Latest / Wellness, Actually with Emily Oster & Perry Wilson, MD / How to Talk to Your Doctor About Risk: Lessons from our book, “The Unexpected”
Transcript
- 0:00Speaker 1: This is parent Data. I'm Emily Oster. Many years ago
- 0:09Speaker 1: I got an out of the blue email from a
- 0:12Speaker 1: doctor in New York and he said, Hey, I'm ann Obi,
- 0:17Speaker 1: a maternal fetal medicine specialist actually, and one of my
- 0:20Speaker 1: patients gave me your book, and I really think we
- 0:23Speaker 1: would like each other. I think we agree on a
- 0:25Speaker 1: lot of things. And he attached a paper he had
- 0:28Speaker 1: been writing that agreed with a lot of what I
- 0:30Speaker 1: said in Expecting Better, and he said, next time you're
- 0:33Speaker 1: in New York, let's have lunch. And so a few
- 0:36Speaker 1: months later, I found myself sitting at lunch eating pete
- 0:39Speaker 1: and hummus, across the table from doctor Nate Fox. And
- 0:45Speaker 1: indeed we did see to eye on many things, and
- 0:48Speaker 1: beyond that, we really liked each other. Nate and I
- 0:53Speaker 1: have stayed in touch since then. We wrote a paper
- 0:56Speaker 1: together in a journal, and a couple of years ago,
- 1:00Speaker 1: when I thought about writing a fourth book about complications
- 1:04Speaker 1: after pregnancy, I knew who I would call, and I
- 1:08Speaker 1: called Nate and I remember walking around outside on the
- 1:12Speaker 1: phone pitching him in this idea, Hey, let's write a
- 1:16Speaker 1: book together about pregnancy complications. I don't know exactly what
- 1:19Speaker 1: it'll look like. I don't know exactly how it should
- 1:21Speaker 1: be structured. I don't know exactly what should be in it,
- 1:24Speaker 1: but I know that you're the person I should write
- 1:26Speaker 1: it with. And Nate is always game. Without asking any
- 1:31Speaker 1: more questions, he said yes. And now on April thirtieth,
- 1:37Speaker 1: twenty twenty four, that book is out. The book is
- 1:41Speaker 1: called The Unexpected Navigating Pregnancy During and After Complications, and
- 1:46Speaker 1: I invited Nate on the podcast. This is actually his
- 1:49Speaker 1: second time on the Parent Data podcast to talk about
- 1:53Speaker 1: our book, to talk about why we like to work together,
- 1:56Speaker 1: and to answer some of the questions that people have
- 1:58Speaker 1: asked us about navigating complicated pregnancy. In this conversation, Nate
- 2:05Speaker 1: and I will talk about some of the complications in
- 2:07Speaker 1: the book, will answer some questions, but we're also going
- 2:10Speaker 1: to talk about some bigger picture issues. How do you
- 2:15Speaker 1: have good conversations with your doctor, How do you talk
- 2:19Speaker 1: about especially these hard things when you're both bringing different
- 2:23Speaker 1: kinds of expertise to the table. We're also going to
- 2:27Speaker 1: talk about risk and how we communicate about risk, and
- 2:32Speaker 1: why it's hard to help people understand what a number
- 2:36Speaker 1: like one third or one percent means. Nate and I
- 2:41Speaker 1: have different takes on exactly how to do this, but
- 2:45Speaker 1: just like working on the book together, I feel like
- 2:47Speaker 1: we got to a good place. Nate's one of my
- 2:50Speaker 1: favorite people to talk to. I call him all the time,
- 2:53Speaker 1: and I'm delighted he came on this podcast, but even
- 2:56Speaker 1: more delighted to have him as a partner in this book.
- 2:58Speaker 1: So I hope you enjoy this conversation after the break,
- 3:05Speaker 1: doctor Nathan Fox. Nate Fox, Welcome back to the podcast.
- 3:19Speaker 1: Last time you were here, we talked about the Arrived Trial,
- 3:22Speaker 1: and we are now talking about our new book. You
- 3:27Speaker 1: are my co author and my friend. You're the first
- 3:30Speaker 1: co author I've ever had on this podcast because I
- 3:33Speaker 1: don't write books with other people except for you, So welcome.
- 3:38Speaker 2: I'm delighted to be here. You're the first co author
- 3:41Speaker 2: I've ever been on a podcast with. So that's a coincidence. Yeah,
- 3:46Speaker 2: I since I don't write any books nor go on
- 3:49Speaker 2: many podcasts. So two for two, two for two.
- 3:52Speaker 1: All right, So we're going to talk about our new book,
- 3:54Speaker 1: The Unexpected. Uh, We're going to talk about some complicated
- 3:58Speaker 1: pregnancy situations. We're going to get into all of it.
- 4:01Speaker 1: But before we do that, could you introduce yourself? Tell
- 4:03Speaker 1: us who you are.
- 4:04Speaker 2: I am a Nate Fox. I am a Obigu, I
- 4:08Speaker 2: n and maternal fetal medicine specialist. I practice in New
- 4:12Speaker 2: York City. I live in New Jersey. I have a wife,
- 4:15Speaker 2: four children, and two dogs. And you are my hero.
- 4:20Speaker 2: And I actually wanted to throw something at you.
- 4:23Speaker 1: Your payment is in the mail for that, Thank you, Nate.
- 4:25Speaker 2: Yeah, Professor, I want to throw something at you. How
- 4:28Speaker 2: did that taste going up? Having to share a book
- 4:30Speaker 2: with someone? Okay, so let's you're kind of a control
- 4:35Speaker 2: kind of person with your writing. Not in a bad way,
- 4:39Speaker 2: I mean in a good way. You're amazing. But we've
- 4:41Speaker 2: never had to do this before, to sort of work
- 4:43Speaker 2: with someone, So I'm curious how that worked for you.
- 4:46Speaker 1: Okay, so listen to back up. Nate and I have
- 4:50Speaker 1: a new book together. It's called The Unexpected Navigating Pregnancy
- 4:54Speaker 1: During and After Complications, and it's about navigating pregnancy complication
- 5:00Speaker 1: ranging from miscarriage to hyperemesis to preterm birth. And the
- 5:06Speaker 1: origin of this book is, so I want to write
- 5:09Speaker 1: this book because people ask me about these things quite
- 5:12Speaker 1: a lot, and I did not think that I could
- 5:15Speaker 1: write it by myself because there's a lot of complicated
- 5:18Speaker 1: medical stuff in Aaron. Actually, it turns out I think
- 5:21Speaker 1: what you brought to the table is very different than
- 5:22Speaker 1: what I thought you would bring to the table, which
- 5:25Speaker 1: I can say more about, but it's very But you're right.
- 5:29Speaker 1: I am not a group project kind of girl, you know.
- 5:33Speaker 1: I'm more of a like tell everyone a job that's
- 5:37Speaker 1: not important, and then they do it, and then you
- 5:39Speaker 1: do the whole thing and put the small numbers of
- 5:42Speaker 1: things that they did. You know, like, do you work
- 5:44Speaker 1: on group projects in middle school?
- 5:47Speaker 2: That was like my moo, yeah, I've been in that predicament.
- 5:51Speaker 2: I've gotten I have improved over my lifetime in group projects,
- 5:57Speaker 2: because medicine is a lot of group projects, like in
- 6:00Speaker 2: a good way, but when I was in middle school
- 6:02Speaker 2: it's the same way. I was like, can you just
- 6:04Speaker 2: all get out of my way and let me do
- 6:06Speaker 2: my thing and we'll do fine.
- 6:08Speaker 1: So that's my own I feel that I've improved over time,
- 6:10Speaker 1: but I'm not sure that other people would necessarily say that.
- 6:14Speaker 1: But you were the first person I thought of to
- 6:17Speaker 1: write this book with because we've written together before. We've
- 6:19Speaker 1: written a paper together, and I think you're great and
- 6:24Speaker 1: you're actually you turned out to be like far easier
- 6:26Speaker 1: to work with than I thought you would be. And
- 6:28Speaker 1: the main thing is that you're very fast. Ah, you're
- 6:32Speaker 1: like you do always do the things. You're not a
- 6:35Speaker 1: like a malingerer.
- 6:37Speaker 2: I'm not a doctor. What you're saying, No, listen, I agree.
- 6:42Speaker 2: I think that we had a very good working rapport
- 6:45Speaker 2: because a lot of things about us are similar. We
- 6:48Speaker 2: both answer our emails too quickly. Like before, is.
- 6:53Speaker 1: We're like in our email we're like living in our computers.
- 6:56Speaker 2: Yes, yeah, so we answer emails quickly and we do
- 6:58Speaker 2: things well before the deadline, and we're both like that.
- 7:02Speaker 2: But it's it is interesting. I will say, just from
- 7:05Speaker 2: my perspective, I loved writing the book with you. First
- 7:09Speaker 2: of all, you're you're a professional. You're really good at this.
