Latest / Health Ethics Podcast / Physicians' Stress & Burnout During the COVID-19 Pandemic
Transcript
- 0:10Welcome to the COVID Ethics Series podcast, a conversation with leading experts about bioethical
- 0:15issues that have been exacerbated due to the COVID nineteen pandemic. I'm Brian Pilkington,
- 0:21and I teach bioethics at Seatonhole University and at the Hackensack Marine School of
- 0:25Medicine. I moderate the COVID Ethics Series in cooperation with the IHS Library and
- 0:30IHS Student Life. This podcast is a spinoff collaboration with the IHS Library where
- 0:37we'll have the opportunity to go deep with the experts from our series. Thanks
- 0:41for joining our conversation. Hello everyone, and welcome to the COVID Ethics Series
- 0:57podcast. My name is Brian Pilkington. I have the great pleasure today of
- 1:00speaking with doctor Nancy Berlinger. Most folks will know doctor Berlinger from our previous
- 1:07COVID Ethics Series episode, especially her really nice work in the session on vulnerability.
- 1:11So doctor Burlinger is a research scholar at the Hastings Center, again which
- 1:17your audience is familiar with, the independent bioethics research institute based in Garrison,
- 1:21New York. Her current research focuses on ethical and societal challenges arising from population
- 1:26aging, the bioethics of migration, and responding to and learning from the COVID
- 1:32nineteen pandemic. I'm going to pick up on that last one for our conversation
- 1:36today, But first, Nancy, welcome, Thank you so much for doing
- 1:38this. Thank you, Brian. I'm really excited to be here. This
- 1:42is always an interesting and thought provoking opportunity coming to Seaton Hall. Even over
- 1:49Zoom, you know, you feel like you know you're there, and I'm
- 1:53just over in Manhattan, so I can practically see you. So so you
- 1:57know, let's have at it. Excellent and if you and your colleagues have
- 2:00done some really interesting work on occupational stress COVID nineteen, so that's what our
- 2:07conversation will be about today. You have two pieces hospital physicians perspectives on occupational
- 2:13stress during COVID nineteen, a qualitative analysis from two cities recently published in the
- 2:17Journal of General Internal Medicine, and a second piece I think that's just out
- 2:23protecting practitioners and stress systems, which came out in Perspectives in Biology and Medicine.
- 2:29So let's start with the study and background that would be helpful. Take
- 2:34us through sort of the basic arguments and then we'll come back and ask about
- 2:38what motivated the project. Fantastic, Okay, So what you're seeing here are
- 2:43some of the publications from a study that is led by Mara Bookbinder, who
- 2:49is a medical anthropologist based in the Medical School at the University of North Carolina
- 2:53at Chapel Hill. She's a bioethicist and an empirical researcher. And our project
- 2:59does called Steps the Study to Examine Physicians Pandemic Stress. And I will share
- 3:05a link to the project website so you have that for your reference because that
- 3:07has complete information, links to publications and so on. And it's really two
- 3:12studies. One is funded by the Making a Difference Grand Program of the Greenwall
- 3:15Foundation. The other is funded by the National Institute on Occupational Safety and Health,
- 3:22which is part of CDC. So we're going to be having even more
- 3:25publications coming out of this together. It's a four city study looking at perspectives
- 3:31from frontline doctors who worked in hospitals during COVID in New York, New Orleans,
- 3:42Los Angeles, and also Miami. So the first set of publications mostly
- 3:46deals with the data from New York, and New Orleans, so it will
- 3:49be especially relevant to a seat in hall audience, I think because the New
- 3:53York and New Jersey were part of that same initial search. So some of
- 3:57the things we talk about, you will find a resident with your own experience
- 4:02of you yourself were a frontline clinician in the Greater New York area. So
- 4:08what we did was we were interviewing about forty physicians, attendings and fellows in
- 4:14each of the cities. We looked at five different specialties hospitalists, internis critical
- 4:21care specialist, pomonologists, palliative care, and emergency medicine physicians. So this
- 4:28is you know, when you think of the COVID frontline, these are the
- 4:32professions you often think of. We had to exclude residents and students for reasons
- 4:39that had to do with their status, their teaching status, and it was
- 4:44very important to be able to say that this was a person who was acting
- 4:47as a physician the entire time. Although it was interesting when people talked about
- 4:51ways in which they used willing students and residents as volunteers, not in clinical
- 4:58medicine, but maybe following up with families or doing it work and things like
- 5:01that. So what we were aiming to do, and these were there was
- 5:05a huge push to understand what was going on in real time, so you
- 5:12know, all credit to the funders who had to respond very quickly to what
- 5:15people were talking about. So what we wanted to do. We collected these
- 5:19data in twenty twenty one, and we wanted to look at how the occupational
- 5:25crisis of chronic stress and burnout that was facing doctors and other clinicians, which
- 5:30we all know predated the pandemic. Understaffing was a thing, burnout was a
- 5:35thing. This wasn't, you know, hugely a surprise, but what happened
- 5:42to it in the crucible of pandemic of public health emergency and what are the
- 5:46lessons going forward, not just for pandemic but for ordinary working conditions. So
- 5:51what we wanted were those insights from the front line, beyond the heroes and
- 5:56the clapping and you know, the free donuts and things like that. What
- 6:00could we learn from people on the frontline. So we recruited this large array
- 6:05of physicians, We did interviews with them over zoom, we analyzed our findings.
