Latest / Thick No More / Autistic and Thriving in Tech | Shea Belsky on Leadership, Inclusion & Being Yourself
Transcript
- 0:02They said we were thin. They said we couldn't learn,
- 0:08couldn't thrive, couldn't shine. But here we are, living proof.
- 0:18The resilience rewrites the story.
- 0:21There are no labels. There are no limits.
- 0:24This is the clamor where voices rise, stories connect.
- 0:35Hey everybody, welcome back to Thick No More.
- 0:37This is the show that turns old labels into new strengths.
- 0:41I'm Jay and I am absolutely delighted today to be joined by
- 0:45Shay Belsky, an autistic self advocate, a tech lead to
- 0:50Hubstop, formerly CTO and technical Co founder of Myntra
- 0:55and the host of Autistic Techie podcast.
- 0:59We're going to talk about historian to leadership for
- 1:02neuro diversity. I'm going to hopefully touch on
- 1:06some practical advices about what companies miss out on and
- 1:09where they're going wrong and talk about his early years.
- 1:13But shade, I always start with the same question to everybody.
- 1:19I know you've listened to a little bit of my podcast.
- 1:22You flingered. All right, my friend, welcome.
- 1:25You walk into the room and the same theme tune plays every
- 1:28time. What is your song or why my
- 1:31friend? My, I had a very interesting
- 1:33question. First off, Jay Shay, love the
- 1:36rhyming. Thank you for having me on your
- 1:38show. If I was going to, if I was
- 1:43going to have a theme song that played when I came out into a
- 1:47room, I kind of like Born This Way by Lady Gaga, to be honest.
- 1:51I think it kind of fits the theme of this topic where I was
- 1:54born autistic. I really don't to see a world
- 1:58where I would not be autistic, Like this week especially, I was
- 2:02reminded of that in a good way and in a not good way.
- 2:06But I really think that it's a part of my identity and I'm very
- 2:10fortunate and lucky to be able to talk about it in forums like
- 2:13this, and I'm super psyched to be on your show today.
- 2:17Thanks my friend. Great cheer as well.
- 2:18Love that song. So you've kindly told us about
- 2:24autism. So what I like to do with this
- 2:27is paint a picture. We have a lot of parents listen.
- 2:32We have a lot of leaders, business leaders that listen.
- 2:35And we also have a lot of tech people like you and I that
- 2:38listen to. But I think the majority of
- 2:42people that reach out to me are concerned parents.
- 2:45They're a little bit lost. Their child has been given a
- 2:48label. They don't really understand it.
- 2:51So what I like to do in this podcast, some show you where is
- 2:54this? We go back to the beginning and
- 2:55we talk about you, your early years.
- 2:58So you're autistic and really a self advocate from a young age.
- 3:02What do you kind of remember about those those early years of
- 3:05diagnosis and self discovery? From a pretty early point, I
- 3:09think the conversation around neurodiversity was pretty
- 3:13different than how it used to be in today's world.
- 3:16When I was diagnosed when I was 2 years old, it was much more of
- 3:20a challenging conversation between my parents and the
- 3:23doctor. I, I don't remember that I was 2
- 3:25years old, but they, they recall to me that when I was diagnosed,
- 3:29it was like, oh, Shay will never go on to have a job.
- 3:33He'll be with you forever. He won't have a partner or own a
- 3:36home. And fortunately for me, I've
- 3:39done all those things in the last five or so years.
- 3:41So I'm very excited. And I'm sure the doctors would
- 3:44be happy at this point to know that they were wrong.
- 3:46One of those good things where they're they're happy to be
- 3:49wrong in this case. And what I remember growing up
- 3:53and really discovering myself was about learning to me, what
- 3:58does my autism mean to me? So I think everybody has a
- 4:01different relationship with autism, whether they are
- 4:04autistic or not. And what I really sought out to
- 4:07understand was what does it mean to me?
- 4:10What do I need to ask for in my environment, at school, at work,
- 4:14in my life? And how decisive, how stubborn
- 4:19lack of a better word can I be when asking for these things?
- 4:22Because I think it's very easy to fall into the trap of asking
- 4:25for something, not getting and walking away.
- 4:27But if I actually need something, then I need to be
- 4:31confident enough in myself to stand up for myself and get it
- 4:35done. Otherwise I will be a
- 4:37compromised version of myself. Yeah, You know, the amount of
- 4:43people that come on, we had a lady, a young lady come on a few
- 4:48weeks ago now also from America. Also, given that absolute brutal
- 4:55line, not to her, but to her parents, he's probably not going
- 4:59to get a job. In her case, if she's not going
- 5:01to get a job, she's probably going to get in trouble.
- 5:03She's probably not going to get married.
- 5:05You know, you can't imagine. I mean, I didn't, I didn't find
- 5:10that I was dyslexic until I was way, way, way down a line.
- 5:13I mean, way in my 20s. But it must be, it must be
- 5:16really difficult for parents to hear those lines and think, my
- 5:20God, you know, such at the start we get parents listen.
- 5:24And Matt, you are definitely going to get people reaching out
- 5:27to you, my friend, by the way, if that's OK, because they are
- 5:29they're lost, you know, and given, I mean, thank God, praise
- 5:33the Lord that we don't get those kind of statements anymore from
- 5:37from doctors and neurologists and and and hospitals.
- 5:41But what a brutal line to give to a parent.
- 5:44Probably never going to work. And Can you imagine?
- 5:47It's challenging and something that I've think has been coming
- 5:51up more often now than when I was growing up was Hollywood,
- 5:55pop, pop culture, movies, television, etcetera.
- 5:59In when I was growing up, the image of an autistic individual
- 6:02was Kiki, antisocial white American brunette.
- 6:08I I joke about that, but it's also a very serious conversation
- 6:11because most people who think of autistic individuals think of
- 6:15white American men. But by and large, autism is
- 6:19something that anybody can have, whether you are a woman, a
- 6:22person of color, someone from a different race, a different
- 6:25country. And I think the doctors, and not
- 6:28only doctors, but also society in the world as we know what,
- 6:31are also starting to recognize what autism looks like in other
- 6:35people. And I think the pop culture is
- 6:38starting to slowly and slowly reflect this.