- 7:11Speaker 2: I'm not blowing smoke up here, but everyone knows you're
- 7:13Speaker 2: awesome at this. And so it's a little intimidating to
- 7:17Speaker 2: work with someone who's so good at this because I'm
- 7:21Speaker 2: I'm not down on myself. I'm a lovely person. I
- 7:23Speaker 2: think I'm a bright guy. I'm a good doctor, but
- 7:25Speaker 2: I'm not a writer. Like it's not what I do,
- 7:27Speaker 2: and so it's a little intimidating to go into a
- 7:29Speaker 2: process with someone. I'm like, oh my god, I'm gonna
- 7:31Speaker 2: be terrible, I'm gonna suck. I'm on to like colder
- 7:33Speaker 2: back and this or that. But whether I did or didn't,
- 7:36Speaker 2: you were very gracious and you're always very encouraging and
- 7:41Speaker 2: did not make me feel that way. Either because I
- 7:44Speaker 2: didn't deserve to feel that way, or because you were
- 7:45Speaker 2: kind enough not to make me feel the way, I
- 7:47Speaker 2: don't really care. Either one is fine. But it was
- 7:50Speaker 2: really a delight, And I could say that I've actually
- 7:53Speaker 2: always toyed around with writing a book. Years ago, I
- 7:57Speaker 2: said I want to write a book, but you know,
- 8:00Speaker 2: I mean, well, I'm not gonna write a book, right,
- 8:01Speaker 2: So I thought I would, and I was one of
- 8:04Speaker 2: the things I really really wanted to talk about in
- 8:06Speaker 2: a book was not so much like nuts and bolts
- 8:10Speaker 2: medical type books. I've written medical chapters before for textbooks,
- 8:14Speaker 2: but not that that's not writing that's like that's horrifying,
- 8:17Speaker 2: but writing to people who see doctors to try to
- 8:22Speaker 2: give them an insight as to like how do you
- 8:25Speaker 2: know what to do? Like what to ask? How do
- 8:28Speaker 2: you know if your doctor is any good? Right, how
- 8:31Speaker 2: do you know if like this is productive or not,
- 8:34Speaker 2: Because I mean, you know if your doctor's nice, and
- 8:37Speaker 2: you know if their office is clean, and you know
- 8:38Speaker 2: if they run on time, and you know if they're
- 8:40Speaker 2: building departments annoying like you know those things, but you
- 8:42Speaker 2: have no idea if your doctors any good. You could
- 8:45Speaker 2: see a diploma on the wall, but the correlation between
- 8:48Speaker 2: that and a good doctor is very minimal, right, And
- 8:53Speaker 2: it's hard legitimately, Listen, I'm I'm also a patient, rite
- 8:56Speaker 2: and my wife's a patient, my kids are patients. I
- 8:59Speaker 2: don't know if are doctors are good. It's very, very hard.
- 9:01Speaker 2: And so that was something I always wanted to do,
- 9:04Speaker 2: and when this project came along, it actually worked out
- 9:07Speaker 2: perfectly because it's what we both wanted to do from
- 9:10Speaker 2: different angles, and so I think one of the reasons
- 9:12Speaker 2: it was really fun in that sense for me.
- 9:15Speaker 1: So let me give people a little bit of a
- 9:17Speaker 1: sense of what the book is. What the book is like.
- 9:20Speaker 2: The book is awesome.
- 9:22Speaker 1: Well, first of all, it's great, So I mean, so
- 9:25Speaker 1: this is a book about navigating pregnancy after complications, and
- 9:29Speaker 1: I think we really have written it with the idea
- 9:30Speaker 1: that you know, people have had a complication in one
- 9:33Speaker 1: pregnancy and thinking about how to navigate another one. And
- 9:36Speaker 1: we say this in the book, but about fifty percent
- 9:38Speaker 1: of pregnancies either ended or include one of the complications
- 9:42Speaker 1: that we talk about here, so it's a pretty large
- 9:43Speaker 1: share of pregnancies. And what the book does is there's
- 9:48Speaker 1: some sort of general material at the top to try
- 9:50Speaker 1: to help people think about what kinds of information they
- 9:52Speaker 1: should have out of their medical records and how to
- 9:54Speaker 1: kind of navigate their way into that. And then there
- 9:56Speaker 1: are a series of chapters which in which first sort
- 10:00Speaker 1: of there's the there's Emily talking about the answers to
- 10:04Speaker 1: many of the questions I get, which are like, will
- 10:07Speaker 1: this happen again, what's the risk of recurrence? What kind
- 10:09Speaker 1: of treatments are there? Can you help me just understand
- 10:12Speaker 1: what this complication is? And then there's your part of
- 10:16Speaker 1: the chapter, which is about how do I have a
- 10:18Speaker 1: conversation about this with my doctor? In the case of
- 10:22Speaker 1: many of these complications, probably all of them, there's not
- 10:26Speaker 1: like one answer. It's not like if this happened, like
- 10:29Speaker 1: for sure, this is what we'll do next time, and
- 10:31Speaker 1: everything will be fine, and you know, thanks for the data.
- 10:35Speaker 1: A lot of it is about the nuances of a
- 10:37Speaker 1: particular case and the just the details of how to
- 10:42Speaker 1: move through it. And so this the thing that I
- 10:45Speaker 1: think we get out of your parts of the book
- 10:47Speaker 1: are just how to navigate those conversations. And I will
- 10:51Speaker 1: say I had a conversation the other day with someone
- 10:53Speaker 1: who who sort of works in birth trauma and who
- 10:56Speaker 1: was very influential for me and thinking about writing this book.
- 11:00Speaker 1: She said, I started reading this book and I thought,
- 11:03Speaker 1: you know, this is going to be kind of like
- 11:04Speaker 1: expecting better but for complications, and this is going to
- 11:07Speaker 1: be a great resource. And I'm you know, I'm glad
- 11:09Speaker 1: that this is going to be available. And then she said,
- 11:11Speaker 1: but actually the book is so much better than that,
- 11:13Speaker 1: because Nate's parts are so great, and like your parts
- 11:17Speaker 1: are fine, I expected them to be like they are.
- 11:19Speaker 1: But this additional piece is the most important thing in
- 11:23Speaker 1: the book. So for me, that's it's part of what
- 11:26Speaker 1: I didn't expect you to bring to the table. And
- 11:29Speaker 1: I do think it's probably among the strongest pieces of
- 11:31Speaker 1: the book.
- 11:32Speaker 2: Oh that's very touching, you know. I think that in
- 11:37Speaker 2: terms of the book itself, it seems like it's written
- 11:41Speaker 2: for people who had a pregnancy that didn't go well
- 11:45Speaker 2: or had a bump in the road and they're trying
- 11:47Speaker 2: to figure out what to do next time around. That's
- 11:49Speaker 2: sort of like I would say, the surface level, and
- 11:51Speaker 2: that's probably the bulk of people who are going to
- 11:53Speaker 2: get this book. It's for that reason, but I would
- 11:56Speaker 2: argue that, in fact, it's much more than that. And
- 12:00Speaker 2: number one, if someone is fortunate enough to never have
- 12:03Speaker 2: had a pregnancy with a complication, which is actually unusual,
- 12:07Speaker 2: but let's say that's the case, everyone knows someone who
- 12:09Speaker 2: had a pregnancy with a complication. Everybody knows someone it
- 12:12Speaker 2: may be their sister or their friend, whatever. And I
- 12:16Speaker 2: think that this book is also written in a way
- 12:19Speaker 2: to help people understand what their circle of people have
- 12:24Speaker 2: gone through and to just give an appreciation for that
- 12:26Speaker 2: and what they're thinking and what their fears are and
- 12:28Speaker 2: what their concerns are. And I think also just in general,
- 12:33Speaker 2: since the complications are so ubiquitous, we're talking about. This
- 12:38Speaker 2: is not crazy things that no one's ever heard of,
- 12:40Speaker 2: or talking about miscarriage, pre term birth, like bleeding. I
- 12:45Speaker 2: mean things that so many people have in pregnancy, and
- 12:49Speaker 2: people talk about this really gives people an understanding of
- 12:53Speaker 2: them or of pregnancy at a much higher level. So
- 12:55Speaker 2: even someone has never been pregnant or is never going
- 12:57Speaker 2: to be pregnant, it's sort of interesting in that sense
- 13:00Speaker 2: to understand it. And I think on the deepest level,
- 13:03Speaker 2: what I was trying to bring to the table is
- 13:07Speaker 2: also even for someone who's not literally never going to
- 13:11Speaker 2: be pregnant. Right, you're talking about the single guide, right,
- 13:13Speaker 2: whatever it is. It really I try to get into
- 13:17Speaker 2: that concept of what's happening when you're with your doctor
- 13:21Speaker 2: and why it's so complicated and why it's so rich,
- 13:25Speaker 2: Like it's a relationship. It's not like chat GBT when
- 13:30Speaker 2: you plug something in and you get back a response.
- 13:32Speaker 2: It involves personalities, it involves emotions, it involves nuance. And
- 13:38Speaker 2: although this is related to pregnancy obviously, and that's sort
- 13:41Speaker 2: of the framework we use, the principles are very broad
- 13:46Speaker 2: and that's sort of when I was thinking, it's not
- 13:48Speaker 2: just you know, nuts and bolts, it's sort of high
- 13:51Speaker 2: level what's happening in these meetings, And this would be
- 13:55Speaker 2: I would think relevant for anybody about to see a
- 13:58Speaker 2: doctor for a question, how do I think about it,
- 14:00Speaker 2: How do I talk about it? What am I looking for?