- 6:14We have a team of that includes social scientists, physicians, remarkable advisory
- 6:18group of clinicians nationwide, and then we are now synthesizing and sharing our findings,
- 6:26which as you mentioned in the Journal of General Internal Medicine Perspectives in Biology
- 6:30and Medicine. We also had a peace in the Annals of the American Thoracic
- 6:35Society. We've done a number of webinars and there's going to be more to
- 6:40come, and we're just about to release an executive summary that includes our recommendations
- 6:46for a key audience, so you're kind of getting a preview of that.
- 6:48So this is very this is perfect timing. So some of the things we
- 6:53learned from from the clinicians themselves were that clinician well being has physical, emotional,
- 7:01and moral dimensions, including the perception that one is able to do a
- 7:06good job, one is able to do well by one's patients. So for
- 7:11clinicians, the idea of my personal well being and my idea of my professional
- 7:16integrity is intertwined. You're not going to feel good about yourself if you felt
- 7:20like you did a lousy job at work unless you are very compartmentalized. For
- 7:26clinicians practicing in continuously changing work environments, which is typical in healthcare, it's
- 7:31not just a pandemic thing. Picture in an emergency room. It changes all
- 7:34the time. Discerning how to provide good care under inherently stressful conditions is both
- 7:42physically taxing and emotionally taxing. Picture a person who's comes off of a being
- 7:48on service in hospital medicine, somebody who comes off shift in the ED.
- 7:53They're tired, but emotionally it's been tough. They have heard all sorts of
- 7:59stories, respond to things in real time, lots of data. It's not
- 8:01easy. Now. When clinicians perceive themselves as unable to provide good care due
- 8:09to lack of resources or other factors, they do not control, it severely
- 8:15undermines their well being. It might even be corrosive to their well being.
- 8:18They might feel that here I am trying to advocate to the very system that
- 8:24I feel is causing the harm. I'm in an impossible bind here. And
- 8:28so these conditions that impede good care create what we call moral stress for clinicians.
- 8:35We didn't make up this term. The philosopher of healthcare, Alan crib
- 8:39uses this term. He's one of the great innovators of empirical bioethics, but
- 8:43he initially in studies on the National Health Service in the UK under austerity.
- 8:50He said, what happens when the system itself is grinding the clinicians down.
- 8:54So it's not just moral distress this case or that case, it's the conditions.
- 9:01Imagine a big screw turning on top of people when you see the pressure
- 9:05that working under these conditions is causing. And it's not something that you can
- 9:09fix on your own, and you certainly can't fix it by somebody telling you
- 9:11you should de breathe or do some yoga or something that might make you feel
- 9:16a little bit better. It's not going to change the conditions. So this
- 9:20kind of stress is pervasive, routine, deeply embedded in healthcare work, and
- 9:24isn't something that you can make go away. And even just talking about it
- 9:28doesn't make it go away. It isn't just a mental health problem, go
- 9:33get some counseling or something like that. It has to do with the conditions
- 9:37of work. So responding to moral stress in medicine and in other areas of
- 9:41healthcare, though our study was limited to doctors, requires system level thinking,
- 9:46system level solutions. So what we were doing when we set out on this
- 9:52study is we wanted to use this lens that Alan Cribb had described to examine
- 9:56this crisis of professional well being looking at pandemic conditions. But again, as
- 10:01I said, looking moving forward, you know, how can we help people
- 10:05in systems under stress that are, let's admit it, focused on making money,
- 10:11cutting costs and improving patient outcomes, but are not necessarily set up to
- 10:16create optimal work conditions for people. What could we learn from this? We
- 10:22knew from our data that access to mental health and wellness programs, even when
- 10:26those were available, were not the whole of the solution as perceived by the
- 10:31doctors we interviewed. They were interviewed in other things that were bubbling up during
- 10:37the pandemic, such as mistrust of healthcare information. How did you deal with
- 10:41that when people didn't trust you? But also things that were internal. So
- 10:46I'll stop there before I get to some of our recommendations and see if there
- 10:50was anything else based on what I said that you want to explore a little
- 10:52further. Nancy, super helpful. A couple of minor things and then maybe
- 10:58some big picture ones. We have a very diverse audience, folks from all
- 11:03walks of life who tune into the COVID ethics series, but we always face
- 11:05pay special attention to our nursing and health profession students hall and also our medical
- 11:11students of the Hagenzeg Writing School in Medicine for students. Just sort of quickly
- 11:16and you do this nice and the second piece, but could you explain empirical
- 11:20bioethics and connect it up to transitional bioethics, sorry, translational bioethics, right,
- 11:26just so they know what we're going through exactly, exactly, Okay.
- 11:30So empirical bioethics is the use of empirical methodologies like surveys, interviews, focus
- 11:39groups, many other methods that we associate with social science research, public health
- 11:43research, many other forms of research where we're collecting data to answer a question
- 11:48about values, what should we do question? Or here are the issues that
- 11:54keep me up at night. You can't just make an argument about them or
- 11:58change your perspective. You need to actually understand what's going on on the ground.