- 6:41My big shtick, my big bone that I pick is with like Sheldon from
- 6:46Big Bang Theory. He is a stereotype of like what
- 6:49an Asperger's autistic individual like myself kind of
- 6:52looks like. But by and large, we've seen a
- 6:55much more healthier spread and breadth of diversity from newer
- 7:00portrayals of autism. For instance, Sesame Street has
- 7:04a great portrayal. There was a Broadway musical
- 7:07about autistic people a couple years ago featuring men and
- 7:09women of all different backgrounds and upbringings.
- 7:12And I think we're starting to see a trend where autistic
- 7:15people are not mischaracterized. It's only fitting one sort of
- 7:21look or feel. It's, it's the conversation.
- 7:24Well, I guess I mean, it's it you've got to start somewhere
- 7:27and talking about it is one thing.
- 7:30I'd really my my son, I've got a 14 year old son and he flat
- 7:34refuses to listen to my podcasts.
- 7:36Right. I don't know why he just does.
- 7:39However, I have a selling point to him now.
- 7:42He loves young Sheldon. I have facts.
- 7:45The fact that you've mentioned that they're like, I've got to
- 7:48say to him, you need to listen to this podcast.
- 7:51Perhaps, perhaps I can persuade him to listen now from that.
- 7:54What was what was what was school like for you?
- 7:59I mean, I know what it was like for me, but what was it like for
- 8:02you, my friend? Can you can you elaborate a bit
- 8:03about it? School was interesting for me
- 8:06because I was really trying to figure out my sense of like self
- 8:11regulation dysregulation. I had environmental and sensory
- 8:16triggers that I didn't even know about, largely because I was
- 8:19just so afraid. But it wasn't until I matured
- 8:23for like a middle school and high school or was able to
- 8:26really take a step back and ask myself, what are these triggers
- 8:30that are bothering me? Is it light?
- 8:32Is it sound? Does it touch?
- 8:34And I think the more that I became aware of what was
- 8:38bothering me, the easier it became for me to find
- 8:42environments where I was doing all right and avoid those where
- 8:46I felt as though I would be overwhelmed.
- 8:49Lack of a better word. It was also easier for me to
- 8:51then speak to teachers and professionals and specialists
- 8:55who we're in a position to help me do something about it and
- 8:58say, hey, like this kind of environment doesn't work for me.
- 9:00Can can we do something about it?
- 9:02And what that thing to do looks like can really change from
- 9:06situation to situation. But just me being able to
- 9:09articulate and say that I think was a really big step in my
- 9:12development when I was in school, because without that
- 9:15recognition of what was triggering me and what was
- 9:19causing meltdowns or shutdowns, I would have really struggled a
- 9:24lot more in school than I did. Yeah, yeah, and and, and going
- 9:29through school itself, you know, it's testament to you and your
- 9:32parents support and the schools that you're in and everything.
- 9:36So what was the transition like getting into work and how did
- 9:41you kind of get into tech And tell us a bit about.
- 9:44I know looking through some of your LinkedIn and listening to
- 9:48some of your podcasts, you mentioned about Cornell and Tech
- 9:51took us about what journey into those roles and, and I guess
- 9:56what did you learn about those environments and you know,
- 10:00inclusion and exclusion, What, what kind of really started to
- 10:03highlight that on that, on that work journey?
- 10:07And that was really interesting because that was the first time
- 10:09I was kind of on my own really having to ad keeper myself asked
- 10:13for what I needed. And also take a step back to ask
- 10:16what are some areas in which I would like to grow and develop
- 10:19and mature as an individual? And what does perhaps look like
- 10:23really varied from situation? A situation and might have a
- 10:26situation where I have to be like really upfront and honest
- 10:30with an instructor or a professor about my being
- 10:32autistic and what that means in this classroom.
- 10:35The number of situations that might mean like putting myself
- 10:37out there a little bit socially, going to an event, going to a
- 10:40social gathering and trying to understand like what's my upper
- 10:44limit for my ability to socialize or be in a situation
- 10:49and trying to find the right happy medium.
- 10:52What was great about the experience at Cornell was that I
- 10:56think there was a very, very broad breadth of experiences
- 11:00that I could choose from. So I could go to, I would say
- 11:03like more intense, more loud party.
- 11:06And then to say, OK, this is not for me.
- 11:08Then I can go to a different event where it was a little bit
- 11:11more pared down, a little bit more laid back.
- 11:14And that was much easier for me to be like, OK, I can actually
- 11:17like survive here. I can talk to people, I can
- 11:19socialize that I'm not feeling overwhelmed.
- 11:22So I think the theme of my time at Cornell was really about
- 11:25trying to calibrate with what my upper limits are, what my
- 11:30capacity was, and then maybe try to grow them slowly over time.
- 11:33But from that early point it was just trying to figure out what
- 11:37can I actually do right now, just trying to calibrate instead
- 11:40of standard. It's, it's all because for me, I
- 11:42mean, I'm not autistic, I'm dyslexic and I reckon I'm, I'm,
- 11:46I'm, I'm absolutely way on the ADA DHD spectrum as well as no
- 11:52two ways about it. But me, for me, I went, I've
- 11:57told you this. I mean, I struggled my way
- 11:59through uni and to a certain degree, you know, I'm not proud
- 12:03to admit it, like cheated as best as I could look in at the
- 12:06people's shoulders, you know, to get by the struggle because it
- 12:11just wasn't any technology that you know, it was pen and paper
- 12:13and blackboards as we said. But I remember, I remember
- 12:17getting into work and it's for you talk about like
- 12:20environments. I used to feel at times really
- 12:26disjointed. I work events, particularly
- 12:29Christmas events, I remember kind of like struggling to be
- 12:32part of the conversation because I always, always felt like I
- 12:38knew, I knew it was different. I knew that.
- 12:40And as I told you, my, my boss on that first graduate role
- 12:44actually told me, Hey, listen, you do know you're dyslexic.
- 12:47Like those was the exact words, but I had almost a similar
- 12:52experience to you. Really.