- 14:02Speaker 2: How do I know if they're answering my questions? Because
- 14:05Speaker 2: that's that's like the golden question out there.
- 14:08Speaker 1: I mean, I think there's a sense in which patients
- 14:10Speaker 1: bring one kind of expertise and doctors bring in other
- 14:13Speaker 1: kinds of expertise, and some of these conversations are about
- 14:15Speaker 1: kind of how do we bring those together, And it's
- 14:19Speaker 1: hard to bring those together if patients don't know about
- 14:23Speaker 1: what's going on, and it's hard to bring those together.
- 14:25Speaker 1: On the other side of doctors are kind of not
- 14:28Speaker 1: prepared to have nuanced conversations that involve patient preferences. And
- 14:32Speaker 1: so I think the book is the book is a
- 14:34Speaker 1: little bit about scaffolding those conversations, as you say, like
- 14:37Speaker 1: in any setting, all though you know the particular examples
- 14:40Speaker 1: are in this complicated pregnancy space. I don't know. I
- 14:43Speaker 1: feel like it's kind of interesting for the two of
- 14:45Speaker 1: us to write that, because that is effectively what we
- 14:47Speaker 1: try to do working together, is like recognize that, like
- 14:50Speaker 1: you have a set of expertise that I don't have
- 14:52Speaker 1: it I have a set of expertise that you don't have,
- 14:54Speaker 1: and like we're trying to bring them together to kind
- 14:56Speaker 1: of work as a team.
- 14:57Speaker 2: Yeah, I mean it's part of the you know, this
- 15:01Speaker 2: very loaded and confusing term that people use, which is
- 15:05Speaker 2: shared decision making, right, And in medicine, that's like a
- 15:09Speaker 2: that's a big thing now, right, I hear it, you know,
- 15:12Speaker 2: with the residents and the med students, the shared decision making.
- 15:14Speaker 2: And I always say, like, what do you mean by that,
- 15:17Speaker 2: Like that's a very sounds great, right, We're sharing, sharing
- 15:21Speaker 2: is caring, right, it sounds delightful, But how does that
- 15:24Speaker 2: work in practice? Because in practice, you know, the patient
- 15:29Speaker 2: is the person who knows herself the best, her personality,
- 15:32Speaker 2: her wants, her wishes, her fears, her experiences. I don't
- 15:37Speaker 2: know anything about that, right. I may have an insight
- 15:39Speaker 2: just by talking to her and knowing her, but she
- 15:41Speaker 2: knows herself way better than I know her, and I
- 15:44Speaker 2: know the medical side, right. I don't expect her to
- 15:46Speaker 2: know the medicine like she may have been a great Googler,
- 15:48Speaker 2: but you know, I went to medical school at the
- 15:51Speaker 2: training I do this for a living. And so the
- 15:53Speaker 2: best part of shared decision making is she brings to
- 15:57Speaker 2: the table her expertise, about herself, and I bring to
- 16:01Speaker 2: the table my expertise about the medical side, and we
- 16:04Speaker 2: try to use both of those expertise together to come
- 16:08Speaker 2: up for the right answer for what to do for her,
- 16:11Speaker 2: to individualize it. That's how it should be. But what
- 16:14Speaker 2: ends up happening is people say share decision making, and
- 16:17Speaker 2: then what ends up happening is the doctor says, well,
- 16:20Speaker 2: you can do AB or C and it's your choice,
- 16:23Speaker 2: and some people are like, great, I get to choose,
- 16:25Speaker 2: and other people are like, what the hell I don't know?
- 16:26Speaker 2: Like how am I supposed to know? Like if my
- 16:28Speaker 2: plumber sets, you can't you go to a business caol
- 16:30Speaker 2: Like I mean literally, if my plumber set to me, well,
- 16:33Speaker 2: you know, we could use copper pipes or we can
- 16:35Speaker 2: use plastic pipes, what do you want? I'd be like,
- 16:38Speaker 2: what do I look like a plumber? Like, I have
- 16:39Speaker 2: no idea. You tell me what's better. Now, if the
- 16:41Speaker 2: plumber set to me for my expertise, the copper pipes
- 16:44Speaker 2: and maybe false, but the copper pipes are more expensive,
- 16:48Speaker 2: but they're gonna last ten years, whereas the plastic pipes
- 16:50Speaker 2: are less expensive in the last three years. And I
- 16:53Speaker 2: know how much money I have whether I'm leaving house
- 16:55Speaker 2: in three years, how much it bothers me to have
- 16:57Speaker 2: a plumber come back. And so that's shared decision making.
- 17:00Speaker 2: We've just said, here are your choices, let me know
- 17:01Speaker 2: what you want. That's not shared decision making, and that's
- 17:04Speaker 2: what ends up happening a lot, and it's very frustrating
- 17:07Speaker 2: both for doctors and for patients when it's not done
- 17:11Speaker 2: in the ideal setting or an ideal way.
- 17:13Speaker 1: I would say, yeah, I think one of the nuances
- 17:16Speaker 1: of those conversations is that who's whose expertise should get
- 17:21Speaker 1: more weight depends quite a lot on what is the
- 17:24Speaker 1: decision that you are making. So you know, if I'm
- 17:27Speaker 1: in the this experience, you know eight months ago where
- 17:30Speaker 1: I was in the er, like I had a bike accident,
- 17:32Speaker 1: like an accident with a bike. I was running, they
- 17:34Speaker 1: were biking, and I ended up in.
- 17:36Speaker 2: The hospital with liked by a bike.
- 17:38Speaker 1: That makes it sound like it was the bike's faut,
- 17:40Speaker 1: whereas it was really more of a joint fault. But anyway,
- 17:42Speaker 1: I ended up in the hospital with an elaceration in
- 17:44Speaker 1: my head, and in that moment, like I don't my
- 17:47Speaker 1: expertise in my own feelings about like my head and
- 17:50Speaker 1: so on, it's really not relevant. Like the question is
- 17:52Speaker 1: like somebody used to figure out if you have a
- 17:55Speaker 1: skull fracture or not, and that's the that's the doctor's expertise,
- 17:58Speaker 1: and you kind of have to defer. And then there
- 18:01Speaker 1: are settings in which it's almost entirely about patient preferences.
- 18:04Speaker 1: One of the ones we've talked about various places is
- 18:06Speaker 1: like what kind of genetic testing people want? So, if
- 18:08Speaker 1: you're pregnant, you want some genetic testing, that's really a
- 18:12Speaker 1: lot about what would you do with that information? What
- 18:14Speaker 1: are the you know, what are your feelings about the
- 18:17Speaker 1: results out of that? And the doctor can provide information
- 18:19Speaker 1: about what you learn from the test, but ultimately the
- 18:21Speaker 1: patient preferences really win. And then there are many things
- 18:24Speaker 1: in the middle where there's a combination of kind of
- 18:27Speaker 1: expertise about your medical situation and what's possible with you know,
- 18:30Speaker 1: what does patient preference look like?
- 18:33Speaker 2: Yeah, one hundred percent. And I think that again, it
- 18:36Speaker 2: always depends on the context. When I'm teaching the residents
- 18:39Speaker 2: and they have a patient who's coming in AND's got
- 18:42Speaker 2: some problem, and I always say to them, what do
- 18:45Speaker 2: you want to do? Right? Because they'll present the patient
- 18:48Speaker 2: and the goal of it is not for them presented
- 18:51Speaker 2: to me to tell them what to do. It's like teaching,
- 18:53Speaker 2: says he what would you like to do? And frequently
- 18:56Speaker 2: what I get back as well, we could do this,
- 18:58Speaker 2: we could do this, or we could do this, And
- 19:00Speaker 2: I would say, okay, I'm aware of the choices, tell
- 19:04Speaker 2: me what do you want to do? And they get
- 19:08Speaker 2: very uncomfortable, right, because what happens is earlier medical training,
- 19:12Speaker 2: you know, many many years ago, it was very paternalistic, right,
- 19:16Speaker 2: and doctors were basically trained you're the doctor, you're the professional.
- 19:21Speaker 2: You're going to tell your patient what to do, and
- 19:23Speaker 2: he or she's going to listen to you or they're
- 19:25Speaker 2: horrible people, right, And that's sort of how the it
- 19:27Speaker 2: went in medicine, and there has been a pushback against that,
- 19:30Speaker 2: I think in a good way. But now I think
- 19:32Speaker 2: it's the pendulum is sort of gone the other way
- 19:34Speaker 2: where people are being trained in medicine patient autonomy. He
- 19:39Speaker 2: should make the choice, she should make the choice. You know,
- 19:41Speaker 2: present them with options and they'll choose. But neither is
- 19:45Speaker 2: really correct. It depends on the circumstances, right, And so
- 19:49Speaker 2: if the patient's hemorrhaging. I'm not going to say, you know,
- 19:53Speaker 2: which medication would you like for me to help you
- 19:55Speaker 2: stop hemorrhaging? Like then I'm an idiot, right and like
- 19:59Speaker 2: I'm a terrible doct But for things like genetic testing,
- 20:02Speaker 2: if I tell her you're going to do a B
- 20:04Speaker 2: and C, that's also really not good. And so you
- 20:07Speaker 2: have to sort of know the situation. You got to
- 20:10Speaker 2: read the room in a sense like you have to
- 20:12Speaker 2: read the room is what does he or she want
- 20:14Speaker 2: do they want you to be a little bit more
- 20:16Speaker 2: tell me what to do versus give me choices, and
- 20:19Speaker 2: what is the decision that we're making call for?
