Latest / The Healthy Diabetic / #395: Why Adult Care is 20-30 Years Behind the Adolescent Care

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#395: Why Adult Care is 20-30 Years Behind the Adolescent Care · The Healthy Diabetic

0:14
SPEAKER_00: Welcome back.
0:16
SPEAKER_00: This is episode number three hundred and ninety-five of the Healthy Diabetic Podcast.
0:21
SPEAKER_00: I'm your host, Coach Ken Kenniss.
0:23
SPEAKER_00: Joining me as always is my good friend and partner, diabetes partner in crime, Graham Hubbard.
0:29
SPEAKER_00: If you don't know much about our story, we are two type ones with over 50 years of lived experience.
0:36
SPEAKER_00: That's right, 50 years together plus of lived experience with this condition.
0:42
SPEAKER_00: And we hope to empower you to think differently about how you are managing this condition.
0:48
SPEAKER_00: Before we get started, please remember that nothing that you hear in this podcast should be considered medical advice or otherwise.
0:53
SPEAKER_00: Please always consult your medical team before making any changes to your diabetes management.
1:00
SPEAKER_00: All right, Graham.
1:01
SPEAKER_00: What's up, man?
1:02
SPEAKER_00: How's everything going?
1:04
SPEAKER_00: How's diabetes?
1:05
SPEAKER_00: We just talked about a crazy story that happened to you today, but we'll uh we'll save the listeners from that.
1:11
SPEAKER_00: But how's diabetes going?
1:13
SPEAKER_00: Good.
1:13
SPEAKER_00: It's candy week.
1:14
SPEAKER_00: Isn't it a big isn't it a big week?
1:16
SPEAKER_00: That's right.
1:16
SPEAKER_00: It is big man.
1:18
SPEAKER_00: See, just by that comment, like I knew exactly what I wanted to talk about today, but now just by that comment, I feel like now they're we're gonna take a side like a sidestep and talk about Halloween.
1:28
SPEAKER_00: Which isn't it is important, man.
1:30
SPEAKER_00: It is important.
1:31
SPEAKER_00: Okay, so let's let's let's rock and roll because I know we're we're both on a time crunch today.
1:36
SPEAKER_00: Yeah, go ahead.
1:37
SPEAKER_01: No, I I I'll I will start this by saying two weeks ago we had an event, we had like a trunk retreat event at my daughter's school.
1:46
SPEAKER_01: And at the end of it, someone gave me a bag to take a bag of candy to take home from extra.
1:51
SPEAKER_01: And they're like, this is for trick-or-treaters.
1:53
SPEAKER_01: And I laughed and I looked at them like, oh no, this is gonna be me pigging out for the next two weeks leading up to Halloween.
2:00
SPEAKER_01: And that's exactly in the fun size, the mini size.
2:04
SPEAKER_01: That's isn't that that's like that's what gets you.
2:07
SPEAKER_01: The smallness, you know, go ahead.
2:09
SPEAKER_01: That's just my initial, that's just my initial thought.
2:11
SPEAKER_01: That's something I've been laughing at.
2:12
SPEAKER_00: Yeah.
2:13
SPEAKER_00: So yeah, so I let let let's let's start here.
2:16
SPEAKER_00: I want to ask you a specific question.
2:18
SPEAKER_00: You you tell me what you think right off the bat.
2:22
SPEAKER_00: So I want you to go back, because I can't really go back.
2:26
SPEAKER_00: I want you to go back to like 10-year-old Graham Hubbard, 10, 11, 12-year-old Graham Hubbard.
2:32
SPEAKER_00: It's Halloween.
2:35
SPEAKER_00: You you have diabetes, you have type 1 diabetes.
2:39
SPEAKER_00: What did you do when you were a kid, if anything?
2:42
SPEAKER_00: What did you do to keep your blood sugar stable, going trigger treating, and then making maybe picking out on candy later or having a couple pieces?
2:52
SPEAKER_00: Like what did you have in place during Halloween when you were a kid?
2:57
SPEAKER_01: I like I like that I've never told you this, because you can dice you can dissect this, but this is you're talking like late, you're talking like late 90s.
3:10
SPEAKER_01: Call this call this yeah, call this 1998.
3:15
SPEAKER_01: Sugar free candy.
3:17
SPEAKER_01: So I would have been, like you said, 10, 11, 12 at that point.
3:21
SPEAKER_01: You always go into the grocery store with your fa with your parents, right?
3:24
SPEAKER_01: And you're like, yo, I see sugar-free candy.
3:27
SPEAKER_01: I get like and ever heard the term free food?
3:31
SPEAKER_01: Yeah, you know what, like free food, like a free like free food.
3:35
SPEAKER_00: Like a free food, like it doesn't have any carbon.
3:37
SPEAKER_01: Yeah, correct.
3:38
SPEAKER_01: No, no sugar, no carbs.
3:39
SPEAKER_01: So like carrots, celery, like I think there's jello that like so.
3:44
SPEAKER_01: Back in the day, we would call it free food, like things you could eat freely.
3:47
SPEAKER_01: So I was like, in my head, boom.
3:49
SPEAKER_01: And I guess even my parents, you just don't, you know, there are companies that advertise sugar-free candy.
3:55
SPEAKER_01: It's like non-alcoholic beer, essentially, right?
3:58
SPEAKER_01: So yeah, I I think as I would prepare myself throughout the year in the lead up to like, I'll just trade my Halloween candy in for sugar-free candy, but then one thing leads to another, and you quickly learn sugar-free doesn't mean carb-free.
4:14
SPEAKER_01: And then like you're set you're sacrificing taste.
4:18
SPEAKER_01: Bro, this is funny.
4:19
SPEAKER_01: There used to be a brand in the pharmacy.
4:22
SPEAKER_01: It's I don't remember what it was called.
4:24
SPEAKER_01: It was blue, it was sugar-free, and they lit literally had it in the pharmacy aisles.
4:31
SPEAKER_01: That's where they that's where they stored it in the store.
4:34
SPEAKER_01: You know, now these days, I think on all the chocolate aisles would have sugar-free this and that.
4:39
SPEAKER_00: So short.
4:43
SPEAKER_01: The idea was to like, you know, I don't there was a time when I was told I couldn't do things, but I don't ever, I don't ever remember not being able to go trick-or-treating, you know.
4:53
SPEAKER_01: But there was like pe and a lot of people type with type one diabetes might never know not know this.
5:00
SPEAKER_01: Like, even back in the 90s, early 90s, when it was juvenile diabetes, there was there were some still overlapping ideas that had the general consensus, uh, not like confused about the disease, but they didn't understand everything.
5:17
SPEAKER_01: So there was like it wasn't weird to be told that I need to avoid candy, right?
5:23
SPEAKER_01: So like you gotta make this distinction.
5:25
SPEAKER_01: Like, so I was diagnosed in 1994, and there was like, you know, avoid sweets and avoid candy, but it wasn't how it is today that people are confusing it with type 2 diabetes, right?
5:37
SPEAKER_01: There was just the idea that those are things that I have to avoid.
5:41
SPEAKER_00: As a diabetic avoid, or just as human beings avoid?
5:45
SPEAKER_00: No, I I think that was kind of the makeup of juvenile diabetes in a way.
