Latest / Beautifully Complex / 379: Helping Kids Understand Their Diagnosis, with Drs. Katia Fredriksen and Yael Rothman
Transcript
- 0:02Speaker 1: Kids notice far more than we think they do. And
- 0:06Speaker 1: when no one explains why some things feel harder for them,
- 0:10Speaker 1: they usually fill in those blanks with the most painful
- 0:14Speaker 1: story available. I'm the problem. Today, I'm talking with pediatric neuropsychologists, Dr.
- 0:21Speaker 1: Katia Fredrickson and Dr. Yael Rothman, authors of the Different
- 0:27Speaker 1: Thinkers book series for kids. We discuss how to talk
- 0:31Speaker 1: with your child about their diagnosis. We get into when
- 0:35Speaker 1: to start, what words actually land, how to stay strengths-based
- 0:39Speaker 1: without sugarcoating. They even provide some advice on what to
- 0:44Speaker 1: say if your kid says,' I' m bad.' or asks, am
- 0:48Speaker 1: I broken? I'm Penny Williams, and this is Beautifully Complex.
- 0:59Speaker 1: Welcome back, everyone. I have two guests with me today.
- 1:04Speaker 1: The authors of the Different Thinkers series of books is
- 1:09Speaker 1: with me to talk about talking to your kids about
- 1:13Speaker 1: their diagnosis, how to let them in on what's going on,
- 1:17Speaker 1: but to also keep it strengths-based and positive and neuroaffirming.
- 1:21Speaker 1: I get this question so often, so I'm so super
- 1:24Speaker 1: happy to have some experts here to help me with
- 1:28Speaker 1: helping you to guide your kids around this thing that
- 1:33Speaker 1: isn't always common in parenting, right? Having a diagnosis for
- 1:37Speaker 1: your kid and trying to have those conversations with them
- 1:41Speaker 1: So will you all start by letting everybody know who
- 1:44Speaker 1: you are, what you do, and then we are going
- 1:47Speaker 1: to jump right into all that good stuff.
- 1:49Speaker 2: Sure. Hi, I'm Yael Rothman. I am a pediatric neuropsychologist
- 1:56Speaker 2: and I assess children with developmental differences. This could be
- 2:02Speaker 2: with learning or with social-emotional differences or attention and executive
- 2:09Speaker 2: functioning differences. I am currently located in New York and
- 2:15Speaker 2: I met the other amazing speaker who's here today who
- 2:18Speaker 2: will introduce herself when we were working together in a
- 2:22Speaker 2: private practice in Maryland.
- 2:24Speaker 3: So that would be me. I'm Katya Fredrickson, like Yael.
- 2:29Speaker 3: I'm a pediatric neuropsychologist, which means, as she said, that
- 2:32Speaker 3: we do assessments and provide diagnoses, recommendations, et cetera, to families.
- 2:39Speaker 3: And so I work at the Stixrude Group, which is
- 2:42Speaker 3: offices in Silver Spring, Maryland, and McLean, Virginia. Yeah, Elle
- 2:46Speaker 3: rudely took herself off to New York, but previously we
- 2:49Speaker 3: spent a lot of time together. But we're continuing to
- 2:53Speaker 3: enjoy our time working, you know, on our book series,
- 2:56Speaker 3: Different Thinkers, about presenting diagnosis, which is why we're here
- 2:59Speaker 3: today and so excited to chat about that. Yeah.
- 3:01Speaker 1: Where do we start with this conversation? I think kind
- 3:05Speaker 1: of normalizing that this is difficult. Like if you're a parent...
- 3:09Speaker 1: of a kid who has learning or thinking differences, it's
- 3:13Speaker 1: difficult to figure out when to tell them, how to
- 3:15Speaker 1: tell them, what to tell them.
- 3:16Speaker 2: Yeah. And I think that's also because there's not really
- 3:22Speaker 2: any research for us to look to, to say this
- 3:25Speaker 2: is the way to do it. It's really interesting when
- 3:28Speaker 2: you look back to neuropsychological evaluations in general, feedback wasn't
- 3:34Speaker 2: even part of the initial assessments that were done. It
- 3:37Speaker 2: would just be the doctor telling the other doctor what
- 3:39Speaker 2: was going on instead of even telling the client. And
- 3:43Speaker 2: then it was about telling the parents, but not telling
- 3:46Speaker 2: the child. And now we are finally getting to the
- 3:49Speaker 2: point where we realize how important it is for everybody
- 3:53Speaker 2: to know how their brain works and how they think
- 3:56Speaker 2: and how they learn so they can become their best
- 3:58Speaker 2: self-advocates and understand how they think and learn fast.