- 20:21Speaker 1: So there's a sort of class example of shared decision
- 20:24Speaker 1: making I want to talk about here, which is sort
- 20:25Speaker 1: of how should people think about a vback about a
- 20:28Speaker 1: vaginal birth after cesarean And so this is a case
- 20:31Speaker 1: in which someone has had at least one let's say
- 20:34Speaker 1: they've had one cesarean section with their first birth. They're
- 20:37Speaker 1: thinking about the what to do birth wise for the
- 20:42Speaker 1: second birth. So there's an option which is to try
- 20:45Speaker 1: for a vaginal birth. There's another option to have a
- 20:47Speaker 1: REPEATZ section, And this is something we talk a lot
- 20:49Speaker 1: about in the book to a little bit different than
- 20:51Speaker 1: some of the other complications in the book because it's
- 20:53Speaker 1: not a cesarean section, is not sort of properly a
- 20:56Speaker 1: pregnancy complication the way preterm birth or preclampsia is. But
- 21:00Speaker 1: it is something we wanted to include because many people
- 21:03Speaker 1: wonder about this in a subsequent pregnancy when they've had
- 21:05Speaker 1: a C section the first time. So let's just let's
- 21:09Speaker 1: do a little doctor. Let's do a little doctrine eight.
- 21:11Speaker 1: So I come in, I say, you know, I've had
- 21:14Speaker 1: I had a C section in my first berth. I'm
- 21:15Speaker 1: trying to decide about this next berth. What are you
- 21:19Speaker 1: asking me?
- 21:20Speaker 2: Right? So? I mean, essentially this is the paradigm of
- 21:24Speaker 2: the shared decision making, because there is something medical that
- 21:29Speaker 2: I need to know and I need to weigh in on. So,
- 21:31Speaker 2: for example, what kind of sea section did you have? Right?
- 21:35Speaker 2: Meaning what kind of incision on the uterus? Ninety nine
- 21:38Speaker 2: percent of people have a sea section have what we
- 21:40Speaker 2: call a low transverse incision, which means it was low
- 21:43Speaker 2: down on the uterus, I meaning towards the bottom of
- 21:45Speaker 2: uterus versus towards the top, and transverse means the incision
- 21:48Speaker 2: goes side to side versus up and down. If you
- 21:51Speaker 2: had that type of incision, then in the next pregnancy,
- 21:55Speaker 2: if you try to labor, your risk of a uterine
- 21:57Speaker 2: rupture is bullpark one percent slightly less, but let's just
- 22:00Speaker 2: say one percent because it's an easy number. Versus if
- 22:03Speaker 2: you had the other type, it's much higher. So I
- 22:06Speaker 2: need to know that right from a medical side to
- 22:08Speaker 2: tell you whether it's even on the table to try
- 22:11Speaker 2: to deliver vaginally, because whether it's possibly safe or unsafe.
- 22:15Speaker 2: Next is what were the circumstances of your sea section?
- 22:18Speaker 2: Why did you have the C section? Was it because
- 22:20Speaker 2: you had a six pound baby and pushed for eight
- 22:22Speaker 2: hours and the baby didn't come out right? That's a
- 22:24Speaker 2: little bit like sort of doesn't sound as good for
- 22:28Speaker 2: your future prospects, although it's not definitive versus I had
- 22:32Speaker 2: totally healthy pregnancy, but since it was twins and they
- 22:35Speaker 2: were both breached, they said to do a sea section.
- 22:37Speaker 2: And no, that's not so much related to the risk
- 22:41Speaker 2: in the next pregnancy, but the likelihood of success in
- 22:44Speaker 2: the next pregnancy, meaning with success being defined as a
- 22:47Speaker 2: vaginal delivery, although obviously success is healthy mother, healthy baby,
- 22:50Speaker 2: but we're talking specifically about this. So for me, based
- 22:54Speaker 2: on her history, based on maybe reviewing her records, maybe
- 22:57Speaker 2: an examination her, maybe an ultra whatever, some tests I'm
- 23:01Speaker 2: going to what I bring to the table is, all right,
- 23:03Speaker 2: here's the likelihood that if you tried, you would be successful.
- 23:08Speaker 2: Is it fifty percent, seventy percent, ninety percent, whatever it is.
- 23:11Speaker 2: And what is the risk to you if you tried?
- 23:15Speaker 2: Is it in that one percent rangers and much higher?
- 23:17Speaker 2: That's what I bring to the table. But what she
- 23:19Speaker 2: brings to the tables what does she want?
- 23:22Speaker 3: Right?
- 23:22Speaker 2: And so I always ask her at the beginning of
- 23:24Speaker 2: this an addition to those questions, I say, what are
- 23:26Speaker 2: you looking for? Like, what is it you're trying to
- 23:28Speaker 2: get here? Are you looking to try to have a
- 23:30Speaker 2: vagual delivery? Are you looking for a repeat C section?
- 23:34Speaker 2: Do you have no idea? And you want to sort
- 23:36Speaker 2: of learn about each of those. And I need to
- 23:37Speaker 2: see what she wants and what are her fears, and
- 23:40Speaker 2: I'll have the same sort of clinical circumstances. Let's say,
- 23:44Speaker 2: and one person says, I really really want to try
- 23:47Speaker 2: v back and I'm willing to accept certain risks and
- 23:50Speaker 2: certain you know, likely to success. And son Elsa's like,
- 23:53Speaker 2: I want no part of that. I want to repeat
- 23:54Speaker 2: C section. And those are both good decisions right in
- 23:57Speaker 2: my opinion. So you have the same facts on the
- 24:00Speaker 2: table from my end, but they lead to different decisions
- 24:03Speaker 2: because the facts on the table from her end are
- 24:06Speaker 2: different what she wants and vice versa. I could have
- 24:09Speaker 2: two women who want the same thing, but they're going
- 24:13Speaker 2: to have different numbers on my end, and one of them,
- 24:14Speaker 2: I'll say, you have a fifty percent chance of success,
- 24:16Speaker 2: and the other one you have a ninety plus chance
- 24:19Speaker 2: of success, and so then they may decide differently. And
- 24:21Speaker 2: so that's really how shared decision making is supposed to work,
- 24:26Speaker 2: and unfortunately it doesn't either because the doctor's not doing
- 24:32Speaker 2: their job by getting the right information or inquiring what
- 24:36Speaker 2: does she wanted and getting her opinion, or because potentially
- 24:40Speaker 2: it's trying to be done. But let's say the hospital
- 24:43Speaker 2: doesn't have an option for vback, so it's it's irrelevant
- 24:45Speaker 2: almost in a sense. And there's a lot of stuff
- 24:47Speaker 2: that goes into that. But that's what we're trying to
- 24:50Speaker 2: get at this book, to help people create those kinds
- 24:53Speaker 2: of conversations or find someone who can have that conversation
- 24:58Speaker 2: with you so you can come to a good desis.
- 25:00Speaker 1: So how long do you think that conversation should take?
- 25:04Speaker 2: Should it? Literally? It could take It could be as
- 25:07Speaker 2: short as five to ten minutes. It does not have
- 25:09Speaker 2: to be very long. If someone doesn't want to labor
- 25:12Speaker 2: and just wants to repeat sea section, it could be
- 25:15Speaker 2: two minutes, just because I have to make sure she
- 25:16Speaker 2: understands that there's risks to a sea section, that it's
- 25:18Speaker 2: not you know, you know, unicorns and rainbows like sea sections.
- 25:22Speaker 2: She should know she had a prior sea section, but
- 25:23Speaker 2: just you know, for example, I'll say how many kids
- 25:28Speaker 2: do you want to have? If she says nine, right,
- 25:30Speaker 2: then the second delivery, whether it's a vaginal or sea section,
- 25:33Speaker 2: is going to have a lot more implication for her
- 25:35Speaker 2: future health because if she has her second, she'll end
- 25:38Speaker 2: up with nine sea sections, where if she delivers vaginally,
- 25:40Speaker 2: it might be one sea section followed by eight vaginal birds.
- 25:43Speaker 2: So but short of that, it could be very very short.
- 25:46Speaker 2: Sometimes it's very very long. Sometimes we're working through what
- 25:49Speaker 2: does she wants, what are the risks, what does this mean,
- 25:51Speaker 2: what does that mean? What would happen if what would
- 25:53Speaker 2: happen if and that's fine, and it's rarely not that long.
- 25:57Speaker 2: If everyone comes to the table with sort of a
- 26:00Speaker 2: mutual understanding and what we're trying to do.
- 26:03Speaker 1: And I think for me, that is a lot of
- 26:04Speaker 1: what I'm trying to deliver with this book, because it
- 26:09Speaker 1: feels often as a patient that once time is quite limited.
- 26:13Speaker 3: You know.