5:50
SPEAKER_00: Like But also I think back when you were diagnosed in '94, right, we didn't have the same tools that we have today.
5:58
SPEAKER_01: Yeah, we didn't have the same, we didn't have fast-acting insulin then, you know.
6:01
SPEAKER_01: I had to do that.
6:02
SPEAKER_00: Correct.
6:02
SPEAKER_00: So what was the what was the management style back then?
6:06
SPEAKER_00: Right?
6:07
SPEAKER_00: The management style back then, you and you you step in if I'm incorrect.
6:12
SPEAKER_00: But from what I understand, pre really fast-acting insulin like humolog, novolog, limjev, fias, all of the fast-acting insulins, pre-those insulins, you had to eat the same time every single day.
6:24
SPEAKER_00: You had to take the same amount of insulin every single day.
6:26
SPEAKER_00: You basically had to eat the same foods every single day, right?
6:29
SPEAKER_00: So back then, when they're telling adolescents to stay away from sugar foods, high carbohydrate foods, it wasn't in your diet or nutritional habits because it's what I mean because you didn't have like you didn't know how much insulin to take for it because we didn't have insulin to carb ratios yet, right?
6:49
SPEAKER_00: So it I think that is the the thing to recognize from back then when we're talking about pre-fast-acting insulins versus now.
6:59
SPEAKER_00: And then now you even put in, add in the pumps, the algorithms, then the understanding and knowledge that we have today about insulin to carb ratios, pre-bolishing, dosing properly for foods.
7:12
SPEAKER_00: You add in all those tools, and like now the sky's the limits, right?
7:16
SPEAKER_00: If I'm if I'm a coach back in 1994, I'm saying, like, yeah, it you probably should not be eating candy 100% because it's going to skyrocket your blood sugar, because it's not like you're taking a bunch more extra insulin.
7:29
unknown: Yeah.
7:30
SPEAKER_00: You're not, right?
7:31
SPEAKER_00: Because then you might go low because you don't know how much you actually should be taking for one piece of Snickers, one piece of uh, you know, Tic Tac, or you know, whatever it might be, right?
7:43
SPEAKER_00: You're eating one or two pieces, how much insulin you we just didn't we didn't, you didn't know that back then.
7:50
SPEAKER_00: So it's completely different now.
7:51
SPEAKER_00: So the strategies on how we approach a holiday like that, Thanksgiving Halloween, Thanksgiving, Christmas, New Year's, birthdays, like how how we really approach the holidays today is different than in the past.
8:10
SPEAKER_00: And this is why unfortunately we keep on saying it's never been a better time to be a diabetic, because even a type 2 diabetic, because there's so many tools out there.
8:20
SPEAKER_01: Isn't it amazing that I want to say two two things?
8:24
SPEAKER_01: Isn't it amazing that technology has gotten better than it's ever been before?
8:30
SPEAKER_01: However, there have never been more type ones than there have ever been before.
8:36
SPEAKER_02: Yeah.
8:36
SPEAKER_02: Yeah.
8:37
SPEAKER_01: And I say that because like, imagine this.
8:40
SPEAKER_01: Imagine it's so I fought I was a history major because I love what like the I the example that I'm getting ready to say.
8:47
SPEAKER_01: Just 30 years ago, it was all the entire idea of this was for adolescents and juveniles.
8:56
SPEAKER_01: There, that is, you were aware, I was aware that there were two types of diabetes, but the focus was that I had juvenile diabetes.
9:05
SPEAKER_01: So youngster, this is why it's children hospital, and this is why it's like like in in in in many ways, what Ken said, but without saying, is that it's like without full knowledge of what was happening, they were kind of saying things like you should be avoiding things that are high, fructose, high.
9:21
SPEAKER_01: Like we don't really have a great grasp on it, but like with this regimen of insulin, you don't want to overdo that insulin to carb, but we weren't counting.
9:32
SPEAKER_01: Here's another thing.
9:33
SPEAKER_01: Let this blow people's minds.
9:35
SPEAKER_01: We weren't counting because of what Ken just said, we weren't counting carbs.
9:39
SPEAKER_01: We we were always aware what was I always was taught to to read the nutrition facts from day one.
9:47
SPEAKER_01: But that also meant like I need to know the rotating the nutrition facts of an apple and an orange and a serving of like it meant that I'm expand if that makes sense.
9:57
SPEAKER_01: Like if that if if that's a wacky, it sounds like uh it sounds like like black mirror, you know, like it's like it it can't even your mouth your mind can't even compute what I'm saying, but it did, and then ironically, and it started with probably fast-acting insulin, and then and then in the like the late 90s pumps became more mainstream and started getting really, really good, and then diabetes into the aughts, into the early aughts, you know, early 2000s, just guy, it just and it's never looked back, you know.
10:28
SPEAKER_01: And there there wasn't this like I'll I'll never forget.
10:33
SPEAKER_01: I read an article and it was like in a Time magazine.
10:35
SPEAKER_01: It was called the Diabetic Civil War.
10:38
SPEAKER_01: And I must have been in a a freshman in college when I when I wrote read that.
10:42
SPEAKER_01: So that was 2004.
10:44
SPEAKER_01: So I I had never thought of it that way until that long into my having died.
10:50
SPEAKER_01: Probably 10 years.
10:50
SPEAKER_01: I there was never that that kind of that this battle of and I think the battle came from misunderstanding though.
10:56
SPEAKER_01: It's the exact same thing that it is today.
10:59
SPEAKER_01: And and that's really all that it is.
11:01
SPEAKER_01: It's just a misunderstanding of the two diseases, you know?
11:04
SPEAKER_00: Yeah.
11:04
SPEAKER_00: But I I I feel like the I wanna before I say I want to go back to what something that you said that I think is really important to kind of talk about.
11:13
SPEAKER_00: And it was when you were talking, hopefully I got this, I remember this right.
11:17
SPEAKER_00: It's when you were talking about the adolescent piece back when you were diagnosed, right?
11:26
SPEAKER_00: The that the disease of type 1 diabetes, the condition of type 1 diabetes was basically called an adolescent disease.
11:34
SPEAKER_00: And then you were talking about children's hospitals.
11:37
SPEAKER_00: And now today, children's hospitals are far in front of in terms of policies, procedures, how they interact and onboard new young adolescent kids farpass it surpassed the adult population and how you are onboarded and diagnosed in the adult population.
11:59
SPEAKER_00: It's far surpassed it.
12:01
SPEAKER_00: And and I just got a light bulb.
12:04
SPEAKER_00: A light bulb just went off in my head when you were talking about 30 years ago, we did, you know, you went to children's hospital, you did all these things.
12:13
SPEAKER_00: Like, and and the light bulb went off saying, like, man, this is why we're having so much problems with misdiagnosis in the adult population.
12:23
SPEAKER_00: While we're having so so many problems with, you know, the onboarding and the policies and procedures of how to actually get the proper diagnosis in the adult population.
12:34
SPEAKER_00: It's because the adult population is 30 years behind.
12:37
SPEAKER_00: You know what I mean?
12:38
SPEAKER_00: Like it's it's really so and again, we're these dates I'm about to put out there are not exact.
12:46
SPEAKER_00: So don't take me for my word that these are exact dates.
12:48
SPEAKER_00: I would say that we really stopped calling type 1 diabetes an adolescent condition about 10 years ago.
