A Rare Collection - Easier Said Than Done
ONCE UPON A GENE - EPISODE 147
A Rare Collection - Easier Said Than Done
There's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme.
EPISODE HIGHLIGHTS
Katie Stevens, Executive Director of Team Telomere
It's back to school season which has me thinking about how the education system so often fails the most vulnerable children. In 2015, we moved from Idaho to Boston. My son was set to be the sixth patient in the world to undergo a clinical trial for people with…
The skinny
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