Latest / Cry It Out Loud: Navigating Infertility, Miscarriage, Stillbirth, Infant Loss & Pregnancy After Loss / Sad Dads Club: A Father’s Grief After Stillbirth, Marriage, Mental Health & Losing a Baby
Transcript
- 0:10Crying Out Loud, a podcast by Chasing the Rainbows with your
- 0:18host Bernice Quisenberry. Today's conversation is one that
- 0:28is long overdue. When a baby dies, the focus
- 0:31often understandably turns to the mother.
- 0:34But what about the father? The dads who are grieving too?
- 0:37The dads trying to stay strong while silently falling apart.
- 0:41The dads holding their partners through unimaginable heartbreak
- 0:44while navigating their own. The dads who often feel
- 0:47forgotten in a world that doesn't always know how to hold
- 0:50space for male grief. At Chase and the rainbows, we
- 0:53know grief impacts the entire family.
- 0:55And while we provide free daily support for mothers and families
- 0:58navigating infertility, any type of pregnancy and infant loss and
- 1:02pregnancy after loss, who we also deeply believe fathers
- 1:05deserve space built specifically for them.
- 1:08And that's why we are proud to collaborate with Sad Dad's Club,
- 1:11an extraordinary organization providing support, community and
- 1:14connection for grieving fathers all around the world.
- 1:18Today we're joined by Rob Reader who is the Co founder and
- 1:21executive director of at Dad's Club.
- 1:23Rob's story begins with profound heartbreak.
- 1:27In December of 2017, Rob and his wife experienced every parent's
- 1:32worst nightmare when they're first born.
- 1:34Daughter Lila was stillborn and just months after or sorry, no
- 1:39months before, 1 of Robbie's closest friends had also
- 1:42experienced A stillbirth, something that, you know, barely
- 1:45was understood at that time. And through that pain, something
- 1:49extraordinary was born. What began as conversations
- 1:51between grieving dads became Sad Dads Club, now a global virtual
- 1:56community supporting thousands of fathers grieving from
- 2:00miscarriage, stillbirth, infant loss, and child loss while
- 2:03helping to find what it means to grieve as a man.
- 2:07Rob, thank you for being here and for helping Createspace for
- 2:10fathers who so often feel invisible in grief.
- 2:13Bernice, thank you so, so much for always being so incredibly
- 2:18and profoundly supportive of Sad Dad's Club and for inviting me
- 2:21to chat a bit about what it is we do so that hopefully more
- 2:24dads out there who need us can find us.
- 2:27Absolutely. And this just means the world
- 2:29and for, you know, our partners who at one point or another, I
- 2:33felt helpless with and what I could do for him.
- 2:35And so just having the dad's perspective and to have a
- 2:39community where he can turn and others can turn is tremendous.
- 2:43And I can't say that enough. Absolutely every parent who goes
- 2:47through a loss like this needs support.
- 2:48And yeah, it can be collective, but it also at times has to be
- 2:53individualized because as human beings, I think we all grieve
- 2:56differently. And so we're going to get more
- 2:58into it. But yeah, everybody deserves
- 3:01relief and it should not come at a cost.
- 3:04That's right. That is right.
- 3:06Yeah, Rob. So I would love for you to tell
- 3:08the listeners, you know, about your love story and you know
- 3:11what It was, you know, becoming parents and everything.
- 3:14Sure. So my wife and I, Tahila, have
- 3:17been married since 2013, and we did go to our undergrad.
- 3:21We went to college together at Boden College, though we were
- 3:24never romantic during our time there.
- 3:25She was one year behind me. She had a boyfriend the whole
- 3:28time. I'm a gentleman.
- 3:30There was no way that I was going to try and disrupt that.
- 3:33I'm a gentleman. But I always thought that she
- 3:36was beautiful, that she was so fun and funny.
- 3:39And as fate would have it, after we both graduated from Boden, I
- 3:43was in a I was a professional musician in a touring rock band.
- 3:48We did not get that far, but we did a lot of cool stuff and
- 3:51during that time I was travelling a lot.
- 3:53That is where Tehila and I reconnected and we were both
- 3:58just smitten with one another and we were both in a position
- 4:00where we did not have any existing committed
- 4:03relationships. So that was where our love story
- 4:05kicked off January of 2010 and we haven't looked back since.
- 4:12One of the earliest things that she and I connected on or or
- 4:15maybe not one of the earliest, but certainly early on, we both
- 4:19had a strong desire to be parents.
- 4:21So we knew through our relationship, the more serious
- 4:24it was getting it as it definitely was leaning towards
- 4:27and heading towards marriage, that having a family is
- 4:30something we both deeply wanted. And we both also individually
- 4:35from a young age knew that we wanted.
- 4:37She always knew she wanted to be a mother.
- 4:39I always do. From the moment I remember
- 4:41understanding the dynamic of my father and me between my father
- 4:46and me, I thought, oh, so I can be a dad one day.
- 4:50That's awesome. Awesome.
- 4:51That sounds incredible. That's the only thing I would
- 4:53say that up to through adulthood that I've been certain of, that
- 4:57I've wanted to be or do was be a father, have, have a family,
- 5:03have children. Wow.
- 5:05Oh, my goodness. That's so beautiful.
- 5:09And so when you guys got married in 2013 and what did?
- 5:14Yeah. So what did it look like when
- 5:15you guys were trying to create a family?
- 5:17So we spent a few years just being happily married and
- 5:22traveling and kind of flying by the seat of our pants.
- 5:26But then when it came time to when when we decided that it
- 5:30that it made sense for us to try and have a family.
- 5:33It was actually when we moved out of Boston, where we had
- 5:35lived for five years. And we came back to Maine, which
- 5:38is again, where we had met as undergrad students at Bowdoin
- 5:41College, and we always knew we wanted to also end up back in
- 5:45May. We just fell in love with it
- 5:47during our time there as students.
- 5:48And when we came back to Maine, that was when it made more
- 5:51sense. We had a house at that time.
- 5:53Friends of ours were also starting their families.
- 5:56We were in our early 30s, and that was when we started trying.
- 6:00And as it goes for many families, you start to try and
- 6:04it just isn't happening as quickly as you would like, want
- 6:08or expect it to. So we went through the process
- 6:11of figuring out is there anything wrong?
