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5 Supplements + 2 Sleep Hacks That Changed My Parkinson’s Routine · Living with Parkinson’s | Bryce Perry

• 0:01
  They told him he had five good years left.
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  That was 15 years ago. He's still standing, still
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  speaking, still living. This is living with Parkinson's,
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  The good, the bad, and the reality.
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  A podcast about what happens when life throws you something
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  incurable and you fight back anyway.
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  Hosted by Bryce Perry, diagnosed at 4015.
• 0:25
  Years into the battle, This is the truth behind the tremor.
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  Let's begin. In episode 5, I shared my
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  medication journey over the past 15 years and the response was
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  incredible. But one of the most common
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  questions I got was this. What else do you take alongside
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  your Parkinson's meds? Supplements.
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  So today, I'm going to share the five things that I take with my
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  Parkinson's medication that have actually helped me and stick
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  around to the very end because I'm going to share the one thing
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  that I regret that I didn't start sooner.
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  And surprisingly, it has nothing to do with supplements.
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  It's, it's been a game changer for me.
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  But just a quick disclaimer, what works for me may not work
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  for you. I'm not a doctor and this is my
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  personal experience. But for you, add anything to
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  your routine. Always check with your doctor to
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  make sure it's right for you. All I know is that, you know,
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  I've been dealing with this for 15 years and I was on a slow
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  pass. This I, I got my meds straight
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  and I got everything figured out.
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  So it took me a little while to start adding the things in, but
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  the very first thing I added in was vitamin D3.
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  So it's a brain, brain and bone booster and it plays a like a
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  place, a critical role in bone strength and immune functions
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  and brain health. And many people with Parkinson's
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  are low in vitamin D and study suggests that low vitamin D
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  levels may be linked to higher risk of newer neurodegenerative
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  diseases. It also helps with bone density,
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  which is really important because as you know, Parkinson's
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  can increase the risk of falls and fractures.
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  So I personally take 25 IE D's. So I'm going to show you this
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  here. It's this is what I'm taking.
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  I don't know if you can see it. Well, this is what this is the
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  one I'm taking right now. So I take one of these a day,
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  one of these a day. And, and really you should
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  really get your levels checked with your doctor and discuss it
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  first. But this is what I'm done.
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  And what I do is you have to take this with a meal as well.
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  So I take this with my dinner, the biggest meal of the day.
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  And so far so good. I really I really like kind of
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  what it's doing for me. I like the effects of it.
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  Again, I'm taking a 2500. I'll I'll link the all of the
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  things I talked about today. I'll put a link in the
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  description below the exact same ones that I'm using.
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  So anyway, it's more than that preventative thing for me with
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  the vitamin D3, but I also feel like I don't get that brain fog
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  as much like I don't it kind of oops.
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  It helps. It helps clear that brain fog
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  for me. So for me it's been it's been
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  really, really important. The next thing that I take is
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  vitamin B12. So this is an energy and a
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  brain, a brain fog fighter. So vitamin B12 is essential,
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  right, for nerve health, brain function and energy levels.
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  And one of the big problems for people with Parkinson's is some
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  of the medications can actually lower your B12 levels.
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  And when you lower that, you're lower your fatigue, sorry, lower
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  your fatigue. When those are lowered, you're
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  more sustainable to fatigue the brain fog, numbness or tingling
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  in the hands and feet, which I I've dealt with all of those,
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  but especially the numbness. And I noticed a huge improvement
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  in my energy and my mental clarity when I added B12 to the
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  routine. So I take with these, I take
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  1000 MC GS of of this B12 and I take it daily and I'll show you
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  the one I'm using right here and I hopefully can see it.
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  OK, This is one that I've got. There it is.
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  That's the one I got. Again, a link in the
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  description. And what I did though, is on
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  this one I'm using the one that is, it's a, it melts in your
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  mouth, right? It, it just, it's a rapid, rapid
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  release. And I put it under my tongue and
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  it, it's very first thing in the morning.
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  So I wake up, I take my, my Parkinson's meds and I put one
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  of these under my tongue. And you can do that with the,
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  with the ones that are the, the, the, the fast release ones or
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  the quick dissolving ones. I should say, if you're going to
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  take non quick dissolving ones, you're going to take a pill,
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  then it's recommended to do it like an hour before or after
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  your Parkinson's medication. So I went with these ones
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  because I have enough trouble remembering how much and when
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  and where and when to take this and when I ate and all that kind
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  of stuff. So for me, it's really, really
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  simple. I just stick it under my tongue.
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  I take it first thing in the morning.
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  I know it's done and and these are not expensive supplements.
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  So this one though too, again, energy levels, I feel higher my
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  brain fog again with the brain fog and just more clarity to it.