12:56
SPEAKER_00: I would say between five and ten years ago is when we stopped calling it an adolescent condition and we started calling it basically just type 1 diabetes.
13:06
SPEAKER_00: When we started talking about LADA, latent onset diabetes in adults, when we started saying that and breaking that up from adolescent type 1 diabetics, even though it it's a whole other conversation about Lada.
13:24
SPEAKER_00: But so the reason I think that it's very this is a very interesting piece is because the adolescent population in the hospitals, endocrinology, you know, pediatric endocrinology, they've had so much longer to deal with the adolescent population because it's that's what that's when people were getting diagnosed.
13:47
SPEAKER_00: Not saying that people back then weren't being misdiagnosed with type 2.
13:51
SPEAKER_00: Unfortunately, probably more and more people were either going undiagnosed and either passing away from type 1 diabetes or passing away from type 2 diabetes because there's no diagnosis or they're being misdiagnosed back then, right?
14:07
SPEAKER_00: Because it's it's happening like crazy still today.
14:10
SPEAKER_00: So you just think that, okay, it was even worse back then.
14:13
SPEAKER_00: So not only back then, you know, when you were first diagnosed and you were a kid, we had a very strict regimen on how you dosed with insulin and how you ate food and how you basically lived your life, very strict regimen.
14:29
SPEAKER_00: Okay, and then think about that population, the adolescent population has had so much time to do research, to figure things out, to, you know, to figure out how the onboarding process should be, where the adult population hasn't.
14:44
SPEAKER_00: The adult population has really skyrocketed, I'd I would say, over the last 10 years.
14:48
SPEAKER_01: Yeah.
14:49
SPEAKER_01: But the but the b but but but but the fact being that all the information is focused towards it being juvenile diabetes and an adult.
14:56
SPEAKER_00: Well, the yeah, the information that was coming out back then was all about juvenile diabetes because we hadn't made the connection that you're also getting it in the adult population, even though some people were still getting it in the as an adult, but the the majority of the individuals back then weren't or were adolescent, right?
15:14
SPEAKER_00: So I think that that was just a light bulb moment, and maybe I'm completely off basis by thinking in that perspective of you know, the adolescent population has had so long, those doctors, the the researchers that are focused just on adolescent type 1 diabetes has had so long to figure things out.
15:35
SPEAKER_00: What my question has always been is if we can see, which we can, if we can see that the adolescent population of diagnosis on onboarding, what I would call onboarding.
15:49
SPEAKER_00: You have symptoms, you go into the doctor with a family practitioner or a pediatric, you know, family practitioner, or it is you go into the hospital because you have symptoms and you're getting diagnosed with type 1 diabetes at an adolescent, that process of diagnosis and onboarding for the first month, two months, hell, probably even the first year is different than when you're diagnosed as an adult.
16:12
SPEAKER_00: It just is for the most part.
16:14
SPEAKER_00: Not always, but for the most part.
16:15
SPEAKER_00: And I can I I have receipts to prove that.
16:18
SPEAKER_00: Listen to all of these episodes with people like me who was diagnosed as an adult.
16:24
SPEAKER_00: Like I literally have all the receipts.
16:26
SPEAKER_00: So, so I think the interesting piece to me is if we have these policies and procedures that seem to work pretty darn.
16:34
SPEAKER_00: I mean, it seem to work, right?
16:36
SPEAKER_00: Then I would say they're not as good, maybe, as when you were first diagnosed, when you spent a whole entire week being educated in the hospital.
16:45
SPEAKER_00: No, where now it's like even even now, like adult population and adolescent, they're they're getting you in and getting you out.
16:53
SPEAKER_00: But it seems like there's more support in the adolescent population.
16:57
SPEAKER_00: Maybe there's more pediatric endocrinologists, I I maybe there's more pediatric providers.
17:02
SPEAKER_00: I have no idea.
17:03
SPEAKER_00: But it seems like the pediatric world of onboarding someone with type 1 diabetes is the policy and the procedures that are out there are better than in the adult population.
17:14
SPEAKER_00: And why I what I don't understand is why can't we take the same policies and procedures that seem to be working pretty well and allow that to work with the adult population as well.
17:24
SPEAKER_00: That that's what I'm that's what I'm always very interested in.
17:28
SPEAKER_00: Ah, the answer, and maybe I'm completely wrong.
17:31
SPEAKER_00: Maybe they are the same.
17:32
SPEAKER_00: It doesn't seem like they are, but maybe they are.
17:35
SPEAKER_01: This seems, I guess the word is ironic, that uh if I was gonna be diabetic, I'll uh I feel blessed that I was giving it to me when I was young.
17:44
SPEAKER_01: Like not y you know, not two years old, but young enough where it I made it work and you know, it's just like like it's like picking up picking up a sport while you're, you know, or picking up an instrument or learning a language when you're in your elementary years, and it just you know, that's probably that's been my saving grace.
18:03
SPEAKER_01: That's probably what has saved my life, you know.
18:06
SPEAKER_02: Yeah.
18:07
SPEAKER_01: To just drop it to I think that's that's probably what what the current battle is, is how do you teach someone to just change everything?
18:15
SPEAKER_00: Can't can't, especially at that age, you can't.
18:18
SPEAKER_00: You can't expect that individual, that individual is not mature enough and haven't hasn't had time to actually become a human being or figure out who they are.
18:30
SPEAKER_00: You can't.
18:30
SPEAKER_00: The parent has to take so much of the responsibility on them.
18:35
SPEAKER_00: Right?
18:36
SPEAKER_00: Now the kid can still become independent, and that's what we should be all striving for as the caregiver and the parent, but still it's not like I can send my kids, it's not like and and maybe I would say that some kids are like this, but most I I can't send my my newly diagnosed kid to school and expect that everything's gonna be okay.
18:57
SPEAKER_00: No freaking way.
18:58
SPEAKER_00: Right?
18:59
SPEAKER_00: That's why for me, what I have seen, the kids that thrive under their under their parents' tutelage, it's because the parent is 100% locked into figuring out what works for them.
19:12
SPEAKER_00: Maybe not be 100% understood understanding like the symptoms, the the intricacies, the 42 factors, but but for that kid's life and what that kid has in front of them, they're doing the best they can and they just they figure out the situations as they happen, right?
19:30
SPEAKER_00: And and so the really cool thing about that is with the technology that we have of sharing blood sugars through the Dexcom app or through the Abbott Libre or whatever it might be, the fact that I can share my blood sugars with multiple people now as the parent, I can take, I can see that the challenging pieces of the parent, like, oh my gosh, my kid is always high, my kid is having so many lows, I'm terrible at this, I suck it.
19:56
SPEAKER_00: Now it becomes the mental burden from the parent's perspective is too, not just for the from the young kid.
20:02
SPEAKER_00: And that's where the interesting, that's where the intricacies of guiding someone and helping and supporting someone is really cool in in terms of the family, because not only are you trying to support the young, young individual, but you're also supporting the care, the caregivers, the mom, the dad, the wives, like the spouses, the boyfriend, girlfriend, whatever whatever it is, the aunt, uncle, the grandma, grandpa, whatever it is, you're you're helping to support and have that person understand the intricacies of trying to deal with diabetes from afar.