- 6:13Is there anything we need to have addressed, adjusted,
- 6:15whatever it is to help our chances because it just wasn't
- 6:18happening for us. And I wish I had a better
- 6:20recollection of exactly what the outpatient procedure that my
- 6:24wife endured was. But I remember the doctor
- 6:26referring to it as a quote UN quote reset.
- 6:29And then there was some ovulation assistance medication
- 6:32that came into play. But after both those things, we
- 6:35were able to get pregnant with Lila.
- 6:38I'd actually mentioned being a professional musician in a
- 6:42touring rock band. I say that so like as as not
- 6:47egotistical as I possibly can. It was just friends of mine and
- 6:49I who hopped in the van and we had an opportunity after getting
- 6:52signed to a major label for a few years to make a go of it.
- 6:54But that band of mine, we, we stopped touring in 2010, but in
- 6:592017 we got back together and did a reunion show.
- 7:02So I remember it was shortly after that that my wife and I
- 7:05were able to conceive. I think that rock'n'roll energy
- 7:07really gave me like increased, you know, machismo or whatever
- 7:11it was. I mean, maybe, maybe the
- 7:13medication and the procedure weren't as or were just as
- 7:17important as stepping back onto the rock'n'roll stage.
- 7:20But I add in that little detail only because I remember it.
- 7:24Not because I add any sort of seriousness to what that
- 7:27contributed to the conception, but that in early 2017 we found
- 7:32out we were pregnant and as and as soon as we could, we wanted
- 7:35to know the gender just for our own curiosity, not being able to
- 7:38wait. Oh, my goodness.
- 7:41Yeah. And so on your journey, you
- 7:44went. How amazing is that, right?
- 7:47You're newly married, so in love, excited for your first
- 7:52born. Everything that you've hoped for
- 7:54just resigned, you know, or getting back out there touring.
- 7:58So it sounds like everything you wanted, like all of your dreams,
- 8:01are starting to come true. I had a job I loved.
- 8:04I had a great manager at the time at that job.
- 8:06I, I was living in Maine, which was a dream of ours.
- 8:10And now we were fulfilling another dream, which was
- 8:12expanding our family. And when we found out it was a
- 8:15little girl, I was so I would have been thrilled.
- 8:17No matter what it's, it's a thrill unto itself.
- 8:22And I, I never strongly had any preference for do I want a boy?
- 8:26Do I want a girl? I just wanted a family and I
- 8:29wanted a healthy, happy baby. And so as we're pursuing the
- 8:33pregnancy journey, everything was moving along completely
- 8:37normally. Everything was measuring
- 8:40properly, growing properly, Everything was just as you would
- 8:43want it to be, exactly by the textbook of what is a healthy
- 8:48pregnancy. Yeah, wow.
- 8:52So, yeah. So she was growing.
- 8:54You guys were just so excited to welcome her, getting your house
- 8:58ready. I mean, you made some big, major
- 9:00life changes, too. At that time.
- 9:02You moved, you know, from being in Boston back to Maine and all
- 9:05of those things. So of course, you know, and
- 9:08around your families and all of that too.
- 9:11Yeah, it was, it was a lot of big change, but it felt like a
- 9:14lot of things were lining up exactly as we hoped.
- 9:16And, and we felt very incredibly lucky.
- 9:19We were, we were fulfilling so many dreams and we had, it felt
- 9:23a bit surreal when I reflect on it, to think about how was I
- 9:27feeling during that time, which is sometimes hard to access,
- 9:30having gone through the inevitable loss of being like,
- 9:33well, what did I feel like? What was life like back then
- 9:36when things felt certainly a lot easier, a bit more carefree.
- 9:41And yeah, we, we continued on with the pregnancy and months.
- 9:46We're going by and we're getting the house ready, we're getting
- 9:49the car seat installed. All the things you do to
- 9:52prepare, that gets you equal parts.
- 9:54No, I shouldn't say equal parts. It gets you a little nervous,
- 9:56but far more so, excitement is the overwhelming emotion that
- 9:59you have surrounding that anticipated arrival of your
- 10:03child. Yes, absolutely.
- 10:07So you know from that, you know, getting your nursery ready,
- 10:10getting the car seats in all of it, you know what led to Lila's
- 10:16birth then? It was a Wednesday.
- 10:19It was December 13th, 2017. And I remember the day so
- 10:25vividly. There was snow already on the
- 10:27ground, which is not a typical for Maine, but a little bit on
- 10:30the early side. And it was just one of these
- 10:32brilliantly bright days where the sun is completely
- 10:35uninhibited and bouncing off of the snow to make it just this
- 10:38blinding light. And we had the very first
- 10:41appointment in the morning and this was a 38 week appointment
- 10:44on December 13th, 2017. And it was, we were just
- 10:50scrambling to get out of the house.
- 10:51We had some sort of, you know, snip with one another about
- 10:57whether or not we had to put the trash or recycling out and we
- 11:00were running like a little bit behind.
- 11:01And I'm an obsessive, like punctual person, so I can be a
- 11:05little bit of a nuisance when it comes to even the the threat of
- 11:09being late to anything. And I just remember it being so
- 11:13it was, it was tense only for that reason, but because the
- 11:16morning was so flustered and everything was so not rushed,
- 11:23but every, everything was yeah, we, we there was no, there was
- 11:27no moment where I was like, Oh my gosh, I'm in a ton of pain.
- 11:30Oh my gosh, I'm bleeding. My water broke.
- 11:31There was nothing like that. We just carried on with, again,
- 11:35something as trivial as should the recycling or the trash be
- 11:39put out before our appointment or are we going to miss getting
- 11:43the curbside pickup? Anyway, I'm focusing on
- 11:45something that is so not important about the story, but
- 11:47we get to Yeah, the day was just carrying on as any day.
- 11:53And we were going in for the 38 week appointment.
- 11:55And when we got there, we waited in the waiting room and then we
- 11:59were seen by the, I forget exactly who saw us.
- 12:03And I, I feel a little bad about that.
- 12:05And I always quote myself say that I should really look it up.
- 12:07But when we were brought into the back, they pulled out the
- 12:11Doppler wand and I was sitting there and my wife was on the
- 12:15table and her belly was exposed. And I knew how much time should
- 12:19pass when you hear static versus when they pick up the heartbeat.
- 12:22And it was just one of those audible again Doppler wands.
- 12:24So you're just waiting. You hear the like.