- 4:02Speaker 3: And there's such a fear associated with it, right, as
- 4:05Speaker 3: a parent. So many parents fear the idea of a,
- 4:08Speaker 3: you know, quote unquote, a label that will sort of
- 4:11Speaker 3: put their child in a certain pigeonhole and potentially circumscribe
- 4:16Speaker 3: their future or, you know, very sort of strong concerns
- 4:20Speaker 3: that parents naturally have. And we always like to talk
- 4:24Speaker 3: with parents about how, you know, kids are so much
- 4:28Speaker 3: more aware than we might realize, you know, the expression
- 4:30Speaker 3: little pitchers, big ears, right? They're so conscious of what's
- 4:35Speaker 3: going on around them in a way that we're not
- 4:38Speaker 3: always privy to And we want to be sure that
- 4:41Speaker 3: they have an accurate understanding of the sorts of things
- 4:46Speaker 3: that might be affecting them that they might be noticing.
- 4:48Speaker 1: And do we always tell our kids about their diagnosis?
- 4:52Speaker 1: Is there a time where we don't or where we wait?
- 4:55Speaker 2: So, again, I.
- 4:58Speaker 2: I like to think of myself as an evidence-based practitioner,
- 5:01Speaker 2: and I don't have any research to look to in
- 5:03Speaker 2: these situations. So I do try to make it more
- 5:05Speaker 2: of an individual approach for the clients, but I would
- 5:10Speaker 2: say I have not yet not recommended sharing a diagnosis
- 5:15Speaker 2: with a child. I think that it can be such
- 5:19Speaker 2: an important experience. There are some, like Katya was saying
- 5:24Speaker 2: about empowering, changing the narrative, and also Everyone knows something's
- 5:29Speaker 2: going on, but how about if we gave you words,
- 5:32Speaker 2: a community, resources to look to so you know you're
- 5:35Speaker 2: not alone in this journey? I have had some families
- 5:40Speaker 2: who are not yet ready to share with their kids,
- 5:44Speaker 2: and so I provided... information on how I would do
- 5:48Speaker 2: it and then said, please return when you're ready. And
- 5:51Speaker 2: I've had some families come back to me three years later,
- 5:54Speaker 2: which has been amazing. And we were able to have
- 5:57Speaker 2: that important discussion. I've also had families who want me
- 6:01Speaker 2: to share strengths and challenges, but not the diagnosis themselves.
- 6:05Speaker 2: And I work with everybody to meet you where you're at.
- 6:09Speaker 2: But I think that the language can be so helpful
- 6:11Speaker 2: for a young person. Mm-hmm.
- 6:14Speaker 1: Because they make up a story and blame themselves, but
- 6:17Speaker 1: they don't have an explanation. That's what I've seen.
- 6:19Speaker 3: Oh, 100%. So true, right? We're so quick as human
- 6:23Speaker 3: beings to attribute a negative to ourselves, unfortunately. It's very
- 6:29Speaker 3: much internalized. I'm the problem as opposed to there's something
- 6:34Speaker 3: different about the way I'm developing that maybe my classroom
- 6:36Speaker 3: is not geared toward or, you know, that's not how
- 6:40Speaker 3: kids naturally think in general, right?
- 6:42Speaker 2: Yeah.
- 6:43Speaker 1: It gives them an explanation for the struggle that they're having,
- 6:46Speaker 1: which I think is really helpful for mental health to
- 6:49Speaker 1: not be blaming and shaming yourself, right? I think anybody
- 6:52Speaker 1: would agree with that.
- 6:55Speaker 2: Yeah, and I think in some situations, some young people
- 6:59Speaker 2: find it a relief. It can be comforting and also
- 7:03Speaker 2: maybe discovering a community like I've had. several autistic individuals
- 7:07Speaker 2: who find out that their diagnosis of autism really find
- 7:11Speaker 2: a community of other autistic individuals to befriend and get
- 7:15Speaker 2: along with. And that's been amazing and empowering that way.