20:42
SPEAKER_00: Because a care caregiver is not dealing with diabetes in them in the in like from the perspective of like I have diabetes.
20:50
SPEAKER_00: They're basically dealing with it from afar.
20:52
SPEAKER_00: And that's why it's also really, and I'm going off on tangent, but that's why it's also really, really challenging.
20:59
SPEAKER_00: I think it would be so fucking challenging for a young or for a caregiver of a young baby, six months, less than two years old, can't really talk, right, can't express their emotions or express their feelings.
21:13
SPEAKER_00: That's gotta be challenging.
21:15
SPEAKER_00: And my heart and soul goes out to that parent, that caregiver.
21:20
SPEAKER_00: That's how to deal with that.
21:22
SPEAKER_00: I think that's way more challenging than an eight-year-old, nine-year-old, ten-year-old, twelve-year-old.
21:26
SPEAKER_00: Not that all the other ages aren't more challeng aren't challenging because they 100% are, but man, you're trying to figure this condition out, and your amazing little person can't even talk and explain or talk to you about symptoms or talk to you about what's going on.
21:42
SPEAKER_00: You literally have to be like on top of like the the numbers and the factors, and all I mean, my goodness, that's gotta be challenging.
21:52
SPEAKER_01: That's challenging, but it helps you know, it's like a team.
21:55
SPEAKER_01: It's like, you know, like ha.
21:58
SPEAKER_01: I mean that in the sense that.
22:00
SPEAKER_01: Like I do feel bad for the 30 year old that gets diagnosed and it's just thrown to the wolves and but that was me.
22:07
SPEAKER_00: But it but that's what I'm saying.
22:09
SPEAKER_01: Like But that's what I'm that's my point.
22:10
SPEAKER_01: I I I'm I'm getting more successful diabetic because I had people around me in teams and I could rely and grow up with it and learn about it, and maybe slowly versus I've I was just thrown into one and it's like you gotta change this, this, this.
22:27
SPEAKER_01: Because again, you're you're living with it while you're learning about it, while you're experimenting.
22:33
SPEAKER_01: Like it's that's a lot, you know, that's that's heavy.
22:35
SPEAKER_00: That's I think the thing that you have to recognize, and the thing I think I recognize when people ask me, would you have rather gotten it earlier in life or later in life?
22:43
SPEAKER_02: Yeah.
22:44
SPEAKER_00: Right.
22:44
SPEAKER_00: And you have to recognize the situation.
22:47
SPEAKER_00: For me, I 100 in a gazillion percent and thankful that I got it after I left my parents' house, after I was done with school.
22:57
SPEAKER_00: I wouldn't have wanted to get it during college.
22:59
SPEAKER_00: No way.
23:00
SPEAKER_00: When I got it, it wasn't the best time, but it was a better time.
23:05
SPEAKER_00: Me as a young kid, my parents were divorced.
23:08
SPEAKER_00: That was a whole traumatic experience.
23:11
SPEAKER_00: I didn't, my dad wasn't really around that much just because he wasn't, not totally his fault.
23:16
SPEAKER_00: So I didn't have a father figure.
23:19
SPEAKER_00: I was very immature, very defensive about everything.
23:23
SPEAKER_00: I was trying to figure out who I was, and then you throw on diabetes on top of that.
23:28
SPEAKER_00: When I don't, I'm sure my parents would have figured it out, but I don't think that my situation, I would have thrived by having support for my mom and my dad.
23:38
SPEAKER_00: It wouldn't have been a good situation.
23:40
SPEAKER_00: Right?
23:40
SPEAKER_00: So we think about us the situation with you, your mom, your dad, still together, like you had this amazing support system from your whole entire family, from your medical team, whatever it is, where me, I would have fought against everything.
23:54
SPEAKER_00: I fought against everything when I was when I was diagnosed.
23:57
SPEAKER_00: I hid it from everybody because I thought I was I was better than it.
24:01
SPEAKER_00: I thought I was bigger than it.
24:02
SPEAKER_00: It's like I'm a three-sport athlete.
24:04
SPEAKER_00: I've been playing sports all my life.
24:06
SPEAKER_00: This is this ain't gonna touch me.
24:07
SPEAKER_00: I'm not this this is nothing on me.
24:09
SPEAKER_00: This is easy when all the while I'm like taking insulin, you know, purposefully just to eat more food.
24:18
SPEAKER_00: Like not understanding anything about carb counting, pre-bolishing, actually the impact that taking a lot of insulin has on your system, like none of that stuff.
24:27
SPEAKER_00: I had to learn that the hard way.
24:29
SPEAKER_00: So, yes, 100% if I had more support, it would have been better.
24:33
SPEAKER_00: But for me, looking back on my childhood, I I'm grateful that I did not get it during my childhood.
24:39
SPEAKER_01: What if w what if I think about this from times?
24:42
SPEAKER_01: What if you had two 30-year-old for and you and you documented both of them for 10 years?
24:48
SPEAKER_01: One as a caregiver to a diabetic, and one as a diabetic.
24:52
SPEAKER_01: Who do you who do you think after 10 years is gonna come out with more who's gonna come out with more solid Huh?
24:58
SPEAKER_00: It's a good question.
24:59
SPEAKER_01: Who's gonna come out with more solid knowledge?
25:01
SPEAKER_01: Because there is the argument that we always say it's like, especially with like a low blood sugar, you'll never understand diabetes until you like know what it's like to experience a low or a high or this and that.
25:11
SPEAKER_01: But what if, you know, to my analogy, what if you have more time to absorb it and the information and watch it and so what you know, what do you think?
25:22
SPEAKER_00: I'm gonna I'm gonna change up the example uh slightly.
25:26
SPEAKER_00: Okay.
25:26
SPEAKER_00: Cause you because you said th two 30-year-old women.
25:30
SPEAKER_00: Great.
25:30
SPEAKER_00: The 30-year-old woman would be taking care of someone that's like, you know, five years old.
25:38
unknown: Yeah.
25:38
SPEAKER_00: Less than 10 years old.
25:40
SPEAKER_00: Okay, and a 30-year-old woman that has type 1.
25:43
SPEAKER_00: So that's the two different people.
25:45
SPEAKER_00: Because a 30-year-old woman that's a caregiver, but their kid is 25 years old, they're not taking care of that diabetes.
25:52
SPEAKER_00: So a 30-year-old caregiver taking care of a young adolescent diabetic, and a 30-year-old woman who has type 1, you follow them for 10 years.
26:01
SPEAKER_00: I think it depends on the personality and situation of how that person was diagnosed.
26:08
SPEAKER_00: And this is what I mean by that.
26:09
SPEAKER_00: I take myself as the example.
26:11
SPEAKER_00: I was diagnosed at 25, still very, very immature, had no idea who I was.
26:16
SPEAKER_00: Again, thought I was above everything.
26:19
SPEAKER_00: You, me being diagnosed at 30, 35, completely different story.
26:24
SPEAKER_00: Now I'll take the young five year old, we'll just say, we'll just say five, we'll just say 10-year-old.
26:29
SPEAKER_00: Okay, take the take the young 10-year-old and that that mom, I feel like at the very beginning, I'm gonna say the first two years, a caregiver or and more more specifically, a mother of a young person being diagnosed with diabetes is gonna come out of that with more understanding, depending on her personality, than the person that's diagnosed at 30.