- 12:27When enough time had passed, I sort of straightened my posture
- 12:32and like, heart sank a bit and started to think, like, why have
- 12:36we not heard the heartbeat yet? And the deck goes and it's like,
- 12:41you know what, Like, let me just go make sure the ultrasound
- 12:44machine is ready. Let's just do an ultrasound.
- 12:46That'll be easier. And my wife looked at me.
- 12:48We were both concerned. And she kind of used her hands
- 12:52to feel around and said, oh, you know, I, I, I can feel her move.
- 12:56I, I can feel her in there, which I think both of us
- 12:58probably knew might not be exactly true.
- 13:01But when we were brought back in to have a proper ultrasound,
- 13:04they confirmed what was every parent's worst nightmare, which
- 13:08had 38 weeks, that there was no heartbeat.
- 13:10And they didn't say there's no heartbeat.
- 13:13I just, I remember my wife was laying down on the while getting
- 13:19the scan done and the technician and the doctor just looked at
- 13:25each other and shook their head. And the doctor took my wife's
- 13:27hand. And that was when we knew that
- 13:30there was no heartbeat. And I could, you know, see on
- 13:32the monitor, we could hear that there was nothing.
- 13:35And that was when they confirmed just the absolute worst outcome
- 13:39that, that anybody could anticipate or not anticipate.
- 13:44It was then when the floor vanished.
- 13:47It was then when the nightmare of the preceding moments began.
- 13:52And I just remember putting my hands over my face and being
- 13:56like, I don't want to move my hands.
- 13:57Like I just, I want to keep them here.
- 13:59I don't want to, I want to hide from what is going on.
- 14:03Like literally, figuratively, actually every.
- 14:06I just there was no place I would have rather not been.
- 14:10And that's only to say there was no situation I would have rather
- 14:12not been in. And you know, my wife's like
- 14:16crying and screaming and I don't remember how we even or what
- 14:23door we went out of to leave the office.
- 14:26I just, I have no recollection because they, they gave us
- 14:29instructions saying we're going to call the hospital for you.
- 14:31They'll expect you, you have to go home, you have to pack a bag.
- 14:34You got to get ready to be at the hospital for a few days and
- 14:37they'll be waiting for you when you get there.
- 14:39And everything around the commutes of from the time it
- 14:43happened, I just don't remember. Which honestly makes me think
- 14:47that for these types of things, they should have some sort of,
- 14:50not that anybody would want to be with anyone else, but from a
- 14:52safety standpoint, I wonder if people should have some sort of
- 14:55ride service figured out for families who go through this so
- 14:59that they're not operating a vehicle on the road when they're
- 15:01trying to make sense of something that is so
- 15:04disorienting. Yes, absolutely, Rob.
- 15:08Well, in those moments, you know, you're, you're expecting
- 15:11that this is going to be the probably the final appointment
- 15:14or close to and getting ready to go and and you know, find out if
- 15:19she's like dilated yet or anything like that, right.
- 15:22And you're the baby heartbeat. And then when this news hits,
- 15:27the trauma of it, especially there's no warning.
- 15:30It's out of nowhere and it's like you're having an outer body
- 15:33experience. Like how is this happening to
- 15:34us? Like how this like cannot be
- 15:37like, what are you saying to us? Like we just felt her kick
- 15:40yesterday, You know, we just felt her move.
- 15:42All of those things. Like it's and it's so true.
- 15:46Like anything after that, like all the trivial things like
- 15:49driving, like going home, like all of that.
- 15:51Like how do you remember that? Because like your mind is just
- 15:54not with it. You know, it's spiraling.
- 15:57You're having all these overwhelming moments and just
- 16:01hear your wife scream and cry. Yeah, I had AI had a dream the
- 16:06night before that my arms and I usually I forget a lot of my
- 16:10dreams, but there have been dreams where Lila has appeared.
- 16:12There been three in my life so far and that the first one was
- 16:17that night where I had my arms in like a cradling position and
- 16:20there was this floating newborn that I couldn't get to rest into
- 16:23my arms. Like I kept trying to adjust my
- 16:25arms to move into a position where she would actually be
- 16:29cradled and she was just floating, like just out of
- 16:31reach. And no matter how I adjusted my
- 16:34body or my arms, there was no way for me to get her into my
- 16:37arms. And that I feel like I've shared
- 16:40this story a few times with people.
- 16:42I do feel like that's the moment where she died.
- 16:47That's just what I think. And again, to to have dreams
- 16:50that are so constantly fleeting. Like I don't remember a lot of
- 16:54my dreams shortly after waking up, but that one and the two
- 16:57subsequent in the years after are ones that are so vivid that
- 17:02I can still remember every detail of which I'm super
- 17:04grateful for. Absolutely.
- 17:07It's like you get to meet her in your dreams.
- 17:10Oh, it's so heart wrenching. It is.
- 17:12I mean, yeah, they wreck like that.
- 17:14That one, I was like, oh, weird, 'cause I didn't know.
- 17:17But in reflecting, I, I put together that that was probably
- 17:20the moment that she died. But then in the two subsequent
- 17:23where she appears, the age that she would have been those I've
- 17:25like woken up from just so I can't, I can barely move.
- 17:29They're so awesome because they're an ability.
- 17:34They, they're an opportunity to reconnect with her, to see her
- 17:37and who she would be at this age.
- 17:40But they're so emotionally exhausting.
- 17:42Like I've never experienced dreams that are so upsetting but
- 17:47also like I'm like give me more of those.
- 17:49Like I do, I want them even though the the physical and
- 17:52emotional toll when I wake up is is heavy.
- 17:55Yeah, 'cause it is. It's that connection to them and
- 17:58to see them and to have that time that we don't get with them
- 18:01here and to have that, you know, is so just meaningful.
- 18:06But also like that heart, gut wrenching feeling and just it
- 18:10does like physically, mentally, emotionally just takes so much
- 18:14out of us. Yeah, it sure does.
- 18:18Thank you for sharing that. You know, it's so in those
- 18:23moments then you know, when you know you're going home, you're
- 18:27scrambling, you're getting everything together to go to the
- 18:30hospital. It's.
- 18:34Yeah, it's it's chaos. Yes.
- 18:38It's it was nuts packing up to like, what do we need?
- 18:42How could we even think about what we ourselves need when we
- 18:45have lost the very thing that we need?