- 7:20Speaker 3: And it's worth mentioning, I mean, it's not always an
- 7:23Speaker 3: immediate positive response, right? I mean, just, you know, ideally speaking,
- 7:28Speaker 3: and many times it is, but sometimes it's not. And
- 7:32Speaker 3: then sometimes We sort of can work to dispel any
- 7:35Speaker 3: potential misconceptions. You know, the whole, my cousin has ADHD
- 7:40Speaker 3: and I am not at all like, you know what
- 7:43Speaker 3: I mean? Where people sort of are assuming that because
- 7:45Speaker 3: somebody else has the same label, it means that they
- 7:47Speaker 3: will present exactly. So you can just help to dispel
- 7:50Speaker 3: some of those ideas. But you don't always get an
- 7:53Speaker 3: immediate positive reaction. I think that's part of what parents fear, right?
- 7:56Speaker 3: Is that the child will be angry or upset. I
- 8:00Speaker 3: would say that's pretty rare sometimes. When you present it
- 8:03Speaker 3: in a neuroaffirming manner.
- 8:06Speaker 2: So one thing that I have been doing more and
- 8:12Speaker 2: more throughout my career is this feedback begins at intake.
- 8:16Speaker 2: I don't know if you've ever heard of this theory.
- 8:19Speaker 2: Maybe it was Karen Postol and Kira Armstrong. They wrote
- 8:22Speaker 2: this book about feedbacks with adults and a little bit
- 8:25Speaker 2: with children. But it's about sharing information throughout the process.
- 8:30Speaker 2: So when I'm with a young person, a kid or
- 8:32Speaker 2: a teen, I start saying like, how did you feel
- 8:37Speaker 2: about the activity we just did? And I hear their
- 8:40Speaker 2: thoughts and what do you think about what's going on?
- 8:43Speaker 2: And try to hear from them, why do you think
- 8:45Speaker 2: this is happening? And then you can kind of start
- 8:48Speaker 2: peppering in a little bit, even before you give the
- 8:50Speaker 2: feedback a few weeks later. So I had a recent client,
- 8:55Speaker 2: I think a 12-year-old who was telling me, that they
- 8:58Speaker 2: are really struggling with reading and it's been really hard,
- 9:01Speaker 2: but I don't have dyslexia. I said, oh, okay. What
- 9:04Speaker 2: does that mean? What do you think that means? Oh,
- 9:07Speaker 2: because the words don't flip in my head when I
- 9:09Speaker 2: read them. And so I'm like, oh, here's what dyslexia
- 9:12Speaker 2: actually is. And she goes, oh, I might have dyslexia.
- 9:16Speaker 2: And I said, oh, that's one of the things we're
- 9:18Speaker 2: going to look at then and understand. It was so
- 9:20Speaker 2: great because we were already starting that conversation even before
- 9:23Speaker 2: I am getting to the data or anything. So I'm
- 9:27Speaker 2: starting it. So then by the time I give the feedback,
- 9:30Speaker 2: it's already a little bit there. So I don't have
- 9:33Speaker 2: any surprises or something unexpected that might come up.
- 9:37Speaker 1: So being really curious with them about what's going on,
- 9:41Speaker 1: what they think is going on.
- 9:43Speaker 3: I like that.
- 9:44Speaker 2: When something looks hard in testing, I pause. What do
- 9:48Speaker 2: you think is going on here? Oh, yeah. Well, in school,
- 9:51Speaker 2: I also have that. Or this is really tough. Yeah. Uh-huh.
- 9:55Speaker 2: So you said this is hard.
- 9:57Speaker 3: And this is hard.
- 9:58Speaker 2: And both of us, when Katya and I give feedbacks,
- 10:00Speaker 2: we use the kids' words. So we're really trying to
- 10:04Speaker 2: tell families to do the same. What are they saying? Oh,
- 10:07Speaker 2: math is so boring and hard. Or I can't pay
- 10:11Speaker 2: attention when it's not interesting to me. Or it is
- 10:14Speaker 2: so hard for me to start a conversation. Whatever it is,
- 10:19Speaker 2: I like to use their words. You know how you
- 10:21Speaker 2: said this? Well, guess what? I saw that that is
- 10:24Speaker 2: truly hard for you. And it has a name. And
- 10:26Speaker 2: this is what, you know, and kind of build on that.
- 10:29Speaker 2: Is that what you would say to Katya?
- 10:30Speaker 3: Mm-hmm. Yeah, definitely. I mean, the more you can use either, well,
- 10:35Speaker 3: obviously the child's words themselves, or perhaps like a favorite
- 10:39Speaker 3: teacher or, you know what I mean? As long as
- 10:42Speaker 3: it increases the, I guess, just the meaningfulness of just
- 10:47Speaker 3: how deeply it lands, right? As opposed to this external
- 10:51Speaker 3: doctor who you've only met a couple of times is
- 10:52Speaker 3: now going to tell you about yourself, right? That's not
- 10:55Speaker 3: a particularly empowering experience for anyone.
