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AVLAYAH Offers New Hope for Hunter Syndrome Kids | Milwaukee News
A breakthrough drug called AVLAYAH is giving new hope to kids with Hunter syndrome, a rare genetic disorder that can severely limit life expectancy. Children’s Wisconsin became the first U.S. hospital to use this pioneering therapy, which can cross the blood-brain barrier — a game-changer for brain development. Six-year-old Roran Jaskulski, diagnosed two years ago, is one of the first patients, and his family’s story highlights the emotional stakes and cautious optimism as this lifelong treatment offers the potential to halt or even reverse neurological damage. Listen in comfort:Get a…
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