- 18:47And how long are we going to be there and what decisions do we
- 18:51need to make it when we get there?
- 18:52And yeah, that that whole day was it just felt like it lasted
- 18:58forever. It was, it was pretty, you know,
- 19:00from going to the first appointment of the day and that
- 19:0538 week appointment to then having Lila delivered at 10:49
- 19:09PM the day, just like it just sprawled on it just would not
- 19:14end. And they put us into a room when
- 19:17we got there and some couple hours into being there and just
- 19:21like existing in this space where I see my wife right there
- 19:24across from me. And she's still so pregnant and
- 19:27the way that I've seen her for the last almost nine months.
- 19:30And I had a panic attack just being like, I couldn't.
- 19:34That was the first panic attack I've ever had.
- 19:37And I was so overwhelmed by seeing my wife and seeing her
- 19:43pregnant belly and seeing this, this sign of what was
- 19:46historically this hope and this love and this joy.
- 19:49And not that the love went anywhere from that image.
- 19:53It just was so unfathomable. It's like, wait, is she really
- 19:59dead? Because I don't think I believed
- 20:02it, but the more I thought about it.
- 20:04The more I started to actualize it and that's when it became to
- 20:08the point of overwhelming, just having a panic attack and being
- 20:12unable to kind of console or control myself.
- 20:15And we kept getting pushed back to the time where Lila was going
- 20:20to be delivered because, you know, we were in their care.
- 20:23We were in the hospital, we're checked in.
- 20:25There are other things that were coming up.
- 20:26They were more imminent. But finally they saw us and my
- 20:29wife opted for AC section and we, they wheeled her back and
- 20:34then waited till I could come back and be there with her.
- 20:37She was on a bunch of medications and just opted for
- 20:40AC section and, and every drug imaginable to try and make it
- 20:43the most manageable situation that it could be because it was
- 20:48a nightmare. And I remember going back there
- 20:52and she was obviously very medicated, which I was grateful
- 20:56for. And I just sat there with her
- 21:01and like, you know, talked to her and she seemed very calm and
- 21:04very Zen and very centered and, you know, a little loopy.
- 21:10And then they delivered Lila. And that was like the moment
- 21:13that I was like, this is really real.
- 21:16It was just, I can still see it so clearly this like it was
- 21:19almost like there was a pillar of light like in the operating
- 21:22room. And then they pulled her out and
- 21:24she just looked like a sleeping newborn.
- 21:26And it was so quiet. It was just the beeping of the
- 21:30machines became completely faint, almost inaudible in my
- 21:34mind. And that silence, because of
- 21:37what I had envisioned being such a moment with these anticipatory
- 21:41sounds of crying and joy of just silence.
- 21:45And it was, it was so huge. That silence was massive.
- 21:51And they had me come over and cut the umbilical cord.
- 21:54And the hardest part, I think I, I mean, that was seeing her,
- 21:58seeing Lila born and then seeing her put down and just like
- 22:01lifeless was very traumatic. And then, you know, they
- 22:08swaddled her and they gave her to my wife and she was still
- 22:11obviously heavily medicated. And my wife was saying like, oh,
- 22:13my baby, my baby, I love you so much.
- 22:16And that was super hard to watch because I was like, wow, does
- 22:21she is she so medicated that she doesn't remember like what
- 22:25happened or that she does she not remember that Lyla's dead?
- 22:28Like it was, it was complicated to to put it mildly or simply.
- 22:34And that delivery room, just that that was what for me became
- 22:41that that was the point of the most intense trauma, I would say
- 22:43for me was everything I saw. And with the blood and with the
- 22:47lifelessness and the silence and the not knowing if my wife at
- 22:51that moment forgot that Lila died.
- 22:52It was, it was so swirling and so intense.
- 22:58It's, it's something I can pretty regularly if I return to
- 23:01and go into detail like I will, I can make myself cry.
- 23:04So if I'm ever cast in like a Hollywood movie and I need to be
- 23:07able to cry in that Hollywood movie, I can, I can turn it on.
- 23:11I, I, I can possess that skill. It's just cry on command because
- 23:16that was so difficult. Luckily, through therapy and
- 23:19EMDR, it's become easier to return to.
- 23:22It just became something I couldn't touch for so long or
- 23:24even really talk about. But it still is just so heavy.
- 23:28And that was that, you know, marked another moment of OK from
- 23:32here forward. And then there's the where do we
- 23:35go? What's going to happen?
- 23:36How long do we get with her? How dealing with her turning in
- 23:44a way where it's like, OK, we have to go soon because they
- 23:46can't even with a cuddle cot do like the cuddle cot has now run
- 23:50its course. Like we can't.
- 23:51She's changing. She's changing and that that is
- 23:56exceptionally difficult. I once again back to commutes
- 24:01like I have. I just don't remember leaving
- 24:04the hospital at all. I don't remember if we took
- 24:05stairs, elevator. I don't remember driving home at
- 24:08the time. We lived very, very close to the
- 24:10hospital. I mean, so close we could have
- 24:11walked, but I have no recollection whatsoever of
- 24:15leaving. And I think that's likely
- 24:17because we didn't have moments where we left her alone.
- 24:22And so that was like a definitive separation.
- 24:25And I think that was pretty hard for me to I I was just like,
- 24:31wait, how can we leave her? How can we, how is how is this
- 24:35it? How is this goodbye?
- 24:37How is this? Until we picked up her ashes,
- 24:39you know, at the Funeral Home down the road, but down the
- 24:43road, both physically and down the road proverbially.
- 24:47But yeah, yeah, that hospital and we were lucky we had an
- 24:50incredible care team, but that was hell.
- 24:52That was I I don't. I'm not a very religious person
- 24:58at all, but I don't fear a hell anywhere else.
- 25:03I feel like I had existed in it right there in so far as I can
- 25:09imagine what hell would be. That was it.
- 25:12Yeah, I know. And and really Rob, you know,
- 25:15leaving hospital empty, armed, you know, having to plan a
- 25:19funeral or plan, you know, cremation with a baby that just
- 25:23days prior you weren't, you know, it's it's crazy like when
- 25:29we get married, plan to have a family.
- 25:31Never in a million years do we plan to have that unimaginable
- 25:36worst case scenario happen to us.