- 10:58Speaker 1: Mm-hmm.
- 10:59Speaker 3: Yeah.
- 11:00Speaker 1: And it can be such a challenge for the parents
- 11:02Speaker 1: and so laden with emotion too. It can be really
- 11:07Speaker 1: hard for a parent to, you know, maybe even tell
- 11:10Speaker 1: them about the diagnosis without being openly emotional. Is that okay?
- 11:15Speaker 1: Or should they wait, right?
- 11:17Speaker 3: I think it's better if they wait a little. Like
- 11:20Speaker 3: we want to be sure we have our own, our
- 11:23Speaker 3: feelings managed, our questions answered, right? So we can go
- 11:27Speaker 3: in with a sense of, certainty and positivity about something.
- 11:31Speaker 3: And of course, if emotions intrude, they intrude. I mean,
- 11:33Speaker 3: we're human beings. We can't always control that. But just
- 11:35Speaker 3: the more we can sort of lay the groundwork. And
- 11:38Speaker 3: part of it, I think, often is this whole parents
- 11:41Speaker 3: either realize or come to realize that maybe they had
- 11:44Speaker 3: similar profile when they were a child. And gosh, back
- 11:47Speaker 3: in the 80s, it was darn hard having X, you know,
- 11:51Speaker 3: this learning disorder, ADHD or whatever. And so part of
- 11:54Speaker 3: the narrative with parents can also be around. Guess what?
- 11:57Speaker 3: There have been lots of advancements in terms of how
- 11:59Speaker 3: we think about things and interventions, and it can help
- 12:02Speaker 3: people sort of see things from a different angle.
- 12:06Speaker 2: I think it can be really powerful to come in
- 12:08Speaker 2: without that bias that you might bring to the table
- 12:12Speaker 2: if you're feeling negative or positive sometimes, I guess, about
- 12:16Speaker 2: what's going on. So just doing all your research, feeling
- 12:19Speaker 2: comfortable with the diagnosis and profile, and then can come
- 12:23Speaker 2: in and explain it in a very understanding way for
- 12:27Speaker 2: your child.
- 12:28Speaker 3: I was just going to say that's something we can
- 12:30Speaker 3: assist with. Like we always offer and gosh, I try
- 12:34Speaker 3: to insist, especially with middle school and up on doing
- 12:37Speaker 3: a feedback directly with the student because they're at an
- 12:40Speaker 3: age where, you know, they really, and I'm happy to
- 12:42Speaker 3: do it with the kids as well. But so we
- 12:45Speaker 3: can help with that. And also many of us in
- 12:48Speaker 3: our field routinely sort of are starting to add a
- 12:51Speaker 3: letter for the child at the end of the report
- 12:53Speaker 3: so that they have a piece of sort of concrete,
- 12:56Speaker 3: you know, something to carry on with them to refer
- 12:59Speaker 3: to as needed.
- 12:59Speaker 1: I love that. Such a great idea.
- 13:02Speaker 2: Having something tangible, I think, can be really great because
- 13:05Speaker 2: the conversations are going, it's not one conversation and you're
- 13:09Speaker 2: done talking about it. You're going to refer back to
- 13:11Speaker 2: something over and over, have many conversations. I talk to
- 13:15Speaker 2: every kiddo I see if we're all on the same
- 13:18Speaker 2: page and we're able to do the feedback. And so
- 13:21Speaker 2: I love talking to six-year-olds too. I think it's great.
- 13:24Speaker 2: They have zero stigma. Yes, yes. They don't know so
- 13:30Speaker 2: much yet. So it's so nice to start the conversation
- 13:32Speaker 2: with them. I love that. And they might not have
- 13:35Speaker 2: a lot to say at that time, and that's okay.
- 13:37Speaker 2: They're just kind of listening. But I do a PowerPoint
- 13:39Speaker 2: presentation and Katya likes to do a letter. There's so
- 13:42Speaker 2: many different ways to share this. But then you can
- 13:45Speaker 2: refer back to it in a year or talk to
- 13:48Speaker 2: your interventionists in a year and share that with them
- 13:51Speaker 2: or whatever it might be to continue that conversation.