- 26:14Speaker 1: I think if there are circumstances in which you can
- 26:16Speaker 1: get much more time with your doctor, but a lot
- 26:18Speaker 1: of us we're looking at, you know, fifteen minutes at
- 26:21Speaker 1: a visit, and that's not very much time. And if
- 26:23Speaker 1: you come in better informed, with a sense of your
- 26:27Speaker 1: questions and a sense of what you are trying to
- 26:29Speaker 1: get out of the visit or what the choices even
- 26:33Speaker 1: might be, it can make those conversations, yeah, more productive.
- 26:37Speaker 2: And I think this book is.
- 26:38Speaker 1: Really about kind of okay, let's get enough background knowledge
- 26:41Speaker 1: and kind of come into that conversation in the right way.
- 26:44Speaker 2: You and I are both lovers of efficiency, and so
- 26:48Speaker 2: it definitely makes it more efficient. One of the nice
- 26:50Speaker 2: things about vback is it's rarely something that has to
- 26:55Speaker 2: be made on the spot, meaning you can have that
- 26:57Speaker 2: conversation early and see how it evolves also part of
- 27:00Speaker 2: the ongoing data. Right. Someone might normally be someone who
- 27:05Speaker 2: wants to have a feedback, but then they find out
- 27:06Speaker 2: later and pregnancy the estimated weighs ten pounds, and they
- 27:09Speaker 2: may feel differently about that, or vice versa. They may
- 27:12Speaker 2: be someone who said, you know what, I really don't
- 27:14Speaker 2: want to take that risk or that and I really
- 27:16Speaker 2: prefer a sea section. But then a week before her
- 27:18Speaker 2: schedule see section, she comes in labor and she's eight
- 27:20Speaker 2: centimeters dilated and the head's like low on the pelvist.
- 27:23Speaker 2: So like, wait, like now the data has changed, we
- 27:25Speaker 2: can maybe revisit this. There are other conversations at a
- 27:28Speaker 2: little more time specific, like genetic testing. And I'll tell
- 27:32Speaker 2: you that when I lecture a lot about genetic testing,
- 27:35Speaker 2: and it's like one of the things I talk about,
- 27:37Speaker 2: and so many people they say, and it's true, this
- 27:40Speaker 2: is so hard, like this is such complex stuff. No
- 27:43Speaker 2: one understands this. How could you possibly have a conversation
- 27:47Speaker 2: with your doctor or doctor of a conversation with patient
- 27:50Speaker 2: and put them in a level that they can understand
- 27:52Speaker 2: this And the answer is they can't. That's true. You
- 27:55Speaker 2: know you need an hour, let's say, But if someone
- 27:58Speaker 2: has a basic understanding what we're talking about, and the
- 28:02Speaker 2: person who's doing the counseling, the doctor, the genet counselor
- 28:05Speaker 2: really is focusing on what we're trying to answer, it
- 28:10Speaker 2: doesn't take that long because you can sort of hone
- 28:12Speaker 2: in on the question, you know, like if your risk
- 28:15Speaker 2: were one percent, does that number seem scary to you
- 28:18Speaker 2: or reassuring to you? Like it's a very simple question
- 28:21Speaker 2: that people can answer, and I'll tell them, like, you know,
- 28:23Speaker 2: if all your testing is normal, you're non evasive testing,
- 28:25Speaker 2: you're ultrasound this your risk of a baby with Down
- 28:27Speaker 2: syndrome is very very low, one in ten thousand, but
- 28:29Speaker 2: your risk of any genetic conditions one percent? Does that
- 28:33Speaker 2: number reassure you or scare you? And if it reassures you,
- 28:37Speaker 2: get up and leave like you're done, have a good day.
- 28:39Speaker 2: Whereas if that terrifies you, you should be thinking about
- 28:41Speaker 2: a CBS or an amnio. And that's a very straightforward
- 28:45Speaker 2: question that most people can answer. Not everybody. Some people
- 28:47Speaker 2: like I don't know how I feel about one percent, Fine,
- 28:49Speaker 2: think about it, get back to me. But it requires
- 28:53Speaker 2: a lot to get to that question. And so again
- 28:56Speaker 2: it's on the doctor, it's on the patient, it's on
- 28:58Speaker 2: everybody to try to make these more productive. And I
- 29:01Speaker 2: hope that this book is very helpful with that.
- 29:03Speaker 1: No, but I think you're right that sort of we
- 29:05Speaker 1: have this idea that like, to do that, you would
- 29:07Speaker 1: need to have somebody understand like all of the incredible
- 29:10Speaker 1: you know, details about how exactly we're running these tests
- 29:12Speaker 1: and what exactly all of these just genetic things mean
- 29:15Speaker 1: and so on. But that's not really if you can
- 29:17Speaker 1: get to the question, yeah, that is relevant for decision making,
- 29:20Speaker 1: it may actually be that that is much simpler than
- 29:25Speaker 1: and you know, college level course in genetics.
- 29:27Speaker 2: Yeah, Like for vback, I often tell people, you know,
- 29:30Speaker 2: there's really there's three ways this can go, right. You
- 29:33Speaker 2: can try for a V back and have a successful
- 29:35Speaker 2: v back. That's sort of the best option. You can
- 29:38Speaker 2: try for a V back and not have a successful
- 29:41Speaker 2: v back, which might be the worst option unless someone
- 29:43Speaker 2: feels like I'd rather try and fail than not try.
- 29:46Speaker 2: And then there's the middle option, which is sort of
- 29:47Speaker 2: like I don't do eat, I don't try to just
- 29:49Speaker 2: have a C section. And I would say to them,
- 29:50Speaker 2: when you go for a V back, you're going to
- 29:52Speaker 2: get the best or the worst. You're not going to
- 29:54Speaker 2: go to the middle. So you the type of person
- 29:56Speaker 2: who would roll the dice a little bit, so to speak,
- 29:58Speaker 2: to try to get the best op, knowing you may
- 30:01Speaker 2: backfire again, not backfire like die, but like you know
- 30:04Speaker 2: whatever in terms of maybe overall outcome. Or you're the
- 30:07Speaker 2: type of person who really I'd rather just do the
- 30:09Speaker 2: middle of the road. And people can wrap their heads
- 30:11Speaker 2: around that they know who they are, and so that's
- 30:14Speaker 2: we try to help people make these decisions by framing
- 30:17Speaker 2: the questions in a way that if you're this type
- 30:21Speaker 2: of person, you're likely to go this direction, whereas if
- 30:24Speaker 2: you're this type of person, you're like this type of direction.
- 30:27Speaker 2: And that I found to be helpful over the years
- 30:29Speaker 2: to try to let people give them that context to
- 30:33Speaker 2: make complicated decisions.
- 30:41Speaker 1: More parent data after the break. All right, so let's
- 31:01Speaker 1: test this out for a minute. We're going to see
- 31:03Speaker 1: where the rubber meets the road. I've invited Tamar, my producer,
- 31:07Speaker 1: in to ask Nate Nice some questions.
- 31:09Speaker 2: Hello, Hi Tamorrow. All right, so we were not given
- 31:12Speaker 2: the questions in advance. This is not like quish.
- 31:15Speaker 1: Let's do it.
- 31:15Speaker 4: Okay, so I have tested positive as a cystic fibrosis carrier.
- 31:21Speaker 4: My husband still needs to be tested. We have the
- 31:24Speaker 4: appointment in another week. How much should I be freaking out?
- 31:28Speaker 2: Uh? Minimally is the answer. How much you should be
- 31:31Speaker 2: freaking out? Essentially, with carrier screening, which is what we're
- 31:36Speaker 2: talking about, we're checking to see if the couple has
- 31:41Speaker 2: usually autosomal recessive conditions, which are the kind that you
- 31:44Speaker 2: can carry and out of a condition, and to see
- 31:47Speaker 2: if they both have the same one. So when we
- 31:48Speaker 2: do a full panel, it's hundreds and hundreds of conditions.
- 31:51Speaker 2: And you tested positive for cystic fibrosis. Okay, you yourself
- 31:56Speaker 2: have no cystic fibrosis, no medical issues, You would never
- 32:00Speaker 2: know you had this in your entire life. It's only
- 32:02Speaker 2: relevant if the person with whom you are approcreating also
- 32:06Speaker 2: has a mutation for cystic fibrosis. So the question is
- 32:09Speaker 2: what is the chance of that. I believe the population
- 32:13Speaker 2: frequency depends on is ancestry, but let's say it's one
- 32:17Speaker 2: in fifty two percent, So the chance that you're a
- 32:20Speaker 2: couple that both carry cystic fibrosis is two percent. And
- 32:25Speaker 2: if he carries systic fibrosis, then each of your kids
- 32:29Speaker 2: has a twenty five percent chance of having it, which
- 32:32Speaker 2: you could either get pregnant and test and find out,
- 32:34Speaker 2: or do IVF and test the embryos and only put
- 32:38Speaker 2: in embryos who don't have cystic fibrosis. So all that's
- 32:41Speaker 2: available to you. But I'm glad you're doing the testing.
- 32:43Speaker 2: It's good to know. But minimally is what I would
- 32:45Speaker 2: say in terms of how much to freak out. And
- 32:49Speaker 2: when you undergo advanced and comprehensive genetic screening, more than
- 32:55Speaker 2: fifty percent of people will get back a positive, quote
- 32:59Speaker 2: unquote abnormal result, meaning you have a mutation that's very,
- 33:01Speaker 2: very common. It's not unexpected, it's not a problem, it's
- 33:04Speaker 2: not a health issue. It's not any issue whatsoever, unless
- 33:08Speaker 2: you happen to be prograding with someone who has the
- 33:11Speaker 2: same mutation, which is unlikely.
