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Skyclarys Fight for Friedreich's Patients | Cork News
A life-or-death battle for access to Skyclarys, a breakthrough drug for Friedreich’s Ataxia, is unfolding in Ireland as hundreds rally behind Emma O’Shea, whose brother died from the disease at 29. The HSE’s refusal to fund the treatment—approved by the EU—has sparked nationwide outrage, with TD Michael Collins demanding immediate action and calling out bureaucracy. With a final decision looming August 25th and a massive Dublin protest planned, patients and advocates are pleading for the government to prioritize lives over cost. Listen in comfort:Get a discount on a Soli Pillow…
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