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Father Pleads for Life-Saving Drug Access | Cork News
A grieving father in Cork is fighting to save his son’s life after the HSE rejected funding for a potentially life-changing drug for Friedreich’s ataxia — the same condition that killed his 13-year-old son Rory. His 16-year-old son Paudie desperately needs the treatment, priced at €280,000 per year, which is already available in ten other countries. The HSE cited cost-effectiveness and limited resources, but the family is demanding intervention, calling it a “game-changer” that could slow the disease — even if it’s not a cure. A final decision looms on August 25th, as officials weigh the…
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