- 33:14Speaker 4: Okay, this one's for Emily. Are kick counts just torture
- 33:19Speaker 4: devices for Type A.
- 33:20Speaker 1: Personalities, So data on ky counts a little mixed. So
- 33:25Speaker 1: the idea behind KIT counting is that it is a
- 33:28Speaker 1: method to prevent stillbirth, which is one of the complications
- 33:31Speaker 1: we talked through in the book. The idea is that
- 33:35Speaker 1: you would count for some period of time every day,
- 33:37Speaker 1: particularly towards the end of pregnancy. You would look for
- 33:41Speaker 1: some number of movements in an hour or count until
- 33:44Speaker 1: you get to some number. There's a few different methods
- 33:46Speaker 1: for this, and it's a structured way to detect abnormal
- 33:51Speaker 1: changes in movement which could indicate a problem with the baby.
- 33:57Speaker 1: The evidence Theoretta it seems like this could help do
- 34:03Speaker 1: that kind of detection. In practice, the evidence to support
- 34:08Speaker 1: this as an important method for preventing stillbirth is quite weak,
- 34:13Speaker 1: and part of the issue is that stillbirth will more
- 34:18Speaker 1: common than many people think, is still very rare, and
- 34:21Speaker 1: so it's very difficult to run a large trial that
- 34:25Speaker 1: would actually detect changes in stillbirth, just because the overall
- 34:29Speaker 1: prevalence is low, and so any changes you need a
- 34:32Speaker 1: lot of data to detect them statistically. So I think
- 34:37Speaker 1: this is one of the cases where it actually depends
- 34:40Speaker 1: a little bit on how someone's going to kind of
- 34:42Speaker 1: come to it emotionally. So for some people this is
- 34:45Speaker 1: very reassuring, and it's like I'm going to do this,
- 34:47Speaker 1: I'm going to put it on my calendar, I'm going
- 34:48Speaker 1: to do it every day. You know, that'll sort of
- 34:51Speaker 1: be a positive experience, and for some people it's super
- 34:54Speaker 1: anxiety provoking.
- 34:56Speaker 2: We do get more visits.
- 34:57Speaker 1: To doctors as a result of this becauseeople want reassurance.
- 35:01Speaker 1: So I'm not sure there's one hundred percent answer to
- 35:05Speaker 1: whether this is the right thing for everybody.
- 35:08Speaker 2: No, I mean, I listen, I agree. I think the
- 35:10Speaker 2: issue is, yes, if a baby is moving or appears
- 35:15Speaker 2: to be moving less than expected, that usually means nothing,
- 35:21Speaker 2: but it's something we want to know about, and so
- 35:22Speaker 2: we have people come and check it out. Fine, every
- 35:26Speaker 2: now and again, we do see something that's real and
- 35:28Speaker 2: we intervene and we think, you know, it improved the outcome.
- 35:32Speaker 2: The question is whether it's valuable to tell everyone who's
- 35:35Speaker 2: pregnant do some sort of formal test at home to
- 35:38Speaker 2: make sure your baby's moving. Okay, are you going to
- 35:40Speaker 2: quote unquote save any babies compared to the many, many,
- 35:44Speaker 2: many people You're going to freak out?
- 35:46Speaker 3: Right?
- 35:46Speaker 2: And so it's that is the question that's quite unclear.
- 35:50Speaker 2: So I don't typically recommend kick counting as a routine,
- 35:54Speaker 2: but I tell people if they feel their babies moving
- 35:58Speaker 2: abnormally one day, right, because most people know they're babies. Right,
- 36:02Speaker 2: is some babies are very active. Somebodies are less. Somebody's
- 36:04Speaker 2: moving night, somebody's move in the morning. Right, there's you know,
- 36:06Speaker 2: babies have personalities just like adults do. And so if
- 36:09Speaker 2: you think there's a change and something's unusual and you're concerned,
- 36:13Speaker 2: then I will say, all right, lie down, close your eyes,
- 36:15Speaker 2: focus on the baby. Wait thirty minutes. If you feel
- 36:18Speaker 2: three movements of it's okay. And if you don't, let
- 36:20Speaker 2: us know. But as a routine, I don't anyone who's
- 36:23Speaker 2: high risk enough for still birth. I haven't come to
- 36:25Speaker 2: the office once or twice a week for like formal testing,
- 36:28Speaker 2: whether it's a biophysical profile or a non stress test,
- 36:31Speaker 2: so we can really get, you know, something with data
- 36:33Speaker 2: on it and something really can see whereas someone is
- 36:36Speaker 2: at lowers for stillbirth, I generally just say just keep
- 36:39Speaker 2: an eye on your baby and if everything seems normal,
- 36:41Speaker 2: you're good to go.
- 36:44Speaker 4: As a migraine sufferer during pregnancy, I was really like,
- 36:49Speaker 4: I always had my tile and all at the ready,
- 36:52Speaker 4: but I was googling and I noticed that it actually
- 36:56Speaker 4: depends at least shaking your head at my googling, that
- 37:01Speaker 4: taking ibuprofen or an end said during pregnancy is actually like,
- 37:06Speaker 4: it's different when in the pregnancy you take it. Is
- 37:09Speaker 4: it the kind of thing that has just blanket never
- 37:11Speaker 4: take ibuprofen during your pregnancy, or does it actually matter
- 37:14Speaker 4: when it matters?
- 37:16Speaker 2: So thilanol and ibuprofen are different, just to be clear,
- 37:19Speaker 2: because you first said tylanol and then you said ibuprofen,
- 37:22Speaker 2: so thailanol. You can also google some bad things about tileanol,
- 37:26Speaker 2: but basically the overwhelming evidence evidence is that tylanol is safe.
- 37:31Speaker 2: And the studies that seem to scare people about tilanol
- 37:35Speaker 2: are very complicated because it could be the reason somewhat
- 37:38Speaker 2: took talanol like which is usually fever, illness, this or that.
- 37:41Speaker 2: So tilanol is separate ibuprofen, which is like motrin, which
- 37:46Speaker 2: is like an advil, or another end said like neproxin
- 37:50Speaker 2: or a leive there. It's not a concern as far
- 37:53Speaker 2: as you know in terms of birth defects like early
- 37:55Speaker 2: in pregnancy, later in pregnancy, and sort of the mid
- 37:58Speaker 2: to late third trimester, there is a risk of it
- 38:00Speaker 2: affecting one of the blood vessels in the baby's heart,
- 38:03Speaker 2: so we tell people not to take it in the
- 38:05Speaker 2: third trimester. The reason we tell people not to take
- 38:09Speaker 2: it in the first and second trimester is prenominantly because
- 38:12Speaker 2: we don't want people to sort of get confused, which
- 38:15Speaker 2: one because people always confuse, like you know, just we
- 38:18Speaker 2: just heard Talento motor and advil, and so we tell
- 38:20Speaker 2: them not to take that sort of ever, so they
- 38:23Speaker 2: don't end up taking the third trimester. But if someone
- 38:26Speaker 2: needed it at eighteen weeks, they could take it and
- 38:29Speaker 2: we tell them, you know this, and so we sort
- 38:31Speaker 2: of do give it to people for certain circumstances. But yes,
- 38:35Speaker 2: later in pregnancy becomes definitely don't take it later in pregnancy.
- 38:39Speaker 2: But that's that's exactly when exactly how much it's a
- 38:42Speaker 2: little bit complicated, which is why there's more of a
- 38:44Speaker 2: blanket statement not to take ibuprofen because it will become dangerous.
- 38:49Speaker 2: But there are a lot of nuances to that.
- 38:53Speaker 4: Yeah, I will say like as a as a chronic
- 38:55Speaker 4: pain sufferer, that made pregnancy really scar like it was
- 38:59Speaker 4: the ultimate like me or my baby. You know, it's
- 39:01Speaker 4: like how can I get.
- 39:02Speaker 3: Through the day.
- 39:03Speaker 2: Each medication requires a conversation and you know, a discussion.
- 39:07Speaker 2: But there are options for people with pain, and there
- 39:10Speaker 2: are options with people with migraine pain. And I think
- 39:13Speaker 2: that sometimes people feel like they can't take anything because,
- 39:15Speaker 2: like you said, it's me versus the baby, which is
- 39:18Speaker 2: actually the exception. It's very unusual that there's a me
- 39:21Speaker 2: versus the baby conversation. It happens so rarely. It's almost
- 39:25Speaker 2: always what's good for the mother is good for the baby.
- 39:27Speaker 2: Or there's three options that are good for the mother,
- 39:30Speaker 2: and we'll pick the one that save us for the baby.
- 39:32Speaker 3: Okay, okay, last one, do doctors suggest ce sections, you know,
- 39:39Speaker 3: to make their tea times? Is that a really like
- 39:42Speaker 3: outdated worry that doctors kind of jump to suggest ce
- 39:47Speaker 3: sections in order to make it faster for them.