- 12:53I used to had a group of people that I would kind of cling on to
- 12:59and that was more of a comfort thing for me, like a comfort
- 13:01blanket because I knew wherever they went and the chances were
- 13:07that they weren't going to go to the louder environments, the
- 13:10louder gatherings, it would be the more quiet ones where I
- 13:13could speak and be heard and not worry about how I came across.
- 13:18And it's funny as neurodivergence, we were like, I
- 13:22don't know. We cling on to those, on to
- 13:24those, on to those bits where we feel safe.
- 13:28And it is, it is like we said, it's, it's, it's finding out
- 13:31balance. But this is right.
- 13:33This doesn't feel right. So you go for this feels right
- 13:36every time as a as a, as an employee and and you're now a
- 13:45leader. I see you've done some fantastic
- 13:47things. Does it give you any kind of
- 13:51perspective what it's been to be an employee and and how you
- 13:57would feel at the time you wish your leader had been?
- 14:01As a leader, are you different now?
- 14:03Do you think that because you've seen it from both sides of the
- 14:06spectrums, it changes you as a leader?
- 14:09Absolutely. I think something that I've
- 14:11learned as being a manager, being a leader has been an
- 14:16emotional element to it and trying to understand people
- 14:19where they are in life and trying to calibrate my
- 14:22management style as a function of what do they really need?
- 14:25Like individuals have love languages.
- 14:28People have love language between their family and their
- 14:30friends and people they love, but people have a corporate love
- 14:33language too. Like what do they need from
- 14:35their job? What do they need from their
- 14:37workplace? For some people, a job is just a
- 14:39job. They're just there for the
- 14:41paycheck in order to do good work, but they're maybe not
- 14:43invested in like growing hugely and significantly.
- 14:47Other people are very much focused on excelling and growing
- 14:52and doing more for their organization.
- 14:54And some people are somewhere in the middle or on the extremes.
- 14:58And as a manager, I have had to learn what does it mean to
- 15:03support people in that journey? What do they need from me as
- 15:07their manager to actually feel like they have the tools and
- 15:11support and guidance to succeed? And I've also learned having
- 15:16worked with managers who are not like emotionally available or
- 15:19not emotionally present, that was something that I valued a
- 15:22lot in a manager, somebody who's like, hey, like, how's living at
- 15:26home? How's like your family?
- 15:29How's your pets? Like whatever.
- 15:30It was just like a little chicken, like how are how is
- 15:33Shay the person not Shay the employee?
- 15:36And I always appreciated that. Yeah.
- 15:39I really appreciated that. Yeah.
- 15:43And, and that's kind of how I felt about that.
- 15:46The guy that took me into the office that day and said to me,
- 15:50you do know, I've been correcting your paperwork for
- 15:52the last six months. You know, I, that for me was,
- 15:56was the light on moment for me. And, you know, going through
- 16:00going through numerous jobs after that, like you just
- 16:03mentioned, I came across managers who were, you know,
- 16:07were less sympathetic towards the way I was as an individual
- 16:11and the way I needed to work to make, to make me work in my
- 16:15position. I'm going to take you somewhere
- 16:17now and it's somewhere like I really want to get your thoughts
- 16:22on this. I appreciate that you're, you
- 16:24know, you're from the US and everything.
- 16:27I pulled some pulled some figures down.
- 16:28You kind of touch on what we've just thought about a leader and
- 16:33you're a divergent and an employee.
- 16:36I'm going to run some figures by you now.
- 16:39So this in the UK we have something called disability
- 16:42confidence gaining right And horrible way to describe it my
- 16:47friend, but it is basically a box ticking exercise.
- 16:51So ABC business, if they tickle the boxes they are classed as
- 16:56fingers in the air. Disability confident.
- 17:00Now listen to this. These are true figures as of
- 17:03last week, as of Friday of last week.
- 17:06So in the UK there are only 6000 companies registered as
- 17:12disability confident and there are 5.5 million businesses in
- 17:18the UK. So we are talking what yeah,
- 17:22honestly make true figures and this this data, this data is
- 17:25available off the government website.
- 17:28So they're government backed figures.
- 17:29So it's not not just something I've clocked off AI or anything
- 17:33like that. A genuine figures.
- 17:34And that for me is is bonkers. So I don't know what that is as
- 17:39a percent. I'm guessing about probably 1%,
- 17:42if that. Yeah, really though, my friend.
- 17:45So first of all, you said, wow. I want us to talk about this a
- 17:51bit because this is something I'm really, really keen to dig
- 17:54into this season. That's why I've got you on,
- 17:57because when I came across you, I was blown away by the things
- 18:01you've achieved in life. I think it's a credit to you.
- 18:03Obviously you, you know, have good family around you, but it's
- 18:07credit to you that you've got this far and now you leave these
- 18:10businesses and you know, you work for Hotspot now, which is a
- 18:13huge, huge company, but we're in 2025 and 6000 companies.
- 18:20So I would love to talk about first of all, if you and I were
- 18:26to jump into a business now and there was 0, like they had
- 18:30nothing for inclusion, nothing to disability, nothing from your
- 18:33Divergent. I would love us to talk about
- 18:37what a business could probably see if they were to become more
- 18:41accessible, more inclusive, and maybe get your thoughts on some
- 18:46of the some of the changes you've seen in America, how it
- 18:49helps people like you and I, you know, what do they get out of
- 18:53people just by making maybe a small change to a business?
- 18:59And yeah, give me your thoughts on those figures actually.
- 19:01First off, unfortunately, I'm not surprised by those figures.
- 19:05I think the idea of being confident you can support
- 19:08customer disabilities most likely stems from a business
- 19:12owner's own interactions with people with disabilities,
- 19:16whether they are disabled or they love someone who is or know
- 19:19somebody who is. I'm sure those affirmations of
- 19:22disability confidence stem either in response to someone in
- 19:26their life or they stem in response to a customer or to
- 19:29some legal issue. There's a lot of reasons why
- 19:32that could be the case. Some of them are genuine at
- 19:34wanting to be accessible and some of them might be because
- 19:37their hand was forced by some higher power.