- 12:03So when we interview doctors to try to generate recommendations about what people in
- 12:09their systems should do to support this workforce, we're doing empirical bioethics. So
- 12:15it's just it's a term that just differentiates it from just purely conceptual work like
- 12:22what is the nature of moral you know, intuitions or something like that,
- 12:26which is important conceptualizing, but it isn't it doesn't. It keeps it very
- 12:31street ready, It keeps it real. You're you're listening to those voices and
- 12:35you're you're, but you're you're taking it through a lot of processes. The
- 12:39interviews alone, you could wind up with eighty different suggestions. If you talk
- 12:43to eighty different people. You have to then analyze it. You code it,
- 12:46You say, okay, what are these people talking about? Who emphasized
- 12:48what? You analyze it together with your team and also with your advisors,
- 12:54which include social scientists which include experts, and occupational health which include working doctors,
- 13:01working nurses who can give you that reality perspective, and then you synthesize
- 13:05it into recommendations going forward. What's a good course of action? Now,
- 13:11sometimes you might say, we need to understand this problem better, but we
- 13:15like to go beyond calling for more research, you know, just let's perpetuate
- 13:18the lives of researchers and to say what would be an opportunity for positive social
- 13:26change? How can we improve the lives of the people. We're talking about,
- 13:30how can we honor that. So when we also talk about socially engaged
- 13:33research, we talk about looking about the people who are the sources of your
- 13:37data as more than just places to get data from. You're trying to deliver
- 13:43value back to them. So I think the sense of being very true to
- 13:48our informants really animates this project. A lot of people on this project teach
- 13:52in medical schools, so that's important to them. They don't want this to
- 13:56just be a set of lessons. They want to say, we're trying to
- 13:58make things better by the time you hit the wards now. Translational bioethics translate.
- 14:05That's kind of a Translational is a term that often modifies other different things,
- 14:11but the idea of translational usually means you're taking insights from one field and
- 14:16you're making them more comprehensible to a different field. We often talk about translating
- 14:22for the public. For example, if you go to an NIH website,
- 14:28you'll see you can click into for professionals for patients. That's kind of a
- 14:31way of translating. You're saying, well, the patients don't always have to
- 14:35know the precise titration or the chemistry. They need to know, what are
- 14:39the symptoms I should the side effects I should look for? How will this
- 14:43make my life better? So that's a kind of translation that we do.
- 14:46But translational bioethics usually means you're taking something from a clinical sphere and making it
- 14:54more discernible to another audience. So I think in this particular and in that
- 15:00particular paper, what we are trying to do is take things from a pandemic
- 15:03context, from a place that obviously looks really stressful, and to say,
- 15:09going forward, how can we bring these findings into the mainstream of efforts to
- 15:15improve healthcare? QI has been a longstanding activity, and healthcare people are supposed
- 15:20to be involved in continuous quality improvement. How do we bring improvements to the
- 15:24work environment to bear on work to improve patient outcomes as well? Because you
- 15:31know, I think if you talk with any doctor, any nurse, they'll
- 15:33say, if I'm under severe stress and feeling I'm not doing a good job,
- 15:37how can that be good for patient outcomes? I can't magically make things
- 15:41great for a patient if I actually think I lack the tools and the resources
- 15:46to do my job properly, and thank you both super helpful and thinking about
- 15:54well makes a lot of sense. We're actually talking about this in the undergrad
- 15:56bioethics class the other day. The importance of trends two folks in different disciplines
- 16:03and different backgrounds, and the explanation of empirical bioethics, which we're talking about
- 16:07a different class folks who also listen. Is super helpful. Anything nicely connects
- 16:11up what you've written in the paper sort of highlighted the importance of social theory
- 16:17and the possibility of addressing big systems when we need to make change. So
- 16:22super helpful. Let's pick back through this, but let's jump to the recommendations.
- 16:26Okay, So here are I'm going to give you some a set of
- 16:32recommendations. But I want to also remind everyone that when you make a recommendation,
- 16:37you have to picture the person you're making the recommendation too, so they're
- 16:41not the recommendtion dation to the air or the recommendation. Well, if we
- 16:45don't have universal health care, nothing good can happen. Well, you could
- 16:48wait a long time in the United States for that to happen, and that's
- 16:52not realistic. I'm very realistic about things and to say, Okay, I
- 16:56love my colleague Matt Winnie at and your colleague Matt Winnie at the University of
- 16:59Colorado. He's a physician and a bioethicist and an expert on professionalism in healthcare.
- 17:06And he'll say, I'm a pragmatist who leans toward justice, and that's
- 17:10what I try to do. I try to be very realistic in my recommendations.
- 17:14Even though I'm not a clinician and I don't work in a hospital.
- 17:15I've spent a lot of time in clinical settings, and I've taught nurses at
- 17:22Yale, and I've served on a bioethics committee in the least healthy county in
- 17:29New York State for many many years. And it's also the poorest county New
- 17:33York City in the Bronx and a little shout out for the Bronx, And
- 17:37so keeping it very real is important to say what it really is. An
- 17:42odd implies can situation. Any recommendation has to be something that the person receiving
- 17:47the recommendation could actually do, and also that it doesn't silo them off from
- 17:52other good stuff that could be happening. It doesn't make them loading them up
- 17:56with things and saying, wait, there's this other person who they should be
- 18:00collaborating with and we should know that rather than say you have to do everything.