- 14:08Speaker 1: How does a parent get started with this conversation? I
- 14:12Speaker 1: feel like a lot of it is about concern anxiety
- 14:15Speaker 1: around having the conversation how our kid is going to
- 14:17Speaker 1: react are we going to be able to handle how
- 14:20Speaker 1: they react right and just like getting over that hump
- 14:24Speaker 1: at the beginning can be hard is there some sort
- 14:28Speaker 1: of general area that they could start with or some
- 14:32Speaker 1: general um sort of loose script maybe that would help
- 14:36Speaker 1: parents to sort of push over that hump a little
- 14:40Speaker 1: bit and be able to get going I.
- 14:42Speaker 3: Mean, that's a great question. I think one thing that
- 14:45Speaker 3: you want to consider is picking a good moment, right?
- 14:49Speaker 3: Like we want to start this conversation, not in a
- 14:52Speaker 3: moment of stress or we're rushing off somewhere and, oh,
- 14:56Speaker 3: by the way, you know, like we really want to
- 14:58Speaker 3: sort of have a good moment. And in some families,
- 15:01Speaker 3: maybe that's sitting down together. Maybe it's taking a walk.
- 15:04Speaker 3: Maybe it's whatever. I mean, just whatever works in the
- 15:06Speaker 3: context of a family. So that's a piece to think
- 15:09Speaker 3: about as we're sort of making our plans and When
- 15:12Speaker 3: you've done an evaluation, for example, with one of us,
- 15:15Speaker 3: that's a natural point, right? You know how you met
- 15:18Speaker 3: with Dr. So-and-so and blah, blah, right? Yeah. So that's
- 15:23Speaker 3: a potential entry point if there's been an appointment with
- 15:26Speaker 3: a professional or something of that nature.
- 15:29Speaker 2: We, Katya and I have talked about like kind of
- 15:32Speaker 2: a step process to think about like first that parents
- 15:37Speaker 2: get comfortable, right? with the diagnosis, ask the questions that
- 15:41Speaker 2: they need answered, and talk to professionals about it. And then,
- 15:45Speaker 2: like she was saying, decide when the conversation's gonna happen.
- 15:49Speaker 2: Having it a schedule, like we're gonna talk after you're
- 15:53Speaker 2: done with this assessment, or having it arise organically, like
- 15:57Speaker 2: if a child is saying, I'm really struggling with reading today,
- 16:02Speaker 2: and this is so frustrating that I can't sound these
- 16:05Speaker 2: words out. You know, there's a reason why. And you
- 16:08Speaker 2: can like it can arise organically that way, too. But
- 16:12Speaker 2: we like to present this information just how we present
- 16:16Speaker 2: it to parents a little bit, where you start talking
- 16:19Speaker 2: about strengths and talking about areas of challenge, introducing concepts
- 16:25Speaker 2: like neurodiversity and what a profile looks with these strengths
- 16:31Speaker 2: and challenges could be called. And then where do we
- 16:33Speaker 2: go from here? So talking about recommendations and supports that
- 16:37Speaker 2: you could put in place.
- 16:38Speaker 1: And of course your different thinkers books can help with
- 16:41Speaker 1: this too, right? I'm just thinking like, do we start
- 16:44Speaker 1: there though? Do we start with maybe reading a book
- 16:47Speaker 1: about what ADHD is like or what autism is like
- 16:50Speaker 1: and then go into the conversation or do we have
- 16:52Speaker 1: the conversation? And I know this is different for everyone,
- 16:56Speaker 1: but like, can you give some sort of, basis?
- 16:59Speaker 3: We certainly could. We certainly could, right? I have done
- 17:03Speaker 3: some book readings at elementary schools with the ADHD book
- 17:07Speaker 3: in particular. And whenever, you know, the book, each of
- 17:10Speaker 3: the books, there's ADHD, autism, and dyslexia just came out.
- 17:14Speaker 3: But with ADHD and the other two, there are three vignettes, right?
- 17:17Speaker 3: Three little characters who represent different elements of how the
- 17:20Speaker 3: diagnosis may present. And so when I'm doing the readings
- 17:24Speaker 3: at elementary schools and so on. And I even went
- 17:26Speaker 3: to my daughter's school and she was mortified anyway. So
- 17:28Speaker 3: I'm doing the little readings I'll go through and I'll say,
- 17:31Speaker 3: you know, does this feel familiar to you? Like how does,
- 17:33Speaker 3: you know, cause, and that's embedded in the text, a
- 17:36Speaker 3: sort of a cue to talk about like, does this
- 17:39Speaker 3: ever happen to you? So-and-so struggles with this. Have you
- 17:41Speaker 3: had that experience? And so when I'm reading that sometimes
- 17:43Speaker 3: kids will be like, And they're sharing all their little things.
