Latest / The World Knowledge / The Stranger Who Restored My Faith
Transcript
- 0:00Speaker 1: Well, good afternoon, listeners. Thank you so much for listening
- 0:03Speaker 1: to Lament of Hope podcast. As you guys know, we
- 0:07Speaker 1: are nearing our 300th episode, which is amazing. And so
- 0:12Speaker 1: many people from around the world with different struggles and stories.
- 0:16Speaker 1: And it's all because of you guys and your support.
- 0:18Speaker 1: So I'm super grateful. I feel like I have to
- 0:21Speaker 1: say that every time I start because I just it
- 0:23Speaker 1: always blows me away when I think about it.
- 0:24Speaker 2: Oh, my gosh. Yeah. the doctors were diagnosing me with
- 0:34Speaker 2: strange things and treating the symptoms that I had completely
- 0:44Speaker 2: different than what's standard care for my illness. And, um,
- 0:50Speaker 2: unfortunately they are also, it was so inconsistent. There will
- 0:54Speaker 2: be days where they would skip medications. Uh, I was
- 0:59Speaker 2: supposed to be in rehab regularly. I was unable to
- 1:02Speaker 2: even sit up and, um, they would not show up
- 1:06Speaker 2: to do the rehab. Uh, they would. And part of
- 1:12Speaker 2: it too was, it was during, it was kind of
- 1:15Speaker 2: at the end of the crazy COVID. But if anybody
- 1:19Speaker 2: in the hospital got COVID, then it was like everything
- 1:23Speaker 2: kind of shut down and it was slower. And I
- 1:27Speaker 2: think a lot of the, even the nurses where I was,
- 1:31Speaker 2: they were kind of hesitant to do some things. There were,
- 1:35Speaker 2: I did have a couple of great nurses when they
- 1:37Speaker 2: were on I felt a lot more comfortable and I
- 1:41Speaker 2: knew that I would have a better day, but there
- 1:44Speaker 2: were other ones. I mean, it was, I couldn't go
- 1:50Speaker 2: to the bathroom and, you know, I would have a
- 1:54Speaker 2: diaper and I had, you know, a nurse come in and,
- 1:58Speaker 2: was complaining that she had to change me. And it's
- 2:02Speaker 2: just like the whole time and then brought somebody else
- 2:04Speaker 2: with it. And then they were talking back and forth
- 2:06Speaker 2: about it. And I mean, just these really demeaning, uh,
- 2:11Speaker 2: experiences that can happen. And, uh, It took me a
- 2:15Speaker 2: while to gain enough strength to be able to advocate
- 2:18Speaker 2: for myself and to be able to get out of there.
- 2:23Speaker 2: And we just, again, with the education, teaching people how
- 2:28Speaker 2: to advocate for themselves is something that needs to be done.
- 2:32Speaker 2: And it's so hard when you're facing an illness, when
- 2:35Speaker 2: you're not feeling good, when you're drained of energy, you know,
- 2:39Speaker 2: it's hard to speak up for yourself and, you know,
- 2:44Speaker 2: you really drained a site and we're just, we're really
- 2:54Speaker 2: lacking in some areas and that could make the difference
- 2:59Speaker 2: in saving hundreds and thousands of lives. I actually got
- 3:03Speaker 2: an email this morning saying that Canada just topped off
- 3:06Speaker 2: over a hundred thousand euthanasia deaths. And just think like
- 3:13Speaker 2: that is, The number of people dying is staggering. And
- 3:20Speaker 2: there are so many patients who outlive a prognosis. You know,
- 3:27Speaker 2: prognosis is terrifying. When somebody gives you a timeline, a
- 3:33Speaker 2: date that you're supposed to die by, that is this
- 3:36Speaker 2: daunting thing that just hangs over you.
- 3:40Speaker 1: Yeah.
- 3:41Speaker 2: You know, and talk about compounding fear.
- 3:44Speaker 1: Yeah.
- 3:48Speaker 2: And when you look at it, a prognosis is an
- 3:53Speaker 2: educated guess. Bless the doctors that try to give you
- 3:57Speaker 2: as much information as possible. That is wonderful. And it's needed.
- 4:00Speaker 2: There needs to be transparency in medical care. But what
- 4:05Speaker 2: people need to realize is that, like for me, my
- 4:09Speaker 2: prognosis is based on like the standards of like path
- 4:16Speaker 2: that the disease will take. But so many illnesses don't
- 4:22Speaker 2: take a standard path. Like I said, things switch like
- 4:25Speaker 2: the flick of a light, you know, all of a
- 4:29Speaker 2: sudden things look so dark. And the next day you're like,
- 4:33Speaker 2: Oh my gosh,