Latest / The KCNA2 & Rare Epilepsy’s Podcast
“It’s More Than Just a Seizure” Living With KCNA2 Epilepsy Day to Day
In this episode of the KCNA2 and Other Rare Epilepsies Podcast, Nancy speaks with McKayla Leber, a KCNA2 mom, board member, and Air Force spouse. McKayla shares her family’s journey raising her son Aaron, now 11, while navigating frequent military moves and repeatedly rebuilding specialty care from the ground up.
Aaron’s seizures began at just 7 weeks old. McKayla describes the early emergency visits, stretches of normal testing, and the uncertainty that followed before genetic testing finally identified a de novo KCNA2 variant when Aaron was 2. At the time, he was one of only a handful of…
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