Latest / Aspergers & Autism Podcast [The Aspie World] AuDHD / Are YOU A Late Adult Autism Diagnosis_ (What To Do Next)
Transcript
- 0:00Hey, in this video I'm breaking down what to do after you have a
- 0:03late diagnosis of autism. All that's coming up.
- 0:13Hey guys, welcome back to the aspy world.
- 0:15My name is Dan. I have autism, ADHD, OCD, and
- 0:19dyslexia, and I make weekly videos about this type of
- 0:21content. So if you're new around here,
- 0:23you stumbled across this video and you want to learn more,
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- 0:27notification bell so you know when I upload videos.
- 0:30Also, if you're watching on Facebook, be sure to hit that
- 0:33like and follow button. See Daily videos on this
- 0:36channel. In this video, I'm breaking down
- 0:38three of the most effective things to do after you have an
- 0:41autism diagnosis later on in life.
- 0:43But probably no one's ever spoken to you about.
- 0:45OK, guys, it's been a hot minute.
- 0:47Oh, it's good to see everybody back here watching one of my
- 0:50videos again. You guys are amazing.
- 0:51And I have a lot of questions about this hat.
- 0:53I actually made this hat myself. But this is a trial version of
- 0:58some merch I've got coming out. So if you want to keep in touch
- 1:01with me about this, go over to my Instagram and Twitter and hit
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- 1:06and Twitter and you'll know exactly when these hats become
- 1:08available. And also, I do videos on
- 1:10Instagram and Twitter. So yeah, make sure you do that.
- 1:12OK, guys, I I would like to know, are you a person who had a
- 1:15late diagnosis of autism or are you looking for somebody else?
- 1:18Please pop it in a comment down below.
- 1:20I read and respond to every single comment, so please do
- 1:23that right now. Also, this video can help
- 1:25somebody. Why don't you tag them in the
- 1:26comment section of wherever you're watching This video is on
- 1:28Facebook or YouTube or whatever, because that would really help
- 1:31me reach them and maybe we can help them out as well.
- 1:33OK, so I was diagnosed with autism later on in life, and I
- 1:38mean later on in life and not like the latest.
- 1:40I mean I'm not in my 70s or 80s, but I mean like when I was a kid
- 1:43I had some, you know, diagnosis and issues of things that were
- 1:48you know, issues in my life. My parents took me to different
- 1:50doctors and stuff but they couldn't really diagnose me back
- 1:52then because the experts and the expertise needed to diagnose
- 1:55somebody on the autism spectrum back in like the late 80s, early
- 1:5890s was kind of well just non existent where I lived in in
- 2:01Wales. And so because of that they were
- 2:04able to not do it. So I just had to go through
- 2:06school and all those things and kind of like struggle a bit.
- 2:08But when I got to my 20s, eventually I went to to down the
- 2:11process, got to the right doctors and I got diagnosis of
- 2:14Asperger syndrome and ADHD and OCD kind of like a comorbid now.
- 2:18And comorbid means like to get it Co curing altogether at once.
- 2:22And so that was kind of like an eye opener for me.
- 2:23And I remember thinking as soon as I got my diagnosis, I was
- 2:25like, Oh my goodness, you know, what do I do now?
- 2:27How do I, where do I go from here?
- 2:28What do I do? I don't know anything about
- 2:30autism. I mean the closest I've got to
- 2:32knowing anything about autism was watching Rain Man with Tom
- 2:35Cruise. And I was like, well, you know,
- 2:38that's not even autism, not savant syndrome.
- 2:39So I was completely in the dark about it.
- 2:41And then I didn't know how to, you know, what do I do socially?
- 2:43You know, like, you know, do I walk around like a badge saying,
- 2:46hey, like, I have an awesome special condition.
- 2:48I've just been diagnosed with autism.
- 2:50Do iPhone my friends up and tell them, like, you know, what do
- 2:52you do? You know, it was very difficult.
- 2:54And it's like, so the first thing I do when I got home and I
- 2:55went and I told my everyone in my house, my parents, because
- 2:58living at home with my parents at the time.
- 3:00And then I told my brother and my brother said, yeah, that's
- 3:03obvious. And he was like, he said that I
- 3:06reminded him Sheldon Cooper from The Big Bang Theory, which is
- 3:09funny because I was doing a degree in chemistry at the time.
- 3:11And so there was a a bunch of things that happened after that.
- 3:13And I feel like it's valuable that I share this information
- 3:16with you because, like, you'll get more from that, you know
- 3:19what I mean? So I'm going to go through like
- 3:21three of the things that I think are a top priority to do after
- 3:24you have an autism diagnosis later on in life.