- 19:40When I think about what organizations can do to be more
- 19:43accessible, whether it's for individuals, disabilities, it
- 19:46starts with universal design, it starts with being accessible to
- 19:50everybody. In an absolutely perfect world,
- 19:53none of this stuff would be so specific to neurodivergent
- 19:57people because it would be working for everybody and we
- 20:00wouldn't have to feel like we're singling out people who are
- 20:04neurodivergent. It would be a conversation for.
- 20:05Everybody. Yeah, we wouldn't even be
- 20:07talking about it. It's you just walk into your
- 20:09workplace and it's just there. No matter what.
- 20:11You are, who you are, you know? Totally.
- 20:14Yeah. And when I think about
- 20:16accessibility in the workplace, really, I think one of the
- 20:19things that also really, really helps is organizations that have
- 20:24leadership who are disabled or have somebody who is or have
- 20:27somebody who is. That's a huge aspect to what I
- 20:32think about with disability inclusion.
- 20:34When organizations have leaders who are open about it, who are
- 20:38willing to talk about it, or who are trying to put into practice
- 20:42policies that improve accessibility, those are all
- 20:45really huge, huge, huge, huge things that make a massive
- 20:49difference in this realm. Yeah.
- 20:52Do you think, do you think it also makes a difference?
- 20:54I mean, you mentioned that if you've got somebody with a
- 20:57disability or somebody and you're a divergent, for example,
- 21:02driving that change, I guess you also what you also need is buy
- 21:08in from the from senior management.
- 21:11Like otherwise it's like banging your head against the brick
- 21:15wall. Really.
- 21:16If you haven't got the buy in, you do.
- 21:20Can you sort of elaborate a little bit?
- 21:23I don't mind who it is, maybe hopes for or mantra.
- 21:28Give us some sort of examples of what it feels like when you get
- 21:32it right. Like for me, I mean, I use tech
- 21:36every day and it is that I guess that's the frustrating thing.
- 21:39Tech is available, right? Tech is available for everybody.
- 21:43But you said you just need someone to drive that change.
- 21:45But give us, can you sort of give us an example, a HubSpot
- 21:48for example, of how it works and you know what it, what it feels
- 21:53like for these people, the differences they say.
- 21:56Yeah, At HubSpot, we just started our disability alliance
- 22:00ERG. This is something that was years
- 22:02in the making. And ERG is an employee resource
- 22:06group. So it's an organization where
- 22:08individuals with disabilities come together or their
- 22:11caretakers or their loved ones. And we have a community where
- 22:14people can share with each other.
- 22:17They can find some empathy from others who may share a diagnosis
- 22:21or caretakers who are in a similar position.
- 22:24It's a group of people who share in this common purpose or this
- 22:29shared social theme. And there's ER GS for
- 22:31everything, not just at HubSpot, but everywhere.
- 22:34ER GS exist for women, families of people of color, people from
- 22:40East Asia. There's ER GS for a lot of
- 22:42different reasons, and in HubSpot, disability is one of
- 22:46them. And I was really fortunate to
- 22:48help be a part of the launch of the Disability Alliance ERG back
- 22:52in July for Disability Pride Month.
- 22:54It was validating that we were able to put this community
- 22:58together and launch it, especially given current events
- 23:02in the United States where a lot of the efforts are under fire or
- 23:06are being questioned. I was really happy that HubSpot
- 23:09is supporting these efforts and wants to make it a priority.
- 23:14That's amazing. And I think that's what it,
- 23:18that's what, you know, we have, we have people here in the UK
- 23:24and there's a terminology for them.
- 23:26They call them the hiders. So that the people that go to
- 23:29work every day. And I'm sure, I'm sure that I'm
- 23:32sure that I'm sure it's in America as well.
- 23:33But in, in the UK, it's really proud.
- 23:36I mean, there are people that go to work every day and hide the
- 23:42fact that they're slightly autistic or they're not like
- 23:46dyslexic or they, they suffer with, you know, ADHD or whatever
- 23:52it might be. And they go to work every day
- 23:54out of pure fear of, of, of saying to their leader or their
- 23:59manager, Hey, listener, I could just do with a bit of help here.
- 24:03I love the fact that you have like a community there where you
- 24:08can share and talk about things. You know, that's a really
- 24:12simple, I mean, it probably wasn't, it was a long process to
- 24:15put in place, but it's a set if you think about it, you know,
- 24:20everybody has like the majority of businesses have like an
- 24:23Internet site or something like that.
- 24:26You know, such a simple thing, a community where you can share
- 24:30about best practice, where you can share bad struggles, where
- 24:34you can share about technology you've come across or how you
- 24:36work in this way. That's really credit to Hotspot,
- 24:39to be fair, particularly like you said, in light of what's
- 24:42going on, not, not just in America, but in the UK as well,
- 24:44you know? It really is awesome, not just
- 24:47for ERG, but anywhere where you have a community.
- 24:50There's lots of different neurodiversity communities that
- 24:53I'm familiar with that don't just exist at an organizational
- 24:55level, but it's just for anybody to join.
- 24:58There is ND Connect there, a startup that connects
- 25:02neurodivergent people with mentorship opportunities across
- 25:04all different spectrums and gamuts of neurodiversity.
- 25:07I'm in a Slack organization called Neuro Diversity in Tech,
- 25:10which is about neurodivergent tech enthusiasts, people who
- 25:13work in the industry, and people who are trying to get into it.
- 25:17There's a bunch of Facebook groups and discords as well.
- 25:19I think with the revolution of the Internet, we're really
- 25:23starting to see a much stronger ability and affinity for people
- 25:26to join communities that resonate with them, and confined
- 25:31empathy and confined social opportunities that might not
- 25:34have otherwise existed. Yeah.
- 25:36And that might be in some people's positions, that might
- 25:41be all they've got to hang on to, you know, the fact that they
- 25:44can talk to somebody else in a similar position and share, you
- 25:48know, because it's access to it's, it's a terrible situation.
- 25:52And I don't know whether you're aware of what's going on here in
- 25:55the UK, but yeah, there's so many cuts and changes in
- 25:59education in the workplace. People are really struggling
- 26:03and, and there is just a sheer fear of just coming out and
- 26:08going. You know what?