- 17:50Speaker 3: Just laughing inside. It's so charming because they're not old
- 17:53Speaker 3: enough yet to feel subconscious. But so it can be
- 17:58Speaker 3: a good vehicle in that regard to get started.
- 18:01Speaker 2: I think that that can be very helpful for parents
- 18:06Speaker 2: if they read bedtime books together with a character who
- 18:10Speaker 2: has different thinking profile or watch a video or even
- 18:14Speaker 2: they're watching TV together and they stop and say like, oh,
- 18:17Speaker 2: did you see what happened in this situation? And you
- 18:20Speaker 2: can also start by just sharing the diagnosis with your
- 18:24Speaker 2: child directly and then going to these resources. I think
- 18:27Speaker 2: that both of these are fine ways to do it.
- 18:30Speaker 3: So you could use a prompt, like either remember that
- 18:34Speaker 3: assessment you had or You know, I went to your
- 18:38Speaker 3: fall teacher conference and your teacher told me X or,
- 18:42Speaker 3: you know, after soccer practice the other day, your coach
- 18:44Speaker 3: mentioned Y. I mean, so we could use as an entree,
- 18:48Speaker 3: like a practical situation that has arisen to sort of
- 18:52Speaker 3: anchor it in real life. And then that can be
- 18:54Speaker 3: the start of a conversation.
- 18:55Speaker 2: Yeah.
- 18:57Speaker 1: So many ways to go.
- 18:58Speaker 3: Yeah, there's no right or wrong.
- 19:01Speaker 1: There's no right or wrong, but I think parents fear
- 19:03Speaker 1: that there is. And that's why it's so important to
- 19:05Speaker 1: have the conversation that we're having. You're not going to
- 19:10Speaker 1: damage your child in the way, I mean, I guess
- 19:12Speaker 1: you could, but you're not likely the parent that's here
- 19:14Speaker 1: listening to this. It's not going to be as bad
- 19:19Speaker 1: as you think it's going to be probably. But what
- 19:22Speaker 1: if something that a parent fears comes up? What if
- 19:26Speaker 1: the kid asks, Does that mean I'm broken?
- 19:28Speaker 3: Am I bad?
- 19:31Speaker 1: What kind of responses can a parent have in their
- 19:34Speaker 1: back pocket so they know if this comes up, I
- 19:38Speaker 1: know approximately what to say?
- 19:40Speaker 2: Yeah, I think one of the things that we do
- 19:43Speaker 2: when we share this is talking about also, this is
- 19:47Speaker 2: harder for you, but here are ways to help you.
- 19:51Speaker 2: Here are other people who have similar profiles and here
- 19:53Speaker 2: are strengths that come along with this profile. So we're
- 19:56Speaker 2: trying to embed that it's not, we're saying that things
- 20:00Speaker 2: are wrong or bad. When we talk about neurodiversity, it's
- 20:04Speaker 2: about that everyone thinks differently. in different ways. It doesn't
- 20:08Speaker 2: mean one way is right and one way is wrong,
- 20:11Speaker 2: but here are ways to help you be the best
- 20:13Speaker 2: at how your brain works and how your brain thinks.
- 20:16Speaker 2: So we don't sugarcoat that things aren't going to be hard.
- 20:19Speaker 2: I think that's important. It's important to take a strengths-based approach,
- 20:23Speaker 2: but it doesn't mean we mask everything that's going to
- 20:25Speaker 2: be a challenge. And we go through that. But hopefully
- 20:28Speaker 2: what we're doing is in the conversation, we're embedding all
- 20:32Speaker 2: of this positive and look at all these successful individuals.
- 20:36Speaker 2: And maybe a parent might say, and I actually had
- 20:38Speaker 2: this challenge when I was your age and just showing
- 20:42Speaker 2: there's a way to support you and find what's best
- 20:44Speaker 2: for you.