- 3:27And The thing is, it's going to be, you know, used even if you
- 3:31have a kid who's on the spectrum, and then they get
- 3:33diagnosed and you know what to do next.
- 3:34You know, it can be applied to anybody.
- 3:36But specifically, I wanted to do this for people who've had a
- 3:39late diagnosis, but it is compatible.
- 3:41Don't. Don't worry.
- 3:42All right, let's get on. OK.
- 3:43So number one is outreach. Now you thinking done.
- 3:47What does outreach mean? Basically, there are different
- 3:50places all over the world that will have autism support groups,
- 3:54autism kind of charities, autism social gathering, social clubs,
- 3:59events, talks, lectures, get group meetings.
- 4:02There's a bunch of things that are happening.
- 4:04And what you need to do is reach out to these immediately.
- 4:08I didn't reach out to these immediately and I wish I did
- 4:11because when I did eventually reach out to them and then I
- 4:13went to meetings and stuff like that and I went to like lectures
- 4:15and things, it was just amazing. You pay like a couple of you
- 4:18know, dollars or a couple of pounds to to attend the meetings
- 4:20and then you kind of get to enjoy other activities.
- 4:24Now the beauty of this is that it opens you up to support in
- 4:28your local areas that you would never even thought about before.
- 4:32And the support is almost like you feel a relationship with
- 4:34those people because they have the similar traits and similar
- 4:37conditions to you. So you can kind of like you
- 4:39understand each other way more and then you feel less alone,
- 4:42less isolated. That was like one of the first
- 4:43things when I got diagnosed, I felt isolated.
- 4:46I felt like, you know, I'm, I'm doing this alone.
- 4:49Nobody's going to get me, you know.
- 4:51You know what I mean? It's kind of like an unusual
- 4:53feeling because you feel like that's it, you know, is it just
- 4:55me doing this all my own? So I, I kind of reached out and
- 4:59I and I joined in Asbridge's social club group people and it
- 5:03was amazing. It was it was probably one of
- 5:04the best things ever. When we did, we went to
- 5:06different meetings all over, you know, by local area and went to
- 5:09different talks. We saw people from like just
- 5:11amazing people talking and it was so good, right.
- 5:14So I highly recommend doing that for a few things.
- 5:16Just go to Google, type in like local autism or Asperger support
- 5:20groups, and then type in like local support groups for mental
- 5:24health and autism and you'll find a list of different things,
- 5:27right, Especially on Facebook. Facebook is probably one of the
- 5:29best ones to go to. I would highly recommend going
- 5:30to Facebook, typing this in and see what happens.
- 5:32OK, so #2, therapy. Now people can get kind of super
- 5:36scared when you hear the word therapy.
- 5:38Like, Oh my goodness, you know, therapy.
- 5:40Like marriage therapy. It's like this thing.
- 5:41Like, you mean like, you know if you're going to therapy, you're
- 5:43admitting the feet. And it's not like that.
- 5:45Not at all. So therapy you've got to think
- 5:48about in a way, as you know, if you want to relax and you want
- 5:51to go to a beauty therapist, you go there and you have relaxation
- 5:55therapy or you go someone have beauty therapy or you go to a
- 5:58gym for body therapy, right. Therapy isn't a bad thing.
- 6:02It's just the way that people look at it in terms of like
- 6:05mental health and neurological conditions.
- 6:07They feel it's like a scary thing, but it's not the first
- 6:10thing I would have done back then, which I did eventually do.
- 6:14I would look for therapists in my local community on my local
- 6:16health board. I'd contact my health board and
- 6:18ask them if I can have access or referrals to therapists to help
- 6:22me. Because regardless of when you
- 6:24were diagnosed, you will always have had issues and other, you
- 6:29know, ups and downs in your life that you know you'll need help
- 6:32and support with. And a therapist can help you
- 6:36with that. So therapy from autism, you can
- 6:38have psychological intervention, You can have like counselling.
- 6:42There's also kind of behavioral therapies.
- 6:44Some people are on the fence about it.
- 6:46Some people don't like it. Some people do like it.
- 6:47It's all down to personal preference and of course, which
- 6:49type of therapy that you want to to kind of use.
- 6:52But there are a bunch of different ones out there.
- 6:54I did actually do a video on autism therapies and I will
- 6:57leave a link for that in the card above here and I'll try and
- 7:00link it in the description below so you can see that.
- 7:02And I'll put it also on the end card so that you don't miss it.
- 7:05But in terms of autism therapies, there are a bunch of
- 7:07different ones around then I'll, I'll you know, leave that video
- 7:10to explain it because I did a video all about those therapies.