- 26:08Listen, I'm really struggling here, man.
- 26:10I'm struggling every day to do my job.
- 26:12And I, I, I must be horrible, A, to go to work, get up every
- 26:17morning to go to work and fight that battle.
- 26:19But B go home and you, the mental strain you must be
- 26:24putting on yourself, battling every day without anybody to
- 26:30talk to, any technology to help you, it must be insane.
- 26:34I I don't know how these people cope.
- 26:36I really don't. It's exhausting or it it can be
- 26:38very exhausting when it comes to just the neurodiversity tax, as
- 26:43I've heard it called. People can just get so exhausted
- 26:48by all of these madding tasks that have to get done.
- 26:53And there is a very real autism tax, ADHD tax, a sexy a task
- 26:58because you spend more time or more effort or more energy or
- 27:02more money on certain things in order to people do.
- 27:05And that just kicks people down when it's the last thing that
- 27:07they need and it is exhausting to deal with.
- 27:10It's just not another brick in the wall.
- 27:14I, I don't, you know that our community and I can give you the
- 27:22the approximate figure in the UK it's anywhere between 8 and 10%
- 27:28that fit into our community in the UK that are in the workplace
- 27:33either supported or non supported.
- 27:37But if you, if you think about it as a business from a business
- 27:40point of view, if ABC business were to or CD or difficult for
- 27:46dyslexia to go through the other paper, name any business you
- 27:50like. If they actually took a step
- 27:53back and they have no policies in place and they looked at the
- 27:59change and they thought, right, let's look at this.
- 28:03Let's get somebody in to help us with this, with this change that
- 28:07we need changing culture. I'd love to see and I'm sure
- 28:13it's got to be out there somewhere.
- 28:14Some of them must have done some sort of result based focus on on
- 28:21what the results were after they'd done these culture
- 28:25changes because we we just spoke about these people like the
- 28:30burnout and fatigue of hiding day-to-day.
- 28:34Imagine giving, you know, Jim or Julie a piece of technology or a
- 28:40bit of a bit of support, like you said, a community where
- 28:44they've got time, the right product to do their job.
- 28:47I wonder what percentage, what higher percentage you get from
- 28:50that individual by changing that culture.
- 28:53I don't know whether you know the results on that, but I
- 28:56reckon it's got to be quite a high percentage, you know.
- 28:58I don't have the numbers in front of me, but I also don't
- 29:01need the numbers to tell you what I've experienced
- 29:03anecdotally, when I self disclose or help other people
- 29:07disclose their neurodiversity to their managers, to their teams,
- 29:11pretty much on every occasion, these people feel like they
- 29:16belong more in the workplace because they can be authentic,
- 29:18they can be themselves. They feel like they are heard
- 29:20and understood, and in those situations where they don't get
- 29:23what they need, the company wasn't a good fit for them in
- 29:26the first place. So they ended up moving on
- 29:27because they realized, oh, this organization actually does not
- 29:30have the capacity to support me and I can't be here because they
- 29:35can't give me what I need to be successful.
- 29:37So I just have to move on for my own sake.
- 29:40So even just anecdotally, I can tell you that when individuals
- 29:44not only feel supported in their ability to say something and be
- 29:48honest and before coming, but then also actually go ahead and
- 29:51do that and they self disclose and they talk about it, it
- 29:54generally leads to better circumstances.
- 29:56Either because their company can support them, or because they
- 30:00recognize their company can't support them and they move on
- 30:02before they get hurt. Yeah, that is, it's, it's, it's
- 30:07shocking. And you know, you think about
- 30:10the company then I mean, take away the aspect from the
- 30:13individual that's left the business because they don't
- 30:15feel, don't feel wanted, don't feel worthy, can't even do their
- 30:18job because they're struggling. So they realize this is not a
- 30:21place for me, they leave. So if you look at the aspect
- 30:24from the business point of view, so they've got the whole hiring
- 30:28procedure again. So they've got to hire somebody
- 30:30else, which they may use a recruitment consultant.
- 30:32So you've got fees there. They've got to go through the
- 30:35whole interview process again to find somebody.
- 30:38All they needed to do was accommodate that person, make
- 30:41that business inclusive, make that inclusive, make that person
- 30:46feel wanted and give them the the the things they need to
- 30:52work. And it would have stopped all
- 30:55that. And you know, I don't think I,
- 30:58you know, well, the figures, the figures telling yourself, I just
- 31:01don't think there's businesses out there that realize how much
- 31:05extra work they're creating by just not making tiny, tiny
- 31:09changes. I mean, yes, what, what you
- 31:11talked about there at HubSpot, that's, that's, that's next
- 31:15level stuff. But there are tiny changes that
- 31:17businesses can do to saw someone leaving and then having to go
- 31:21through the whole recruitment process again to find
- 31:24potentially another person who also might be hiding right then.
- 31:28Then you're in the same position again.
- 31:30Exactly. It's crazy how people are like,
- 31:34oh wow, because I can now talk about a neurodiversity pretty
- 31:36openly. Suddenly I realized that I have
- 31:39what I need to be successful. Like I think people are afraid
- 31:43and worried about talking to their employer because they
- 31:46don't know how to go in to respond.
- 31:47And that's not that our discredit because a lot of
- 31:50people have trauma and negative experiences which stem from them
- 31:54having self disclosed in the past.
- 31:56And they may have gotten some sort of like reprimand or having
- 31:59been fired and let go for those reasons.
- 32:01And that's awful to have to feel like your job's on the line when
- 32:05you're just trying to ask what you need.
- 32:06It sucks. It's awful.
- 32:08Yeah, no, I agree. It's shocking.
- 32:11And like I say, we're in 2025. I mean, I, I don't know when,
- 32:16when we're going to stock up in this conversation.
- 32:18I really don't, but I did Well, I just said to you earlier, when
- 32:23I started at Xerox, it was pen and paper and, and carbon
- 32:28copies. I mean, I tell my son that
- 32:30carbon copiers and he looks at me gone out like it's some kind
- 32:33of like wizardry. But it was, it was pen and paper
- 32:37and carbon copy. Internet had just started to
- 32:40become a thing and we were, we were just on the technology of
- 32:45scanning to files, right. So we're way back.