- 25:38And leaving the hospital knowing that that's the last time
- 25:40physically we'll ever see our children is just there just are
- 25:45no words. It's it's awful.
- 25:47It's yeah, we talk about it a lot in Sad Dad's club that that
- 25:52like physically removing ourselves from being physically
- 25:56with them forever in that that there is always there's there's
- 26:01such an end point to their physical presence in your life,
- 26:06which is really difficult. And certainly do things to keep
- 26:09them with us through signs and spiritually and honoring them in
- 26:14different ways. But that physical component is
- 26:16still one we can't do anything to get back.
- 26:18And so that's why we work so hard to really emphasize every
- 26:22other way that we can keep their presence and and amplify it
- 26:27wherever and whenever we can. Yes, absolutely, Rob.
- 26:32Well, thank you for sharing. You know Lila's birth story.
- 26:35You know her, everything about her in these moments.
- 26:40So thank you. Oh, you're.
- 26:42Welcome. Yeah, when so when you both were
- 26:45leaving the hospital, of course, and that mental health, right,
- 26:48just realizing like you literally were going through
- 26:52hell on earth right there in those moments, Like, how did you
- 26:57start to recognize or see in yourselves that maybe you needed
- 27:00more, you needed a sense of community or people who
- 27:02understood what you were going through?
- 27:06Well, I think we were lucky in a lot of regards, which is hardly
- 27:09a word that people use when talking about something like
- 27:12this. But I did have I, I, you know, I
- 27:14knew we needed help from a professional.
- 27:16I'd never done therapy leading up to losing Lila, which is not
- 27:20at all a flex. It's more like, wow, I can't
- 27:23believe that that was when I, I could have.
- 27:25Everybody can stand therapy. I don't think it's a sign of
- 27:27weakness. I think it's a good outlet and a
- 27:29healthy 1 where people can. As adults, we have complicated
- 27:33lives and we go through complicated things and emotions
- 27:36are complicated. So having a dedicated space to
- 27:38really figure those out for me, it allows me to return to life
- 27:43in a more balanced and sensible and controlled way.
- 27:47So as I mentioned, we were lucky.
- 27:51I say I always put it that we had the fortunate misfortune
- 27:54that one of my best friends from college, Jay, who is a Co
- 27:58founder of Sad Dad's club, 11 months earlier, he and his wife
- 28:02lost their their second born their their second child, their
- 28:06daughter Bella at 41 weeks. And so that was January of 2017.
- 28:10We lost Lila in December of 2017.
- 28:12So in that same calendar year and we were living very close to
- 28:15one another. We had also gone to Bowden
- 28:17College together and I, I was there for him as much as I could
- 28:22be. And I saw how devastating this
- 28:24loss was for his family and how complicated it was.
- 28:28And I though, I, I, then I had someone I could go to
- 28:31immediately and I had someone who was there for me even while
- 28:34I was in the hospital. I had someone who took the car
- 28:37seat out of my car and I, I had somewhere to go.
- 28:42I had a net. I, I didn't hit the floor.
- 28:44I didn't, I didn't fall all the way down.
- 28:46I I had someone to catch me and 11 or rather seven months after
- 28:51losing Lila through a mutual college friend, we were
- 28:53introduced to Chris, who's another Co founder, the third Co
- 28:57founder of Sad Dad's club. And the impetus of sad Dad's
- 29:00club was that the three of us as fathers were spending a lot of
- 29:02time together. And we realized and recognized
- 29:06that this is an incredibly helpful resource for all of us
- 29:12to have one another, to have a place where we can go and
- 29:15actually say everything or say nothing, but no explanation
- 29:18whatsoever is needed because we just inherently get it.
- 29:21And whenever you connect with a lost at I, I always use like my
- 29:25hands to describe this because like you meet someone as an
- 29:27adult or as anyone and you, you start at this level.
- 29:30But if you meet another lost parent, you're like there with
- 29:32them just because you have this elevated sense of understanding
- 29:37of what their life is like, or at least what they're going
- 29:40through. So I might be jumping ahead
- 29:42here, but that that was the impetus like that the three of
- 29:46us spending a lot of time together and realizing like,
- 29:48hey, this is really important and this is really great that we
- 29:51have one another to lean on. And there are probably a lot of
- 29:56dads out there who don't have anyone in their community or any
- 29:59loved one who's ever been through anything like what
- 30:01they're going through. And that's where alienation and
- 30:04isolation and grief is going to manifest.
- 30:07And that's when it gets really dangerous.
- 30:09And that's what we want to, that's what we want to eliminate
- 30:12with Sad Dads Club is we thought we don't want anybody out there
- 30:16going through this alone. We don't want somebody thinking
- 30:19that this has only happened to them if they have nowhere to go,
- 30:22if they have no one else to process that grief with, if they
- 30:25don't have resources to other, you know, clinical or
- 30:30professional mental health services that could help them.
- 30:33It's a little scary to think what might happen to them and
- 30:37what might happen to their life. Absolutely, Absolutely.
- 30:41This is something, you know, so traumatic and happens to, you
- 30:46know, young couples, different circumstances, whatever, but and
- 30:49having, you know, spaces that are safe and feeling that sense
- 30:54of connection, someone who actually understands what you're
- 30:57going through or has been on the path that you're going through.
- 31:00There is nothing more powerful than that.
- 31:03To hear it from someone like how did you handle this situation?
- 31:06How did you you know, handle this so you can find your own
- 31:09way, make your own way, but understanding that you're not
- 31:13alone in this and that you're not walking this path because
- 31:15there's others of us who have but still birth infant loss.
- 31:18All of that is not really talked about South understanding and
- 31:23that's changing now right with sad dad's club, you know,
- 31:26chasing rainbows all the things, but it's like to have that
- 31:29community of of men lost dads who understand what that you're
- 31:34going through like you've been on this path is so powerful in
- 31:38that room. Absolutely and.
- 31:41I've seen someone not long ago asked me how do men and women
- 31:45grieve differently? Said I don't know, 'cause I'm a
- 31:49man, so I, I, I, I, But in all seriousness, that was just to be
- 31:55a little funny. But there I, I don't know that
- 31:58we grieve that differently. I don't know that there is a
- 32:01different internal like emotional and physical turning
- 32:07and churning and pain and tension.
- 32:10I just know that there is not an invitation historically,
- 32:14societally generationally for men to be really vulnerable or
- 32:19to talk about what they're feeling.