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  So that's been really, really, really, really, really good for
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  me. So I would really recommend that
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  for sure. And then vitamin E Vitamin E is
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  an antioxidant and it's for brain protection.
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  Vitamin E is a powerful antioxidant that helps protect
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  brain cells from oxidative stress and inflammation.
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  Oxidative stress is that key factor in Parkinson's disease
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  progression. And some research suggests that
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  antioxidants like vitamin E can help slow that cell damage.
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  And it also supports immune health and skin repair.
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  So it's good for overall Wellness.
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  So I'm taking about 400 i.e. S i.e.
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  I never said this right. 400 ius of vitamin E per day.
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  But with this one, you don't want to overdo it.
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  High doses of vitamin E can increase the risk of bleeding
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  and different things like that. So always check with the doctor
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  before you take it Again, I'll put a link in the description
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  below, but that's been been amazingly helpful to me as well.
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  The fourth thing, the fourth thing that, that, that, and I'm
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  going to throw this one in here and I'm going to kind of throw
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  this at, at it's kind of a, a, a win and not a win, if this makes
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  sense. So the, the 4th supplement that
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  I added to my routine is melatonin.
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  So melatonin is a sleep regulator.
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  And then I'm going to say for some people, so sleep problems
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  are sleep problems are the worst, right?
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  They're the one of the worst symptoms of Parkinson's.
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  And since Parkinson's effects natural melatonin production,
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  many people take melatonin to help regulate their sleep cycle.
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  So melatonin is like a hormone. It's a hormone that your body
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  naturally produces and it produces it to signal that it's
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  time to sleep. With Parkinson's, those signals
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  get disrupted. Now for me personally, melatonin
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  really helped me fall asleep. Like I would literally take it,
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  I take, you know, one or two pills of melatonin every, every
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  night And it, it knocked me out. My problem was I, I, I felt
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  really, really groggy in the morning.
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  Like I was, it was really, really difficult for me.
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  And mornings are again, mornings are hard enough for me that I
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  didn't need to add in something else that was going to stress me
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  out or make my mornings harder. So it was making me really
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  groggy. And, you know, that said, many
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  people swear by it. And so if you struggle, if you
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  struggle falling asleep or staying asleep, melatonin may be
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  worth trying. And again, for me, it really,
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  really helps. Now, I still have melatonin in
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  my house. I still have it here.
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  And if I've gone through three or four days where I'm just
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  can't sleep, I will take it. I mean, I will take it just to
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  get that good night's sleep. So a common starting dose, I
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  started on one milligram of melatonin and I went up to about
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  3. I tried to cut down to two for
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  the grogginess, but again, it didn't seem, it didn't seem to
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  matter if I took 1-2 or three. Maybe just something in my body
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  that that it regulated with. But that right, the right dose
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  depends on how your body responds.
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  So if you want to try melatonin, I've also linked the description
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  link to description. I've linked to the one that I
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  take in the description below. Just again, I just want you to
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  see the first hand, the one that I use, the one that I could say
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  that I would vote for. And the one thing that I just
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  want to make sure you understand where it is.
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  Sometimes it's easier just to to click and go rather Google,
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  Google, Google. I'll also say with the
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  melatonin, you can take like a gummy bear or you can take the
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  the a fast release pill. But one thing I found is that it
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  might take a couple days to kick in and start working.
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  It seems to work best like it stays in your system.
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  So I would experiment with that one.
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  My doctor actually is one that recommended that to me and it's
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  just over the counter. So make sure you you can try
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  that. If you're trouble sleeping, I
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  promise you, take it. It's natural.
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  You don't, it's not like you're taking a sleeping pill just to
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  fall asleep. And now you know.
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  So those are the my supplements that I take, right?
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  So, so the vitamin D, the vitamin B12, the vitamin E.
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  The other thing that I want to share though, is I've got this
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  incredible vitamin E. No, it's not vitamin E.
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  It's a magnesium spray. Now I feel kind of silly sharing
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  this with my wife got this for me.
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  She read about it, she tried she, she got it for me.
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  And to me this has been just amazing.
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  So I'm actually going to show you 2 game changers.
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  I'm going to, I'm going to throw it up here and show you what it
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  looks like. So this is it.
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  It's a magnesium spray, OK, It's a magnesium spray.
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  And what that does what I do is every night when I'm going, when
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  I'm just when I'm going to sleep, I spray the bottom of my
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  feet and I rub my feet together. So I spray this on the bottom of
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  my feet. I rub my feet together and I
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  spray my calves and a little bit of my legs and understand, OK,
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  this is someone who never took pills, that didn't believe in
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  any hokey's pokey. I just, you know, I just did my
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  did my thing. So for me, when she first
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  brought this to me, I'm like, I'm not spraying my feet at
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  night. What in the world is that going
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  to do? Oh my gosh.