- 39:53Speaker 2: Loaded I will so for the record, I do not golf,
- 39:58Speaker 2: so I would never do it for tea time. Listen,
- 40:02Speaker 2: are there doctors who make recommendations because it's easier for
- 40:07Speaker 2: them than the patient. I'm sure, I'm sure they exist, right,
- 40:10Speaker 2: I mean, there's there's I don't know how many doctors
- 40:11Speaker 2: there are in the United States, a million, I don't
- 40:13Speaker 2: know what the number is. Many, many, many doctors, right,
- 40:15Speaker 2: And I'm sure there are ones that make recommendations that
- 40:18Speaker 2: are not in the best interest of their patients. I
- 40:20Speaker 2: would say, in my experience of knowing doctors, talking to doctors,
- 40:24Speaker 2: meeting doctors, and working with doctors, very rare. It's just
- 40:28Speaker 2: it doesn't work like that typically. And I would say
- 40:31Speaker 2: that especially in the field of obstetrics, the way things
- 40:35Speaker 2: have evolved, you rarely have that solo practitioner who's deciding
- 40:41Speaker 2: between a tea time and a birth right. So, like,
- 40:43Speaker 2: take my schedule, for example, if I'm covering the labor floor,
- 40:47Speaker 2: I'm on the labor floor from seventy am to seven pm.
- 40:50Speaker 2: It makes no difference to me whether someone has a
- 40:52Speaker 2: vaginal birth or a C section from my convenience, like
- 40:55Speaker 2: whatever's best for hers, best for her. And similarly, I'm
- 40:59Speaker 2: being relieved by someone at seven pm who is fresh
- 41:02Speaker 2: and you know, slept and capable and had dinner and
- 41:05Speaker 2: as someone I trust. And so whether someone has a
- 41:08Speaker 2: C section at six pm, or we wait and they
- 41:09Speaker 2: have it at nine pm, or they deliver vaginal lever
- 41:11Speaker 2: and it doesn't matter to me, there's no upside or
- 41:14Speaker 2: downside to me. So I think nowadays that type of behavior,
- 41:18Speaker 2: if it existed, or to what degree existed, must be
- 41:23Speaker 2: much less because there's there aren't the same time pressures
- 41:26Speaker 2: on obstetricians that there may have used to be.
- 41:30Speaker 1: I think can I make one Can I say one
- 41:35Speaker 1: one thing?
- 41:35Speaker 2: No, No, you cannot.
- 41:38Speaker 1: Because you have a tea time to get to. So
- 41:41Speaker 1: I think one piece related to this is about inductions,
- 41:46Speaker 1: which comes up a lot, and you and I have
- 41:47Speaker 1: talked about this that basically labor induction can be very
- 41:51Speaker 1: slow and.
- 41:52Speaker 2: So right, but the doctor doesn't have to be there.
- 41:54Speaker 1: Is that the doctor, yes, but just for people a
- 41:56Speaker 1: kind of point related to like you're getting from an
- 41:59Speaker 1: induction to to a C section like something I think
- 42:02Speaker 1: it's really important for people to understand is that labor
- 42:04Speaker 1: induction itself can be extremely slow. And so if you
- 42:07Speaker 1: are going to have an induced labor and you're planning
- 42:10Speaker 1: for a vaginal barth at the end of that, which
- 42:12Speaker 1: would be typical you and your doctor they will be
- 42:16Speaker 1: prepared because doctors know this, but you should be prepared
- 42:19Speaker 1: that it will be very that it will be very slow.
- 42:22Speaker 2: Yeah. I would say that the one thing that sadly
- 42:27Speaker 2: does drive a lot of decisions regarding mode of delivery,
- 42:32Speaker 2: right cea section versu. The vaginal is the either the
- 42:37Speaker 2: actual fear of getting sued of litigation, or even if
- 42:42Speaker 2: it's not actual, it's sort of built into the system.
- 42:45Speaker 2: There are so many safeguards built into the system that
- 42:51Speaker 2: end up increasing the risk of ce sections that we're
- 42:54Speaker 2: not even aware of in a certain sense, and they're
- 42:57Speaker 2: built in there because of fear of lawsuits. It's not
- 43:00Speaker 2: just the doctor that's afraid of getting sued. The nurses
- 43:03Speaker 2: are afraid of getting sued, the hospital is afraid of
- 43:05Speaker 2: getting sued, the hospital's insurance carrier is afraid of getting sued,
- 43:09Speaker 2: and so sadly that is sort of cooked into the
- 43:13Speaker 2: numbers sometimes and it's unfortunate, it just is, but it's
- 43:18Speaker 2: a reality. And I'm not saying that from like a
- 43:20Speaker 2: political reason about what to do about it, because there
- 43:22Speaker 2: isn't a great solution. But I think that definitely doctors
- 43:26Speaker 2: sometimes consciously or subconsciously worry about well, the chance of
- 43:32Speaker 2: something going wrong is very low, and medically it's probably
- 43:35Speaker 2: okay to continue if she wants to. But if something
- 43:38Speaker 2: were to go wrong, it's not going to look good
- 43:40Speaker 2: on paper, and I'm going to be in big trouble
- 43:44Speaker 2: and either that means I'll get sued or the hospital's
- 43:46Speaker 2: gonna come down on me because they're gonna get sued
- 43:48Speaker 2: or they're going to strict my privileges. And again I'm
- 43:50Speaker 2: not saying that to complain. It's a reality of the system,
- 43:53Speaker 2: and it's just it's it's hard. I don't know what
- 43:56Speaker 2: the solution is, but it's that is probably a more
- 43:59Speaker 2: prevalent and factor than the doctor's tea times or show
- 44:04Speaker 2: tickets or dinner reservations or whatever, you know, whatever the
- 44:07Speaker 2: doctors are supposedly doing in high society that the regular
- 44:13Speaker 2: people aren't. So yeah, we're probably going home to our
- 44:16Speaker 2: second job, is what we're doing.
- 44:20Speaker 3: Okay, Well, thank you both. I will see myself.
- 44:22Speaker 1: Up, thank you tomorrow. So I had I had a
- 44:27Speaker 1: last top I want to talk about because I think
- 44:29Speaker 1: it is something that that we don't agree on, and
- 44:35Speaker 1: there are very few things like this, well me and you. Yeah,
- 44:38Speaker 1: And it is about how people how much detailed people
- 44:42Speaker 1: want on risks. So one of the things I spend
- 44:45Speaker 1: a lot of time on in like in my in
- 44:48Speaker 1: my work, in my book and so on, is trying
- 44:49Speaker 1: to be like super precise about you know, is the
- 44:52Speaker 1: risk of recurrence of this condition? You know, sixteen percent
- 44:56Speaker 1: or twenty percent or twenty five percent, And I in
- 45:00Speaker 1: even writing this book, I spend a huge amount of
- 45:02Speaker 1: time in that space of like, let's be you know, really,
- 45:06Speaker 1: let me try to like get as close as I
- 45:07Speaker 1: can to some you know, precise number and understand how
- 45:11Speaker 1: much variation there is and so on. And you came
- 45:14Speaker 1: into this, I think, with an idea that there are
- 45:18Speaker 1: kind of three categories of risk that you like to
- 45:21Speaker 1: explain to people. There's like, probably this won't happen again.
- 45:25Speaker 1: You know, most of the time this is kind of
- 45:26Speaker 1: pretty aosyncratic, so it's probably not gonna happen again. It
- 45:30Speaker 1: might happen again, but you don't really know, or it's
- 45:33Speaker 1: you should assume it's going to happen again, and if
- 45:35Speaker 1: it doesn't, you're lucky, I think, is how you put it.
- 45:38Speaker 1: So you're kind of like pooh pooed my precision around risk.
- 45:43Speaker 1: And I think part of that is I think part
- 45:45Speaker 1: of it comes from the clinical maybe this sort of
- 45:47Speaker 1: expertise of talking to people and saying like people don't
- 45:49Speaker 1: really like fundamentally, the difference between sixty five and seventy
- 45:53Speaker 1: percent isn't actually very meaningful when people make decisions, So
- 45:57Speaker 1: I don't think we disagree.
- 46:00Speaker 2: I think that it's more so the practicality of it,
- 46:03Speaker 2: meaning I'm also I'm a data person. I love data.
- 46:06Speaker 2: I think that there's two issues with trying to get
- 46:09Speaker 2: that precise number. One, the research we have in almost
- 46:15Speaker 2: all of these aspects is so limited that the difference
- 46:18Speaker 2: between sixteen percent and twenty one percent is usually nothing
- 46:22Speaker 2: because the brackets around them are wide enough that it
- 46:24Speaker 2: really doesn't There is no actual difference between those numbers,
- 46:27Speaker 2: which you understand better than I do, but sort of statistically.
- 46:30Speaker 2: So that's one issue. The second is, I don't think
- 46:34Speaker 2: most people think like you think, right, So I think
- 46:38Speaker 2: there are people, and I certainly take care of them,
- 46:41Speaker 2: come across them, have some in my family this who
- 46:43Speaker 2: they're like? No, I want to know is it closer
- 46:45Speaker 2: to sixteen or closer twenty one? And fine, I'll tell you,
- 46:48Speaker 2: like God bless, we'll go to the decimal point whichever,
- 46:50Speaker 2: however many sing figs you want, we'll go there, right,
- 46:53Speaker 2: no problem. But most people don't think like that, right.