26:53
SPEAKER_00: Because when you're first diagnosed at 30, you're you're already in your life.
26:56
SPEAKER_00: You're in your career, you're you're doing whatever you're doing in life.
27:00
SPEAKER_00: So the importance of what's going on might not hit you right away.
27:06
SPEAKER_00: The importance of what's going on to a caregiver, to a parent, 110%, it will hit you right away.
27:14
SPEAKER_00: You might have a lot of anxiety, a lot of mental challenges dealing with that diagnosis, as I know a lot of caregivers and parents do, both male and female.
27:24
SPEAKER_00: But there's something to be said about the mother who is in front of that situation because more times than not, it's the mother that's the primary caregiver in a family than the father.
27:37
SPEAKER_00: It's just it's just how it is.
27:40
SPEAKER_00: So I think that that mother is gonna come out within that 10 years with more, maybe a little bit more understanding.
27:47
SPEAKER_00: Doesn't mean that the 30-year-old that was diagnosed isn't gonna come out with a lot of understanding.
27:52
SPEAKER_00: I think the 30-year-old is gonna come out with more understanding on how to deal with their own diabetes rather than just diabetes in general.
28:00
SPEAKER_00: Right?
28:00
SPEAKER_00: Because you got to remember the mother, the mother that's the caregiver, she's trying to learn about diabetes and about her young person's symptoms and how to deal with their actual diabetes.
28:10
SPEAKER_00: But they're also learning about diabetes from conversations with other people, all that type of stuff.
28:16
SPEAKER_00: Where the 30-year-old that lives with type 1, once that person figures out what kind of works for them, their hands are washed of actually learning about everyone else's diabetes.
28:26
SPEAKER_00: The only reason I'm a crazy person and I know about everyone's diabetes is because of the work I do.
28:31
SPEAKER_00: That's it.
28:32
SPEAKER_00: That's literally it.
28:33
SPEAKER_00: If if it wasn't, if I wasn't, you know, trying to educate people and support people on a high level, like I would have stopped talking to people about diabetes five, six years ago because that's when I really figured start figuring it out.
28:46
SPEAKER_00: Right.
28:46
SPEAKER_00: So I mean ten years ago, I guess.
28:50
SPEAKER_00: So you have so you have to think about I think about that perspective, and what the the example that you're you're giving is a very interesting one.
28:57
SPEAKER_00: Because I think it really boggles down to what's the personality of the person and where are the where is that person in their life, right?
29:07
SPEAKER_00: Because the other thing you have to think about is like, what does this mother who's a caregiver do for a living?
29:13
SPEAKER_00: If she's an executive, if she's in a high level, you know, job, she might not be the person that's taking that over.
29:22
SPEAKER_00: She might not be all I I don't know.
29:24
SPEAKER_00: I don't know.
29:24
SPEAKER_00: I don't want to say that that person would not like 100% dive into diabetes, but does that person have other people around them?
29:33
SPEAKER_00: Right?
29:34
SPEAKER_00: But I think it's about it's just about the situation and and where this person is in life.
29:39
SPEAKER_01: I think there's something, and this is the theme of what we talk a lot about with like the CGM is diabetes is very reactive.
29:46
SPEAKER_01: And sometimes I feel like it's hard to learn.
29:50
SPEAKER_01: Dude, you know what's funny?
29:52
SPEAKER_01: When I first was diagnosed, I used to call that a reaction.
29:55
SPEAKER_01: What a low blood sugar, I used to call it a reaction.
29:58
SPEAKER_01: Quite literally.
29:59
SPEAKER_01: My mom's like, are you having a that's what we would call it because you know it's just like everything is such that's kind of how you like I was never a good book, never good book learner, but let me put my hands, let me let my get my hands and my feet wet, and then I'll learn, you know.
30:15
SPEAKER_01: And I wonder if the diabetes has refined that that skill of mine, you know, like and to your point, the caregiver is taking in as much information as possible versus the diabetic is reacting to what's actually happening.
30:30
SPEAKER_01: They're experimenting there in in the good hands, you know, not to s not to toot our own horns, but I think like us, we're thinking about like, well, oh, what if I did this?
30:39
SPEAKER_01: What if I tried this?
30:40
SPEAKER_01: I have this people like again, Mike, you've alluded to this before, and I I guess I never noticed it either until now.
30:48
SPEAKER_01: Like uh I've always been one to put a team of people around me to help me with something that's difficult.
30:54
SPEAKER_01: And that's just been a skill that I've learned with diabetes.
30:57
SPEAKER_01: Whether it's been diabetes, business, actually, you know how even true?
31:01
SPEAKER_01: Mental health, bro.
31:03
SPEAKER_01: Like my, you know, I my from my mom to my dad to my wife to my best friends to you, like, you know, you gotta have the people around you.
31:11
SPEAKER_01: So whether it's like I said, for something like a mental health.
31:14
SPEAKER_01: But the same was true for me with diabetes.
31:16
SPEAKER_01: I'd rather wear my heart on my sleeve and share people what what's happening and what's going on, you know.
31:22
SPEAKER_01: I almost feel like if it were me, I'd be just counting my blo I man, this is so funny.
31:26
SPEAKER_01: I'm laughing as I say this.
31:28
SPEAKER_01: If I was a caregiver, I'd be like counting my blessings all the time.
31:32
SPEAKER_01: If people say that shit to me all the time, they're like, I do not know how you do.
31:35
SPEAKER_01: Like, I, you know, or I couldn't imagine, you know, people say I couldn't imagine.
31:39
SPEAKER_01: Like, I could not, like, I get, I get it.
31:42
SPEAKER_01: Let's play devil's advocate.
31:43
SPEAKER_01: I get it.
31:44
SPEAKER_01: I 100% get it.
31:46
SPEAKER_01: But the beauty of this, like, let's all take a moment to suck it in deep and appreciate it.
31:51
SPEAKER_01: We have it so much better than so many other people, man.
31:54
SPEAKER_01: And, you know, knock on wood, like, count your blessings, count your blessings day in and day out, you know.
32:00
SPEAKER_01: So Yeah.
32:01
SPEAKER_00: I I would say that I agree with you, count your blessings, but we can't stop there.
32:06
SPEAKER_00: We can't stop with just counting our blessings.
32:07
SPEAKER_00: Oh, we have it way better than we did a hundred years ago.
32:10
SPEAKER_00: That that's it's an important distinction and it's important thing to think about.
32:14
SPEAKER_00: My whole thing is, yes, let's count our blessings because the technology is dramatically surpassed what a lot of us ever thought could could ever be.
32:26
SPEAKER_00: Those of us who have been diagnosed for a long time.
32:29
SPEAKER_00: So I'm counting that blessing, but also I'm continuing to think about evolving.
32:35
SPEAKER_00: What's the next thing that can make my life easier?
32:39
SPEAKER_00: At this point, it was going back on MDI.
32:42
SPEAKER_00: It's easier for me.
32:44
SPEAKER_00: Doesn't mean it's going to be easier for everyone else.
32:46
SPEAKER_00: It's easier for me.
32:48
SPEAKER_00: Just like you going off a CGM.
32:50
SPEAKER_00: I didn't agree with you, but it's easier for you.
32:53
SPEAKER_00: It's just easier on your mental health and how you manage everything.