- 32:21And the adage of be a man, which is defined historically as that
- 32:26means grin and Barrett or whatever other saying of suck it
- 32:29up or that's just not a realistic expectation of any
- 32:33human being. And during the most dramatic
- 32:35loss of their life. And I think they I, what I've
- 32:38seen from the men in Sad Dad's club is there is a willingness
- 32:41to be in touch with their feelings.
- 32:43There is a desire to express things that are difficult to
- 32:48have someone to talk to in moments where they feel really
- 32:51low and really alone. And it's just a matter of
- 32:56facilitating that space, nurturing that space, and making
- 33:00sure that that space looks like one that is comfortable and
- 33:07adjustable also for anybody who enters it.
- 33:10And that just means like any way that you show up in Sad Dad's
- 33:13Club, you can be. If you feel in that moment that
- 33:16you just want to listen, then you can just listen.
- 33:18I don't if you have a whole bunch of stuff you want to get
- 33:21off your chest, then the floor is yours.
- 33:24We just cannot expect that in any one moment that everyone in
- 33:28this community is going to feel like they're ready for the same
- 33:31thing. And that's why we have to be
- 33:33flexible with our space and we have to be.
- 33:36I think that's what keeps dad's coming back too, is they know
- 33:38that, as we say, the only expectation is there is no
- 33:41expectation. As long as you conduct yourself
- 33:43with respect for others there and you that that's really it.
- 33:49That's like that's the, that's the ground level.
- 33:52It's just respect and compassion and empathy and patience.
- 33:57And we're so good at at giving that to each other.
- 34:01We're still working on giving that to ourselves, which we talk
- 34:04about often, which is so that's a conundrum right there.
- 34:08I was like, and we say, hey, you would ask me to be easier on
- 34:12myself. So you should allow yourself to
- 34:14be easier on yourself. But we're still working through
- 34:16that one all together as a community, yes.
- 34:20No, but it's so true. And I think you're right.
- 34:23You know, societal norms, right, with how men historically have
- 34:28been told to manage mental health or to grievous, like keep
- 34:31the house going, keep things moving.
- 34:33Like it's expected that the mom would be sad, right?
- 34:36But like the dad needs to continue to go, go, go.
- 34:40And in all reality, we're emotional beings, all of us, and
- 34:45we don't operate as robots, and that's not who we are.
- 34:48And. So to have that safe space, to
- 34:50have that community turn to where all there is is respect.
- 34:53Because right, like one day you're gonna feel a certain way,
- 34:56the next day you might not, you know, But to just show up and be
- 35:00there for one another and to respect one another's losses and
- 35:02stories and journeys and to help one another really is just
- 35:08strength. And I think.
- 35:10That so for me, and I know I've heard this from other dads, and
- 35:15this is by no means to say all dads, but for me, even though
- 35:18yes, I had somebody that I could go to immediately, but I also
- 35:22wanted so badly to focus on my wife because that was the way I
- 35:27could regain control. That was a way that I could be
- 35:30helpful after losing complete control.
- 35:33I had someone else I loved my wife who I could focus on.
- 35:38She was physically healing and I also wasn't really ready to
- 35:43confront and process again. I had someone I could go to, but
- 35:46I didn't, I wasn't ready to get into it that way.
- 35:48So there was a bit of delayed grief.
- 35:50Not that I wasn't feeling it, I was just numb to it.
- 35:52I guess that would exactly suggest I wasn't feeling it.
- 35:55I, I knew it was there. I wasn't ready to dive into it.
- 35:58And so being strong, focusing on my wife, keeping the household
- 36:02going, doing anything I could to distract myself.
- 36:05Also, you know, drinking way too much, all these things became
- 36:10the escape for the inevitable wanting or, or needing to really
- 36:14get into it. And I think that expecting that
- 36:17somebody is like ready immediately to get into
- 36:20processing and digging through their grief is, is also
- 36:22unrealistic. I think that men fall into maybe
- 36:26the, again, from what I've heard, I, I can't speak for
- 36:29every single man. I will never make a sweeping
- 36:31generalization, but a lot of men need that that buffer time
- 36:36before they're ready to connect with another dad or to go into
- 36:40it. They just have to kind of get
- 36:42their feet beneath them. And then unfortunately, it
- 36:47emerges in ways. I mean, we've had a bunch of
- 36:48dads come through and be like, I punched a hole in the wall and
- 36:51my wife was like, OK, you got to do something.
- 36:53You got to you got to something's got to change here.
- 36:55Sad dads club, like give it a try.
- 36:57And a lot of them come in and think there is no way anything
- 37:01could possibly help me for what I'm going through because this
- 37:04is so heavy. This is so traumatic.
- 37:06This is so dark. There is no way that sitting
- 37:10with a bunch of other dads who have also been through a yeah,
- 37:13sure, I get that, but there's no way it could help.
- 37:17But miraculously, then it does. And that's a testament to all
- 37:21the dads who are coming through our doors and all the dads who
- 37:24are showing up for one another. It's, it's become this
- 37:28unbelievable community of dads all over the world who are
- 37:32showing up for support and who are also showing up to support
- 37:35others. And it's a beautiful harmony
- 37:37that I've never experienced anywhere else.
- 37:40I'm a firm believer, always have been going to Quaker schools
- 37:43growing up about what the power of community means, what it is
- 37:46that everybody has something of of value to offer, that we are
- 37:49all on the equal level. We are all there because we're
- 37:53dealing with something incredibly painful and
- 37:55complicated that's going to last for the rest of our lives.
- 37:58And I think that really does bring everyone back to zero.
- 38:00And that does create a space where there's just so much love
- 38:07because there's so much desire to honor our children, keep
- 38:13their story going and support one another through the moments
- 38:16that feel so difficult that, you know, getting out of bed is a
- 38:19challenge. Absolutely.
- 38:22And it comes out in other ways. And I think, Rob, that's really
- 38:25important too, because it might not be that immediate help or
- 38:27knowing that they need immediate help, but you know, punching
- 38:30holes and walls, maybe drinking too much or, you know, different
- 38:33on like. And at that time, maybe not
- 38:35recognizing it because we did go through something, you know, so
- 38:39horrific. But you know, when that starts
- 38:41to become like the pattern or, you know, unhealthy, But for a
- 38:45partner to maybe recognize that and say, Hey, you know, here's
- 38:49this community that understands or is there for you, you know,
- 38:52during this to turn to in a gentle way, right?