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  I'll tell you what it does. It relaxes me.
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  It relaxes my muscles. It's incredible, absolutely
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  incredible. And I know the nights that I
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  don't do it or I forget to do it, I don't sleep as well.
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  So this comes in a 2 pack on Amazon and again, I'll I'll link
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  that description, but I honestly, if you're again
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  trouble sleeping the melatonin, it works for me.
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  It didn't work. I've switched this magnesium
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  spray and Oh my word, I'm telling you, it's amazing.
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  And so that was like my my first game changer.
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  My second one again, it to me super surprising, not a
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  supplement, not a vitamin, nothing like that.
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  So it's the one thing I actually regret that I didn't start
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  sooner and this is what I got. Well, actually, I'll tell you
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  what. Well, I'll tell you what it is.
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  So anyway, most people, they focus on what to do at night to
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  sleep better, right? But what?
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  But what if the real answer to that is actually how you wake
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  up? OK, I started using a light
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  therapy wake up alarm and I couldn't believe how much I
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  sleep better at night. The alarm, it mimics the natural
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  sunlight and it helps your body wake up more gently.
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  And by resetting my body clock in the morning, it actually made
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  it easier to fall asleep at night.
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  You know it's like this, your body has an internal clock,
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  right? A wake up time and go to sleep
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  time. A wake up time and go to sleep
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  time. You know, I used to wake up
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  groggy. I was feeling like I barely
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  slept, but now I wake up, I'm more refreshed and my sleep at
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  night is deeper too. So it helps you reset that cycle
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  that go to sleep, wake up cycle. I'll show you what it looks
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  like. It's pretty cool.
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  It's like a it's like a little oh, jeez, look at that.
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  So if you touch the sides or the top, it comes on.
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  Sorry, comes out very bright. So I'm going to try it comes out
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  really bright. So I'm going to show you in the
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  in the camera what it looks like.
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  So this is my my alarm clock. Oh, Gee, was I'm so sorry.
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  This is live to tape, so screw me up here.
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  OK, I'm going to try to shut it off.
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  I'm going to unplug it, OK, because I because this is
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  really, really cool and it's really neat and it's really
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  important. So this is what it looks like It
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  sits on it sits on my side table of my bed.
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  OK, It's very small and it's an alarm clock.
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  So I set the alarm and what it does is I set it for, you know,
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  whatever time, let's say I want to wake up at 7:30.
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  So I set it for 7:00 and it starts to mimic the sun at 7:00.
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  It comes on very, very, very dim, very dim.
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  And then slowly for that half an hour, it gets a little brighter
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  and a little brighter and a little brighter and a little
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  brighter. By 7:30, it's like the sunlight
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  is just kissing my cheeks. Sounds like a commercial, but
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  I've done that. And again, these are the last
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  two things I'm telling you. I, I was like, man, I'm not
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  doing that, but unbelievable. It's unbelievable.
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  I, I promise those, those two things to me are just like game
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  changers. So again, I've linked that exact
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  light that I got. I've got that on Amazon.
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  I've linked it in in the description or you as well.
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  So I know first hand, right, 15 years into this thing, I know
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  how frustrating Parkinson's symptoms can be.
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  And these are just some of the things that have helped me.
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  So if you've tried any of these or if you take something else,
• 12:54
  some other supplements that help you, drop it in the drop it in
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  the comments below. I'd love to hear about it.
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  I'd love you to share with the community and if you found this
• 13:02
  helpful, hit that like button and subscribe for more
• 13:04
  Parkinson's tips because I'm telling you these things are
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  game changer. When do you start?
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  You start now. Get your meds, get your meds on
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  right. Get the right time.
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  You don't get the right duration, the right time.
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  Add these in now. The sooner you do this, the
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  sooner you're going to start feeling better.
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  Brain fog be gone, right? Waking up better sleeps.
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  Oh my God, do we need that? You know, I really care for you
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  and I'm so excited that you're part of this community.
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  I thank you for watching this, You know, hit that like button
• 13:33
  if you like this and share this with somebody else that you
• 13:35
  know, that might need this. These things will really,
• 13:37
  really, really help you and I'll see you on the next video.
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  Parkinson's may be part of your life, but it doesn't get to
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  define it. Thanks for listening to Living
• 13:53
  with Parkinson's, The Good, the Bad, and the Reality.
• 13:57
  If this episode moved you, helped you, or reminded you
• 14:01
  you're not alone, share it with someone who needs to hear it.
• 14:04
  Want to go deeper? The Inner Circle is waiting.
• 14:07
  Monthly Zoom calls, 24/7 community, and a Direct Line to
• 14:11
  Bryce. You'll find the link in the show
• 14:13
  notes. Until next time, keep showing up
• 14:17
  and keep doing life today.