32:57
SPEAKER_00: With all of the tools and resources and toolboxes or in tools in our toolbox that we have at our disposal nowadays, that is what our job is.
33:07
SPEAKER_00: It's to figure out what works, what's going to work, so I can just wash my hands and live my life.
33:13
SPEAKER_00: And so many people aren't doing that.
33:16
SPEAKER_00: So many people are so reactive to this condition, so such in a negative place with this can I with this condition.
33:25
SPEAKER_00: Like it just, it drives me crazy when I see these people online and I s and I listen to these people that I'm having conversations with that are just like so negative.
33:36
SPEAKER_00: And then their answer and solution is, well, that's diabetes.
33:41
SPEAKER_00: I'm like, what?
33:42
SPEAKER_00: So you want to just be miserable.
33:45
SPEAKER_00: You want to just, you just want to have the constant and fluctuations in your blood sugar and not know how to fix it.
33:50
SPEAKER_00: And and then we make excuses.
33:52
SPEAKER_00: Well, I know how to fix it.
33:54
SPEAKER_00: Okay, how do you fix it?
33:55
SPEAKER_00: Well, I gotta exercise more, or I gotta drink more water, or I I gotta, you know, pre-bolish more.
34:02
SPEAKER_00: I gotta count carbs.
34:03
SPEAKER_00: I'm like, all of that stuff's important, but do you really have to do all of that?
34:08
SPEAKER_00: No, you don't.
34:09
SPEAKER_00: You have to take components of that.
34:12
SPEAKER_00: I would say yes, you absolutely have to drink water.
34:14
SPEAKER_00: Yes, you absolutely should be moving every single day.
34:17
SPEAKER_00: But when we talk about counting carbs and pre-bolishing, no, you don't have to do that.
34:22
SPEAKER_00: I don't count carbs all the time.
34:24
SPEAKER_00: I pre-bolish a lot, but I don't count carbs all the time.
34:28
SPEAKER_00: And those are the those are the tools that I'm using to in my management.
34:32
SPEAKER_00: When I was on a Fresa, because I'm not on a Fresa anymore.
34:36
SPEAKER_00: When I was on a Fresa, I wasn't pre-bolishing all the time because I didn't have to.
34:40
SPEAKER_00: That was my ticket away from having to pre-bolish so much.
34:43
SPEAKER_00: So there's options.
34:44
SPEAKER_00: There's options outside of what that what we learn in this these freaking 15 to 20 minute sessions with our providers.
34:51
SPEAKER_00: They tell us one thing, and then now that becomes the holy Bible.
34:56
SPEAKER_00: If you don't do that stuff, you're gonna you're you're you're gonna be in a really bad place.
35:01
SPEAKER_00: And then we start believing that stuff instead of just experimenting on things ourselves and figuring out what works for us and what we want to do.
35:10
SPEAKER_00: It's the same concept of someone saying, like, oh well, I want to go scuba dive, but I can't because they won't let me.
35:19
SPEAKER_00: Okay, well, there's a there's a way around it.
35:21
SPEAKER_00: Go get a scuba diving license and learn how to control your diabetes when you're scuba diving.
35:27
SPEAKER_00: There you go.
35:28
SPEAKER_00: There's a solution.
35:29
SPEAKER_00: I can't fly planes because I'm diabetic.
35:31
SPEAKER_00: Well, no, you can't probably fly in the military, but you absolutely can go learn how to fly a plane and and scratch that itch that way.
35:39
SPEAKER_00: And now we've got amazing legis legislation.
35:42
SPEAKER_00: We've had it in like for the for a while now, where type one diabetics are actually working for commercial airlines and being pilots.
35:50
SPEAKER_00: The sky's the limits.
35:52
SPEAKER_00: We just have to try to figure out a way to make it work.
35:55
SPEAKER_00: And 100% I think there's gonna be things that, yeah, we just can't freaking do.
36:00
SPEAKER_00: I can't be an astronaut, just can't.
36:02
SPEAKER_00: They're not gonna let me.
36:03
SPEAKER_00: That's one thing I couldn't I couldn't do if I wanted to.
36:06
SPEAKER_00: Can't be an astronaut, not gonna let me.
36:08
SPEAKER_00: If I want to go fight in the military, they're not gonna let me.
36:11
SPEAKER_00: So there's definitely things that we can't do, but there's a lot of things that we can do.
36:14
SPEAKER_01: I think to go back to the context of the conversation, though, I it must be must be very interesting to have a disease like this that is I mean, you know, an entire organization changed, the biggest organization changed its name, you know, JDRF, because it is not it is not now.
36:32
SPEAKER_01: To go back to what we said, it is not an it's not considered an adolescent or an adolescent only disease, right?
36:40
SPEAKER_01: Like there's still there's still a giant share, like that's is that correct?
36:45
SPEAKER_01: Like there's there's still a giant share of type ones that are diagnosed for the old school reason of adolescence and youth and and and it correct correct just being adolescent, like adolescent diagnosis?
37:00
SPEAKER_01: Yeah, like wasn't the whole idea where they're like they expanded it from juvenile diabetes.
37:05
SPEAKER_01: Like that's why they got rid of the title juvenile, as in like they expanded it to Yeah, they got rid of the title of juvenile diabetes.
37:13
SPEAKER_00: We're talking about JDRF, now breakthrough T1D.
37:16
SPEAKER_00: They got rid of that.
37:19
SPEAKER_00: There's a a bunch of different reasons, but I think one of the main reasons is because they recognized that so many adults were being diagnosed, and it was an untapped, it's an it really is an untapped educational and supportive market.
37:32
SPEAKER_00: There's not a lot of support out there for adult diagnosis, adult type 1 diabetes.
37:40
SPEAKER_00: There's just not a lot of resources out there, like a breakthrough T1D.
37:44
SPEAKER_00: Still today, when you go to a breakthrough T1D event, what is the main like communication message?
37:53
SPEAKER_00: We're gonna cure type 1 diabetics for the kids.
37:56
SPEAKER_00: For the kids, for the kids, for the kids, for the kids, for the kids.
38:00
SPEAKER_00: That's the message.
38:01
SPEAKER_00: Because that's all they that's that's what they know.
38:03
SPEAKER_00: Which I can understand.
38:04
SPEAKER_00: It's gonna take a while for them to change up their their messaging and how they talk about it.
38:09
SPEAKER_00: So I I think that that's the main reason because we because now we have 60 plus percent of people being diagnosed every week, every single day, are adults over 25.
38:22
SPEAKER_00: I think it's between 23 and 25.
38:24
SPEAKER_01: And my and my point is that we didn't throw away what we believe to be true about juvenile diabetes.
38:31
SPEAKER_01: We expected it.
38:33
SPEAKER_01: So like there are still instances where it again, my I always explained it as like spot genetics where it's it it was somewhere in my genes and it it laid which maybe not the the the the thought I'm I personally again I'm not a I'm not a researcher, I'm not a doctor.
38:54
SPEAKER_00: I do not think that autoimmune conditions is genetic.
38:59
SPEAKER_00: Maybe we can have the argument that there is a genetic component that maybe there's a like you're saying, a gene that's turned off.
39:10
SPEAKER_00: But here's the tricky thing.
39:11
SPEAKER_00: Genes don't just turn on without a trigger, they don't just turn on and off.