- 7:12But I think that by by hitting the ground running, you know,
- 7:16looking for support, looking for therapy, looking for a
- 7:18camaraderie from like groups and stuff like that, you are
- 7:21becoming like it's a problem shared, a problem halved
- 7:24basically. And that's the kind of whole
- 7:26idea and the consensus with this kind of information that I'm
- 7:29giving you right now. Because if you don't want to
- 7:30feel alone, you don't feel isolated and you don't feel like
- 7:32you're the only person going through any of this stuff and
- 7:34that you you topple. Because it's not.
- 7:36It's not the case. Not the case at all.
- 7:37I'm here. I got you.
- 7:38Yeah. OK.
- 7:40So #3 is be open. Like, damn.
- 7:43What are you talking about? How can I how can I?
- 7:46You mean be open? What does that mean?
- 7:48I'm saying to be open and honest with friends and family.
- 7:51So when, you know, when I was diagnosed, one of the things I
- 7:55kind of, I don't know, I didn't do it straight away, which I
- 7:57wish I did do. It is that, like my friends,
- 8:01they would say do this, do this, and then I wouldn't want to do
- 8:02that. And we get into arguments about
- 8:04stuff because I didn't want to do those things because I'd feel
- 8:05uncomfortable going somewhere with my extreme social anxiety
- 8:08and stuff like that. And then they just think that I
- 8:10was just being a lazy, you know, idiot and they just thought I
- 8:13didn't want to do those things because I was just being
- 8:14miserable. Well, you know, if I just said
- 8:16some at the time or guys, look, I'm actually on the spectrum and
- 8:19I need you to disrespect the fact that, like, this is
- 8:22uncomfortable for me. And then it would have been so
- 8:23much more understanding. So it's kind of like my own
- 8:25fault. I didn't tell them right.
- 8:27And with same with family members, not everybody in the
- 8:29family is just going to automatically know that you're
- 8:31only autism spectrum. Like why would they, you know,
- 8:34you have to go out there and tell them.
- 8:35So I would just make it a priority to tell the people that
- 8:38are closest to you that you have this diagnosis and then kind of
- 8:41mention it when you see everyone else in passing like oh hey, by
- 8:44the way I've got a diagnosis of blah, blah blah.
- 8:45And, you know, so because we someone who's on the spectrum
- 8:50will obviously be a certain characteristics of behavior and
- 8:54their family members will see that and then they will, they'll
- 8:57understand that like, oh, there's Dan, you know, he's an
- 9:00interesting guy. There's all this stuff and you
- 9:02know, he's got quirks and whatever.
- 9:04But when you say, like, I've got autism, they go, oh, OK that
- 9:06makes sense, you know, So it's kind of like they they don't,
- 9:10they don't expect you to be kind of like to phone up, like,
- 9:13hello, I have a diagnosis. But if it's in passing, like,
- 9:15oh, yeah, look, well, you know, my quirks.
- 9:17Well, it turns out I'm on the auto inspection, blah, blah,
- 9:19blah. And then I'll probably have way
- 9:21more respect for you being completely open and honest and
- 9:23approachable. Imagine it.
- 9:24Imagine, you know, if they want to ask questions about it, if
- 9:27they want to ask how to help accommodate you, how to best
- 9:29support you. So say you're going to stay in
- 9:31your, you know, your friend's house or your family on this
- 9:34house and they don't live near you and you go somewhere they
- 9:36could then ask you, hey, how do I best accommodate you?
- 9:39So I went to stay in my cousin's house in Portsmouth.
- 9:43I'm actually, that's my family's from Portsmouth, but I live in
- 9:45Wales. And so we went to Portsmouth and
- 9:48they stayed with them. And you know, one of the things
- 9:50they said, oh, you know what you want to eat, you know, we'll get
- 9:52anything. And then I said the stuff I
- 9:54wanted to eat. And then they kind of they made
- 9:55a good thing about it. They all went out and they
- 9:57bought loads of the stuff that I like to eat.
- 9:58And we all had like big dinner as a family with the stuff I
- 10:01like to eat. And I kind of thought that was
- 10:02super awesome and it was so nice for them to do that.
- 10:04You know, they didn't have to, but they did now.
- 10:07Super, super awesome. If you think that these three
- 10:10tips can help us, somebody who's just been diagnosed or somebody
- 10:13who's about to be diagnosed, please share this on their
- 10:15Facebook page because that would be amazing.
- 10:18And also you can tweet this out as somebody because it'd be
- 10:21amazing. Or you can just tag them in the
- 10:22post below this if you're watching on Instagram.
- 10:24So without further ado, guys, I will see you in the next video.
- 10:28Peace.