I've experienced with Looie, Wow, it's
• 39:33
  Speaker 6: like twelve hours after I took my shower, I still
• 39:37
  Speaker 6: smell good. Even when I start, you know, self capitalizing myself,
• 39:44
  Speaker 6: I still smell good.
• 39:47
  Speaker 2: Listen to pull it up. You know what I'm saying.
• 39:52
  Speaker 5: Yeah, use a lot of over the counter stuff because
• 40:02
  Speaker 5: it irritates bacteria.
• 40:06
  Speaker 3: So that's something I'm struggling with.
• 40:09
  Speaker 2: Yeah, I'm trying.
• 40:11
  Speaker 6: It worked no problem because you know, I wear pull ups,
• 40:16
  Speaker 6: you know, and when it gets hot outside and you know,
• 40:20
  Speaker 6: it's all sweaty and stuff, you can smell it. But
• 40:26
  Speaker 6: loom has blocked that. Like it blocks the older. It
• 40:29
  Speaker 6: doesn't hide the older. It actually blocks the older. And
• 40:34
  Speaker 6: the person that evented evented that uh it's actually uh
• 40:39
  Speaker 6: o be gang.
• 40:43
  Speaker 2: So I was happy about that.
• 40:49
  Speaker 3: I'm questioning that.
• 40:50
  Speaker 2: I thought about it. In closing, I was gonna tell.
• 41:00
  Speaker 5: Miss Done if you can I know that you crochet.
• 41:05
  Speaker 2: Do you sell your work?
• 41:07
  Speaker 5: Oh?
• 41:07
  Speaker 6: Yeah, I sure do?
• 41:12
  Speaker 2: Yes? How can people find you? How can people find you?
• 41:17
  Speaker 7: I show my work on YouTube.
• 41:21
  Speaker 6: I also have a TikTok that's I slay spin a
• 41:26
  Speaker 6: bit for that as well, and Facebook and also Instagram
• 41:35
  Speaker 6: I'm blessed seventy eight eight, so that's how. And you
• 41:43
  Speaker 6: know I also sell it.
• 41:46
  Speaker 3: Your link.
• 41:50
  Speaker 6: Post my link in a chat. I don't know if
• 41:55
  Speaker 6: I can do. Let me see if not?
• 41:59
  Speaker 5: Right now when we get yeah, you can go back
• 42:03
  Speaker 5: and do the comments.
• 42:05
  Speaker 2: Yeah, and I'll tag you so that you're able to.
• 42:11
  Speaker 2: But yeah, I'll do that. How can we.
• 42:15
  Speaker 6: Not a problem?
• 42:17
  Speaker 3: How can you?
• 42:18
  Speaker 2: How can we help Maddie? What can we do to
• 42:22
  Speaker 2: support Mattie?
• 42:25
  Speaker 3: I don't know, man, what what? What? What? What can
• 42:28
  Speaker 3: they do to support you?
• 42:35
  Speaker 5: Can they like answer questions that you're not comfortable asking me?
• 42:47
  Speaker 7: Regardless?
• 42:51
  Speaker 2: Yeah?
• 42:51
  Speaker 3: Yeah, I would just.
• 42:52
  Speaker 5: Say keep sharing because a lot of stuff, like I said,
• 42:56
  Speaker 5: I learned through through platforms like this because because she's
• 43:01
  Speaker 5: young to a lot of stuff I don't know. Yeah,
• 43:03
  Speaker 5: and it's it's good to know, you know.
• 43:05
  Speaker 3: What adult hood may be like for her, So keep sharing,
• 43:10
  Speaker 3: keep answering all my questions.
• 43:12
  Speaker 2: Even we got onto you know, I got you.
• 43:16
  Speaker 7: We got you, regardless of whatever you want to know,
• 43:18
  Speaker 7: we got we got wet. We didn't have this type
• 43:23
  Speaker 7: of system when we were growing up, so to have
• 43:25
  Speaker 7: somebody else to give.
• 43:26
  Speaker 6: No, we did.
• 43:27
  Speaker 7: That's a blessing and a testimony for us.
• 43:31
  Speaker 2: So oh, whatever you need.
• 43:33
  Speaker 7: Any time of the day, you let us know, and
• 43:36
  Speaker 7: we got appreciated.
• 43:39
  Speaker 5: It does not even matter, that's right. We absolutely adore you.
• 43:47
  Speaker 5: And I intended to wear my my Maddy T shirt.
• 43:52
  Speaker 2: But the weather is but she grew out of her camp.
• 43:59
  Speaker 5: If you shirts, wow, So you know we're we're here
• 44:06
  Speaker 5: to support you. We're here to answer any questions that
• 44:10
  Speaker 5: you may have. Like your mom said, if you don't
• 44:13
  Speaker 5: feel comfortable talking to her, just experts our numbers.
• 44:22
  Speaker 2: Yeah, so we're here, right, Yeah, definitely And HM.
• 44:38
  Speaker 5: In closing, I always say that this has been delayed,
• 44:42
  Speaker 5: but not denied. Where you may be delayed, but what
• 44:45
  Speaker 5: God has for you will never be denied unto you.
• 44:48
  Speaker 5: I'll be back on October thirtieth with my guest, missus
• 44:55
  Speaker 5: Lakeisha Trim, and we will be discussing domestic violence.
• 44:59
  Speaker 2: So if you're not doing anything, come check me out.
• 45:05
  Speaker 2: And I do.
• 45:06
  Speaker 5: I thank you all for being here, d D. I
• 45:09
  Speaker 5: thank you for being my co host tonight. You're always
• 45:13
  Speaker 5: there when I need.
• 45:14
  Speaker 7: You to to step in and help out and I
• 45:17
  Speaker 7: appreciate it.
• 45:19
  Speaker 5: And and Don, I appreciate you on Absolutely Wild Don
• 45:25
  Speaker 5: I appreciate you as well. I'm happy that I met
• 45:30
  Speaker 5: you absolutely and.
• 45:33
  Speaker 2: I do plan to have you back again.
• 45:36
  Speaker 6: So okay, okay, no problem, no problem, and thank you
• 45:41
  Speaker 6: for having me.
• 45:43
  Speaker 5: Yeah, we would love to have you back again as well.
• 45:46
  Speaker 5: So I want to thank you all again for watching
• 45:49
  Speaker 5: and for tuning. It's important, it's.
• 45:53
  Speaker 2: Find a bit for that awareness month.
• 45:55
  Speaker 5: And and I will see you guys later, all.
• 46:02
  Speaker 7: Right, Thank you.
• 46:13
  Speaker 3: M