- 20:45Speaker 3: I loved how you put that. I was just going
- 20:47Speaker 3: to say a practical example, like what I'll often write
- 20:49Speaker 3: in letters to kids is, so for just as a
- 20:52Speaker 3: practical example, like say you have ADHD, so I'll often
- 20:55Speaker 3: write care all the things you're good at that everybody
- 20:58Speaker 3: all the nice things of your parents your teacher your
- 21:01Speaker 3: coach whoever I talk to the things I enjoyed about
- 21:04Speaker 3: meeting with you here all the strengths I saw in
- 21:06Speaker 3: the testing some things are harder guess what I mean
- 21:09Speaker 3: as is the case for all of us right and
- 21:11Speaker 3: here are the things that I saw that are harder
- 21:13Speaker 3: for you so say for example if you're presenting an
- 21:16Speaker 3: ADHD diagnosis you could say I noticed in the testing
- 21:20Speaker 3: and your teacher said or whatever that when things are
- 21:23Speaker 3: harder for you or you feel bored, it's harder for
- 21:26Speaker 3: you to focus. And sometimes you make inattentive mistakes and,
- 21:31Speaker 3: you know, have trouble staying organized, that sort of thing.
- 21:33Speaker 3: Then it's obviously just a very simplified description, right? Because
- 21:37Speaker 3: you don't want to overwhelm someone. Those things mean that
- 21:40Speaker 3: you have something called ADHD. And then I'll sort of say,
- 21:43Speaker 3: you know, I don't know if you've heard of ADHD
- 21:46Speaker 3: or or that you know how many strengths we know
- 21:49Speaker 3: are associated with ADHD, like creativity, spontaneity, out-of-the-box thinking, energy,
- 21:53Speaker 3: et cetera. Many entertainers, athletes, inventors, et cetera, have talked about,
- 21:57Speaker 3: entrepreneurs have talked about how their ADHD has supported them
- 22:00Speaker 3: on their journey. So you can sort of mention both
- 22:03Speaker 3: the things that are harder and the joyful things that
- 22:06Speaker 3: come along with it, right? So you're not losing sight
- 22:09Speaker 3: of strengths, and nor are you, as Yael said, masking.
- 22:13Speaker 3: I mean, things that genuinely can be harder, right? Mm-hmm.
- 22:17Speaker 1: Yeah, I'm thinking about my own experience too. And I
- 22:22Speaker 1: can't even tell you at this point, my kid's 24
- 22:24Speaker 1: almost now. So I don't remember the exact conversation when
- 22:27Speaker 1: he was six, but it seemed to be a relief
- 22:30Speaker 1: to him because he was starting, even at age six,
- 22:34Speaker 1: he was starting to blame himself. And I remember shortly after,
- 22:39Speaker 1: maybe within a year of the diagnosis, he had a
- 22:42Speaker 1: therapist who did activity with him where she had the
- 22:46Speaker 1: big roll of paper, and she had him lay down
- 22:48Speaker 1: on it, she traced his body, and then the whole
- 22:51Speaker 1: time they spent writing down all the things about him,
- 22:55Speaker 1: and then talked about how ADHD was only one of
- 22:58Speaker 1: the things that was all over that paper. And I
- 23:02Speaker 1: will never forget his face when I opened the door
- 23:05Speaker 1: to come get him, he's done with his time with
- 23:07Speaker 1: her by himself, and he's skipping down the hall. He's
- 23:11Speaker 1: so happy. And I realized that like, that's the moment
- 23:16Speaker 1: where it was like, oh my gosh, we really need
- 23:18Speaker 1: to talk about more than the struggle. And we really
- 23:22Speaker 1: need to focus more on strengths because I was just
- 23:25Speaker 1: in fix it mode, right? That's all I knew at
- 23:26Speaker 1: the time. And that was a really big eye opener.
- 23:29Speaker 1: But I also, I recommend it to parents all the
- 23:32Speaker 1: time in coaching, like do this activity and you don't
- 23:35Speaker 1: necessarily have to lay down on the paper. You could
- 23:36Speaker 1: just have a little body outline, you know, whatever works,
- 23:40Speaker 1: but make sure that they recognize That they're more than
- 23:44Speaker 1: just the things that they're struggling with, right?
- 23:47Speaker 3: Definitely. And so many strengths that certainly make things we
- 23:50Speaker 3: can quantify when we do testing, but so many strengths
- 23:52Speaker 3: that cannot be quantified, like being a thoughtful kid, like
- 23:57Speaker 3: that's going to carry you far in life. And we
- 23:59Speaker 3: can't assign a number or a quote unquote, like quantitative
- 24:03Speaker 3: value to that. But these are things that we really
- 24:06Speaker 3: need to help kids appreciate them about themselves.