- 38:56And and be able to cope in healthier ways.
- 38:59You know what are some of those coping?
- 39:01Services that. Is available through Sad Dad's
- 39:04Club so. We have kind of we have two main
- 39:09areas of impact our we have our non clinical grief support and
- 39:14then our clinical grief support. So our mission statement is that
- 39:17Sad Dad's Club helps fellow bereaved fathers navigate life
- 39:20after loss by nurturing A supportive community and
- 39:24providing access to mental health services of that last
- 39:27line, nurturing A supportive community.
- 39:30That is where we provide non clinical community based
- 39:33peer-to-peer support, whether it's virtually or in person.
- 39:36We have a Discord. We have a private channel on the
- 39:38Discord app that is a free app for anybody unfamiliar and that
- 39:43is active literally 24/7. There are dads all over the
- 39:46world who are on that. If you reach out to us, you
- 39:48attend one of our Zoom meetings. We give you an invitation link
- 39:50to join that private channel. We have weekly Zoom sessions
- 39:55that are large group based. We alternate.
- 39:58We do every single Thursday at 8:30 Eastern and we alternate
- 40:01themes every week. We have what's called Sad Dad's
- 40:04Open Hour, which is an open floor discussion where if you
- 40:07want to come turn your camera off and just listen, that's
- 40:09totally cool. If you want to come to
- 40:11participate and chat, you can do that too.
- 40:13We always have a suggested topic.
- 40:15Anything from careers after loss to intimacy after loss to.
- 40:19Navigating the holidays, stuff like that.
- 40:21But we also always say, hey, if you've got something that you
- 40:24has been weighing heavily on, you say the word and we can
- 40:27pivot. We're nimble.
- 40:28The space belongs to all of us. We also offer some more
- 40:32specialized small group cohorts that take the place over a
- 40:35certain number of weeks. We just implemented a letter
- 40:38writing journey that's facilitated by one of our dads
- 40:41who developed a really thoughtful and incredible
- 40:43program and he takes you through 5 prompts over 5 weeks where you
- 40:46literally take a pen to paper. And I don't want to spoil the
- 40:49surprise, but you can learn more about that on our website.
- 40:52We just finished a small group cohort over six weeks for called
- 40:57Fatherhood After Loss. That is for dads who have
- 40:59experienced loss and subsequently went on to have a
- 41:02healthy baby that is now at home between the ages of 0 and 24
- 41:05months. So the idea there being that we
- 41:08have a lot of dads in our community who don't have living
- 41:10children. So we can't really focus in on
- 41:12how do you navigate being a father after losing a child.
- 41:16So we want to dedicate an intimate space.
- 41:18We have a licensed clinical social worker who is
- 41:23facilitating that space for us. We continue to, we're, we're
- 41:26planning to continue to offer more of those and I'm getting
- 41:28really specific about different non clinical offerings that we
- 41:32have, but those are all of the things we do online, in person.
- 41:37We have regional events hosted all over the country throughout
- 41:41the year. We also do 2 retreats per year,
- 41:44though next year we're probably going to do 3.
- 41:46Historically the two retreats had been in Maine.
- 41:48This year we did our first retreat in Lake Arrowhead, CA
- 41:52earlier in May. And this fall we're going to do
- 41:55a fall retreat in Maine, which is again where we've
- 41:59historically hosted them. And on the providing access to
- 42:03mental health services, we know that there is a disparity to
- 42:06access there. And so not only do we want to
- 42:09remove the financial barrier by paying for up to six sessions
- 42:12per dad, but we also want to remove the logistical barrier.
- 42:15So as an organization, Sad Dad's Club partners with therapist who
- 42:19have experienced treating a patient who has endured child
- 42:21loss and, and some and a therapist who specializes in
- 42:24grief. So we are partnering with
- 42:25therapists all over the country to make sure that we are sending
- 42:28our dads to the person best suited to treat them for what
- 42:31they're going to them for. And we have found through GAD 7
- 42:35and PHQ 9, which are, to anybody out there who's not in the
- 42:38professional mental health field, myself included, that
- 42:42sounds like launch codes, but they are just a gauge of anxiety
- 42:45and depression, and they're widely used in the mental health
- 42:48space. And what we have found from
- 42:50administering a GAD 7 and PHQ 9 survey at the beginning of these
- 42:54six sessions and then at the very end of the final session is
- 42:56that indeed this professional mental health intervention is
- 43:00alleviating anxiety and depression in fathers.
- 43:04So we are not saying choose one or the other, the non clinical
- 43:08community based support or the professional mental health
- 43:10support. We are saying this is what we
- 43:12have. This is what we feel like will
- 43:14give people the best chance and the most robust package for
- 43:17healing. And our work is never done.
- 43:21We're always thinking of new ways that we can meet dads where
- 43:23they are. One of our dads came to us
- 43:25recently and said, hey, could we host like an art therapy thing
- 43:27on Zoom where we can invite people if they want to just
- 43:29watch. And then we can invite dads if
- 43:31they want to share anything from music to to visual art to visual
- 43:36art covers a lot of us about to say to pottery is pottery
- 43:38considered visual art? I don't know see, but I I think
- 43:43so too. So what whatever artistic outlet
- 43:45you have that you wanted to share with people and talking
- 43:47about how that connects to helping you process your grief.
- 43:50All this to say, like we're in the midst of also formalizing
- 43:54regional chapters so that we can more regularly do these regional
- 43:58events where we have high concentration of dads.
- 44:00And I'm working with one of the dads in our community on
- 44:03expanding that and formalizing it.
- 44:04Rather, every dad who has an idea is welcome to share that
- 44:10idea and we're going to try it because we are in control of our
- 44:13community and we figure that if you have an idea that resonates
- 44:17with you, it will probably resonate with other people.
- 44:20So let's try it. And that is back where the
- 44:22concept of this, this truly is a community.
- 44:26Yes, I am, I am the sole currently the sole full time
- 44:30employee of the organization, but I am only speaking on behalf
- 44:33of it. What Sad Dad's Club is and what
- 44:34we do and what is special about it is because of every single
- 44:38individual father who shows up and continues to show up.
- 44:42That doesn't mean that. And, and I don't say that to me
- 44:45like, hey, if you come, you better keep coming back.