- 18:04So one group that we learned about through our advisory group, in fact,
- 18:11was the idea of chief wellness officers. This is something that some hospitals
- 18:15have instituted to keep an eye on the health and well being of their workforce.
- 18:23It tends to be you tend to find chief wellness officers in academic medical
- 18:27centers like Northwestern or Mayo or Stanford. Not quite clear how this role is
- 18:34working in say, public hospitals, you know, because somebody had to invest
- 18:41in this, somebody had to make this work, but it is. I
- 18:45was invited to give a talk to the Champions of Wellness summit. There's this
- 18:51big summit that they have, and there were thousands of people, literally,
- 18:53like four thousand people on that call. So not everybody has to have the
- 18:59title chief wellness officer to be a person who works in the wellness space.
- 19:03So I thought that was really interesting. And wellness and well being, you
- 19:07know, some people use one, some people use another, so I'm not
- 19:10worrying too much about that. So we realized that it was smart to think
- 19:14of that person or group in a hospital as the audience for our recommendation.
- 19:22So that's what we had in mind. So sometimes we're also thinking of unit
- 19:26level chiefs because a lot of people talked about how important, even if they
- 19:30felt kind of alienated from the system in which they worked, they felt that
- 19:33their chief heather back and so like, how can you strengthen that role as
- 19:37a mentor and as a as a convener. So now I'm going to just
- 19:42give you an example of some research insights. I'm going to connect them to
- 19:47where an example from the data, and then say, and how does this
- 19:52generate a recommendation going forward? So it gives you a little tiny like research
- 19:56workshop here. So the int that we got out of the data that people
- 20:02talked about a lot was that they and this is all the COVID context,
- 20:06that they had intensified feelings of powerlessness. They felt they were unable to do
- 20:11their jobs well due to medical uncertainty, inadequate family presence for patients, because
- 20:17of visitor restrictions. I have a dying patient here and there's no family and
- 20:22resource constraints, it was harder to do a good job. One doctor said,
- 20:26here's just a quote that you tend to bring when you write things things
- 20:30up, you tend to look for quotes that illustrate your point, and one
- 20:33said I had a crisis of confidence. I didn't know what to do for
- 20:37my patients. It was really interesting to hear some people say things like,
- 20:41look, I just passed my boards, so I know how to do things
- 20:45by the book. And during COVID, I was being told we'll throw out
- 20:48the rules. It's all new. I didn't know how to do that yet.
- 20:52You know where some of the more experienced physicians were like, Okay,
- 20:55I decided to go into the ED. I'm used to changing situations. It
- 20:59was easier for me to do this than I could see that it was for
- 21:02some other people. But I think this was a big reason why people felt,
- 21:06yeah, we really do have to keep students and medical residentis out of
- 21:11this. They have not had enough experience to not be overwhelmed by some of
- 21:15these situations. But even people who were well established could say, wow,
- 21:18this was really tough to pivot so quickly, so the recommendations how do we
- 21:25go from this? And rather than say wow, this was really tough to
- 21:27say, what should we do better? And you tend to write recommendations with
- 21:33an active verb at the beginning of this. So commit to learning from physicians
- 21:37about the institutional factors that impede their ability to provide good care. Ask them
- 21:44about what the system itself could do better. Don't just say wow, what
- 21:48did you do wrong? It's like, what could the system? Where did
- 21:51the system not have your back? And promote quality improvement research QI research on
- 21:56workplace conditions that impede good care. Saying QI is about patient care, but
- 22:03it's about the clinician's role in patient clare the clinician's own work environment. This
- 22:10has if you look at the really important research, like the checklist research on
- 22:15what prevented certain kinds of central line infections, it had a great deal to
- 22:21do with people feeling confident that they could do all of those things. They
- 22:25knew they knew the right way to do it, and all the resources were
- 22:27there, all the equipment was there. They didn't have to go looking for
- 22:30things. So that's really people are just saying the same thing. Another research
- 22:34insight was that compliance with institutional policies and processes that prevented or undermined good care
- 22:44evoked very strong emotional responses a lot of this centered on visitation policies that people
- 22:49felt they could see, Okay, we need to keep patients and families apart
- 22:56because we cannot risk infection. And we're talking about people were recalling what it
- 22:59was in March twenty twenty, like, I get that, but some policies.
- 23:03People said, okay, my hospital had a policy that said it could
- 23:07be end of life only, and they said, as we began to know
- 23:11more about how to treat COVID effectively, the policy seemed to perversely incentivize a
- 23:18family to forego treatment so that this patient would be quote end of life comfort
- 23:25care. And this doctor said, I actually advocated for a policy change and
- 23:30was successful in that because I don't think that people writing the policy foresaw that
- 23:34we were seeing on the clinical floor the difference when people were actually able to
- 23:41improve, and so we didn't want to say only people who are going to
- 23:45die deserve family. These other folks were still very, very sick, and
- 23:51so that was something that a very astute physician said, wait, wait,
- 23:55there's a policy problem here. We also heard people saying things like well,
- 24:00it really helped that a lot of the bullshit went away, like the idea
- 24:03of all of the like the projects that you never were sure what the point
- 24:07was. They said, nobody asked me to document my productivity. It was
- 24:11pretty obvious I was being very productive. So people were worried, like,
- 24:17how's that stuff going to creep back in? Like these these you know,
- 24:19these these compliance things. We understand certain kind of compliance, but we don't
- 24:23We never got the meaning of some of these other things. So the recommendations
- 24:27would be to solicit frontline clinicians input when you're developing patient care policies and processes.