- 24:09Speaker 2: Mm hmm.
- 24:10Speaker 1: Anything that we've missed that you feel is really important
- 24:13Speaker 1: in this conversation before we wrap up?
- 24:16Speaker 2: I think we've talked about a lot of the ways
- 24:19Speaker 2: that we share with families about how to talk about
- 24:22Speaker 2: a diagnosis, why we think it's important, how it can
- 24:25Speaker 2: be so empowering for young people. And then I think
- 24:29Speaker 2: asking for help. If you as a parent are feeling
- 24:34Speaker 2: not ready or uncomfortable, ask different providers to support you
- 24:38Speaker 2: through this. So You don't have to be the one
- 24:40Speaker 2: that starts this conversation. It could be a provider that
- 24:44Speaker 2: is with you in the room and you talk all
- 24:45Speaker 2: together and then you continue that conversation later.
- 24:48Speaker 3: Yeah, that's an excellent idea.
- 24:52Speaker 1: And you continue it as they grow, right? If they
- 24:54Speaker 1: have an earlier diagnosis, I think the understanding of it
- 24:58Speaker 1: can sort of morph and change as they get older too.
- 25:02Speaker 2: A hundred percent. I, again, that conversation is going to
- 25:05Speaker 2: look different. I have I had a talk with my
- 25:08Speaker 2: son at the age of five about ADHD, and it's
- 25:11Speaker 2: going to look very different when we talk about it
- 25:13Speaker 2: in a few years and keep talking throughout time. But
- 25:17Speaker 2: it's just part of the part of the story.
- 25:22Speaker 1: Tell everybody where they can find the book, where they
- 25:24Speaker 1: can find you all online so that they can continue
- 25:28Speaker 1: to learn from you.
- 25:29Speaker 3: Well, we, so we have three books. It's the different
- 25:33Speaker 3: thinkers series. There's ADHD, autism, and dyslexia. So you've got
- 25:36Speaker 3: a variety, a variety pack there. Our publishers are Boys
- 25:41Speaker 3: Town Press and the books are available there. They're available
- 25:43Speaker 3: on Amazon. They're available, you know, out and about in
- 25:47Speaker 3: the bookstore at the library. I saw it at my
- 25:49Speaker 3: public library the other day. So that was nice. And
- 25:52Speaker 3: we have a website, neuropsychmoms.com, where you can contact us
- 25:57Speaker 3: and just, you know, gather information.
- 25:59Speaker 2: And right now the books are translated into French and Vietnamese,
- 26:03Speaker 2: if those are resources you are looking for. Yes. But yes,
- 26:11Speaker 2: you can find our website, Neuropsych Moms. You can find
- 26:13Speaker 2: us on Instagram at Neuropsych Moms. I am in New
- 26:17Speaker 2: York at my own private practice. And Katya is in
- 26:23Speaker 2: Maryland at the Stixxer Group.
- 26:25Speaker 1: And I'll link the book up and your website up
- 26:29Speaker 1: in the show notes so it's easy for everyone to
- 26:31Speaker 1: find and connect with you. Thank you for writing these
- 26:35Speaker 1: books for kids about hard conversations and hard topics. Like,
- 26:40Speaker 1: it's not easy stuff. And I find more and more
- 26:43Speaker 1: parents actually looking for books that kids can read and
- 26:47Speaker 1: they can either see themselves represented or they can learn
- 26:51Speaker 1: more about their diagnosis and from other avenues and not
- 26:55Speaker 1: just from the parent or the clinician. And so I
- 26:59Speaker 1: love that we're getting just more and more of this available.
- 27:03Speaker 1: So I really appreciate what you guys are doing.
- 27:05Speaker 2: Thank you so much.
- 27:06Speaker 1: It's a huge help.
- 27:07Speaker 2: It's why we wrote them. We couldn't find exactly what
- 27:10Speaker 2: we were looking for when we were trying to find resources.
- 27:12Speaker 3: Yeah, parents ask all the time. Yeah.
- 27:14Speaker 1: Yeah, I get the question a lot too. So now
- 27:17Speaker 1: I have some more books to add to my recommendations,
- 27:20Speaker 1: which I'm really excited about. So I'll see everybody next time.
- 27:24Speaker 1: Take good care. Visit beautifully-complex.com for more resources, coaching, and
- 27:32Speaker 1: parent training. And help another kid by sharing this with
- 27:35Speaker 1: someone who could benefit from listening.