- 44:47You're supposed to come if you feel like it helps you and it's
- 44:50supposed to be there when you feel like you need it.
- 44:54But we have such an incredible community of dads who are so
- 44:57eager to see this grow and to see what we offer, be able to
- 45:01meet any dad where they are, that again, if dad has an idea
- 45:05to do something, let's try it. We're always going to try it,
- 45:09absolutely. Absolutely, Rob.
- 45:11I cannot say that enough. And I think that's why we
- 45:13connect so well, because it really is that individualized
- 45:16approach and also understanding that it's not just your voice or
- 45:20my voice or this person's voice or that dad's voice.
- 45:23It's really a community of voices because you don't know
- 45:25who's going to resonate or connect with that voice and that
- 45:28story because it might not be you, right?
- 45:31But understanding, recognizing that maybe something that you
- 45:33didn't need, but something that another dad needs like art
- 45:36therapy. But that also speaks volumes
- 45:39about your organization and how you guys are willing to evolve,
- 45:44grow, expand based on what others need and not based on
- 45:49what you're saying they need. Exactly.
- 45:52We, we can't say definitively what every dad needs, but we
- 45:55will try what we think is right and what other people suggest.
- 45:59And as we see it working, we'll keep doing it.
- 46:02And that's what we are committed to is trying to meet each dad.
- 46:06I, we know we can't be everything to everyone, but we
- 46:09can certainly try our best to meet dads where they are.
- 46:12And that's what we're committed to.
- 46:14Absolutely, Rob. That is so beautiful, you know,
- 46:16for someone listening who you know loves a grieving father.
- 46:21What should they do, say you know to to help them or to you
- 46:27know, get them connected to sad Dad's club make?
- 46:31Sure, they know that we exist. Don't push them to say, hey,
- 46:35it's it's Thursday night. Are you going to sign on to
- 46:37their Zoom? Just let them go with their own
- 46:39pace. Make sure they know what we have
- 46:41available, which I know I spouted off a whole bunch of
- 46:43things, few of them are easy to remember, but just consider that
- 46:47we have online based support regularly.
- 46:50We have in person meetups as well as retreats, and we have
- 46:54access to professional mental health services that we pay for
- 46:57with therapists whom we're partnered with.
- 46:59Just make sure they know how to reach us.
- 47:01Sad Dads club.org. If you go to the connect and
- 47:04contact tab that goes directly to my inbox.
- 47:06Something that we are committed to is making sure that we're
- 47:09getting back to dads in a timely manner.
- 47:12Usually if a dad reaches out, they're not going to to wait
- 47:14more than 24 hours to get a response from us.
- 47:17And when they hear back from us, they will have a list of
- 47:19resources immediately available and an overview of what it is we
- 47:22offer. Just make sure they know we
- 47:26exist. That's what I would say to
- 47:27anybody out there who loves the lost dad and who wants to help
- 47:30them. The goal with sad dad's club, I
- 47:34feel like I've always said the goal, the goal.
- 47:36We have many goals clearly, but the the really like the ultimate
- 47:40goal is to make sure that no dad out there who is navigating
- 47:43child loss thinks that there's nothing out there for them.
- 47:46So as long as they know, even if what I think about almost every
- 47:50Thursday after we conclude, one of our Zoom sessions is I wonder
- 47:54who out there was about to come, but they didn't come.
- 47:57But they still got the comfort knowing, OK, it's going to be
- 48:00there again. And consistency is something
- 48:02that we are committed to right from the jump.
- 48:04When we started this, we said, if we can't be consistent and
- 48:07reliable, then we better pack our bags and get and, and, and
- 48:11quit now because people are coming to us in their most
- 48:15vulnerable state and fragile state imaginable.
- 48:18And so we are committed to being consistent.
- 48:21So as long as a dad knows about us, as long as they know that we
- 48:24have a Discord, that we have Zoom sessions, but we have dads
- 48:28all over the country and even the world that they can connect
- 48:30with in person if they want to, that's what they need to know.
- 48:33And whenever they're ready, sad dadsclub.org or go straight to
- 48:36the source info@saddadsclub.org and people can reach out
- 48:39directly via e-mail. But we are always here.
- 48:42This has to far outlive all of us and that is our ultimate
- 48:46hope. Absolutely.
- 48:47Rob, thank. You thank you so much and I'll
- 48:50make sure in the description of this episode I will put all of
- 48:54your contact information. So please, please, please,
- 48:56anyone listening who feels, you know their partner, could, you
- 48:59know, benefit from support or needing to know a space that
- 49:02they can get support, you know, share this information with
- 49:05them. And Rob, I just cannot thank you
- 49:07enough for coming on here, sharing about your baby girl,
- 49:11sharing her story, sharing so others don't feel so alone and
- 49:15isolated and just thank you for all that you are doing to change
- 49:19what is happening with maternal mental health in this space.
- 49:23So thank you, thank you, thank you.
- 49:26Right back at you, Bernice. Thank you for everything that
- 49:28you're doing with chasing the Rainbows and supporting lost
- 49:31moms everywhere out there. Thank you, Rob.
- 49:34Thank you. Thank you for your honesty, your
- 49:37vulnerability, and for helping us better understand something
- 49:40that's so many people miss that group.
- 49:43Fathers grieve, too. What stands out so deeply in
- 49:46today's conversation is this grief does not belong to one
- 49:49parent. When a baby dies, a mother
- 49:52grieves. A father grieves.
- 49:53A relationship grieves. And too often, dads are expected
- 49:56to carry that pain quietly. But silence doesn't heal.
- 49:59Community does. Conversation does.
- 50:01Being seen does. And that's what you've built
- 50:04through Sad Dad's Club. And here, you know, you're
- 50:07helping to rewrite that story, reminding fathers everywhere
- 50:10that they do not have to hold this alone and that asking for
- 50:13support is not weakness, it's courage and strength.
- 50:15And to every dad listening right now, whether you've experienced
- 50:18any type of these losses, these traumatic losses, we want you to
- 50:22know this. Your grief matters, your baby
- 50:24matters, and you matter. If this episode today resonates
- 50:28with you, share it with someone who may need to hear it.
- 50:30And Rob, thank you again so much for making sure fathers
- 50:33everywhere knows that they are not forgotten.
- 50:37Until next time this is cried out loud, Thank you.