- 24:34Don't just drop the policy on the group that's meant to follow it without
- 24:38getting their input all the way through to say, look, this is and
- 24:42I definitely hear this from nurses because nurse and this is from prior work.
- 24:47They'll say, well, if something doesn't work, we're going to feel like
- 24:49we have to work around it. It's not it doesn't match the field conditions.
- 24:55So that's something just really important to say. Even if you're like,
- 24:57oh no, it's going to be back to the drawing board, you should
- 25:00be evolving the group who you expect to implement this, and also requesting feedback
- 25:07from those chiefs regarding the impact of policy changes. To say, higher level,
- 25:11how's this working in your unit? When you're looking across all the people
- 25:15involved in a team, is this working or is this just getting in somebody's
- 25:19way. Another thing that people felt strongly about where just evidence of inequities.
- 25:26Sometimes people even felt complicit, They felt dirty in perpetuating injustice when institutional practices
- 25:33reflected bias as or perceived that they reflected bias or seemed unfair in how resources
- 25:41were allocated. Now, this is again not a brand new issue. Anybody
- 25:45who treats undocumented immigrants, which is an issue I've studied for a long time,
- 25:49feels this. They said, I've got two patients, they have the
- 25:53same needs, it's the same medical standard, and I have to practice to
- 25:57a substandard care in for one of these patients because they're uninsured and uninsurable.
- 26:03I do not feel good about this. This does not I cannot reconcile this.
- 26:08And so in the COVID context, some physicians were concerned that race based
- 26:15diagnostic algorithms contributed to racial disparities because they said, these biases we worry about,
- 26:22we worry about biased data informing these algorithms. We know that certain people
- 26:27because of social inequalities come in with health disparities. We worry that the algorithm
- 26:33is not recognizing this very well. And yet it was very difficult because if
- 26:37you had two people who were very very ill, it might be really hard
- 26:42to make a judgment about who had a slightly better outcome and who was You
- 26:48know, it was very very for people, and we did have all the
- 26:52research findings that we have by now. So this was people recall in twenty
- 26:56twenty one, recalling twenty twenty they did not have lots of data to draw
- 27:00on. Now we know that ninety percent of people who died of COVID were
- 27:07older. We know that that was the single biggest risk factor, was being
- 27:11older for various different reasons, it had COVID hit your system very hard.
- 27:15But at the moment, people were trying to make judgments involving two different patients.
- 27:19So thegnition, the recommendation is that the chief wellness officer who's ever thinking
- 27:26about these should recognize that feelings of complicity are corrosive to well being. If
- 27:32those feelings are present, all the mental health strategies in the world are not
- 27:37going to overcome what people see as a systemic injustice. So it's going to
- 27:41be very important to have those clinician perspectives in any institutional efforts to mitigate health
- 27:49disparities. That should be some separate activity that is being carried out somewhere.
- 27:55You need to basically say, well, these are the people who are saying
- 27:57this is injustice. How I see it now, Maybe this is This could
- 28:02be a misperception in some cases, and the care standard is good, but
- 28:06there it is important to hear that that clinical voice some patients, especially,
- 28:11I think in the sample from New Orleans, because that we took that a
- 28:15little bit later, and vaccines had already come in by that point, and
- 28:19so people because because we had delta, we had omicrons. So people were
- 28:23reacting when we were talking with them. They weren't just looking back. They
- 28:26were saying, here's what's going on right now. We couldn't you know,
- 28:30when you write a grant, you don't know what an epidemic is going to
- 28:33do. You don't know what a pandemic's going what twists and turns are going
- 28:36to be. And so we we had some of our informants talking about rising
- 28:40mistrust often directed at clinicians that led to feelings of anger and frustration. Now,
- 28:47before the pandemic, we heard a lot about incivility UH nurses being bullied
- 28:52by family members. There there have been big efforts to to to to focus
- 28:57on this, even also between professionals, but this was also something new.
- 29:04So, you know, one doctor said, you know, I feel frustrated
- 29:07and angry when patients just tell me that the thing that they have isn't real.