- 32:49So when I was in the workplace, yes, business had a legitimate
- 32:55excuse. I used the word excuse, a
- 32:58legitimate excuse not to think about it because really that
- 33:03probably wasn't really that much that they could do to help me,
- 33:06you know, as a dyslexic, right? Fast forward to 2025, you know,
- 33:13as you just said, it sucks. There is, there is, let's be
- 33:16honest, there isn't really an excuse is that it's just to say
- 33:19to someone, I mean, something really simple like, I don't
- 33:23know, a screen meter or text to speech or the list is endless,
- 33:29right? It goes on and on and on.
- 33:30All these, all these pieces which are so cheap now and so
- 33:35affordable, you know, it, it, it's ridiculous that we're still
- 33:39having this conversation, you know, a.
- 33:41Huge thing that has happened for us has been the advent of remote
- 33:45work. Now that COVID has happened,
- 33:49there is many, many, many, many more people who can work
- 33:51remotely, who can work hybrid because their employer now has
- 33:55it as a policy. And we're slowly seeing the
- 33:57return to office for a lot of people, but it's now far more
- 34:02easy for individuals to ask to work from home versus having to
- 34:07be in an office that may be inaccessible to them.
- 34:10Did did did you find COVID drove that a lot as well.
- 34:14Completely. We would not see the
- 34:16ubiquitousness of work from home or hybrid work style without the
- 34:20pandemic. And that is not to make lit of
- 34:22it at all. It is a side effect of what was
- 34:26a very tragic series of events, but it did lead to this event
- 34:32occurring for neurodivergent people that we are definitely
- 34:35benefiting from. Yeah, I speaking to somebody
- 34:41whilst I was in London last week and she was telling me the one
- 34:47of the things that she really noticed during the pandemic was
- 34:50the some of the things that she used to do in the 80s came back
- 34:57to her and I said like what? She's law.
- 35:00I started listening to the radio again.
- 35:02I'd stop listening to the radio. It kind of had become old hot,
- 35:09old fashioned. And she said during the
- 35:12pandemic, when I was at home, working from home remotely, I'd
- 35:17have the radio on. And she's not a divergent.
- 35:20And she said that really, really helps me.
- 35:22It's on in the background, it's on choir.
- 35:24It just helps me through the day.
- 35:27I hear the news, the radios are, she said.
- 35:30And if the pandemic come, come, two things wouldn't happen for
- 35:34me. First of all, my mental health
- 35:36was really struggling in the workplace.
- 35:38I was struggling day-to-day to go to the office because of the
- 35:41travel aspects and there's not any other.
- 35:44So now I have the ability to work from home.
- 35:46I can work from home five days a week, three days a week.
- 35:49It's entirely up to me whatever I want to do.
- 35:51She's But also the aspect that I've started now listening to
- 35:54music again, Shadow didn't realize that it stopped.
- 35:59So it's funny how the pandemic made these changes.
- 36:02And like you said, that's a tiny thing really been that the
- 36:04technology was already there to work remote.
- 36:07We just weren't in really given the option.
- 36:09It was kind of like, oh, you just went to the office, didn't
- 36:11you? You just did it.
- 36:12You cut out for a second at the end.
- 36:14Can you repeat that? I'm sorry.
- 36:15Yeah, sorry, I said. You just kind of you, you just
- 36:19went to the office, you know, it wasn't, you were expected.
- 36:23It was when you went for a job interview, you got a job, this
- 36:26is the office location and you just went there and you went
- 36:29there every day. And the pandemic really kind of
- 36:33like give us the ability, like you said, to say, well, actually
- 36:38I can do exactly the same, better probably working from a
- 36:43remote location than I can in the office.
- 36:45I've got less distractions and you're dead right.
- 36:49And and this lady just sits there every day now She has her
- 36:52radio on and, and and is happy as as you like, all because of
- 36:57the pandemic. So there was some good that came
- 36:58out to a certain degree. The pandemic changed people's
- 37:02relationships with how they work, honestly, and that was for
- 37:06a broad variety of reasons and a broad variety of ways for neuro
- 37:09divergent people and by extension anybody with a
- 37:12disability, that came down to the nature in which you do your
- 37:15work. Can you work from home?
- 37:17Can you flex your hours? Can you take time in the middle
- 37:20of the day to go do something? I think the pandemic has shown
- 37:23that a lot of those things are possible.
- 37:25And yes, we as a working society can be flexible to people when
- 37:29it helps them get their best work done.
- 37:31Like I do that all the time in my current job.
- 37:33I'll be like, hey, I have to hop off for a minute to go take care
- 37:36of an errand, to go to the an appointment or just do
- 37:39something. And as long as I make up that
- 37:40work at number times, people don't necessarily dictate how
- 37:44that happens. I'm really fortunate to have
- 37:46that support for my team. And more and more companies
- 37:49should do that, not just for neurodiversity reasons, but just
- 37:52in general. It helps everybody.
- 37:54No, absolutely. You know, I think I, have you
- 37:59ever really thought about, you just said that I actually think
- 38:01I'd do more hours now, physical working hours than I did when I
- 38:07was in an office. Because when I went to an
- 38:10office, I would have to commute. So that would be an hour drive.
- 38:15I'd then be in the office until the office closed and the office
- 38:18had open and closing hours. Then it was an hour drive back
- 38:21home. And by the time I got home in
- 38:23traffic it was probably longer. Whereas now I get up, I log on
- 38:28relatively early because there's stuff I need to do.
- 38:31Same as you, if I've got something I need to do
- 38:33personally, I'll go out and do it.
- 38:35The I reckon I do more hours now.
- 38:38My company definitely gets more out of me now than it did when I
- 38:41was office based 100%. Yeah, like I think people are is
- 38:46much easier for them to put in more time or do more work when
- 38:51they feel like they're in the right environment for that.
- 38:54Whatever they're working from home or working in an office,
- 38:56whatever that environment is, People now have the ability to
- 39:00be a little bit more selective and also reflect what works for
- 39:04me as a narrow divergent person. I ask myself all the time, what
- 39:07works for me, what about this is working?