39:16
SPEAKER_00: If you have a genetic disposition somewhere, one where did you where did it come from?
39:21
SPEAKER_00: Because I know I don't know about anybody else.
39:24
SPEAKER_00: For me, I checked.
39:26
SPEAKER_00: Type 1 diabetes is nowhere in my family.
39:30
SPEAKER_00: Going back generations, I've checked.
39:32
SPEAKER_00: Okay, so the this thought process that it's in our genes, if it's in our genes, why does the family that has four other siblings, those four siblings, don't have type 1 diabetes?
39:43
SPEAKER_00: Neither of the parents have type 1 diabetes.
39:46
SPEAKER_00: The grandparents on both sides don't have type 1 diabetes.
39:49
SPEAKER_00: Where is the genetic piece there?
39:50
SPEAKER_00: Is it we can't say that it's skip a generation because if it skipped a generation from grandparents to parents to their kids, and there's a household of three or more or even two or more kids, why isn't all of those kids have type 1 diabetes?
40:08
SPEAKER_00: Why doesn't my brother have type 1 diabetes?
40:10
SPEAKER_00: He doesn't.
40:11
SPEAKER_00: I'm the one that has type 1 diabetes.
40:13
SPEAKER_00: So to me, understand the genetic piece, maybe there's a genetic piece, maybe there's not.
40:18
SPEAKER_00: I don't know.
40:18
SPEAKER_01: Maybe there isn't the opposite.
40:20
SPEAKER_01: I've met the opposite where all the kids have moms.
40:23
SPEAKER_00: 100% I have met both sides of the coin.
40:27
SPEAKER_00: 100%.
40:29
SPEAKER_00: And I can't explain that.
40:31
SPEAKER_00: Sure.
40:31
SPEAKER_00: So the there there might be a genetic piece.
40:34
SPEAKER_00: But again, if the if if the genetic piece is as strong as at least what I think we used to think, or maybe they still do, researchers still do, why is my brother not type 1 diabetic?
40:47
SPEAKER_00: Why are neither of my parents type 1 diabetic?
40:50
SPEAKER_00: Why are my grandparents not type 1 diabetic?
40:52
SPEAKER_00: Why are why is the the family with two, three, four, five kids only one or two of them diabetic?
40:59
SPEAKER_00: If if the genetic piece is so strong and you're getting the condition.
41:03
SPEAKER_00: So my thought behind it all is it's it's a trigger.
41:07
SPEAKER_00: Maybe you have the gene and maybe the there's a an insane trigger that triggers the gene.
41:13
SPEAKER_00: But if we really understand, again, I'm spitballing here because I'm not a physician and I'm not an epidemiologist, but it just makes sense in my brain when we think about epidemiology, when we think about genetics, when we think about, you know, all these things that we've learned over the years, and when we think about other autoimmune conditions like thyroid disease, we we've kind of said in all these other autoimmune conditions that it's caused by a trigger.
41:40
SPEAKER_00: An autoimmune condition is caused by a trigger, whatever that trigger could is.
41:44
SPEAKER_00: It could be a compounding amount of various triggers, it could be one trigger or it could be tons.
41:50
SPEAKER_00: We don't know.
41:51
SPEAKER_00: We just don't know.
41:52
SPEAKER_00: But to me, the idea of it be of type one diabetes being a triggered event, something that happens either over a longer time frame or right away triggers the T cells to attack the beta cells because the T cells are your autoimmune.
42:08
SPEAKER_01: You're saying it's more likely that it's whether it's caught or no matter what it is, it's a triggered event.
42:14
SPEAKER_01: Yeah.
42:14
SPEAKER_00: Which seems to be a triggered event.
42:16
SPEAKER_00: Which seems to be maybe again, maybe, yeah, sorry, I interrupted you, but maybe there is a genetic piece to that, 100%.
42:24
SPEAKER_00: I'm not disag disagreeing with that.
42:26
SPEAKER_00: But to say that all because it's be you're because your parents were were diabetic, you're gonna be diabetes, you're gonna be diabetic, which is what people told tell people, right?
42:37
SPEAKER_00: Which is why there's such this out that there's been such an outrage with the female population of females being type one and being so scared and afraid to have kids because they're being told, well, you shouldn't have kids, you're gonna pass it on.
42:52
SPEAKER_00: Again, I've got the receipts of so many, so many type 1 diabetic females who have had multiple kids and none, none of their kids have type 1 diabetes.
43:02
SPEAKER_00: So many receipts from this podcast.
43:04
SPEAKER_00: So again, I think it's a trigger.
43:06
SPEAKER_00: I I'm not gonna sit here and speculate or try to figure out or try to say what that trigger is, but I think it could be a compounding amount of variables that starts, that I feel like that starts with our food system.
43:20
SPEAKER_00: That's what I feel like it starts with.
43:22
SPEAKER_00: Because the trigger also happens when you have an inflammatory response.
43:26
SPEAKER_00: I feel like.
43:27
SPEAKER_00: I look back on my situation, the way I lived my life in college, the way I lived my life in high school, the crap foods I was consuming, the high stress I had, the really bad, bad life I had in terms of the things that happened periodically throughout my life.
43:43
SPEAKER_00: It's no wonder that I have type 1 diabetes.
43:46
SPEAKER_00: But people could say that for a lot of other people that are from broken homes or from abuse of abuse of homes or were abused when they were kids or whatever.
43:55
SPEAKER_00: And those people don't have type 1 diabetes.
43:56
SPEAKER_00: So it it's I don't know, man.
43:58
SPEAKER_00: I just I feel Like that, it's caused by a trigger.
44:01
SPEAKER_01: Kind of makes you want to make something up, right?
44:04
SPEAKER_01: Like I ate a bad batch of toast, like I ate a bad Pop Tart.
44:09
SPEAKER_00: Well, it's it well, there you go.
44:11
SPEAKER_00: It's you got diabetes because you ate too much sugar.
44:14
SPEAKER_01: No, or just something like you know, like there was a batch of potato there was a batch of potatoes that had diabetes tell people, you just make something up.
44:24
SPEAKER_01: What would be the most ridiculous thing you could tell somebody that triggered that triggered your diabetes?
44:30
SPEAKER_01: Like in your head, are you thinking are you thinking like like a traumatic event could cause so much stress that someone could or like they could get super sick?
44:39
SPEAKER_01: Like I have a friend, he's like he he was convinced that he got really, really, really bad traveler sickness and he was like out of commission for a week and then what and he popped out on the other side.
44:50
SPEAKER_01: Like, you know, is that kind of where you're going?
44:52
SPEAKER_01: Are you, you know?
44:53
SPEAKER_00: Well, yeah, because we we used to think it was a sickness.
44:55
SPEAKER_00: We used to think it was because of because we got something that made us really, really sick, and our system, our immune system was so compromised from that, or so much an overdrive from trying to fight off that sickness, that that that's what the trigger is.
45:10
SPEAKER_00: Sure.
45:11
SPEAKER_00: But I also think that that's that might be one component to it, but I think there's other components that we have to really recognize, and that is stress, high levels of stress, that is high levels of of inflammation from food, that is high levels of environmental toxins, that is potentially vaccines, and if those vaccines do something or or not some, or if they do something when you get them.