- 29:15I mean, how can I treat them? And how can I even
- 29:17do this work? It's so difficult. So going forward, we didn't want
- 29:22to just call for more training. There's lots of training. We want to
- 29:26acknowledge that mistrust is a societal phenomenon. It's going on throughout the United States,
- 29:30questioning of institutions driven by media that is new and ever evolving. It
- 29:37will continue to affect clinicians, encounters with patients and families. This does happen
- 29:42in other countries as well. Although some countries where we look at systems that
- 29:47we think, wow, they get really good outcomes, there's often higher trust
- 29:51in public health authorities. So we can't magically create the conditions in Denmark,
- 29:56for example, in part because we don't enjoy that level of trust. But
- 30:02there are other countries where people say, yeah, we are not getting the
- 30:04deference we used to get as professionals, but we are also just not being
- 30:08trusted in part because people see the consequences of cost cutting and they know being
- 30:15rushed out of the hospital and things like that. So there are other things
- 30:18that people are Some of these experiences that people have had with hospitals are affecting
- 30:22their individual patient encounters. So we want that audience that we're writing for to
- 30:27contribute to wider institutional efforts to build trust with patient populations and to help frontline
- 30:34clinicians respond to misinformation and with mistrust. This is something that has to be
- 30:40going on. It's connected to DEI work, it's connected to equity work,
- 30:44it's conted connected to translational writing for the public, things like that. It
- 30:49isn't just something that is only isolated around wellness. And of course we heard
- 30:55about workarounds my favorite topic of something that I've written about a lot, because
- 31:00what you saw during a public health crisis was the clinicians improvising practices. They
- 31:06were managing new or intensified workflow challenges and not surprisingly coming up with a fix
- 31:12even if you knew it wasn't a magical solution tended to make you feel less
- 31:17stressed, you felt more in control of the situation. And there was a
- 31:21lot of this that was going on. I mean, some of our original
- 31:23assumptions about intubation didn't weren't panning out. And then it was seen like,
- 31:29wait, no, no, no, we should position some of these patients
- 31:30differently, whatever their oxygen reading is, We shouldn't intubate everybody. Some people
- 31:36are doing better in other ways of supporting their breathing. So there were and
- 31:41then you'd get a new set of clinical guidelines based on what field conditions were.
- 31:48One physician, for a non clinical example, worked with their hospital IT
- 31:52staff to develop a system to track family contacts because you know, you had
- 31:56all of these people, you need to be able to follow up with them.
- 32:01They couldn't visit. They had critically ill family members and they couldn't visit,
- 32:06so you wanted to get every bit of family information you could. But
- 32:09then say, well, look, we've got willing doctors who don't have the
- 32:15frontline skills. They're physicians, they know how to handle medical information, though,
- 32:22so why don't we ask them to make the calls so they'll be able
- 32:27to look at the chart, talk with the family member and give them updates,
- 32:31and this proved to be really important. We heard many variations on this.
- 32:37Another doctor said I made a job for myself. She was normally an
- 32:39outpatient physician, but she said, we had these relatively young fellows and attendings
- 32:46dealing with a volume of dying and death that they would never have experienced normally
- 32:52at this stage in their careers. I could not also ask them to make
- 32:55these phone calls. So I put together the big list of the patients who
- 33:02were the most critically ill, and I said, I will make those phone
- 33:07calls for you. And you know, it was very difficult because the volume
- 33:12of mortality and morbidity was so high that sometimes I was letting a family know
- 33:15about a death. And she really saw that as relieving, taking weight off
- 33:22the younger front line. And so you heard a lot of people doing things
- 33:27like this. This wasn't a typical procedure. It wasn't I am the doctor
- 33:31responsible for your care there before, I must inform you. Because the volume
- 33:36was too high, and also the experience was mismatched, so you saw people
- 33:40with experience and more time stepping up. It was really remarkable. So One
- 33:46of the things we want to do as a recommendation is because workarounds tend to
- 33:51be improvised, unofficial, sometimes they're kept a bit secret. Is lift up
- 33:57these what people were doing to solve problems. Recognize these practices that people use
- 34:04to manage new or intensified workflow challenges. Study these practices and their outcomes as
- 34:09potential sources of practice innovation. Every innovation starts as a departure from a standard.
- 34:15We don't want to keep things secret. And when I've given various talks
- 34:17about this at other hospitals, people have said, I worry that we're going
- 34:22to lose our workaround knowledge, our practical knowledge, our frenesis, you know.
- 34:25Aristotle talked about this, you know, But we don't want to just
- 34:29drive that underground, because we figured out some things and let's study them properly
- 34:34and let's talk about them. And finally, one other category that people talked
- 34:38about was the community of practice. They said, my immediate colleagues, my
- 34:45teams, my unit level relationships were a source of strength that sometimes offset the
- 34:52harms of when we perceived our leaders being inattentive to our frontline needs. We're
- 34:59like, there's a disconnect between the C suite and the frontline. But we've
- 35:02got each other. We're here for each other, being tight knit. We've
- 35:07heard examples like stepping outside and eating lunch together, little check ins. We're
- 35:14very very important for people. So, you know, the recommendation is create
- 35:19opportunities for clinicians to explore the causes of moral stress in their particular work environments,
- 35:25what goes on in the ED, what goes on into the ICU,
- 35:29so on, and to share those promising practices. Here's what helps us to
- 35:34keep it together in our setting. How do we share those insights with other
- 35:39teams, with other units, you know, and not everything that works in
- 35:44the ICU is going to work in the ED, but there may be some
- 35:46insights within a system that could be very helpful. And then and of course
- 35:52we've also seen in some hospitals have invested in reflection rooms or places where people
- 35:59can go and just chill. I happened to be in a hospital in the
- 36:04New York area for another reason, but I'm seeing all this, these beautiful
- 36:08posters about these these these reflection rooms where people can just go and relax,
- 36:14and they're very peaceful, and there's music and the idea is is kind of
- 36:19like a little a little oasis and then you step back out into it.