- 39:10What about it is not working and what do I have to do to change
- 39:13this so that I get to the point where I am able to do my best
- 39:17possible work? Because if I can't get that
- 39:19done, then it doesn't really matter.
- 39:22Yeah, I know, I know When we spoke originally, you were in
- 39:28Germany doing a marathon, which I think is unbelievable.
- 39:33And also, yeah, and I incredible, incredible stuff.
- 39:38And I've seen a couple of things where you talk about self
- 39:42regulation and sensory challenges.
- 39:47How do you how do those strengths play out in the
- 39:50workplace for you? I think when it comes to sensory
- 39:53regulations, like I wear headphones at my desk pretty
- 39:56much all the time. Like even when I'm at home, I
- 39:57would wear headphones just so I can focus and zoom in and really
- 40:02try to understand what's going on.
- 40:05And that really, really, really helps me just stay centered and
- 40:08stay focused because I can say to my team around me, hey, I'm
- 40:12going to wear headphones at my desk.
- 40:14If you need to talk to me, like send me a slack or tap on my
- 40:16desk or whatever, you can always talk to me.
- 40:20I'm just focusing. And don't be surprised if I'm if
- 40:23you're like talking to me about headphones on and I don't hear
- 40:26you, it's because their headphones are doing their job.
- 40:29Yeah, do you? When you're when you're setting
- 40:32yourself a challenge like a marathon, for example, does the
- 40:35same apply? Do you need to block out to for
- 40:40the effort that goes in a marathon when you're doing the
- 40:42training before? Are the headphones for for joy
- 40:47to listen to music? Do you wear headphones when
- 40:49you're running or are they there also to block out?
- 40:52So you'd get a maximum concentration on the job in
- 40:55hand, which is 1024 miles, whatever it might be 26 miles
- 41:00for a marathon. Do you wear headphones when
- 41:01you're running? Our curiosity.
- 41:03Yes, all of the above. I wear them I when I work.
- 41:09I wear them when I run if I'm not doing.
- 41:11I've read this things. Not necessarily.
- 41:14I might be like listening to something unlike the speakers,
- 41:16but I'm not always having headphones on.
- 41:18But I think I do use it a lot in the workplace, especially in the
- 41:21office. The office has a lot of ambient
- 41:24noise around and it really helps me just tune some of that out.
- 41:28When I'm at home is less relevant because it's pretty
- 41:30much like just me or my wife upstairs so there's less noise
- 41:33to deal with specifically. Like my headphones off if I'm
- 41:36just by myself, but if I'm on a call I put them on.
- 41:39It's interesting because I, I don't when I'm on a on a Teams
- 41:44call or a Google Me, I don't wear headphones.
- 41:48The interesting thing is, and I've never really noticed this
- 41:51until you just spoke about that, but I'm working on a on a
- 41:54webinar at the moment. And today I didn't even realize
- 41:59it did it. But I've had my headphones on
- 42:01and I know for a fact the music could stop playing, but the
- 42:05headphones were still in. But I think you know, you know,
- 42:08on on some headphones are you get the background, just the
- 42:12noise level goes right down. It did.
- 42:15It knocks out a background noise.
- 42:18Then I know for a fact the music could start, but I never took
- 42:22the headphones off. I just carried on working and I
- 42:24think it was for me, I'm kind of like, hey, listen, and this is
- 42:30my concentration time. So I've left my headphones in
- 42:34and it, I don't know whether it was whether it was a, an
- 42:37environment where it just made me feel I was getting more done
- 42:40or it was an environment just to tell everybody else.
- 42:42And you kind of leave me be for a bit because I'm busy.
- 42:45But I didn't even notice that until you just said that
- 42:48actually. My wife does sometimes.
- 42:50She'll just keep her headphones in and not listen to anything.
- 42:52I'm like, what do you mean? Like you're not listening to
- 42:54anything? Like, what's the point?
- 42:55Yeah, sometimes it just blocks that sound and I'm like, OK,
- 42:59that's weird, but OK, everybody does it differently.
- 43:03Well, I. Didn't even know until you just
- 43:05sat and I've just I just thought on a smile when you said it.
- 43:10I'm on today and the music blatantly stopped.
- 43:13Maybe I left them in because it's unbolt to press play but I
- 43:16think I think it was because I was just finding it easier.
- 43:20I couldn't hear and it was very little noise, but I just found
- 43:24it was just retaining my focus that bit more interesting.
- 43:28I want to I want to kind of give what I like to do is, is part of
- 43:34the podcast where AI enable people to reach out to you.
- 43:39And what I'd like to do at the end of this is kind of give some
- 43:42details if you're happy to share.
- 43:44But I think we talked about hiders, we talked about people
- 43:47that hiding. So this is kind of advice to
- 43:51anyone that listens really. So I'm going to touch a bit on
- 43:53here about leaders, which you definitely are.
- 43:57And I think you I can see and I can see from your and listen to
- 44:02your podcast and I can see from the way you, you hold yourself
- 44:05on LinkedIn and things you do, you're definitely a leader that
- 44:08leads from the front, which I think is brilliant and that's
- 44:10testament to you. So a, I'm going to get some
- 44:13advice for some leaders that may be listening because I'm out of
- 44:15a song. And I think I'd like to maybe
- 44:17get your advice for anybody, anyone that's and the workplace
- 44:26and feels they've got to hide. So let's do a question relating
- 44:30to leaders. Maybe you can do one, but if you
- 44:36think of anything else, by all means checking.
- 44:38And let's just say we've got a leader listing right now.
- 44:41What's one thing they could do Monday morning just to make the
- 44:45workplace genuinely more inclusive?
- 44:47Is this something you could think of?
- 44:49Seek to understand everybody on your team from a personal level.
- 44:53Understand why are they here? What are they trying to do?
- 44:56What do they need from you to get their work done?
- 45:00Because as a leader, as a manager, you should be motivated
- 45:04and inspired to help your team accomplish their fullest
- 45:08potential. Do they have what they need to
- 45:11do that, They not have what they need to do that and what can you
- 45:14do the bridge that gap? I think that's the number one
- 45:16thing that you can do regardless of if an individual is
- 45:19neurodivergent, disabled or not. It really just helps them show
- 45:23up for each other and for you to know that they are doing
- 45:28everything that they can and they're at 100%.