45:41
SPEAKER_00: Like it there's all kinds of there's there's all kinds of different things that are out there that could potentially be a compounding amount of variables, either altogether or one, just one of them, or just one of those that attacks the system.
45:56
SPEAKER_00: Not saying it's one by itself or even all of them.
45:59
SPEAKER_00: Like it's it's I feel like it's a compounding amount over time, right?
46:03
SPEAKER_00: Right?
46:04
SPEAKER_00: So and my other my then the other thing I always wonder, because I look back on my situation, the other thing that I always wonder is can can your system attack itself and then diabetes is almost kind of like dormant for years.
46:19
SPEAKER_01: That's how I've always felt it.
46:20
SPEAKER_01: Yeah.
46:21
SPEAKER_00: That's how I mean because I had mono pretty bad, where I was just zapped junior year and senior year of high school.
46:29
SPEAKER_00: And then five years, really six years later, I'm getting diagnosed.
46:33
SPEAKER_02: Yeah.
46:34
SPEAKER_00: Right?
46:34
SPEAKER_00: I don't know if it stays dormant or if the the attack of it happens, of the the the T cells being tricked and start attacking the beta cells, happens, and that happens in a a shorter period or over years.
46:49
SPEAKER_00: Did you ever have did you ever have things like warts as a kid?
46:54
SPEAKER_00: Not really.
46:54
SPEAKER_00: Not really.
46:55
SPEAKER_01: I used to have really, really bad warts as a kid on my feet.
46:59
SPEAKER_01: And I had tons and tons and tons of procedures all before even diabetic.
47:05
SPEAKER_01: I don't know how that would play in.
47:07
SPEAKER_01: I have no idea what that means.
47:09
SPEAKER_00: An inflammatory response, right?
47:11
SPEAKER_01: But like the war itself, the warts themselves are It's a bacteria, I believe.
47:16
SPEAKER_00: Yeah.
47:17
SPEAKER_00: It's a bacteria.
47:18
SPEAKER_01: Yeah, but yeah, but it wasn't from I was like six.
47:22
SPEAKER_01: Like I had got them from you know, like maybe going to the like like a gym like a gym.
47:28
SPEAKER_01: I don't I don't even really know.
47:30
SPEAKER_00: Yeah, you had a reaction to it, which is an inflammatory response in the system is I had had dozens, dozens of surgeries though.
47:39
SPEAKER_01: Like I had a immense, immense fear for hospitals and all that long before die.
47:44
SPEAKER_01: I mean, like again, I tell my like sometimes I tell my wife that I was like, dude, I have zero recollection of what it's like not to feel like, you know, to know about going to see doctors and stuff, you know.
47:54
SPEAKER_01: So well, hard to believe we're about to start talking about Thanksgiving candy, and this is where we I know.
48:00
SPEAKER_00: I'm gonna have or you mean Halloween candy, not Thanksgiving candy.
48:04
SPEAKER_01: There's my there's where my brain is.
48:06
SPEAKER_01: Yeah.
48:06
SPEAKER_01: Well, it's good that these organic an organic conversation is good because it's even me, like it I I thought about a million things today that I don't, you know.
48:16
SPEAKER_01: Yeah.
48:16
SPEAKER_01: We just thought we truly took the time to think differently about a couple things and ask questions.
48:21
SPEAKER_01: And sometimes that's just nice.
48:24
SPEAKER_01: Even like I that's the things where I sometimes compliment diabetes, man.
48:29
SPEAKER_01: There's so much going on, or if you want to dive in and do it right, you can do it right, you know.
48:34
SPEAKER_00: Yeah.
48:34
SPEAKER_01: Just don't judge yourself.
48:35
SPEAKER_01: Don't get upset with yourself.
48:36
SPEAKER_01: Just keep going, man.
48:38
SPEAKER_00: Yeah, that's the hardest piece though, man.
48:40
SPEAKER_00: Like, I I just I just feel like that's the hardest piece about this condition.
48:45
SPEAKER_01: That's what brings confidence, though, bro.
48:46
SPEAKER_01: If you go to bed every night and wake up the next day, like, well, fake.
48:49
SPEAKER_01: That's literally that breeds confidence, dude.
48:51
SPEAKER_01: That says, I believe in myself.
48:53
SPEAKER_01: Today sucked, today was great.
48:54
SPEAKER_00: Today, I don't know how many times I have to tell you.
48:56
SPEAKER_00: I'm gonna keep on telling you all the time.
48:58
SPEAKER_00: Everyone is not you, man.
49:00
SPEAKER_00: Everyone's not you.
49:01
SPEAKER_00: People have so much distrust and confidence in themselves, it's in freaking sane.
49:09
SPEAKER_00: You got nothing to lose at this point, right?
49:11
SPEAKER_00: You have a lot to lose.
49:12
SPEAKER_00: You got the your life to lose.
49:13
SPEAKER_00: What are you talking about?
49:14
SPEAKER_01: No, I mean in the sense of my attitude.
49:16
SPEAKER_01: You have nothing to lose, you have you have nothing to lose, say, I'm not sure.
49:19
SPEAKER_00: You're in that is your personality.
49:22
SPEAKER_00: The person that has been in a position their whole entire lives where they've had to be defensive or they've had a lot of physical trauma or even mental trauma, the person that just is having a really hard time with life, then they're not going to trust their diabetes decisions all the time.
49:43
SPEAKER_00: They're just not.
49:44
SPEAKER_00: They're just not.
49:45
SPEAKER_00: But that's what that's what this podcast hopefully is helping that person with is hearing friendly voices, hearing voices, seeing people talk about you know the things that we struggle with, seeing people seeing us talk about a specific topic that maybe someone else is struggling with.
50:03
SPEAKER_00: That that that's power.
50:05
SPEAKER_00: That's super powerful.
50:06
SPEAKER_00: And that that's what I hope.
50:08
SPEAKER_00: I I I want this to be, I want this show to be impactful for everyone, but selfishly, I want it to be extremely impactful for that person that's having a really hard mental go at the with this condition because that was me.
50:25
SPEAKER_00: So yeah.
50:27
SPEAKER_02: Go get you some, son.
50:28
SPEAKER_00: Go get me some.
50:29
SPEAKER_00: Oh, Jesus.
50:30
SPEAKER_00: Well, everybody, I'm I'm gonna have to.
50:34
SPEAKER_00: I I really want to put out some information about Halloween and just some quick tips and tricks of maybe how to navigate this with your young kids that have type one, or even yourself if you're going out to, you know, your work or whatever it is, and you know, there's tons of Halloween candy, there's, you know, cakes, maybe this is for birthday parties at work, like whatever it is.
51:01
SPEAKER_00: There's you're put in a situation that's out of that that's that is not in your norm.
51:07
SPEAKER_00: How do you deal with that stuff?
51:08
SPEAKER_00: So I think I'm gonna make another episode, and maybe we'll just call it 395.5, and just quickly talk about candy and Halloween and how you how maybe some different things that you can do to think about how to navigate Halloween tomorrow and Friday and this weekend, or hopefully, hopefully not today.
51:31
SPEAKER_00: I mean, some people I think are having Halloween today on Wednesday, but hopefully we'll just get this out tomorrow morning and go from there.
51:39
SPEAKER_00: So thank you so much everybody for listening, and we will see you guys next time.