- 36:22It's it's it's part, it's not hard to get to, it's right there,
- 36:27and it's a little something. And it reminded me of our data because
- 36:30one of our physicians was saying, you know, I kept thinking about this
- 36:36the TV series Mash from the seventies and eighties where people would go on R
- 36:40and R and they wanted to get ping pong tables and pizza ovens and things
- 36:45like that, because I really had to tell people the solution for burnout is
- 36:50not working more it's forced ressed. You know, it's I really need you
- 36:54to come off the line. I really need you to just you know,
- 36:58shoot pool or something, which is like how do I write the budget for
- 37:00the pig pong table? Like who's going to give me that? You know?
- 37:04But I honestly feel in my bones that's what people need. So I
- 37:07thought that was quite interesting and some hospitals are trying to figure that out,
- 37:13and we need to think about ways that leaders beyond the investments in spaces,
- 37:22also to help unit leaders learn how to be mentors, to understand the nature
- 37:30of the leadership role. To cultivate these unit level cultures of inclusion and well
- 37:35being an advocacy rather than saying, oh, that person's a natural leader,
- 37:40how do how do we help everybody step up into that role and also maybe
- 37:45encouraging periodic forums for discussion between the frontline and hospital leadership. I have seen
- 37:51this work. I've seen in the ethics committee that I'm on. I saw
- 37:54a previous CEO rotate through all the committees and and just basically listen and like,
- 38:01yeah, take complaints and things like that, and basically say, okay.
- 38:06It did help that that this particular CEO had started in that hospital as
- 38:12a resident and knew the system all the way through and and so there was
- 38:15like a one of us kind of a feeling. But we don't want to
- 38:19brand these as complaint sessions. You know, oh, here they're going to
- 38:22gripe at me on and on and on there there. You know, could
- 38:25be different in different hospitals, but let's make sure that leadership is encouraged.
- 38:31Some people call it management by walking around to understand what is actually going on.
- 38:37It isn't just about more blue ribbons and more and more. We've we've
- 38:42we've we've opened more facilities, because that's a big thing in healthcare. You
- 38:45know, a lot we see that all over the New York region. We
- 38:49see lots of hospitals branding themselves as you know, we're now all of North
- 38:53Jersey, or we're we're practically in Canada. We've gone so far north,
- 38:58you know. And and that's a thing that's really important in the C suite.
- 39:01You know, if you're not building your dying, but the front line
- 39:07in their facility may be like, I don't see any of that flowing my
- 39:10direction. I don't see it flowing toward my patients. So that's part of
- 39:14fidelity, that's part of understanding inside of an institution that you need to tell
- 39:17a coherent story about where this system is going. So those are you have
- 39:22now just been given hot off. It's not even on the press, just
- 39:27the first sneak preview of these recommendations that we will be releasing soon. So
- 39:32I offer that to you and of course welcome any questions. Nancy, thank
- 39:37you as always a masterclass in bioethics. And I'll have one short question as
- 39:44to where you're going. But I know we're getting tight on time. But
- 39:46for our audience, especially for our students. And this is quoting from Protecting
- 39:52Practitioners and Stress Systems. You note that doing bioethics, you and your college
- 39:57doing bioethics in twenty twenty two requires systems thinking and multidisciplinary collaboration to address the
- 40:04multi dimensional and intersectional problems of our contemporary world. Of course, everyone should
- 40:09read the pieces and we'll get the links up to sort of the other work
- 40:14that's coming out. But oh my gosh, we've got workarounds. Right,
- 40:17you've just touched on which is my favorite book of viewers. You know,
- 40:21the twenty sixteen from Oxford are workarounds ethical. I forget the subtitle, which
- 40:25is excellent. We've got a discussion of the importance of taking seriously feelings of
- 40:30complicity, which can be corrosive to well being. How we can't do this
- 40:35unless we have on the ground, lived experience information right in the big research
- 40:37project you have connecting to clinician perspectives, concerns about mistrust. We've been a
- 40:44Aristotle, right, we made my day. So there's so much here,
- 40:46and I think it's such an excellent illustration of how empirical bioethics can be translated,
- 40:52but also just how we should do bioethics now, so this was wonderful.
- 40:57The question I'll get you out is and you might have already answered this
- 41:01because this is really cutting edge, right, not even how off the press?
- 41:05But what's next? Both for this project? What's your next project?