- 45:32And that and that's not, we're not talking about spending any
- 45:35money there. That's a really, really simple
- 45:38thing that someone could do on Monday easily, right?
- 45:42Like super easy. Exactly.
- 45:45Yeah. Well, let's hope someone's
- 45:46listening and heard that from, you know, I know there are
- 45:49people that listen and. And yeah, that doesn't cost
- 45:55anything, guys. Just, you know, just words
- 46:00that's sort of like this. And ears.
- 46:01Use your ears to listen and just embrace these people and you'll
- 46:05see massive change. Massive.
- 46:08Just a tiny thing. What about?
- 46:11Exactly. It is, it's heartbreaking.
- 46:14It's heartbreaking. All right, let's talk about the
- 46:17people that hide, which I'd, I know for a fact, right as as a
- 46:21guy who reached out to somebody, one of my podcasts about 5 weeks
- 46:28ago and he read me a lovely e-mail saying, you know, I'm
- 46:32really glad you're doing this in my workplace.
- 46:36I've worked at this, this company for nearly seven years.
- 46:41They don't know I'm dyslexic, they don't know I'm ADHD.
- 46:44I struggle every day. I'm really good at my job.
- 46:49So he is he is one of these people that that hides.
- 46:53Can we give them? I actually gave this guy some
- 46:58advice and I said that feel free to reach out to Tandy, who was
- 47:02the guy that had done the podcast for me.
- 47:03Can you give anybody kind of one kind step that they could take
- 47:08maybe or any advice? Think about this is the opposite
- 47:12of what I said, but I still think it's extremely relevant.
- 47:15Think about what you need for yourself in the workplace.
- 47:17Think about advocating for yourself.
- 47:19Nothing matters. It doesn't matter how inclusive
- 47:22workspaces, doesn't matter how many leaders and disabilities.
- 47:25It doesn't matter if your company's all about it or not.
- 47:28The only thing that really matters is are you able and
- 47:32willing to speak about what you need?
- 47:36And that can be a very fundamental level, like, hey, I
- 47:39have to use headphones in the workplace.
- 47:42Or it might be, hey, I need an executive functioning coach help
- 47:45me succeed. Or I need a screen reader
- 47:47software for this to work. Can I get this done?
- 47:50But if you don't have the ability or willingness to just
- 47:54like ask and say, hey, can we try this, Then it doesn't
- 47:56matter. You can want for accessibility
- 47:59accommodations all you want, but until you step in and speak up
- 48:04it doesn't matter. No I agree mate and I think you
- 48:07also need to be current to yourself as well.
- 48:09I did this it's OK enjoying your job, but you mentioned earlier,
- 48:17you know, sometimes you need to look at it and think, well, if
- 48:19this isn't going to change, is it time for me to step away, you
- 48:22know, and, and, and find someone who will, will embrace me as an
- 48:25individual and, and just let me do my job, you know, because
- 48:29that's all these people want to do.
- 48:31They just want to do their job and do it.
- 48:32They. Just want to do their job.
- 48:34Yeah, it's still rocket science really.
- 48:37And, and it's, it's heartbreaking that, that there
- 48:40are people listening that, that feel they can't come to Someone
- 48:44Like You and you're not going to put your arm on and then go, you
- 48:47know what, I've got it, man, no problem.
- 48:49What do you need? And you know, it would be so
- 48:51easy, so easy. It's, it's, it's, it's a sad,
- 48:54sad state of affairs. But yeah, listen, I thank you.
- 48:59So I always, this is the only other question that I asked
- 49:04everybody that comes on this show.
- 49:06And it's had some fantastic answers.
- 49:09And I'd really love to, to get your thoughts on it.
- 49:12So the reason the podcast is called Bit No More is because
- 49:15that's all I was called at school shows.
- 49:18So I was made to stand in a bin. I was called thick, dumb, stupid
- 49:22through all of my school years. So shave.
- 49:27What does thick No More mean to you?
- 49:29Thick no more, I think, means being less socially oblivious.
- 49:33I think I can still find myself in situations where I'm not
- 49:38aware of something is going on or I'm just like not picking up
- 49:41the details that someone's putting down because I'm just
- 49:43oblivious to that. My brain doesn't pick him up.
- 49:45I deal with it for sarcasm all the time.
- 49:46Someone will be sarcastic or say a joke and I'll be like, are you
- 49:50serious? Do you actually mean this or no?
- 49:52And I have to be like, please turn it down for me.
- 49:55I don't know what you mean. And people are generally
- 49:57understanding and forgiving, but I have to really make it
- 49:59explicit. Like hey please just work with
- 50:03me here. Yeah, beautiful.
- 50:06So. I.
- 50:08If you're happy, I would love to send people your way.
- 50:12So where can people find you, my friend?
- 50:13If they want, if they want to hear more about your podcasts,
- 50:16they want to hear more about you, where can they?
- 50:18Where can they learn more about you?
- 50:20I am on LinkedIn. Shay Belsky, there is only one
- 50:24of me. If you search for me, you will
- 50:25find me, I promise. And I'm on the web.
- 50:28Autistic Techie is my podcast on any podcast platform you can
- 50:32think of and my website youcanemailmehello@shibalski.com
- 50:37and I'm just happy to chat about everything.
- 50:39Thank you, Shay. Listen, I really appreciate.
- 50:41I know you're a busy, busy man and I know that some of most of
- 50:45the words will have resonated with people that listen today.
- 50:48So I can't thank you enough. And yeah, you can find Shay's
- 50:51work and listen on his podcast on all the information.
- 50:54I'll make sure it's on the podcast.
- 50:56The bottom cast has podcast for you guys to click on.
- 51:00And if the conversation has resonated with you today, share
- 51:04with a friend. Remember, labels, their words,
- 51:10They don't stick with you. We're here to change the
- 51:12narrative, everybody. And Shay Velski, thank you very
- 51:16much for joining us on Thick Dermal today.
- 51:19Jay, thank you so much for having me.
- 51:21Take care.