SPOTLIGHT on Michela
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In this month's Spotlight episode, we chat with Michela, who shares with us what it is like to be the mother of child with a rare disease.
Most of us have probably never even heard of Hirschsprung's (HIRSH-sproongz) disease, which is a condition that affects the large intestine (colon) and causes problems with passing stool. The condition is present at birth (congenital) as a result of missing nerve cells in the muscles of the baby's colon. Without these nerve cells stimulating gut muscles to help move contents through the colon, the contents can back up and cause blockages…
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