- 41:08What can we look forward to after we read through this work? Okay,
- 41:13well look for look for the public published version of this coming out from the
- 41:17Hastings Center and u NC in early twenty twenty three. I'm going to share
- 41:24the link to the project website where you can get links to every single thing,
- 41:29so you'll you'll get that as well. And again the project is called
- 41:32STEPS, so you'll see that as an acronym. And so they and the
- 41:37work that is funded by Niosh continues in twenty twenty three, where so there
- 41:40will be more publications based on our data from LA and from Miami. And
- 41:45the audience there is is focused on occupational health learning. So they're in addition
- 41:51to people who do think about well being, think about bioethics, think about
- 41:54those things, we also have people who are looking at at health and safety
- 42:00in the workplace. It's a very different audience, you know when you look
- 42:04at their publications, like some of them are like hospitals, fisheries or something
- 42:08like, wow, bad stuff can happen to you, you know, on
- 42:13fishing boats. And so it's very practical about what are the risks of this
- 42:17workplace. And it's been really interesting to have advisors who come from that world
- 42:22and to learn about what's helpful. And I think so I think we're going
- 42:27to be hearing a lot about different conferences and webinars and opportunities over the years,
- 42:30So we'll definitely be pushing that stuff out as well. And I think
- 42:34it's good for people in bioethics to know about this that to know that there
- 42:37could be, you know, an occupational health research center in the place where
- 42:42they're working that's interested in these issues. So that's great. And then in
- 42:46terms of other things that are going on that people may be interested in,
- 42:50I will also be sharing the website for Bioethics for Aging societies, because a
- 42:55lot of my work focuses on the ethical and societ i consequences of population aging.
- 43:04A lot of our work focuses on either dementia or on housing. So
- 43:07we just released a huge report on housing equity that comes from COVID data.
- 43:13We're having our last webinar on Thursday, December eighth, very exciting. Anybody
- 43:17is welcome to attend and I'll send the links for the report in the executive
- 43:22summary. We have a follow on project funded by the Greenwall Foundation that is
- 43:25going to be looking at trying to cut some of these Gordian knots in policy,
- 43:30with a lot of policy makers that are involved saying why can't we build
- 43:34the housing we need in an aging society? What's this about? And so
- 43:38my mother is eighty eight and lives in Bergen County, so I see this
- 43:43every day. You know, we built the suburbs that people moved to in
- 43:45the fifties and sixties and seventies. We have millions of people aging in place
- 43:51in these places, and we don't have the right kind of affordable, accessible
- 43:54housing that people need. And meanwhile, these are people who've been paying taxes
- 44:00to support school systems for you know, sixty years, so they have paid
- 44:06into that system in addition to Medicare and social security. So bringing that into
- 44:09bioethics is a passion of mine. We also have a project also funded by
- 44:15the Greenwall Foundation, another shout out to them, called Bioethics and Community Health
- 44:21This is a collaboration with my Hastings Center colleague, Carolyn Nuhouse, who's a
- 44:24philosopher, and with our colleague at Albity Medical College, Johannah Crane, who's
- 44:30a medical anthropologist, and they conceptualize a group of projects that work with federally
- 44:36qualified health centers, which are primary healthcare clinics for people who face barriers to
- 44:42healthcare, very frequently led by nurses, nurse practitioners, lots of social workers,
- 44:46lots of community health also lots of physicians and pas, but nurses are
- 44:51very prominent in FQHCs, very exciting to work with them. This is the,
- 44:55I believe, the fourth project that we're working on, and we want
- 45:00to answer, through surveys and interviews, the question what keeps community health providers
- 45:07up at night? Because that's how we're framing the idea of ethical challenges.
- 45:10We're not saying, tell me about your bedside deliberations. There's no bedside,
- 45:15no sleepover in the FQHC. But that doesn't mean this isn't a morally complex
- 45:22environment. So this is going to be a big, interesting project. We're
- 45:25at the beginning of it. We have a lovely website that talks about all
- 45:29of our work in community health and immigrant health, because immigrants are a major
- 45:32population in community health. And yeah, we definitely want to hear from people
- 45:37who are interested in this kind of work. So you're going to get Oh
- 45:42and one more thing I want to tell you about. We have a project
- 45:45from the National funded by the National Endowment of the Humanities called The Meanings of
- 45:50Dementia. This is producing a volume of new essays about what dementia means in
- 45:58aging societies. It's at its beginning phases. We have a very very diverse
- 46:02group of authors. Look for that coming out probably in twenty twenty four.
- 46:07But that's another interesting thing that's underway right now. Again not just about a
- 46:14person who lacks capacity, but about the lived experience of dementia, which has
- 46:19a long trajectory and has mostly lived in the home and the community. What
- 46:22does this mean for societies? Does our vision of a good society include people
- 46:30living with dementia and people who are providing dementia care. I now have my
- 46:36reading list for the next couple of months. That's wonderful And it's actually just
- 46:40before chatting, I was teaching class with my wonderful colleagues in the College of
- 46:45Nursing on dimension these considerations, so I know they will be super interested.
- 46:50I don't like to make sure they look out for twenty twenty four. So
- 46:52great, Tonanzy, thank you so much for the time today. Thanks to
- 46:55everyone for tuning into the covid Ethics Series podcast with Nancy Burlinger Research Dollar at
- 47:00the Hasting Center. Nancy, it's always great to chat with me. Thank
- 47:04you so much. Thank you, Brian, thank you everybody. This is
- 47:07great. Thank you for listening to this episode of the covid Ethics Series podcast.
- 47:15Be sure to check out video versions of our episodes online at library Shoe
- 47:20dot edu slash covid ethics, follow the show on Twitter at Shoe Bioethics,
- 47:25and our moderator me at bcp ethics. And if you're listening to this show
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- 47:37leave a review. If there's a topic you'd like to see discussed in the
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