- 46:56Speaker 2: Most people, when they're thinking about risk, they categorize in
- 47:00Speaker 2: their brain like high risk, low risk, medium risk. Right
- 47:03Speaker 2: where am I? And so I sort of usually break
- 47:06Speaker 2: it down again based on the risk into something like
- 47:09Speaker 2: less than ten, ten to fifty or more than fifty. Again,
- 47:14Speaker 2: it depends on Sometimes all of them are under ten,
- 47:16Speaker 2: and it's like, all right, less than one, one to five,
- 47:18Speaker 2: five to ten, like it depends on the But try
- 47:20Speaker 2: to give them a sense so they can wrap their
- 47:23Speaker 2: head around the statistics because most people, the average person
- 47:27Speaker 2: is functioning at you know, I don't know, a middle
- 47:30Speaker 2: school level when it comes to toss. That's not an insult.
- 47:33Speaker 2: That's like high functioning people who are very bright and
- 47:36Speaker 2: working in the world. That's the level of statistics they're
- 47:39Speaker 2: usually working at. The exception are the people who are
- 47:42Speaker 2: very very into data on one and know the exact decimals,
- 47:45Speaker 2: and God bless them, but they're the exception. They're the outliers,
- 47:49Speaker 2: I would say. And so for me, if you get
- 47:52Speaker 2: into very very precise numbers on people with people, you
- 47:56Speaker 2: lose them in counseling. Now with reading, it might be
- 48:00Speaker 2: because it's a reference versus a conversation. They hear seventeen percent,
- 48:05Speaker 2: what does that mean to them? And also the other
- 48:08Speaker 2: thing is people think about math differently, So I always
- 48:11Speaker 2: have to say those numbers twice, I'll say your risk
- 48:15Speaker 2: is thirty percent, your risk is about three out of ten,
- 48:19Speaker 2: about one out of three. Like, you have to say
- 48:21Speaker 2: it in so many different ways because people hear things differently.
- 48:23Speaker 2: Some people don't get percentages. When I tell people one
- 48:26Speaker 2: in ten thousands, some people don't get what that means.
- 48:28Speaker 2: And again not that they don't understand it, it's just
- 48:30Speaker 2: they're hearing it, and they may be more of a
- 48:33Speaker 2: verbal learner. And you have to write something down or
- 48:36Speaker 2: it's it's it's fascinating. The human brain is fascinating, and
- 48:39Speaker 2: so we see all comers. And that's sort of what
- 48:43Speaker 2: I was getting at, not so much that it doesn't matter,
- 48:45Speaker 2: but that it's usually not practical.
- 48:48Speaker 1: Yeah, no, I think that's fair. The question of how
- 48:50Speaker 1: people understand probabilities, particularly small probabilities, is like incredibly interesting one,
- 48:55Speaker 1: Like how do you how do you help somebody understand
- 48:57Speaker 1: one in ten thousands, since like most of the time
- 48:59Speaker 1: you won't expl experience something, And how is one in
- 49:02Speaker 1: ten thousand different from one in one hundred thousand, Like
- 49:04Speaker 1: those booth You're never going to see either of those
- 49:06Speaker 1: right in your life.
- 49:07Speaker 2: I tell people that, you know, when we talk about
- 49:10Speaker 2: I'll go back to the genetic screening thing where I'll
- 49:13Speaker 2: tell people their risk is one percent, right, and if
- 49:16Speaker 2: they do an amnuur CVS, their risk of a miscarriage
- 49:19Speaker 2: is let's say, one in five hundred, little less than
- 49:21Speaker 2: one percent. And I'll tell them, all right, you have
- 49:23Speaker 2: two options here. You're going to do a procedure, you're
- 49:26Speaker 2: not gonna do a procedure. And I said, think about it.
- 49:29Speaker 2: You can close your eyes and flip a coin and
- 49:32Speaker 2: make this decision, and whether the coin leads heads or tails,
- 49:36Speaker 2: ninety nine plus percent of the time, you're not gonna miscarry,
- 49:40Speaker 2: and you're gonna have a healthy baby. I said, no
- 49:42Speaker 2: matter what, right, if you do a CVS ninety nine
- 49:44Speaker 2: plus percent of the time, you're not gonna miscarry. You're
- 49:46Speaker 2: gonna have a healthy baby. And if you don't do a
- 49:48Speaker 2: CVS ninety nine plus percent of the time, you're not
- 49:50Speaker 2: gonna misscarre. You're gonna have a healthy baby. How often in
- 49:53Speaker 2: your life do you get to make a decision that's
- 49:55Speaker 2: important to you or ninety nine plus percent of time
- 49:58Speaker 2: is going to work out no matter what you do.
- 50:00Speaker 2: So don't lose too much sleep over this. As I
- 50:02Speaker 2: go with your gut. If it's one percent versus eight percent,
- 50:05Speaker 2: then I'll you know, then it's different.
- 50:07Speaker 3: Right.
- 50:07Speaker 2: But when it's really really small numbers, it doesn't matter
- 50:11Speaker 2: to the individual, matters to the population. And so I
- 50:14Speaker 2: try to help them not worry too much about the
- 50:16Speaker 2: decision because it won't matter for almost everybody, and they
- 50:19Speaker 2: have to do, like, say, you have to sleep at night, right,
- 50:22Speaker 2: So whatever's going to make you sleep a night, that's
- 50:24Speaker 2: what you should do because you have to live with
- 50:26Speaker 2: yourself the rest of the pregnancy, So pick that one.
- 50:29Speaker 2: So again you have to break it down in a
- 50:30Speaker 2: way that's sort of manageable for people.
- 50:34Speaker 1: All right, Well, I just want to end Nate by
- 50:36Speaker 1: saying thank you. I don't, as I said at the top,
- 50:40Speaker 1: I don't like group projects, and doing this group project
- 50:44Speaker 1: with you was just a treat and I'm really grateful
- 50:48Speaker 1: for I'm really grateful we did together.
- 50:50Speaker 2: Well, now it's my turn. I have to say I
- 50:55Speaker 2: got turned on Emily from reading your book Right Expecting,
- 51:00Speaker 2: which is recommended by a patient. I never read pregnancy
- 51:04Speaker 2: books ever, Right, why would ever read them? I'm like,
- 51:06Speaker 2: this is ridiculous. I read yours, loved it. Loved it.
- 51:10Speaker 2: Cold called you said, I'm a guy in New York.
- 51:13Speaker 2: We have to meet. Yeah, And you've been just in
- 51:18Speaker 2: general before we did this book, you've been so like
- 51:21Speaker 2: friendly and gracious and we've had a great relationship. And
- 51:24Speaker 2: as your fame has grown, you never sort of like
- 51:29Speaker 2: ditched me or dumped me like we always maintained that relationship,
- 51:32Speaker 2: which is I appreciate that. But then also when we
- 51:35Speaker 2: decided to write this book, like I said, you're you're
- 51:38Speaker 2: a well known author. You do this, You're very very
- 51:41Speaker 2: good at it, You're very successful. A lot of people
- 51:42Speaker 2: listen to you. And you could not have been more
- 51:45Speaker 2: gracious in doing this in a way that made me
- 51:47Speaker 2: feel like a partner. You know that you know, even
- 51:51Speaker 2: partners whatever you want to say, It is like that
- 51:53Speaker 2: we worked together on this and I really really enjoyed it.
- 51:56Speaker 2: I learned a tremendous amount from you and from the process.
- 51:59Speaker 2: I'm very proud of the book, really like I'm proud
- 52:03Speaker 2: of it. I think what we did was great. I
- 52:04Speaker 2: think is gonna hopefully help a lot a lot of people.
- 52:08Speaker 2: I'm going to again display it proudly, and it's really
- 52:13Speaker 2: something I'm gonna cherish that we did for a long time.
- 52:16Speaker 2: That's great meat.
- 52:18Speaker 1: Thanks Nate, Thank you. The Unexpected Navigating Pregnancy During and
- 52:30Speaker 1: After Complications is out April thirtieth, twenty twenty four. You
- 52:34Speaker 1: can get it anywhere that you buy books. Parent Data
- 52:38Speaker 1: is produced by Tamar Avishai with support from the parent
- 52:41Speaker 1: Data team and PI Rex. If you have thoughts on
- 52:44Speaker 1: this episode, please join the conversation on my Instagram at
- 52:47Speaker 1: prof Emily Ostar, and if you want to support the show,
- 52:51Speaker 1: become a subscriber to the parent Data newsletter at parentdata
- 52:54Speaker 1: dot org, where I write weekly posts on everything to
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- 53:00Speaker 1: more informed parenting decisions. There are a lot of ways
- 53:04Speaker 1: that you can help people find out about us. Leave
- 53:06Speaker 1: a rating or review on Apple Podcasts, Text your friend
- 53:09Speaker 1: about something you learned from this episode. Debate your mother
- 53:12Speaker 1: in law about the merits of something parents do now
- 53:15Speaker 1: that is totally different from what she did. Host a
- 53:19Speaker 1: story to your Instagram debunking a panic headline of your own.
- 53:22Speaker 1: Just remember to mention the podcast too. Write Penelope right, mam.
- 53:27Speaker 1: We'll see you next time.