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Michigan's ALS Data Delay | Lansing News
Michigan’s ALS crisis deepens as a mandated disease-tracking system remains incomplete 15 months after law passed, leaving doctors without critical data to diagnose faster or uncover why the state has more cases than most — including puzzling clusters among former teachers. While Vermont leads with a working registry since 2023, Michigan’s delayed rollout frustrates families like Cathy Smith and her husband Greg, who need answers now. Only one of four specialized clinics is reporting data; two more begin training this month, but time is running out for patients and caregivers seeking clarity…
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