Latest / The KCNA2 & Rare Epilepsy’s Podcast
He’s an Overcomer: Life With Mixed-Function KCNA2 with Dr. Nancy Musarra and Dawn Walters
In Part 2 of Dawn Walters’ story, host Dr. Nancy Musarra speaks with Dawn about her son Matthew’s teenage years and the progression of his KCNA2-related epilepsy.
Dawn shares how Matthew gradually lost skills including walking, standing, and swallowing safely, and how their family adapted with mobility equipment, home modifications, nursing support, and creative ways to keep him involved in the activities he loves.
They also discuss neurological fatigue, the emotional impact of losing abilities, caregiver respite, Medicaid waiver services, adaptive equipment, and the importance of finding a…
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